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Items: 1 to 20 of 100

1.

The Michigan BioTrust for Health: using dried bloodspots for research to benefit the community while respecting the individual.

Chrysler D, McGee H, Bach J, Goldman E, Jacobson PD.

J Law Med Ethics. 2011 Mar;39 Suppl 1:98-101. doi: 10.1111/j.1748-720X.2011.00577.x. No abstract available.

2.

Newborn blood collections. Science gold mine, ethical minefield.

Couzin-Frankel J.

Science. 2009 Apr 10;324(5924):166-8. doi: 10.1126/science.324.5924.166. No abstract available.

PMID:
19359558
3.

Parental Consent for the Use of Residual Newborn Screening Bloodspots: Respecting Individual Liberty vs Ensuring Public Health.

Bayefsky MJ, Saylor KW, Berkman BE.

JAMA. 2015 Jul 7;314(1):21-2. doi: 10.1001/jama.2015.6175. No abstract available.

PMID:
26053685
4.

From newborn screening to population health research: implementation of the Michigan BioTrust for health.

Langbo C, Bach J, Kleyn M, Downes FP.

Public Health Rep. 2013 Sep-Oct;128(5):377-84.

5.

Michigan BioTrust for Health: public support for using residual dried blood spot samples for health research.

Duquette D, Langbo C, Bach J, Kleyn M.

Public Health Genomics. 2012;15(3-4):146-55. doi: 10.1159/000336565. Epub 2012 Apr 4.

PMID:
22488457
6.

Newborn bloodspot retention reinstated in Minnesota: practice expected to benefit larger newborn screening studies, public health, disease research.

[No authors listed]

Am J Med Genet A. 2014 Sep;164A(9):viii-ix. doi: 10.1002/ajmg.a.36733. No abstract available.

PMID:
25125344
7.

Lessons from the residual newborn screening dried blood sample litigation.

Lewis MH.

J Law Med Ethics. 2015 Spring;43 Suppl 1:32-5. doi: 10.1111/jlme.12211. No abstract available.

PMID:
25846160
8.

IRB review and public health biobanking: a case study of the Michigan BioTrust for Health.

Mongoven A, McGee H.

IRB. 2012 May-Jun;34(3):11-6. No abstract available.

PMID:
22830178
9.

US agencies plan research-ethics overhaul.

Ledford H.

Nature. 2015 Sep 10;525(7568):166. doi: 10.1038/nature.2015.18309. No abstract available.

PMID:
26354461
10.

Research results: preserving newborn blood samples.

Lewis MH, Scheurer ME, Green RC, McGuire AL.

Sci Transl Med. 2012 Nov 7;4(159):159cm12. doi: 10.1126/scitranslmed.3004474.

11.

Return of Results from Research Using Newborn Screening Dried Blood Samples.

Lewis MH, Goldenberg AJ.

J Law Med Ethics. 2015 Fall;43(3):559-68. doi: 10.1111/jlme.12299.

12.

Retention and research use of residual newborn screening bloodspots.

Botkin JR, Goldenberg AJ, Rothwell E, Anderson RA, Lewis MH.

Pediatrics. 2013 Jan;131(1):120-7. doi: 10.1542/peds.2012-0852. Epub 2012 Dec 3. Review.

13.

State laws regarding the retention and use of residual newborn screening blood samples.

Lewis MH, Goldenberg A, Anderson R, Rothwell E, Botkin J.

Pediatrics. 2011 Apr;127(4):703-12. doi: 10.1542/peds.2010-1468. Epub 2011 Mar 28.

14.

Ethical issues relating the the banking of umbilical cord blood in Mexico.

Serrano-Delgado VM, Novello-Garza B, Valdez-Martinez E.

BMC Med Ethics. 2009 Aug 14;10:12. doi: 10.1186/1472-6939-10-12. Review.

15.

A comparative analysis of the governance and use of residual dried blood spots from state newborn screening programs and neonatal biobanks.

Preslan ED, Mathews DJ.

J Empir Res Hum Res Ethics. 2013 Jul;8(3):22-33. doi: 10.1525/jer.2013.8.3.22.

PMID:
23933773
16.

Newborn dried blood spot screening: residual specimen storage issues.

Therrell BL Jr, Hannon WH.

Pediatrics. 2012 Feb;129(2):365-6. doi: 10.1542/peds.2011-3416. Epub 2012 Jan 16. No abstract available.

PMID:
22250020
17.

Public attitudes regarding the use of residual newborn screening specimens for research.

Botkin JR, Rothwell E, Anderson R, Stark L, Goldenberg A, Lewis M, Burbank M, Wong B.

Pediatrics. 2012 Feb;129(2):231-8. doi: 10.1542/peds.2011-0970. Epub 2012 Jan 16.

18.

Ethical and legal issues raised by cord blood banking - the challenges of the new bioeconomy.

Stewart CL, Aparicio LC, Kerridge IH.

Med J Aust. 2013 Aug 19;199(4):290-2.

PMID:
23984790
19.

Community perspectives on public health biobanking: an analysis of community meetings on the Michigan BioTrust for Health.

Thiel DB, Platt T, Platt J, King SB, Kardia SL.

J Community Genet. 2014 Apr;5(2):125-38. doi: 10.1007/s12687-013-0162-0. Epub 2013 Jul 27.

20.

Residual newborn screening samples for research: parental information needs for decision-making.

Rothwell E, Clark L, Anderson R, Botkin JR.

J Spec Pediatr Nurs. 2013 Apr;18(2):115-22. doi: 10.1111/jspn.12017. Epub 2013 Mar 5.

PMID:
23560583

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