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'Information is information': a public perspective on incidental findings in clinical and research genome-based testing.

Daack-Hirsch S, Driessnack M, Hanish A, Johnson VA, Shah LL, Simon CM, Williams JK.

Clin Genet. 2013 Jul;84(1):11-8. doi: 10.1111/cge.12167. Epub 2013 May 3.


Genomic test validation for incidental findings.

Park JY, Fortina P, Kricka LJ.

Clin Chem. 2014 Feb;60(2):292-3. doi: 10.1373/clinchem.2013.210609. Epub 2013 Jul 1. No abstract available.


Societal preferences for the return of incidental findings from clinical genomic sequencing: a discrete-choice experiment.

Regier DA, Peacock SJ, Pataky R, van der Hoek K, Jarvik GP, Hoch J, Veenstra D.

CMAJ. 2015 Apr 7;187(6):E190-7. doi: 10.1503/cmaj.140697. Epub 2015 Mar 9.


Availability of treatment drives decisions of genetic health professionals about disclosure of incidental findings.

Turbitt E, Wiest MM, Halliday JL, Amor DJ, Metcalfe SA.

Eur J Hum Genet. 2014 Oct;22(10):1225-8. doi: 10.1038/ejhg.2014.11. Epub 2014 Feb 5.


"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.

Townsend A, Adam S, Birch PH, Lohn Z, Rousseau F, Friedman JM.

Am J Med Genet A. 2012 Oct;158A(10):2519-25. doi: 10.1002/ajmg.a.35554. Epub 2012 Aug 17.


Processes and factors involved in decisions regarding return of incidental genomic findings in research.

Klitzman R, Buquez B, Appelbaum PS, Fyer A, Chung WK.

Genet Med. 2014 Apr;16(4):311-7. doi: 10.1038/gim.2013.140. Epub 2013 Sep 26.


Generating a taxonomy for genetic conditions relevant to reproductive planning.

Korngiebel DM, McMullen CK, Amendola LM, Berg JS, Davis JV, Gilmore MJ, Harding CO, Himes P, Jarvik GP, Kauffman TL, Kennedy KA, Simpson DK, Leo MC, Lynch FL, Quigley DI, Reiss JA, Richards CS, Rope AF, Schneider JL, Goddard KA, Wilfond BS.

Am J Med Genet A. 2016 Mar;170(3):565-73. doi: 10.1002/ajmg.a.37513.


Researcher perspectives on disclosure of incidental findings in genetic research.

Meacham MC, Starks H, Burke W, Edwards K.

J Empir Res Hum Res Ethics. 2010 Sep;5(3):31-41. doi: 10.1525/jer.2010.5.3.31.


Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study.

Lemke AA, Bick D, Dimmock D, Simpson P, Veith R.

Clin Genet. 2013 Sep;84(3):230-6. doi: 10.1111/cge.12060. Epub 2012 Dec 7.


Models of consent to return of incidental findings in genomic research.

Appelbaum PS, Parens E, Waldman CR, Klitzman R, Fyer A, Martinez J, Price WN 2nd, Chung WK.

Hastings Cent Rep. 2014 Jul-Aug;44(4):22-32. doi: 10.1002/hast.328. Epub 2014 Jun 11.


Attitudes of the general public towards the disclosure of individual research results and incidental findings from biobank genomic research in Australia.

Fleming J, Critchley C, Otlowski M, Stewart C, Kerridge I.

Intern Med J. 2015 Dec;45(12):1274-9. doi: 10.1111/imj.12911.


Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.

Klitzman R, Appelbaum PS, Fyer A, Martinez J, Buquez B, Wynn J, Waldman CR, Phelan J, Parens E, Chung WK.

Genet Med. 2013 Nov;15(11):888-95. doi: 10.1038/gim.2013.87. Epub 2013 Jun 27.


To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.

Christenhusz GM, Devriendt K, Dierickx K.

Eur J Hum Genet. 2013 Mar;21(3):248-55. doi: 10.1038/ejhg.2012.130. Epub 2012 Jun 27. Review.


Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting.

Downing NR, Williams JK, Daack-Hirsch S, Driessnack M, Simon CM.

Patient Educ Couns. 2013 Jan;90(1):133-8. doi: 10.1016/j.pec.2012.09.010. Epub 2012 Oct 12.


A qualitative systematic review of internal and external influences on shared decision-making in all health care settings.

Truglio-Londrigan M, Slyer JT, Singleton JK, Worral P.

JBI Libr Syst Rev. 2012;10(58):4633-4646.


A pragmatic consideration of ethical issues relating to personal genomics.

Hsu AR, Mountain JL, Wojcicki A, Avey L.

Am J Bioeth. 2009;9(6-7):1-2. doi: 10.1080/15265160902966795. No abstract available.


Genetic medicine and incidental findings: it is more complicated than deciding whether to disclose or not.

Crawford G, Foulds N, Fenwick A, Hallowell N, Lucassen A.

Genet Med. 2013 Nov;15(11):896-9. doi: 10.1038/gim.2013.165. Epub 2013 Oct 3.


Freedom of Choice About Incidental Findings Can Frustrate Participants' True Preferences.

Viberg J, Segerdahl P, Langenskiƶld S, Hansson MG.

Bioethics. 2016 Mar;30(3):203-9. doi: 10.1111/bioe.12160. Epub 2015 Apr 23.


[Ethical issues in genome-era].

Kosugi S.

Nihon Rinsho. 2016 Jun;74(6):1022-7. Review. Japanese.


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