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Items: 1 to 20 of 110

1.

From consent to institutions: designing adaptive governance for genomic biobanks.

O'Doherty KC, Burgess MM, Edwards K, Gallagher RP, Hawkins AK, Kaye J, McCaffrey V, Winickoff DE.

Soc Sci Med. 2011 Aug;73(3):367-74. doi: 10.1016/j.socscimed.2011.05.046. Epub 2011 Jul 2.

PMID:
21726926
2.

Ethically sustainable governance in the biobanking of eggs and embryos for research.

Stroud K, O'Doherty KC.

Monash Bioeth Rev. 2015 Dec;33(4):277-94. doi: 10.1007/s40592-015-0047-6.

PMID:
26712609
3.

Securing our genetic health: engendering trust in UK Biobank.

Petersen A.

Sociol Health Illn. 2005 Mar;27(2):271-92. Review.

4.

Informed consent in biobank research: a deliberative approach to the debate.

Secko DM, Preto N, Niemeyer S, Burgess MM.

Soc Sci Med. 2009 Feb;68(4):781-9. doi: 10.1016/j.socscimed.2008.11.020. Epub 2008 Dec 16.

PMID:
19095337
5.

Ethical norms and the international governance of genetic databases and biobanks: findings from an international study.

Capron AM, Mauron A, Elger BS, Boggio A, Ganguli-Mitra A, Biller-Andorno N.

Kennedy Inst Ethics J. 2009 Jun;19(2):101-24.

PMID:
19623818
6.

Accountability, governance and biobanks: the ethics and governance committee as guardian or as toothless tiger?

McHale JV.

Health Care Anal. 2011 Sep;19(3):231-46. doi: 10.1007/s10728-011-0195-7.

PMID:
21938513
7.

Involving citizens in the ethics of biobank research: informing institutional policy through structured public deliberation.

O'Doherty KC, Hawkins AK, Burgess MM.

Soc Sci Med. 2012 Nov;75(9):1604-11. doi: 10.1016/j.socscimed.2012.06.026. Epub 2012 Jul 28.

PMID:
22867865
8.

[Governance and measures for the ethical and social aspects of biobanks].

Iwae S, Masui T.

Gan To Kagaku Ryoho. 2012 Apr;39(4):493-7. Review. Japanese.

PMID:
22504670
9.

Governing UK Biobank: the importance of ensuring public trust.

Tutton R, Kaye J, Hoeyer K.

Trends Biotechnol. 2004 Jun;22(6):284-5.

PMID:
15158057
10.

A biobank management model applicable to biomedical research.

Auray-Blais C, Patenaude J.

BMC Med Ethics. 2006 Apr 6;7:E4.

11.

The informed consent aftermath of the genetic revolution. An Italian example of implementation.

Artizzu F.

Med Health Care Philos. 2008 Jun;11(2):181-90. Epub 2007 Jul 19.

PMID:
17638119
12.

Evolutionary concepts in biobanking - the BC BioLibrary.

Watson PH, Wilson-McManus JE, Barnes RO, Giesz SC, Png A, Hegele RG, Brinkman JN, Mackenzie IR, Huntsman DG, Junker A, Gilks B, Skarsgard E, Burgess M, Aparicio S, McManus BM.

J Transl Med. 2009 Nov 12;7:95. doi: 10.1186/1479-5876-7-95.

13.

Engaging the public on biobanks: outcomes of the BC biobank deliberation.

O'Doherty KC, Burgess MM.

Public Health Genomics. 2009;12(4):203-15. doi: 10.1159/000167801. Epub 2008 Oct 31.

PMID:
19367089
14.

Genomic Databases and Biobanks in Israel.

Siegal G.

J Law Med Ethics. 2015 Winter;43(4):766-75. doi: 10.1111/jlme.12318.

PMID:
26711416
15.

Reconsidering the value of consent in biobank research.

Allen J, McNamara B.

Bioethics. 2011 Mar;25(3):155-66. doi: 10.1111/j.1467-8519.2009.01749.x.

PMID:
19659851
16.

Biobank governance: trends and perspectives.

Gottweis H, Zatloukal K.

Pathobiology. 2007;74(4):206-11.

17.

Tackling legal challenges posed by population biobanks: reconceptualising consent requirements.

Otlowski MF.

Med Law Rev. 2012 Spring;20(2):191-226. doi: 10.1093/medlaw/fwr035. Epub 2012 Jan 29. Review.

PMID:
22290730
18.

Inter- and intra-biobank networks: classification of biobanks.

Shickle D, Griffin M, El-Arifi K.

Pathobiology. 2010;77(4):181-90. doi: 10.1159/000292651. Epub 2010 Jul 7.

PMID:
20616613
19.
20.

Models of biobanks and implications for reproductive health innovation.

Capps B.

Monash Bioeth Rev. 2015 Dec;33(4):238-57. doi: 10.1007/s40592-015-0042-y.

PMID:
26670686

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