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Items: 1 to 20 of 102

1.

Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO).

Joly Y, Dove ES, Knoppers BM, Bobrow M, Chalmers D.

PLoS Comput Biol. 2012;8(7):e1002549. doi: 10.1371/journal.pcbi.1002549. Epub 2012 Jul 12. No abstract available.

2.

International Cancer Genome Consortium Data Portal--a one-stop shop for cancer genomics data.

Zhang J, Baran J, Cros A, Guberman JM, Haider S, Hsu J, Liang Y, Rivkin E, Wang J, Whitty B, Wong-Erasmus M, Yao L, Kasprzyk A.

Database (Oxford). 2011 Sep 19;2011:bar026. doi: 10.1093/database/bar026. Print 2011.

3.

The tension between data sharing and the protection of privacy in genomics research.

Kaye J.

Annu Rev Genomics Hum Genet. 2012;13:415-31. doi: 10.1146/annurev-genom-082410-101454. Epub 2012 Mar 9. Review.

4.

International network of cancer genome projects.

International Cancer Genome Consortium., Hudson TJ, Anderson W, Artez A, Barker AD, Bell C, Bernabé RR, Bhan MK, Calvo F, Eerola I, Gerhard DS, Guttmacher A, Guyer M, Hemsley FM, Jennings JL, Kerr D, Klatt P, Kolar P, Kusada J, Lane DP, Laplace F, Youyong L, Nettekoven G, Ozenberger B, Peterson J, Rao TS, Remacle J, Schafer AJ, Shibata T, Stratton MR, Vockley JG, Watanabe K, Yang H, Yuen MM, Knoppers BM, Bobrow M, Cambon-Thomsen A, Dressler LG, Dyke SO, Joly Y, Kato K, Kennedy KL, Nicolás P, Parker MJ, Rial-Sebbag E, Romeo-Casabona CM, Shaw KM, Wallace S, Wiesner GL, Zeps N, Lichter P, Biankin AV, Chabannon C, Chin L, Clément B, de Alava E, Degos F, Ferguson ML, Geary P, Hayes DN, Hudson TJ, Johns AL, Kasprzyk A, Nakagawa H, Penny R, Piris MA, Sarin R, Scarpa A, Shibata T, van de Vijver M, Futreal PA, Aburatani H, Bayés M, Botwell DD, Campbell PJ, Estivill X, Gerhard DS, Grimmond SM, Gut I, Hirst M, López-Otín C, Majumder P, Marra M, McPherson JD, Nakagawa H, Ning Z, Puente XS, Ruan Y, Shibata T, Stratton MR, Stunnenberg HG, Swerdlow H, Velculescu VE, Wilson RK, Xue HH, Yang L, Spellman PT, Bader GD, Boutros PC, Campbell PJ, Flicek P, Getz G, Guigó R, Guo G, Haussler D, Heath S, Hubbard TJ, Jiang T, Jones SM, Li Q, López-Bigas N, Luo R, Muthuswamy L, Ouellette BF, Pearson JV, Puente XS, Quesada V, Raphael BJ, Sander C, Shibata T, Speed TP, Stein LD, Stuart JM, Teague JW, Totoki Y, Tsunoda T, Valencia A, Wheeler DA, Wu H, Zhao S, Zhou G, Stein LD, Guigó R, Hubbard TJ, Joly Y, Jones SM, Kasprzyk A, Lathrop M, López-Bigas N, Ouellette BF, Spellman PT, Teague JW, Thomas G, Valencia A, Yoshida T, Kennedy KL, Axton M, Dyke SO, Futreal PA, Gerhard DS, Gunter C, Guyer M, Hudson TJ, McPherson JD, Miller LJ, Ozenberger B, Shaw KM, Kasprzyk A, Stein LD, Zhang J, Haider SA, Wang J, Yung CK, Cros A, Liang Y, Gnaneshan S, Guberman J, Hsu J, Bobrow M, Chalmers DR, Hasel KW, Joly Y, Kaan TS, Kennedy KL, Knoppers BM, Lowrance WW, Masui T, Nicolás P, Rial-Sebbag E, Rodriguez LL, Vergely C, Yoshida T, Grimmond SM, Biankin AV, Bowtell DD, Cloonan N, deFazio A, Eshleman JR, Etemadmoghadam D, Gardiner BB, Kench JG, Scarpa A, Sutherland RL, Tempero MA, Waddell NJ, Wilson PJ, McPherson JD, Gallinger S, Tsao MS, Shaw PA, Petersen GM, Mukhopadhyay D, Chin L, DePinho RA, Thayer S, Muthuswamy L, Shazand K, Beck T, Sam M, Timms L, Ballin V, Lu Y, Ji J, Zhang X, Chen F, Hu X, Zhou G, Yang Q, Tian G, Zhang L, Xing X, Li X, Zhu Z, Yu Y, Yu J, Yang H, Lathrop M, Tost J, Brennan P, Holcatova I, Zaridze D, Brazma A, Egevard L, Prokhortchouk E, Banks RE, Uhlén M, Cambon-Thomsen A, Viksna J, Ponten F, Skryabin K, Stratton MR, Futreal PA, Birney E, Borg A, Børresen-Dale AL, Caldas C, Foekens JA, Martin S, Reis-Filho JS, Richardson AL, Sotiriou C, Stunnenberg HG, Thoms G, van de Vijver M, van't Veer L, Calvo F, Birnbaum D, Blanche H, Boucher P, Boyault S, Chabannon C, Gut I, Masson-Jacquemier JD, Lathrop M, Pauporté I, Pivot X, Vincent-Salomon A, Tabone E, Theillet C, Thomas G, Tost J, Treilleux I, Calvo F, Bioulac-Sage P, Clément B, Decaens T, Degos F, Franco D, Gut I, Gut M, Heath S, Lathrop M, Samuel D, Thomas G, Zucman-Rossi J, Lichter P, Eils R, Brors B, Korbel JO, Korshunov A, Landgraf P, Lehrach H, Pfister S, Radlwimmer B, Reifenberger G, Taylor MD, von Kalle C, Majumder PP, Sarin R, Rao TS, Bhan MK, Scarpa A, Pederzoli P, Lawlor RA, Delledonne M, Bardelli A, Biankin AV, Grimmond SM, Gress T, Klimstra D, Zamboni G, Shibata T, Nakamura Y, Nakagawa H, Kusada J, Tsunoda T, Miyano S, Aburatani H, Kato K, Fujimoto A, Yoshida T, Campo E, López-Otín C, Estivill X, Guigó R, de Sanjosé S, Piris MA, Montserrat E, González-Díaz M, Puente XS, Jares P, Valencia A, Himmelbauer H, Quesada V, Bea S, Stratton MR, Futreal PA, Campbell PJ, Vincent-Salomon A, Richardson AL, Reis-Filho JS, van de Vijver M, Thomas G, Masson-Jacquemier JD, Aparicio S, Borg A, Børresen-Dale AL, Caldas C, Foekens JA, Stunnenberg HG, van't Veer L, Easton DF, Spellman PT, Martin S, Barker AD, Chin L, Collins FS, Compton CC, Ferguson ML, Gerhard DS, Getz G, Gunter C, Guttmacher A, Guyer M, Hayes DN, Lander ES, Ozenberger B, Penny R, Peterson J, Sander C, Shaw KM, Speed TP, Spellman PT, Vockley JG, Wheeler DA, Wilson RK, Hudson TJ, Chin L, Knoppers BM, Lander ES, Lichter P, Stein LD, Stratton MR, Anderson W, Barker AD, Bell C, Bobrow M, Burke W, Collins FS, Compton CC, DePinho RA, Easton DF, Futreal PA, Gerhard DS, Green AR, Guyer M, Hamilton SR, Hubbard TJ, Kallioniemi OP, Kennedy KL, Ley TJ, Liu ET, Lu Y, Majumder P, Marra M, Ozenberger B, Peterson J, Schafer AJ, Spellman PT, Stunnenberg HG, Wainwright BJ, Wilson RK, Yang H.

Nature. 2010 Apr 15;464(7291):993-8. doi: 10.1038/nature08987. Erratum in: Nature. 2010 Jun 17;465(7300):966. Himmelbaue, Heinz [corrected to Himmelbauer, Heinz]; Gardiner, Brooke A [corrected to Gardiner, Brooke B]; Cross, Anthony [corrected to Cros, Anthony].

5.

Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience.

McGuire AL, Basford M, Dressler LG, Fullerton SM, Koenig BA, Li R, McCarty CA, Ramos E, Smith ME, Somkin CP, Waudby C, Wolf WA, Clayton EW.

Genome Res. 2011 Jul;21(7):1001-7. doi: 10.1101/gr.120329.111. Epub 2011 Jun 1.

6.

An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health.

Rahimzadeh V, Dyke SO, Knoppers BM.

Biopreserv Biobank. 2016 Jun;14(3):256-9. doi: 10.1089/bio.2016.0005. Epub 2016 Apr 15.

PMID:
27082668
7.

Legal agreements and the governance of research commons: lessons from materials sharing in mouse genomics.

Mishra A, Bubela T.

OMICS. 2014 Apr;18(4):254-73. doi: 10.1089/omi.2013.0158. Epub 2014 Feb 19.

8.

Data sharing in large research consortia: experiences and recommendations from ENGAGE.

Budin-Ljøsne I, Isaeva J, Knoppers BM, Tassé AM, Shen HY, McCarthy MI, Harris JR; ENGAGE Consortium..

Eur J Hum Genet. 2014 Mar;22(3):317-21. doi: 10.1038/ejhg.2013.131. Epub 2013 Jun 19.

9.
10.

From the principles of genomic data sharing to the practices of data access committees.

Shabani M, Knoppers BM, Borry P.

EMBO Mol Med. 2015 May;7(5):507-9. doi: 10.15252/emmm.201405002.

11.

International alliance to share genomic data.

Glauser W.

CMAJ. 2013 Sep 3;185(12):E561-2. doi: 10.1503/cmaj.109-4532. Epub 2013 Jul 15. No abstract available.

12.

A human rights approach to an international code of conduct for genomic and clinical data sharing.

Knoppers BM, Harris JR, Budin-Ljøsne I, Dove ES.

Hum Genet. 2014 Jul;133(7):895-903. doi: 10.1007/s00439-014-1432-6. Epub 2014 Feb 27.

13.

To share or not to share: a randomized trial of consent for data sharing in genome research.

McGuire AL, Oliver JM, Slashinski MJ, Graves JL, Wang T, Kelly PA, Fisher W, Lau CC, Goss J, Okcu M, Treadwell-Deering D, Goldman AM, Noebels JL, Hilsenbeck SG.

Genet Med. 2011 Nov;13(11):948-55. doi: 10.1097/GIM.0b013e3182227589.

14.

Are Data Sharing and Privacy Protection Mutually Exclusive?

Joly Y, Dyke SO, Knoppers BM, Pastinen T.

Cell. 2016 Nov 17;167(5):1150-1154. doi: 10.1016/j.cell.2016.11.004.

PMID:
27863233
15.

Proposal for a data publication and citation framework when sharing biomedical research resources.

He S, Ganzinger M, Hurdle JF, Knaup P.

Stud Health Technol Inform. 2013;192:1201.

PMID:
23920975
16.

The limits of sharing: an ethical analysis of the arguments for and against the sharing of databases and material banks.

Smith E.

Account Res. 2011 Nov;18(6):357-81. doi: 10.1080/08989621.2011.609443.

PMID:
22011067
17.

NIH broadens genomic data-sharing policy.

[No authors listed]

Cancer Discov. 2014 Dec;4(12):OF4. doi: 10.1158/2159-8290.CD-NB2014-148. Epub 2014 Oct 9.

18.

Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium.

ICGC Data Access Compliance Office.; ICGC International Data Access Committee..

Nat Genet. 2016 Mar;48(3):224-5. doi: 10.1038/ng.3499. No abstract available.

PMID:
26906679
19.

Genomics education for the public: perspectives of genomic researchers and ELSI advisors.

Dressler LG, Jones SS, Markey JM, Byerly KW, Roberts MC.

Genet Test Mol Biomarkers. 2014 Mar;18(3):131-40. doi: 10.1089/gtmb.2013.0366. Epub 2014 Feb 4.

20.

Sharing Clinical Trial Data: A Proposal from the International Committee of Medical Journal Editors.

Taichman DB, Backus J, Baethge C, Bauchner H, de Leeuw PW, Drazen JM, Fletcher J, Frizelle F, Groves T, Haileamlak A, James A, Laine C, Peiperl L, Pinborg A, Sahni P, Wu SN.

Chin Med J (Engl). 2016 Jan 20;129(2):127-8. doi: 10.4103/0366-6999.173420. No abstract available.

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