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Items: 1 to 20 of 103

1.

Quantitative telemedicine ratings in Batten disease: implications for rare disease research.

Cialone J, Augustine EF, Newhouse N, Vierhile A, Marshall FJ, Mink JW.

Neurology. 2011 Nov 15;77(20):1808-11. doi: 10.1212/WNL.0b013e3182377e29.

2.

Methodology of clinical research in rare diseases: development of a research program in juvenile neuronal ceroid lipofuscinosis (JNCL) via creation of a patient registry and collaboration with patient advocates.

de Blieck EA, Augustine EF, Marshall FJ, Adams H, Cialone J, Dure L, Kwon JM, Newhouse N, Rose K, Rothberg PG, Vierhile A, Mink JW; Batten Study Group..

Contemp Clin Trials. 2013 Jul;35(2):48-54. doi: 10.1016/j.cct.2013.04.004.

3.

Quantifying physical decline in juvenile neuronal ceroid lipofuscinosis (Batten disease).

Kwon JM, Adams H, Rothberg PG, Augustine EF, Marshall FJ, Deblieck EA, Vierhile A, Beck CA, Newhouse NJ, Cialone J, Levy E, Ramirez-Montealegre D, Dure LS, Rose KR, Mink JW.

Neurology. 2011 Nov 15;77(20):1801-7. doi: 10.1212/WNL.0b013e318237f649.

4.

A clinical rating scale for Batten disease: reliable and relevant for clinical trials.

Marshall FJ, de Blieck EA, Mink JW, Dure L, Adams H, Messing S, Rothberg PG, Levy E, McDonough T, DeYoung J, Wang M, Ramirez-Montealegre D, Kwon JM, Pearce DA.

Neurology. 2005 Jul 26;65(2):275-9.

PMID:
16043799
5.

Remote Assessment of Cognitive Function in Juvenile Neuronal Ceroid Lipofuscinosis (Batten disease): A Pilot Study of Feasibility and Reliability.

Ragbeer SN, Augustine EF, Mink JW, Thatcher AR, Vierhile AE, Adams HR.

J Child Neurol. 2016 Mar;31(4):481-7. doi: 10.1177/0883073815600863.

PMID:
26336202
6.

Measuring to improve: a new rating scale for Batten disease.

Patterson MC.

Neurology. 2011 Nov 15;77(20):1779-80. doi: 10.1212/WNL.0b013e3182377e6f. No abstract available.

PMID:
22013177
7.

Reliability of site-independent telemedicine when assessed by telemedicine-naive stroke practitioners.

Meyer BC, Raman R, Chacon MR, Jensen M, Werner JD.

J Stroke Cerebrovasc Dis. 2008 Jul-Aug;17(4):181-6. doi: 10.1016/j.jstrokecerebrovasdis.2008.01.008.

PMID:
18589337
8.

Telemedicine: A Reliable Tool to Assess the Severity of Respiratory Distress in Children.

Gattu R, Scollan J, DeSouza A, Devereaux D, Weaver H, Agthe AG.

Hosp Pediatr. 2016 Aug;6(8):476-82. doi: 10.1542/hpeds.2015-0272.

PMID:
27450148
9.

Females experience a more severe disease course in Batten disease.

Cialone J, Adams H, Augustine EF, Marshall FJ, Kwon JM, Newhouse N, Vierhile A, Levy E, Dure LS, Rose KR, Ramirez-Montealegre D, de Blieck EA, Mink JW.

J Inherit Metab Dis. 2012 May;35(3):549-55. doi: 10.1007/s10545-011-9421-6. Erratum in: J Inherit Metab Dis. 2012 May;35(3):559.

10.

Pilot studies of telemedicine for patients with obsessive-compulsive disorder.

Baer L, Cukor P, Jenike MA, Leahy L, O'Laughlen J, Coyle JT.

Am J Psychiatry. 1995 Sep;152(9):1383-5.

PMID:
7653700
11.

The reliability of telepsychiatry for a neuropsychiatric assessment.

Amarendran V, George A, Gersappe V, Krishnaswamy S, Warren C.

Telemed J E Health. 2011 Apr;17(3):223-5. doi: 10.1089/tmj.2010.0144.

PMID:
21443440
12.

A pilot study of virtual visits in Huntington disease.

Bull MT, Darwin K, Venkataraman V, Wagner J, Beck CA, Dorsey ER, Biglan KM.

J Huntingtons Dis. 2014;3(2):189-95. doi: 10.3233/JHD-140102.

PMID:
25062861
13.

The Toronto Western Spasmodic Torticollis Rating Scale: reliability in neurologists and physiotherapists.

Boyce MJ, Canning CG, Mahant N, Morris J, Latimer J, Fung VS.

Parkinsonism Relat Disord. 2012 Jun;18(5):635-7. doi: 10.1016/j.parkreldis.2012.02.007.

PMID:
22405838
14.

A study of whether video scoring is a reliable option for blinded scoring of the Gross Motor Function Measure-88.

Franki I, Van den Broeck C, De Cat J, Molenaers G, Vanderstraeten G, Desloovere K.

Clin Rehabil. 2015 Aug;29(8):809-15. doi: 10.1177/0269215514558642.

PMID:
25416132
15.

Excellent inter-rater, intra-rater, and telephone-administered reliability of the ALSFRS-R in a multicenter clinical trial.

Kaufmann P, Levy G, Montes J, Buchsbaum R, Barsdorf AI, Battista V, Arbing R, Gordon PH, Mitsumoto H, Levin B, Thompson JL; QALS study group..

Amyotroph Lateral Scler. 2007 Feb;8(1):42-6.

PMID:
17364435
16.

Inter-rater concordance study of the PASI (Psoriasis Area and Severity Index).

Faria JR, Aar√£o AR, Jimenez LM, Silva OH, Avelleira JC.

An Bras Dermatol. 2010 Sep-Oct;85(5):625-9.

17.

[Study of functional rating scale for amyotrophic lateral sclerosis: revised ALSFRS(ALSFRS-R) Japanese version].

Ohashi Y, Tashiro K, Itoyama Y, Nakano I, Sobue G, Nakamura S, Sumino S, Yanagisawa N.

No To Shinkei. 2001 Apr;53(4):346-55. Japanese.

PMID:
11360474
19.

Interrater reliability of the international standards for neurological classification of spinal cord injury in youths with chronic spinal cord injury.

Mulcahey MJ, Gaughan JP, Chafetz RS, Vogel LC, Samdani AF, Betz RR.

Arch Phys Med Rehabil. 2011 Aug;92(8):1264-9. doi: 10.1016/j.apmr.2011.03.003.

PMID:
21807145
20.

Inter-rater reliability of the Hamilton Depression Rating Scale as a diagnostic and outcome measure of depression in primary care.

Morriss R, Leese M, Chatwin J, Baldwin D; THREAD Study Group..

J Affect Disord. 2008 Dec;111(2-3):204-13. doi: 10.1016/j.jad.2008.02.013.

PMID:
18374987
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