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Items: 1 to 20 of 164


Broadening research consent in the era of genome-informed medicine.

Kronenthal C, Delaney SK, Christman MF.

Genet Med. 2012 Apr;14(4):432-6. doi: 10.1038/gim.2011.76. Epub 2012 Mar 15.


Return of research results from genomic biobanks: cost matters.

Bledsoe MJ, Clayton EW, McGuire AL, Grizzle WE, O'Rourke PP, Zeps N.

Genet Med. 2013 Feb;15(2):103-5. doi: 10.1038/gim.2012.105. Epub 2012 Aug 30. No abstract available.


Offering aggregate results to participants in genomic research: opportunities and challenges.

Beskow LM, Burke W, Fullerton SM, Sharp RR.

Genet Med. 2012 Apr;14(4):490-6. doi: 10.1038/gim.2011.62. Epub 2012 Jan 26.


International normative perspectives on the return of individual research results and incidental findings in genomic biobanks.

Zawati MH, Knoppers BM.

Genet Med. 2012 Apr;14(4):484-9. doi: 10.1038/gim.2012.13. Epub 2012 Feb 16.


The legal risks of returning results of genomics research.

Clayton EW, McGuire AL.

Genet Med. 2012 Apr;14(4):473-7. doi: 10.1038/gim.2012.10. Epub 2012 Feb 9.


A closer look revisited: are we subjects or are we donors?

Fisher R.

Genet Med. 2012 Apr;14(4):458-60. doi: 10.1038/gim.2012.6. Epub 2012 Feb 23.


Practical implementation issues and challenges for biobanks in the return of individual research results.

Bledsoe MJ, Grizzle WE, Clark BJ, Zeps N.

Genet Med. 2012 Apr;14(4):478-83. doi: 10.1038/gim.2011.67. Epub 2012 Feb 9.


Taking aims seriously: repository research and limits on the duty to return individual research findings.

Ossorio P.

Genet Med. 2012 Apr;14(4):461-6. doi: 10.1038/gim.2012.5. Epub 2012 Mar 8.


Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA.

Genet Med. 2012 Apr;14(4):361-84. doi: 10.1038/gim.2012.23.


The ClinSeq Project: piloting large-scale genome sequencing for research in genomic medicine.

Biesecker LG, Mullikin JC, Facio FM, Turner C, Cherukuri PF, Blakesley RW, Bouffard GG, Chines PS, Cruz P, Hansen NF, Teer JK, Maskeri B, Young AC; NISC Comparative Sequencing Program, Manolio TA, Wilson AF, Finkel T, Hwang P, Arai A, Remaley AT, Sachdev V, Shamburek R, Cannon RO, Green ED.

Genome Res. 2009 Sep;19(9):1665-74. doi: 10.1101/gr.092841.109. Epub 2009 Jul 14.


Ethical and legal implications of whole genome and whole exome sequencing in African populations.

Wright GE, Koornhof PG, Adeyemo AA, Tiffin N.

BMC Med Ethics. 2013 May 28;14:21. doi: 10.1186/1472-6939-14-21.


An empirical examination of the management of return of individual research results and incidental findings in genomic biobanks.

Johnson G, Lawrenz F, Thao M.

Genet Med. 2012 Apr;14(4):444-50. doi: 10.1038/gim.2012.20. Epub 2012 Feb 23.


Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.

Fullerton SM, Wolf WA, Brothers KB, Clayton EW, Crawford DC, Denny JC, Greenland P, Koenig BA, Leppig KA, Lindor NM, McCarty CA, McGuire AL, McPeek Hinz ER, Mirel DB, Ramos EM, Ritchie MD, Smith ME, Waudby CJ, Burke W, Jarvik GP.

Genet Med. 2012 Apr;14(4):424-31. doi: 10.1038/gim.2012.15. Epub 2012 Feb 23.


Should genetic findings from genome research be reported back to the participants?

Steinsbekk KS, Solberg B.

Tidsskr Nor Laegeforen. 2012 Oct 16;132(19):2190-3. Review. English, Norwegian.


Secondary researchers' duties to return incidental findings and individual research results: a partial-entrustment account.

Richardson HS, Cho MK.

Genet Med. 2012 Apr;14(4):467-72. doi: 10.1038/gim.2012.12. Epub 2012 Feb 23.


Whole-exome/genome sequencing and genomics.

Grody WW, Thompson BH, Hudgins L.

Pediatrics. 2013 Dec;132(Suppl 3):S211-5. doi: 10.1542/peds.2013-1032E.


Exploring concordance and discordance for return of incidental findings from clinical sequencing.

Green RC, Berg JS, Berry GT, Biesecker LG, Dimmock DP, Evans JP, Grody WW, Hegde MR, Kalia S, Korf BR, Krantz I, McGuire AL, Miller DT, Murray MF, Nussbaum RL, Plon SE, Rehm HL, Jacob HJ.

Genet Med. 2012 Apr;14(4):405-10. doi: 10.1038/gim.2012.21. Epub 2012 Mar 15.


Managing the ethical challenges of next-generation sequencing in genomic medicine.

Clarke AJ.

Br Med Bull. 2014 Sep;111(1):17-30. doi: 10.1093/bmb/ldu017. Epub 2014 Aug 13. Review.


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