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Items: 1 to 20 of 106

1.

Customers or research participants? Guidance for research practices in commercialization of personal genomics.

Tobin SL, Cho MK, Lee SS, Magnus DC, Allyse M, Ormond KE, Garrison NA.

Genet Med. 2012 Oct;14(10):833-5. doi: 10.1038/gim.2012.64. Epub 2012 Jun 14. No abstract available.

2.
3.

The new genetics and informed consent: differentiating choice to preserve autonomy.

Bunnik EM, de Jong A, Nijsingh N, de Wert GM.

Bioethics. 2013 Jul;27(6):348-55. doi: 10.1111/bioe.12030. Epub 2013 May 30.

PMID:
23718722
4.

Have we asked too much of consent?

Koenig BA.

Hastings Cent Rep. 2014 Jul-Aug;44(4):33-4. doi: 10.1002/hast.329. No abstract available.

5.

Informed consent in direct-to-consumer personal genome testing: the outline of a model between specific and generic consent.

Bunnik EM, Janssens AC, Schermer MH.

Bioethics. 2014 Sep;28(7):343-51. doi: 10.1111/bioe.12004. Epub 2012 Nov 8.

PMID:
23137034
6.

Voting with their mice: personal genome testing and the "participatory turn" in disease research.

Prainsack B.

Account Res. 2011 May;18(3):132-47. doi: 10.1080/08989621.2011.575032. Review.

PMID:
21574070
7.

Personal genomes: when consent gets in the way.

Taylor P.

Nature. 2008 Nov 6;456(7218):32-3. doi: 10.1038/456032a. No abstract available.

PMID:
18987719
8.

The authors reply.

Appelbaum PS, Chung W, Fyer AJ, Klitzman RL, Martinez J, Parens E, Price WN, Waldman C.

Hastings Cent Rep. 2015 Jan-Feb;45(1):4. doi: 10.1002/hast.408. No abstract available.

PMID:
25600379
9.

A tiered-layered-staged model for informed consent in personal genome testing.

Bunnik EM, Janssens AC, Schermer MH.

Eur J Hum Genet. 2013 Jun;21(6):596-601. doi: 10.1038/ejhg.2012.237. Epub 2012 Nov 21.

10.

Support for full disclosure up front.

Holzer F, Mastroleo I.

Hastings Cent Rep. 2015 Jan-Feb;45(1):3. doi: 10.1002/hast.406. No abstract available.

PMID:
25600378
11.

Models of consent to return of incidental findings in genomic research.

Appelbaum PS, Parens E, Waldman CR, Klitzman R, Fyer A, Martinez J, Price WN 2nd, Chung WK.

Hastings Cent Rep. 2014 Jul-Aug;44(4):22-32. doi: 10.1002/hast.328. Epub 2014 Jun 11.

12.

Autonomy, informed consent, and genetic testing: an uneasy tension.

Hamilton R, Bowers B.

J Nurs Law. 2003 May;9(1):7-17. No abstract available.

PMID:
15282895
13.

Informed consent of very old patients and modern genomics.

Matthews E, Haimes E, Duguet AM, Clark BF, Swine C, Toussaint O.

Biogerontology. 2005;6(1):81-4. No abstract available.

PMID:
15834667
14.

Ethical and legal implications of whole genome and whole exome sequencing in African populations.

Wright GE, Koornhof PG, Adeyemo AA, Tiffin N.

BMC Med Ethics. 2013 May 28;14:21. doi: 10.1186/1472-6939-14-21.

15.

The MICHR Genomic DNA BioLibrary: An Empirical Study of the Ethics of Biorepository Development.

Roessler BJ, Steneck NH, Connally L.

J Empir Res Hum Res Ethics. 2015 Feb;10(1):37-48. doi: 10.1177/1556264614564975. Epub 2015 Jan 6.

16.

Genetic profiling of medical students.

Mahoney J.

Virtual Mentor. 2012 Aug 1;14(8):616-21. doi: 10.1001/virtualmentor.2012.14.8.ecas3-1208. No abstract available.

17.

Informed consent and ethical re-use of African genomic data.

Wright GE, Adeyemo AA, Tiffin N.

Hum Genomics. 2014 Oct 22;8:18. doi: 10.1186/s40246-014-0018-7.

18.

Direct-to-consumer genomics and research ethics: should a more robust informed consent process be included?

Wasson K.

Am J Bioeth. 2009;9(6-7):56-8. doi: 10.1080/15265160902893965. No abstract available.

PMID:
19998119
19.

[Ethical issues in genome-era].

Kosugi S.

Nihon Rinsho. 2016 Jun;74(6):1022-7. Review. Japanese.

PMID:
27311196
20.

Secrets of the human genome disclosed.

Hayden EC.

Nature. 2011 Oct 4;478(7367):17. doi: 10.1038/478017a. No abstract available.

PMID:
21979022

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