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Guideline on the design and conduct of cystic fibrosis clinical trials: the European Cystic Fibrosis Society-Clinical Trials Network (ECFS-CTN).

De Boeck K, Bulteel V, Tiddens H, Wagner T, Fajac I, Conway S, Dufour F, Smyth AR, Lee T, Sermet I, Kassai B, Elborn S; ECFS-CTN network partners.

J Cyst Fibros. 2011 Jun;10 Suppl 2:S67-74. doi: 10.1016/S1569-1993(11)60010-6.


The cystic fibrosis therapeutics development network (CF TDN): a paradigm of a clinical trials network for genetic and orphan diseases.

Goss CH, Mayer-Hamblett N, Kronmal RA, Ramsey BW.

Adv Drug Deliv Rev. 2002 Dec 5;54(11):1505-28. Review.


Is the raised volume rapid thoracic compression technique ready for use in clinical trials in infants with cystic fibrosis?

Matecki S, Kent L, de Boeck K, Le Bourgeois M, Zielen S, Braggion C, Arets HG, Bradley J, Davis S, Sermet I, Reix P; respiratory function group of the European Cystic Fibrosis Society Clinical Trial Network.

J Cyst Fibros. 2016 Jan;15(1):10-20. doi: 10.1016/j.jcf.2015.03.015. Epub 2015 Apr 15. Review.


Disease-specific clinical trials networks: the example of cystic fibrosis.

De Boeck K, Bulteel V, Fajac I.

Eur J Pediatr. 2016 Jun;175(6):817-24. doi: 10.1007/s00431-016-2712-z. Epub 2016 Mar 15.


Measuring health-related quality of life in clinical trials in cystic fibrosis.

Abbott J, Hart A, Havermans T, Matossian A, Goldbeck L, Barreto C, Bergsten-Brucefors A, Besier T, Catastini P, Lupi F, Staab D.

J Cyst Fibros. 2011 Jun;10 Suppl 2:S82-5. doi: 10.1016/S1569-1993(11)60013-1.


Clinical trials in cystic fibrosis.

Döring G, Elborn JS, Johannesson M, de Jonge H, Griese M, Smyth A, Heijerman H; Consensus Study Group.

J Cyst Fibros. 2007 Apr;6(2):85-99. Review.


The implementation of standards of care in Europe: state of the art.

Colombo C, Littlewood J.

J Cyst Fibros. 2011 Jun;10 Suppl 2:S7-15. doi: 10.1016/S1569-1993(11)60003-9. Review.


The NCI All Ireland Cancer Conference.

Johnston PG, Daly PA, Liu E.

Oncologist. 1999;4(4):275-277.


European cystic fibrosis society consensus on standards--a roadmap to "best care".

Littlewood JM.

J Cyst Fibros. 2005 Mar;4(1):1-5. Epub 2005 Jan 25. No abstract available.


[The Coordinating Centers for Clinical Trials (KKS) and the KKS Network: competence for clinical research].

Ohmann C, Bruns I, Wolff S.

Onkologie. 2010;33 Suppl 7:11-5. doi: 10.1159/000319734. Epub 2010 Sep 16. German.


Medical consensus, guidelines, and position papers: a policy for the ECFS.

De Boeck K, Castellani C, Elborn JS; ECFS Board.

J Cyst Fibros. 2014 Sep;13(5):495-8. doi: 10.1016/j.jcf.2014.06.012. Epub 2014 Jul 19.


European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre.

Conway S, Balfour-Lynn IM, De Rijcke K, Drevinek P, Foweraker J, Havermans T, Heijerman H, Lannefors L, Lindblad A, Macek M, Madge S, Moran M, Morrison L, Morton A, Noordhoek J, Sands D, Vertommen A, Peckham D.

J Cyst Fibros. 2014 May;13 Suppl 1:S3-22. doi: 10.1016/j.jcf.2014.03.009. Review.


Controlled clinical trials in cystic fibrosis--are we doing better?

Briggs TA, Bryant M, Smyth RL.

J Cyst Fibros. 2006 Jan;5(1):3-8. Epub 2005 Nov 3.


American Society of Clinical Oncology Statement on minimum standards and exemplary attributes of clinical trial sites.

Zon R, Meropol NJ, Catalano RB, Schilsky RL.

J Clin Oncol. 2008 May 20;26(15):2562-7. doi: 10.1200/JCO.2007.15.6398. Epub 2008 Apr 7.


[Swiss registry for patients with cystic fibrosis: design, programming, implementation and first examples of use].

Schöni-Affolter F, Oswald P, Wandt-Baumann C, Kriemler S, Schöni MH.

Schweiz Med Wochenschr. 2000 Sep 30;130(39):1373-81. German.


Developing new products in cystic fibrosis: needs and obstacles for activities of small and middle-sized companies.

Schlangen M, Reimann AL.

J Cyst Fibros. 2011 Jun;10 Suppl 2:S103-9. doi: 10.1016/S1569-1993(11)60015-5.


Promoting good clinical practices in the conduct of clinical trials: experiences in the Department of Veterans Affairs Cooperative Studies Program.

Sather MR, Raisch DW, Haakenson CM, Buckelew JM, Feussner JR; Department of Veterans Affairs Cooperative Studies Program.

Control Clin Trials. 2003 Oct;24(5):570-84.


European Cystic Fibrosis Society Standards of Care: Quality Management in cystic fibrosis.

Stern M, Bertrand DP, Bignamini E, Corey M, Dembski B, Goss CH, Pressler T, Rault G, Viviani L, Elborn JS, Castellani C.

J Cyst Fibros. 2014 May;13 Suppl 1:S43-59. doi: 10.1016/j.jcf.2014.03.011. Review.


German Paediatric Research Network (PAED-Net).

Seibert-Grafe M, Butzer R, Zepp F.

Paediatr Drugs. 2009;11(1):11-3.


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