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Items: 1 to 20 of 83

1.

Hearing from parents: the impact of receiving the diagnosis of Williams syndrome in their child.

Waxler JL, Cherniske EM, Dieter K, Herd P, Pober BR.

Am J Med Genet A. 2013 Mar;161A(3):534-41. doi: 10.1002/ajmg.a.35789. Epub 2013 Feb 7.

PMID:
23401422
2.

[Handicap announcement: a parent's testimony].

Munchenbach A.

Arch Pediatr. 2010 Jun;17(6):649. doi: 10.1016/S0929-693X(10)70042-7. French. No abstract available.

PMID:
20654824
3.

A profile of children with disabilities receiving SSI: highlights from the National Survey of SSI Children and Families.

Rupp K, Davies PS, Newcomb C, Iams H, Becker C, Mulpuru S, Ressler S, Romig K, Miller B.

Soc Secur Bull. 2005-2006;66(2):21-48.

PMID:
16878426
4.

A tale worth telling: the impact of the diagnosis experience on disclosure of genetic disorders.

Goodwin J, Schoch K, Shashi V, Hooper SR, Morad O, Zalevsky M, Gothelf D, Campbell LE.

J Intellect Disabil Res. 2015 May;59(5):474-86. doi: 10.1111/jir.12151. Epub 2014 Jul 25.

5.
6.

[Physician or seer? Very early diagnosis and prognosis. The example of William's syndrome].

Ollivier AM.

Arch Pediatr. 2000 Nov;7(11):1221-7. French.

PMID:
11109951
7.

Parental perceptions of being told their child has cancer.

Parker TM, Johnston DL.

Pediatr Blood Cancer. 2008 Oct;51(4):531-4. doi: 10.1002/pbc.21667.

PMID:
18623217
9.

Genetic counseling and neonatal screening for cystic fibrosis: an assessment of the communication process.

Ciske DJ, Haavisto A, Laxova A, Rock LZ, Farrell PM.

Pediatrics. 2001 Apr;107(4):699-705.

PMID:
11335747
10.

Breaking bad news to parents with disabled children--a cross-cultural study.

Krauss-Mars AH, Lachman P.

Child Care Health Dev. 1994 Mar-Apr;20(2):101-13.

PMID:
8033328
11.
12.

Egyptian mothers' preferences regarding how physicians break bad news about their child's disability: a structured verbal questionnaire.

Abdelmoktader AM, Abd Elhamed KA.

BMC Med Ethics. 2012 Jul 2;13:14. doi: 10.1186/1472-6939-13-14.

13.

Parent perspectives on rehabilitation services for their children with disabilities: a mixed methods approach.

Schreiber J, Benger J, Salls J, Marchetti G, Reed L.

Phys Occup Ther Pediatr. 2011 Aug;31(3):225-38. doi: 10.3109/01942638.2011.565865. Epub 2011 Apr 13.

PMID:
21488709
14.

Assessing health system provision of well-child care: The Promoting Healthy Development Survey.

Bethell C, Peck C, Schor E.

Pediatrics. 2001 May;107(5):1084-94.

PMID:
11331691
15.

Qualitative analysis of parents' experience with receiving the news of the detection of their child's hearing loss.

Gilbey P.

Int J Pediatr Otorhinolaryngol. 2010 Mar;74(3):265-70. doi: 10.1016/j.ijporl.2009.11.017. Epub 2009 Dec 29.

PMID:
20042242
16.

Child centered literacy orientation: a form of social capital?

High P, Hopmann M, LaGasse L, Sege R, Moran J, Guiterrez C, Becker S.

Pediatrics. 1999 Apr;103(4):e55.

PMID:
10103347
17.

Family pediatrics: report of the Task Force on the Family.

Schor EL; American Academy of Pediatrics Task Force on the Family.

Pediatrics. 2003 Jun;111(6 Pt 2):1541-71.

PMID:
12777595
18.

Breaking difficult news in a newborn setting: Down syndrome as a paradigm.

Dent KM, Carey JC.

Am J Med Genet C Semin Med Genet. 2006 Aug 15;142C(3):173-9. Review.

PMID:
17048355
19.

Parental attitudes toward a diagnosis in children with unidentified multiple congenital anomaly syndromes.

Rosenthal ET, Biesecker LG, Biesecker BB.

Am J Med Genet. 2001 Oct 1;103(2):106-14.

PMID:
11568915
20.

The impact of having a sibling with an intellectual disability: parental perspectives in two disorders.

Mulroy S, Robertson L, Aiberti K, Leonard H, Bower C.

J Intellect Disabil Res. 2008 Mar;52(Pt 3):216-29. doi: 10.1111/j.1365-2788.2007.01005.x.

PMID:
18261021

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