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Items: 1 to 20 of 89

1.

Power to the people: a wiki-governance model for biobanks.

Dove ES, Joly Y, Knoppers BM.

Genome Biol. 2012 May 29;13(5):158. doi: 10.1186/gb-2012-13-5-158.

2.

Involving citizens in the ethics of biobank research: informing institutional policy through structured public deliberation.

O'Doherty KC, Hawkins AK, Burgess MM.

Soc Sci Med. 2012 Nov;75(9):1604-11. doi: 10.1016/j.socscimed.2012.06.026. Epub 2012 Jul 28.

PMID:
22867865
3.

Biobank governance: trends and perspectives.

Gottweis H, Zatloukal K.

Pathobiology. 2007;74(4):206-11.

4.

Informed consent in biobank research: a deliberative approach to the debate.

Secko DM, Preto N, Niemeyer S, Burgess MM.

Soc Sci Med. 2009 Feb;68(4):781-9. doi: 10.1016/j.socscimed.2008.11.020. Epub 2008 Dec 16.

PMID:
19095337
5.

Recruiting for representation in public deliberation on the ethics of biobanks.

Longstaff H, Burgess MM.

Public Underst Sci. 2010 Mar;19(2):212-24.

PMID:
20533799
6.

'Access arrangements' for biobanks: a fine line between facilitating and hindering collaboration.

Fortin S, Pathmasiri S, Grintuch R, DeschĂȘnes M.

Public Health Genomics. 2011;14(2):104-14. doi: 10.1159/000309852. Epub 2010 Jul 30.

7.

Structuring public engagement for effective input in policy development on human tissue biobanking.

O'Doherty KC, Hawkins A.

Public Health Genomics. 2010;13(4):197-206. doi: 10.1159/000279621. Epub 2010 Apr 15.

8.

The value of using top-down and bottom-up approaches for building trust and transparency in biobanking.

Meslin EM.

Public Health Genomics. 2010;13(4):207-14. doi: 10.1159/000279622. Epub 2010 Apr 15.

9.

Safeguarding donors' personal rights and biobank autonomy in biobank networks: the CRIP privacy regime.

Schröder C, Heidtke KR, Zacherl N, Zatloukal K, Taupitz J.

Cell Tissue Bank. 2011 Aug;12(3):233-40. doi: 10.1007/s10561-010-9190-8. Epub 2010 Jul 15.

PMID:
20632213
10.

Evolutionary concepts in biobanking - the BC BioLibrary.

Watson PH, Wilson-McManus JE, Barnes RO, Giesz SC, Png A, Hegele RG, Brinkman JN, Mackenzie IR, Huntsman DG, Junker A, Gilks B, Skarsgard E, Burgess M, Aparicio S, McManus BM.

J Transl Med. 2009 Nov 12;7:95. doi: 10.1186/1479-5876-7-95.

11.

From 'trust us' to participatory governance: Deliberative publics and science policy.

Burgess MM.

Public Underst Sci. 2014 Jan;23(1):48-52. doi: 10.1177/0963662512472160.

PMID:
24434712
12.

Engaging the public on biobanks: outcomes of the BC biobank deliberation.

O'Doherty KC, Burgess MM.

Public Health Genomics. 2009;12(4):203-15. doi: 10.1159/000167801. Epub 2008 Oct 31.

PMID:
19367089
13.

[Attitudes towards biobanks among Finnish people].

Snell K, Tupasela A.

Duodecim. 2012;128(16):1685-90. Finnish.

PMID:
23025152
14.
15.

Who's minding the shop? The role of Canadian research ethics boards in the creation and uses of registries and biobanks.

Gibson E, Brazil K, Coughlin MD, Emerson C, Fournier F, Schwartz L, Szala-Meneok KV, Weisbaum KM, Willison DJ.

BMC Med Ethics. 2008 Nov 14;9:17. doi: 10.1186/1472-6939-9-17.

16.

Consent for biobank tissue in somatic-cell nuclear transfer.

Jones DA, MacKellar C.

Lancet. 2009 Sep 12;374(9693):861-3. doi: 10.1016/S0140-6736(09)61609-3. Review. No abstract available.

PMID:
19748385
17.
18.

For the safety and benefit of current and future patients.

Hansson MG.

Pathobiology. 2007;74(4):198-205.

PMID:
17709960
19.

Summit calls for clear view of deposits in all biobanks.

Pearson H.

Nature. 2004 Nov 25;432(7016):426. No abstract available.

PMID:
15565118
20.

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