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Items: 1 to 20 of 133

1.

Sampling populations of humans across the world: ELSI issues.

Knoppers BM, Zawati MH, Kirby ES.

Annu Rev Genomics Hum Genet. 2012;13:395-413. doi: 10.1146/annurev-genom-090711-163834. Epub 2012 Mar 8. Review.

PMID:
22404491
2.

Ethical and legal implications of whole genome and whole exome sequencing in African populations.

Wright GE, Koornhof PG, Adeyemo AA, Tiffin N.

BMC Med Ethics. 2013 May 28;14:21. doi: 10.1186/1472-6939-14-21.

3.

Governing population genomics: law, bioethics, and biopolitics in three case studies.

Winickoff DE.

Jurimetrics. 2003 Winter;43(2):187-228.

PMID:
15156881
4.

The tension between data sharing and the protection of privacy in genomics research.

Kaye J.

Annu Rev Genomics Hum Genet. 2012;13:415-31. doi: 10.1146/annurev-genom-082410-101454. Epub 2012 Mar 9. Review.

5.

Trends in ethical and legal frameworks for the use of human biobanks.

Cambon-Thomsen A, Rial-Sebbag E, Knoppers BM.

Eur Respir J. 2007 Aug;30(2):373-82.

6.

Informed consent, and an ethico-legal framework for paediatric observational research and biobanking: the experience of an Italian birth cohort study.

Toccaceli V, Serino L, Stazi MA.

Cell Tissue Bank. 2014 Dec;15(4):579-90. doi: 10.1007/s10561-014-9431-3. Epub 2014 Mar 5. Erratum in: Cell Tissue Bank. 2016 Sep;17(3):541.

PMID:
24595523
7.

Population-based genetic studies: informed consent and confidentiality.

Smith MJ.

Santa Clara Comput High Technol Law J. 2001 Dec;18(1):57-93. No abstract available.

PMID:
12741383
8.
9.

Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries.

Ries NM, LeGrandeur J, Caulfield T.

BMC Med Ethics. 2010 Mar 23;11:4. doi: 10.1186/1472-6939-11-4. Review.

10.

Ethical issues in secondary uses of human biological materials from mass disasters.

Knoppers BM, Saginur M, Cash H.

J Law Med Ethics. 2006 Summer;34(2):352-65. No abstract available.

PMID:
16789956
11.

Property rights in genetic information.

Spinello RA.

Ethics Inf Technol. 2004;6(1):29-42.

PMID:
16969959
12.

[Ethical problems presented by collections of biological material and associated data: "biobanks", "bioethics"].

France. Comite consultatif national d'ethique pour les sciences de la vie et de la sante.

J Int Bioethique. 2005 Sep-Dec;16(3-4):141-51. French. No abstract available.

PMID:
17058808
13.

Ethical challenges in biobanking: moving the agenda forward in India.

Vaz M, Vaz M, Srinivasan K.

Indian J Med Ethics. 2014 Apr 1;11(2):79-88. Review.

14.

Retrospective access to data: the ENGAGE consent experience.

Tassé AM, Budin-Ljøsne I, Knoppers BM, Harris JR.

Eur J Hum Genet. 2010 Jul;18(7):741-5. doi: 10.1038/ejhg.2010.30. Epub 2010 Mar 24.

15.

Ethical norms and the international governance of genetic databases and biobanks: findings from an international study.

Capron AM, Mauron A, Elger BS, Boggio A, Ganguli-Mitra A, Biller-Andorno N.

Kennedy Inst Ethics J. 2009 Jun;19(2):101-24.

PMID:
19623818
16.

Biobank research: time for discussion and debate.

Dhai A, Mahomed S.

S Afr Med J. 2013 Mar 1;103(4):225-7. doi: 10.7196/samj.6813.

PMID:
23547695
17.

Proxy consent and a national DNA databank: an unethical and discriminatory combination.

Baumann TK.

Iowa Law Rev. 2001 Jan;86(2):667-701. No abstract available.

PMID:
16184651
18.

Challenges in biobank governance in Sub-Saharan Africa.

Staunton C, Moodley K.

BMC Med Ethics. 2013 Sep 11;14:35. doi: 10.1186/1472-6939-14-35. Review.

19.

International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism).

Thorogood A, Zawati MH.

J Law Med Ethics. 2015 Winter;43(4):690-702. doi: 10.1111/jlme.12312.

PMID:
26711410
20.

Informed consent for human genetic and genomic studies: a systematic review.

Khan A, Capps BJ, Sum MY, Kuswanto CN, Sim K.

Clin Genet. 2014 Sep;86(3):199-206. doi: 10.1111/cge.12384. Epub 2014 Apr 18. Review.

PMID:
24646408

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