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Items: 1 to 20 of 110

1.

Currents in contemporary bioethics. Open access as benefit sharing? The example of publicly funded large-scale genomic databases.

Joly Y, Allen C, Knoppers BM.

J Law Med Ethics. 2012 Spring;40(1):143-6. doi: 10.1111/j.1748-720X.2012.00652.x. No abstract available.

PMID:
22458469
2.

Free access to medical information: a moral right?

Goodyear M.

CMAJ. 2007 Jan 2;176(1):69. No abstract available.

3.

Open access: Practical costs of data sharing.

Goodhill GJ.

Nature. 2014 May 1;509(7498):33. doi: 10.1038/509033b. No abstract available.

PMID:
24784208
4.

Open access: sharing your data is easier than you think.

Eglen S.

Nature. 2014 Jun 19;510(7505):340. doi: 10.1038/510340c. No abstract available.

PMID:
24943946
5.

An open access pilot freely sharing cancer genomic data from participants in Texas.

Becnel LB, Pereira S, Drummond JA, Gingras MC, Covington KR, Kovar CL, Doddapaneni HV, Hu J, Muzny D, McGuire AL, Wheeler DA, Gibbs RA.

Sci Data. 2016 Feb 16;3:160010. doi: 10.1038/sdata.2016.10.

6.

Ethical endgames: broad consent for narrow interests; open consent for closed minds.

Karlsen JR, Solbakk JH, Holm S.

Camb Q Healthc Ethics. 2011 Oct;20(4):572-83. doi: 10.1017/S0963180111000314. No abstract available.

PMID:
21843388
7.

Broad data sharing in genetic research: views of institutional review board professionals.

Lemke AA, Smith ME, Wolf WA, Trinidad SB; GRRIP Consortium.

IRB. 2011 May-Jun;33(3):1-5. No abstract available.

8.

Genethics 2.0: phenotypes, genotypes, and the challenge of databases generated by personal genome testing.

Esposito K, Goodman K.

Am J Bioeth. 2009;9(6-7):19-21. doi: 10.1080/15265160902893890. No abstract available.

PMID:
19998105
9.

Is data-hoarding slowing the assault on pathogens?

Marshall E.

Science. 1997 Feb 7;275(5301):777-80. No abstract available.

PMID:
9036541
10.

Genomic sovereignty and the African promise: mining the African genome for the benefit of Africa.

de Vries J, Pepper M.

J Med Ethics. 2012 Aug;38(8):474-8. doi: 10.1136/medethics-2011-100448. Epub 2012 Apr 6.

PMID:
22493187
11.

Genomic research data: open vs. restricted access.

Resnik DB.

IRB. 2010 Jan-Feb;32(1):1-6. No abstract available.

12.

Open access to tree genomes: the path to a better forest.

Neale DB, Langley CH, Salzberg SL, Wegrzyn JL.

Genome Biol. 2013 Jun 24;14(6):120. doi: 10.1186/gb-2013-14-6-120.

13.

Share alike.

[No authors listed]

Nature. 2014 Mar 13;507(7491):140. No abstract available.

PMID:
24627917
14.

Information access. Prepublication data release, latency, and genome commons.

Contreras JL.

Science. 2010 Jul 23;329(5990):393-4. doi: 10.1126/science.1189253. No abstract available.

PMID:
20651137
15.

OECD guidelines on open access: commercialization in disguise?

Hoeyer K, Svendsen MN, Koch L.

Trends Biotechnol. 2008 Sep;26(9):479-82. doi: 10.1016/j.tibtech.2008.05.006. Epub 2008 Aug 5.

PMID:
18684538
16.

In it for the long haul.

[No authors listed]

Nat Biotechnol. 2006 Feb;24(2):115. No abstract available.

PMID:
16465138
17.

Data sharing. Group calls for rapid release of more genomics data.

Pennisi E.

Science. 2009 May 22;324(5930):1000-1. doi: 10.1126/science.324_1000b. No abstract available.

PMID:
19460974
18.

How the role of computing is driving new genetics' public policy.

Marturano A, Chadwick R.

Ethics Inf Technol. 2004;6(1):43-53.

PMID:
16969960
19.

Returning genetic research results to individuals: points-to-consider.

Renegar G, Webster CJ, Stuerzebecher S, Harty L, Ide SE, Balkite B, Rogalski-Salter TA, Cohen N, Spear BB, Barnes DM, Brazell C.

Bioethics. 2006 Feb;20(1):24-36. Review.

PMID:
16680905
20.

Medical research. U.S. to expand public access to clinical study results.

Kaiser J.

Science. 2014 Nov 28;346(6213):1043. doi: 10.1126/science.346.6213.1043. No abstract available.

PMID:
25430750

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