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Items: 1 to 20 of 121

1.

Implementing a specialty electronic medical record to document a life-course developmental model and facilitate clinical interventions in spina bifida clinics.

Fairman AD, Thibadeau JK, Dicianno BE, Parmanto B.

Pediatr Clin North Am. 2010 Aug;57(4):959-71. doi: 10.1016/j.pcl.2010.07.015. Review.

PMID:
20883885
2.

Using the spina bifida life course model in clinical practice: an interdisciplinary approach.

Dicianno BE, Fairman AD, Juengst SB, Braun PG, Zabel TA.

Pediatr Clin North Am. 2010 Aug;57(4):945-57. doi: 10.1016/j.pcl.2010.07.014. Review.

PMID:
20883884
3.

The National Spina Bifida Program transition initiative: the people, the plan, and the process.

Thibadeau JK, Alriksson-Schmidt AI, Zabel TA.

Pediatr Clin North Am. 2010 Aug;57(4):903-10. doi: 10.1016/j.pcl.2010.07.010.

PMID:
20883880
4.

Beyond multidisciplinary care: a new conceptual model for spina bifida services.

Kinsman SL, Levey E, Ruffing V, Stone J, Warren L.

Eur J Pediatr Surg. 2000 Dec;10 Suppl 1:35-8. Review.

PMID:
11214831
5.

Need for the life course model for spina bifida.

Swanson ME.

Pediatr Clin North Am. 2010 Aug;57(4):893-901. doi: 10.1016/j.pcl.2010.08.001. Review.

PMID:
20883879
6.

Young people with spina bifida: transfer from paediatric to adult health care.

Sawyer SM, Collins N, Bryan D, Brown D, Hope MA, Bowes G.

J Paediatr Child Health. 1998 Oct;34(5):414-7.

PMID:
9767501
7.

The transition study: a look at youth and adults with cerebral palsy, spina bifida and acquired brain injury.

Young N, McCormick A, Mills W, Barden W, Boydell K, Law M, Wedge J, Fehlings D, Mukherjee S, Rumney P, Williams JI.

Phys Occup Ther Pediatr. 2006;26(4):25-45.

PMID:
17135068
8.

Spina bifida: the transition into adulthood begins in infancy.

Peterson PM, Rauen KK, Brown J, Cole J.

Rehabil Nurs. 1994 Jul-Aug;19(4):229-38.

PMID:
7831524
9.

What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida.

Binks JA, Barden WS, Burke TA, Young NL.

Arch Phys Med Rehabil. 2007 Aug;88(8):1064-73. Review.

PMID:
17678671
10.

The role of the nurse coordinator in spina bifida clinics.

Dunleavy MJ.

ScientificWorldJournal. 2007 Nov 26;7:1884-9. Review.

11.

Gaps and opportunities: an agenda for further research, services, and program development in spina bifida.

Sawin KJ, Betz CL, Linroth R.

Pediatr Clin North Am. 2010 Aug;57(4):1041-57. doi: 10.1016/j.pcl.2010.07.020. Review.

PMID:
20883891
12.

Implementation of an inter-agency transition model for youth with spina bifida.

Lindsay S, Cruickshank H, McPherson AC, Maxwell J.

Child Care Health Dev. 2016 Mar;42(2):203-12. doi: 10.1111/cch.12303. Epub 2015 Nov 17.

PMID:
26573266
13.

Transition to adult health care for adolescents with spina bifida: research issues.

Sawyer SM, Macnee S.

Dev Disabil Res Rev. 2010;16(1):60-5. doi: 10.1002/ddrr.98. Review.

PMID:
20419772
14.

Testing the feasibility of a National Spina Bifida Patient Registry.

Thibadeau JK, Ward EA, Soe MM, Liu T, Swanson M, Sawin KJ, Freeman KA, Castillo H, Rauen K, Schechter MS.

Birth Defects Res A Clin Mol Teratol. 2013 Jan;97(1):36-41. doi: 10.1002/bdra.23094. Epub 2012 Nov 2.

15.

Transition to adulthood in spina bifida: changing roles and expectations.

Mukherjee S.

ScientificWorldJournal. 2007 Nov 26;7:1890-5. Review.

16.

The Life Course Model Web site: an online transition-focused resource for the spina bifida community.

Zabel TA, Linroth R, Fairman AD.

Pediatr Clin North Am. 2010 Aug;57(4):911-7. doi: 10.1016/j.pcl.2010.07.011. Review.

PMID:
20883881
17.

Development of health support services for adults with spina bifida.

West C, Brodie L, Dicker J, Steinbeck K.

Disabil Rehabil. 2011;33(23-24):2381-8. doi: 10.3109/09638288.2011.568664. Epub 2011 Apr 15.

PMID:
21492059
18.

Optimizing health care for adults with spina bifida.

Webb TS.

Dev Disabil Res Rev. 2010;16(1):76-81. doi: 10.1002/ddrr.99. Review.

PMID:
20419774
19.

Approaches to transition in other chronic illnesses and conditions.

Betz CL.

Pediatr Clin North Am. 2010 Aug;57(4):983-96. doi: 10.1016/j.pcl.2010.07.017. Review.

PMID:
20883887
20.

Development of a tool to manage patient health records in support of burn injury research.

Price R, Hicks C, Zelisko S, Halerz M, Conrad P, Halerz J, Gamelli RL.

J Burn Care Res. 2011 Nov-Dec;32(6):654-9. doi: 10.1097/BCR.0b013e318231c55a.

PMID:
21934627

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