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Items: 1 to 20 of 87

1.

Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC).

Romeo-Casabona C, Nicolás P, Knoppers BM, Joly Y, Wallace SE, Chalmers D, Dyke S, Kennedy K, Troncoso A, Kaan T, Rial-Sebbag E; VV.AA.

Rev Derecho Genoma Hum. 2012 Jul-Dec;(37):15-34.

PMID:
23520913
2.
3.

Informed consent, and an ethico-legal framework for paediatric observational research and biobanking: the experience of an Italian birth cohort study.

Toccaceli V, Serino L, Stazi MA.

Cell Tissue Bank. 2014 Dec;15(4):579-90. doi: 10.1007/s10561-014-9431-3. Epub 2014 Mar 5. Erratum in: Cell Tissue Bank. 2016 Sep;17(3):541.

PMID:
24595523
4.

Commercial biobanks and genetic research: ethical and legal issues.

Anderlik M.

Am J Pharmacogenomics. 2003;3(3):203-15. Review.

PMID:
12814328
5.

Sample, data use and protection in biobanking in Europe: legal issues.

Zika E, Schulte In den Bäumen T, Kaye J, Brand A, Ibarreta D.

Pharmacogenomics. 2008 Jun;9(6):773-81. doi: 10.2217/14622416.9.6.773.

PMID:
18518854
6.

Monitoring ethical, legal, and social issues in developing population genetic databases.

Austin MA, Harding SE, McElroy CE.

Genet Med. 2003 Nov-Dec;5(6):451-7.

PMID:
14614397
7.

The governance of human genetic research databases in mental health research.

Mc Fleming J.

Int J Law Psychiatry. 2007 May-Jun;30(3):182-90. Epub 2007 Apr 20.

PMID:
17449098
8.

The needle in the haystack: international consortia and the return of individual research results.

Wallace SE.

J Law Med Ethics. 2011 Winter;39(4):631-9. doi: 10.1111/j.1748-720X.2011.00630.x.

PMID:
22084849
9.

Ethical norms and the international governance of genetic databases and biobanks: findings from an international study.

Capron AM, Mauron A, Elger BS, Boggio A, Ganguli-Mitra A, Biller-Andorno N.

Kennedy Inst Ethics J. 2009 Jun;19(2):101-24.

PMID:
19623818
10.

Population biobanking and international collaboration.

Zawati MH, Knoppers B, Thorogood A.

Pathobiology. 2014;81(5-6):276-85. doi: 10.1159/000357527. Epub 2015 Mar 16. Review.

PMID:
25792216
11.

Legal agreements and the governance of research commons: lessons from materials sharing in mouse genomics.

Mishra A, Bubela T.

OMICS. 2014 Apr;18(4):254-73. doi: 10.1089/omi.2013.0158. Epub 2014 Feb 19.

12.

Iceland's plan for genomics research: facts and implications.

Greely HT.

Jurimetrics. 2000 Winter;40:153-91.

PMID:
16295921
13.

Clinical genetic research 3: Genetics ELSI (Ethical, Legal, and Social Issues) research.

Pullman D, Etchegary H.

Methods Mol Biol. 2015;1281:369-82. doi: 10.1007/978-1-4939-2428-8_22.

PMID:
25694322
14.

Yin-yang genetics, or the HSD deCODE controversy.

Sigurdsson S.

New Genet Soc. 2001 Aug;20(2):103-17.

PMID:
15362237
15.

Privacy protection and public goods: building a genetic database for health research in Newfoundland and Labrador.

Kosseim P, Pullman D, Perrot-Daley A, Hodgkinson K, Street C, Rahman P.

J Am Med Inform Assoc. 2013 Jan 1;20(1):38-43. doi: 10.1136/amiajnl-2012-001009. Epub 2012 Aug 2.

16.

Human genetic databases and liberty.

Adalsteinsson R.

Jurid Rev. 2004;2004(1):65-74.

PMID:
16755701
17.
18.

Returning genetic research results to individuals: points-to-consider.

Renegar G, Webster CJ, Stuerzebecher S, Harty L, Ide SE, Balkite B, Rogalski-Salter TA, Cohen N, Spear BB, Barnes DM, Brazell C.

Bioethics. 2006 Feb;20(1):24-36. Review.

PMID:
16680905
19.

Public education critical to population-wide genomics research.

Friedrich MJ.

J Natl Cancer Inst. 2004 Aug 18;96(16):1196-7. No abstract available.

PMID:
15316048
20.

[National Database of Genotypes--ethical and legal issues].

Franková V, Tesínová J, Brdicka R.

Cas Lek Cesk. 2011;150(7):372-5; discussion 376-7. Czech.

PMID:
22026259

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