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Items: 1 to 20 of 106

1.

Research ethics. Research practice and participant preferences: the growing gulf.

Trinidad SB, Fullerton SM, Ludman EJ, Jarvik GP, Larson EB, Burke W.

Science. 2011 Jan 21;331(6015):287-8. doi: 10.1126/science.1199000. No abstract available.

2.

Research ethics. Children and population biobanks.

Gurwitz D, Fortier I, Lunshof JE, Knoppers BM.

Science. 2009 Aug 14;325(5942):818-9. doi: 10.1126/science.1173284. No abstract available.

PMID:
19679798
3.

Biobanks: oversight offers protection.

Hens K, Wright J, Dierickx K.

Science. 2009 Nov 6;326(5954):798-9; author reply 799. doi: 10.1126/science.326_798c. No abstract available.

PMID:
19892962
4.

Biobanking DNA.

[No authors listed]

Am J Med Genet A. 2010 Dec;152A(12):fmviii-fmix. doi: 10.1002/ajmg.a.33824. No abstract available.

PMID:
21108383
5.

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.

Sanderson SC, Brothers KB, Mercaldo ND, Clayton EW, Antommaria AHM, Aufox SA, Brilliant MH, Campos D, Carrell DS, Connolly J, Conway P, Fullerton SM, Garrison NA, Horowitz CR, Jarvik GP, Kaufman D, Kitchner TE, Li R, Ludman EJ, McCarty CA, McCormick JB, McManus VD, Myers MF, Scrol A, Williams JL, Shrubsole MJ, Schildcrout JS, Smith ME, Holm IA.

Am J Hum Genet. 2017 Mar 2;100(3):414-427. doi: 10.1016/j.ajhg.2017.01.021. Epub 2017 Feb 9.

6.

What research ethics should learn from genomics and society research: lessons from the ELSI Congress of 2011.

Henderson GE, Juengst ET, King NM, Kuczynski K, Michie M.

J Law Med Ethics. 2012 Winter;40(4):1008-24. doi: 10.1111/j.1748-720X.2012.00728.x.

7.

Public preferences regarding informed consent models for participation in population-based genomic research.

Platt J, Bollinger J, Dvoskin R, Kardia SL, Kaufman D.

Genet Med. 2014 Jan;16(1):11-8. doi: 10.1038/gim.2013.59. Epub 2013 May 9.

8.

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.

Clayton EW, Smith M, Fullerton SM, Burke W, McCarty CA, Koenig BA, McGuire AL, Beskow LM, Dressler L, Lemke AA, Ramos EM, Rodriguez LL; Consent and Community Consultation Working Group of the eMERGE Consortium.

Genet Med. 2010 Oct;12(10):616-20. doi: 10.1097/GIM.0b013e3181efdbd0. No abstract available.

9.

Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents.

Munung NS, Marshall P, Campbell M, Littler K, Masiye F, Ouwe-Missi-Oukem-Boyer O, Seeley J, Stein DJ, Tindana P, de Vries J.

J Med Ethics. 2016 Feb;42(2):132-7. doi: 10.1136/medethics-2015-102796. Epub 2015 Dec 7.

10.

Genomics. Genomics, biobanks, and the trade-secret model.

Mitchell R, Conley JM, Davis AM, Cadigan RJ, Dobson AW, Gladden RQ.

Science. 2011 Apr 15;332(6027):309-10. doi: 10.1126/science.1199554. No abstract available.

PMID:
21493846
12.

Biobanks: too long to wait for consent.

Brothers KB, Clayton EW.

Science. 2009 Nov 6;326(5954):798; author reply 799. doi: 10.1126/science.326_798a. No abstract available.

PMID:
19892963
13.

Ethics Reporting in Biospecimen and Genetic Research: Current Practice and Suggestions for Changes.

Chin WW, Wieschowski S, Prokein J, Illig T, Strech D.

PLoS Biol. 2016 Aug 2;14(8):e1002521. doi: 10.1371/journal.pbio.1002521. eCollection 2016 Aug.

14.

Genetic research with stored biological materials: ethics and practice.

Wolf LE, Bouley TA, McCulloch CE.

IRB. 2010 Mar-Apr;32(2):7-18. No abstract available.

15.

Ethics. Identifiability in genomic research.

Lowrance WW, Collins FS.

Science. 2007 Aug 3;317(5838):600-2. No abstract available.

PMID:
17673640
16.

The right to withdraw consent to research on biobank samples.

Helgesson G, Johnsson L.

Med Health Care Philos. 2005;8(3):315-21.

PMID:
16283494
17.

In defense of broad consent.

Helgesson G.

Camb Q Healthc Ethics. 2012 Jan;21(1):40-50. doi: 10.1017/S096318011100048X. No abstract available.

PMID:
22152457
18.

Navigating an ethical patchwork--human gene banks.

Maschke KJ.

Nat Biotechnol. 2005 May;23(5):539-45. No abstract available. Erratum in: Nat Biotechnol. 2005 Jul;23(7):896.

PMID:
15877066
19.

Biobanks: questioning distinctions.

Hansson MG, Maschke KJ.

Science. 2009 Nov 6;326(5954):797; author reply 799. doi: 10.1126/science.326_797b. No abstract available.

PMID:
19892960
20.

Ethical endgames: broad consent for narrow interests; open consent for closed minds.

Karlsen JR, Solbakk JH, Holm S.

Camb Q Healthc Ethics. 2011 Oct;20(4):572-83. doi: 10.1017/S0963180111000314. No abstract available.

PMID:
21843388

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