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Items: 1 to 20 of 95

1.

Approaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research.

Facio FM, Sapp JC, Linn A, Biesecker LG.

BMC Med Genomics. 2012 Oct 10;5:45. doi: 10.1186/1755-8794-5-45.

2.

Ethical and legal implications of whole genome and whole exome sequencing in African populations.

Wright GE, Koornhof PG, Adeyemo AA, Tiffin N.

BMC Med Ethics. 2013 May 28;14:21. doi: 10.1186/1472-6939-14-21.

3.

Models of consent to return of incidental findings in genomic research.

Appelbaum PS, Parens E, Waldman CR, Klitzman R, Fyer A, Martinez J, Price WN 2nd, Chung WK.

Hastings Cent Rep. 2014 Jul-Aug;44(4):22-32. doi: 10.1002/hast.328. Epub 2014 Jun 11.

4.

Informed consent for exome sequencing research in families with genetic disease: the emerging issue of incidental findings.

Bergner AL, Bollinger J, Raraigh KS, Tichnell C, Murray B, Blout CL, Telegrafi AB, James CA.

Am J Med Genet A. 2014 Nov;164A(11):2745-52. doi: 10.1002/ajmg.a.36706. Epub 2014 Sep 22.

5.

Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance.

Simon C, Shinkunas LA, Brandt D, Williams JK.

J Med Ethics. 2012 Jul;38(7):417-22. doi: 10.1136/medethics-2011-100273. Epub 2012 Mar 5.

6.

Broadening research consent in the era of genome-informed medicine.

Kronenthal C, Delaney SK, Christman MF.

Genet Med. 2012 Apr;14(4):432-6. doi: 10.1038/gim.2011.76. Epub 2012 Mar 15.

PMID:
22422050
7.

Is informed consent broken?

Henderson GE.

Am J Med Sci. 2011 Oct;342(4):267-72. doi: 10.1097/MAJ.0b013e31822a6c47. Review.

PMID:
21817873
8.

The Double Helix: Applying an Ethic of Care to the Duty to Warn Genetic Relatives of Genetic Information.

Weaver M.

Bioethics. 2016 Mar;30(3):181-7. doi: 10.1111/bioe.12176. Epub 2015 Jul 21.

PMID:
26194147
9.

Patient reactions to confidentiality, liability, and financial aspects of informed consent in cardiology research.

Fortune-Greeley AK, Hardy NC, Lin L, Friedman JY, Lawlor JS, Muhlbaier LH, Hall MA, Schulman KA, Sugarman J, Weinfurt KP.

Circ Cardiovasc Qual Outcomes. 2010 Mar;3(2):151-8. doi: 10.1161/CIRCOUTCOMES.109.849273. Epub 2010 Jan 12.

10.

Genetic test results and the duty to disclose: can medical researchers control liability?

Furman RL.

Seattle Univ Law Rev. 1999 Fall;23(2):391-429. No abstract available.

PMID:
12449928
11.

Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation.

Killawi A, Khidir A, Elnashar M, Abdelrahim H, Hammoud M, Elliott H, Thurston M, Asad H, Al-Khal AL, Fetters MD.

BMC Med Ethics. 2014 Feb 4;15:9. doi: 10.1186/1472-6939-15-9.

12.

Regulating clinical research: informed consent, privacy, and IRBS.

Hoffman S.

Spec Law Dig Health Care Law. 2004 Feb;(298):9-29. No abstract available.

PMID:
15233002
13.

Growing use of genomic data reveals need to improve consent and privacy standards.

Kuehn BM.

JAMA. 2013 May 22;309(20):2083-4. doi: 10.1001/jama.2013.5048. No abstract available.

PMID:
23695456
14.

Informed consent for clinical anaesthesia research.

Maltby JR, Eagle CJ.

Can J Anaesth. 1993 Sep;40(9):891-6.

PMID:
8403186
15.

Emerging issues in paediatric health research consent forms in Canada: working towards best practices.

Dove ES, Avard D, Black L, Knoppers BM.

BMC Med Ethics. 2013 Jan 30;14:5. doi: 10.1186/1472-6939-14-5.

16.

Autonomy, informed consent, and genetic testing: an uneasy tension.

Hamilton R, Bowers B.

J Nurs Law. 2003 May;9(1):7-17. No abstract available.

PMID:
15282895
17.
18.

Consent, confidentiality, and the Data Protection Act.

Iversen A, Liddell K, Fear N, Hotopf M, Wessely S.

BMJ. 2006 Jan 21;332(7534):165-9. No abstract available.

19.

Data research on child abuse and neglect without informed consent? Balancing interests under Dutch law.

Hoytema van Konijnenburg EM, Teeuw AH, Ploem MC.

Eur J Pediatr. 2015 Dec;174(12):1573-8. doi: 10.1007/s00431-015-2649-7. Epub 2015 Oct 21. Review.

20.

Next generation sequencing in psychiatric research: what study participants need to know about research findings.

Mathieu G, Groisman IJ, Godard B.

Int J Neuropsychopharmacol. 2013 Oct;16(9):2119-27. doi: 10.1017/S1461145713000527. Epub 2013 Jun 3. Review.

PMID:
23725748

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