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Items: 1 to 20 of 86

1.

Evolving approaches to the ethical management of genomic data.

McEwen JE, Boyer JT, Sun KY.

Trends Genet. 2013 Jun;29(6):375-82. doi: 10.1016/j.tig.2013.02.001. Epub 2013 Feb 28. Review.

2.

Ethical and legal implications of whole genome and whole exome sequencing in African populations.

Wright GE, Koornhof PG, Adeyemo AA, Tiffin N.

BMC Med Ethics. 2013 May 28;14:21. doi: 10.1186/1472-6939-14-21.

3.

Informed consent and ethical re-use of African genomic data.

Wright GE, Adeyemo AA, Tiffin N.

Hum Genomics. 2014 Oct 22;8:18. doi: 10.1186/s40246-014-0018-7.

4.

Integrating genomics into clinical oncology: ethical and social challenges from proponents of personalized medicine.

McGowan ML, Settersten RA Jr, Juengst ET, Fishman JR.

Urol Oncol. 2014 Feb;32(2):187-92. doi: 10.1016/j.urolonc.2013.10.009.

5.

Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature.

Husedzinovic A, Ose D, Schickhardt C, Fröhling S, Winkler EC.

Eur J Hum Genet. 2015 Dec;23(12):1607-14. doi: 10.1038/ejhg.2015.27. Epub 2015 Mar 4. Review.

6.

Managing the ethical challenges of next-generation sequencing in genomic medicine.

Clarke AJ.

Br Med Bull. 2014 Sep;111(1):17-30. doi: 10.1093/bmb/ldu017. Epub 2014 Aug 13. Review.

PMID:
25122627
7.

Critical social theory approach to disclosure of genomic incidental findings.

Bevan JL, Senn-Reeves JN, Inventor BR, Greiner SM, Mayer KM, Rivard MT, Hamilton RJ.

Nurs Ethics. 2012 Nov;19(6):819-28. doi: 10.1177/0969733011433924. Epub 2012 May 4.

PMID:
22562957
8.

Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives.

Oliver JM, Slashinski MJ, Wang T, Kelly PA, Hilsenbeck SG, McGuire AL.

Public Health Genomics. 2012;15(2):106-14. doi: 10.1159/000334718. Epub 2011 Dec 30.

10.
11.

Tailoring the process of informed consent in genetic and genomic research.

Rotimi CN, Marshall PA.

Genome Med. 2010 Mar 24;2(3):20. doi: 10.1186/gm141.

12.

Is informed consent broken?

Henderson GE.

Am J Med Sci. 2011 Oct;342(4):267-72. doi: 10.1097/MAJ.0b013e31822a6c47. Review.

PMID:
21817873
13.

The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.

Henderson GE, Wolf SM, Kuczynski KJ, Joffe S, Sharp RR, Parsons DW, Knoppers BM, Yu JH, Appelbaum PS.

J Law Med Ethics. 2014 Fall;42(3):344-55. doi: 10.1111/jlme.12151.

14.

[Ethical considerations in genomic cohort study].

Choi EK, Kim OJ.

J Prev Med Public Health. 2007 Mar;40(2):122-9. Korean.

PMID:
17426423
15.

Research Ethics 2.0: New Perspectives on Norms, Values, and Integrity in Genomic Research in Times of Even Scarcer Resources.

Brall C, Maeckelberghe E, Porz R, Makhoul J, Schröder-Bäck P.

Public Health Genomics. 2017;20(1):27-35. doi: 10.1159/000462960. Epub 2017 Mar 14.

16.

Informed consent for human genetic and genomic studies: a systematic review.

Khan A, Capps BJ, Sum MY, Kuswanto CN, Sim K.

Clin Genet. 2014 Sep;86(3):199-206. doi: 10.1111/cge.12384. Epub 2014 Apr 18. Review.

PMID:
24646408
17.

Genomics and privacy: implications of the new reality of closed data for the field.

Greenbaum D, Sboner A, Mu XJ, Gerstein M.

PLoS Comput Biol. 2011 Dec;7(12):e1002278. doi: 10.1371/journal.pcbi.1002278. Epub 2011 Dec 1. Review.

18.

Participants' recall and understanding of genomic research and large-scale data sharing.

Robinson JO, Slashinski MJ, Wang T, Hilsenbeck SG, McGuire AL.

J Empir Res Hum Res Ethics. 2013 Oct;8(4):42-52. doi: 10.1525/jer.2013.8.4.42.

19.

Patient-controlled encrypted genomic data: an approach to advance clinical genomics.

Trakadis YJ.

BMC Med Genomics. 2012 Jul 20;5:31. doi: 10.1186/1755-8794-5-31.

20.

Grappling with genomic incidental findings in the clinical realm.

Hull SC, Berkman BE.

Chest. 2014 Feb;145(2):226-230. doi: 10.1378/chest.13-1976.

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