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Items: 1 to 20 of 201

1.

Bridging the divide between genomic science and indigenous peoples.

Jacobs B, Roffenbender J, Collmann J, Cherry K, Bitsói LL, Bassett K, Evans CH Jr.

J Law Med Ethics. 2010 Fall;38(3):684-96. doi: 10.1111/j.1748-720X.2010.00521.x.

PMID:
20880250
2.

Knowing who to trust: exploring the role of 'ethical metadata' in mediating risk of harm in collaborative genomics research in Africa.

de Vries J, Williams TN, Bojang K, Kwiatkowski DP, Fitzpatrick R, Parker M.

BMC Med Ethics. 2014 Aug 13;15:62. doi: 10.1186/1472-6939-15-62.

3.

Population genomics and research ethics with socially identifable groups.

McGregor JL.

J Law Med Ethics. 2007 Fall;35(3):356-70.

PMID:
17714247
4.
5.

Indigenous genomics.

Hayes V.

Science. 2011 May 6;332(6030):639. doi: 10.1126/science.1205999. No abstract available.

6.

Ethical issues in community health research: implications for First Nations and circumpolar indigenous peoples.

Kaufert JM, Kaufert PL.

Int J Circumpolar Health. 1998;57 Suppl 1:33-7.

PMID:
10093241
7.

Community members' engagement with and involvement in genomic research: lessons to learn from the field.

Folayan MO, Oyedeji KS, Fatusi OA.

Dev World Bioeth. 2015 Apr;15(1):1-7. doi: 10.1111/dewb.12020. Epub 2013 Apr 17.

PMID:
23594220
8.

Seeking consent for research with indigenous communities: a systematic review.

Fitzpatrick EF, Martiniuk AL, D'Antoine H, Oscar J, Carter M, Elliott EJ.

BMC Med Ethics. 2016 Oct 22;17(1):65. Review.

9.

What research ethics should learn from genomics and society research: lessons from the ELSI Congress of 2011.

Henderson GE, Juengst ET, King NM, Kuczynski K, Michie M.

J Law Med Ethics. 2012 Winter;40(4):1008-24. doi: 10.1111/j.1748-720X.2012.00728.x.

10.

Developing community-driven quality improvement initiatives to enhance chronic disease care in Indigenous communities in Canada: the FORGE AHEAD program protocol.

Naqshbandi Hayward M, Paquette-Warren J, Harris SB; FORGE AHEAD Program Team.

Health Res Policy Syst. 2016 Jul 26;14(1):55. doi: 10.1186/s12961-016-0127-y.

11.

Ethical genetic research in Indigenous communities: challenges and successful approaches.

McWhirter RE, Mununggirritj D, Marika D, Dickinson JL, Condon JR.

Trends Mol Med. 2012 Dec;18(12):702-8. doi: 10.1016/j.molmed.2012.08.003. Epub 2012 Sep 21.

PMID:
23007173
13.

Identifying indigenous peoples for health research in a global context: a review of perspectives and challenges.

Bartlett JG, Madariaga-Vignudo L, O'Neil JD, Kuhnlein HV.

Int J Circumpolar Health. 2007 Sep;66(4):287-307. Review.

PMID:
18018843
14.

Privacy issues in second stage genomics.

Robertson JA.

Jurimetrics. 1999 Fall;40:59-76.

PMID:
14621715
15.
16.

Indigenous peoples and the morality of the Human Genome Diversity Project.

Dodson M, Williamson R.

J Med Ethics. 1999 Apr;25(2):204-8.

17.

Indigenous peoples of North America: environmental exposures and reproductive justice.

Hoover E, Cook K, Plain R, Sanchez K, Waghiyi V, Miller P, Dufault R, Sislin C, Carpenter DO.

Environ Health Perspect. 2012 Dec;120(12):1645-9. doi: 10.1289/ehp.1205422. Epub 2012 Aug 16.

18.
19.

Ethical and legal implications of whole genome and whole exome sequencing in African populations.

Wright GE, Koornhof PG, Adeyemo AA, Tiffin N.

BMC Med Ethics. 2013 May 28;14:21. doi: 10.1186/1472-6939-14-21.

20.

Engaging Māori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities.

Beaton A, Hudson M, Milne M, Port RV, Russell K, Smith B, Toki V, Uerata L, Wilcox P, Bartholomew K, Wihongi H.

Genet Med. 2017 Mar;19(3):345-351. doi: 10.1038/gim.2016.111. Epub 2016 Sep 15.

PMID:
27632687

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