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Utilisation of Healthcare and Associated Services in Huntington's disease: a data mining study.

Busse M, Al-Madfai DH, Kenkre J, Landwehrmeyer GB, Bentivoglio A, Rosser A; European Huntington's Disease Network..

PLoS Curr. 2011 Jan 21;3:RRN1206. doi: 10.1371/currents.RRN1206.


Health-related quality of life and unmet healthcare needs in Huntington's disease.

van Walsem MR, Howe EI, Ruud GA, Frich JC, Andelic N.

Health Qual Life Outcomes. 2017 Jan 7;15(1):6. doi: 10.1186/s12955-016-0575-7.


Results of the ACSUS for pediatric AIDS patients: utilization of services, functional status, and social severity.

Fahs MC, Waite D, Sesholtz M, Muller C, Hintz EA, Maffeo C, Arno P, Bennett C.

Health Serv Res. 1994 Dec;29(5):549-68.


An item response analysis of the motor and behavioral subscales of the unified Huntington's disease rating scale in huntington disease gene expansion carriers.

Vaccarino AL, Anderson K, Borowsky B, Duff K, Giuliano J, Guttman M, Ho AK, Orth M, Paulsen JS, Sills T, van Kammen DP, Evans KR; PREDICT-HD and REGISTRY Investigators Coordinators..

Mov Disord. 2011 Apr;26(5):877-84. doi: 10.1002/mds.23574. Epub 2011 Mar 2.


The unified Huntington's Disease Rating Scale for advanced patients: validation and follow-up study.

Youssov K, Dolbeau G, Maison P, Boissé MF, Cleret de Langavant L, Roos RA, Bachoud-Lévi AC.

Mov Disord. 2013 Dec;28(14):1995-2001. doi: 10.1002/mds.25678. Epub 2013 Oct 9.


Unmet needs for healthcare and social support services in patients with Huntington's disease: a cross-sectional population-based study.

van Walsem MR, Howe EI, Iversen K, Frich JC, Andelic N.

Orphanet J Rare Dis. 2015 Sep 28;10:124. doi: 10.1186/s13023-015-0324-8.


Tongue force analysis assesses motor phenotype in premanifest and symptomatic Huntington's disease.

Reilmann R, Bohlen S, Klopstock T, Bender A, Weindl A, Saemann P, Auer DP, Ringelstein EB, Lange HW.

Mov Disord. 2010 Oct 15;25(13):2195-202. doi: 10.1002/mds.23243.


Home treatment for mental health problems: a systematic review.

Burns T, Knapp M, Catty J, Healey A, Henderson J, Watt H, Wright C.

Health Technol Assess. 2001;5(15):1-139. Review.


Identification of extreme motor phenotypes in Huntington's disease.

Braisch U, Hay B, Muche R, Rothenbacher D, Landwehrmeyer GB, Long JD, Orth M; REGISTRY Investigators of the European Huntington's Disease Network and COHORT Investigators of the Huntington Study Group..

Am J Med Genet B Neuropsychiatr Genet. 2017 Apr;174(3):283-294. doi: 10.1002/ajmg.b.32514. Epub 2016 Nov 21.


Unified Huntington's disease rating scale for advanced patients: validation and follow-up study.

Youssov K, Dolbeau G, Maison P, Boissé MF, Cleret de Langavant L, Roos RA, Bachoud-Lévi AC.

Mov Disord. 2013 Oct;28(12):1717-23. doi: 10.1002/mds.25654.


Rural and remote dementia care challenges and needs: perspectives of formal and informal care providers residing in Saskatchewan, Canada.

Dal Bello-Haas VP, Cammer A, Morgan D, Stewart N, Kosteniuk J.

Rural Remote Health. 2014;14(3):2747. Epub 2014 Aug 1.


Clinical and genetic characteristics in patients with Huntington's disease from China.

Yang J, Chen K, Wei Q, Chen Y, Cao B, Burgunder JM, Shang HF.

Neurol Res. 2016 Oct;38(10):916-20. doi: 10.1080/01616412.2016.1214555. Epub 2016 Jul 29.


The societal cost of Huntington's disease: are we underestimating the burden?

Jones C, Busse M, Quinn L, Dawes H, Drew C, Kelson M, Hood K, Rosser A, Edwards RT.

Eur J Neurol. 2016 Oct;23(10):1588-90. doi: 10.1111/ene.13107. Epub 2016 Jul 27.


Feasibility of a rural palliative supportive service.

Pesut B, Hooper BP, Robinson CA, Bottorff JL, Sawatzky R, Dalhuisen M.

Rural Remote Health. 2015 Apr-Jun;15(2):3116. Epub 2015 May 4.


Informal and formal care: Substitutes or complements in care for people with dementia? Empirical evidence for 8 European countries.

Bremer P, Challis D, Hallberg IR, Leino-Kilpi H, Saks K, Vellas B, Zwakhalen SMG, Sauerland D; RightTimePlaceCare Consortium..

Health Policy. 2017 Apr 8. pii: S0168-8510(17)30088-X. doi: 10.1016/j.healthpol.2017.03.013. [Epub ahead of print]


Caregiver- and patient-directed interventions for dementia: an evidence-based analysis.

Health Quality Ontario..

Ont Health Technol Assess Ser. 2008;8(4):1-98. Epub 2008 Oct 1.


Optimising mobility outcome measures in Huntington's disease.

Busse M, Quinn L, Khalil H, McEwan K.

J Huntingtons Dis. 2014;3(2):175-88. doi: 10.3233/JHD-140091.


Substitution between Formal and Informal Care for Persons with Severe Mental Illness and Substance Use Disorders.

Clark RE, Xie H, Adachi-Mejia AM, Sengupta A.

J Ment Health Policy Econ. 2001 Sep 1;4(3):123-132.


Community care in Europe. The Aged in Home Care project (AdHOC).

Carpenter I, Gambassi G, Topinkova E, Schroll M, Finne-Soveri H, Henrard JC, Garms-Homolova V, Jonsson P, Frijters D, Ljunggren G, Sørbye LW, Wagner C, Onder G, Pedone C, Bernabei R.

Aging Clin Exp Res. 2004 Aug;16(4):259-69.


Unified Huntington's disease rating scale: a follow up.

Siesling S, van Vugt JP, Zwinderman KA, Kieburtz K, Roos RA.

Mov Disord. 1998 Nov;13(6):915-9.


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