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Items: 1 to 20 of 101

1.

What were you thinking?: individuals at risk for Huntington Disease talk about having children.

Quaid KA, Swenson MM, Sims SL, Harrison JM, Moskowitz C, Stepanov N, Suter GW, Westphal BJ; Huntington Study Group PHAROS Investigators and Coordinators.

J Genet Couns. 2010 Dec;19(6):606-17. doi: 10.1007/s10897-010-9312-2. Epub 2010 Aug 24.

2.

Living at risk: concealing risk and preserving hope in Huntington disease.

Quaid KA, Sims SL, Swenson MM, Harrison JM, Moskowitz C, Stepanov N, Suter GW, Westphal BJ.

J Genet Couns. 2008 Feb;17(1):117-28. Epub 2007 Oct 18.

3.

The complexity of reproductive decision-making in asymptomatic carriers of the Huntington mutation.

Decruyenaere M, Evers-Kiebooms G, Boogaerts A, Philippe K, Demyttenaere K, Dom R, Vandenberghe W, Fryns JP.

Eur J Hum Genet. 2007 Apr;15(4):453-62. Epub 2007 Jan 24.

4.

Genetic counselors' perceived responsibilities regarding reproductive issues for patients at risk for Huntington disease.

Hines KA, Veach PM, LeRoy BS.

J Genet Couns. 2010 Apr;19(2):131-47. doi: 10.1007/s10897-009-9265-5. Epub 2009 Oct 23.

PMID:
19851850
5.

Adults seeking presymptomatic gene testing for Huntington disease.

Williams JK, Schutte DL, Evers CA, Forcucci C.

Image J Nurs Sch. 1999;31(2):109-14.

PMID:
10380384
6.

Two decades of Huntington disease testing: patient's demographics and reproductive choices.

Krukenberg RC, Koller DL, Weaver DD, Dickerson JN, Quaid KA.

J Genet Couns. 2013 Oct;22(5):643-53. doi: 10.1007/s10897-013-9596-0. Epub 2013 May 25.

PMID:
23709094
7.

Personal factors associated with reported benefits of Huntington disease family history or genetic testing.

Williams JK, Erwin C, Juhl A, Mills J, Brossman B, Paulsen JS; I-RESPOND-HD Investigators of the Huntington Study Group.

Genet Test Mol Biomarkers. 2010 Oct;14(5):629-36. doi: 10.1089/gtmb.2010.0065. Epub 2010 Aug 19.

9.

Disclosures of Huntington disease risk within families: patterns of decision-making and implications.

Klitzman R, Thorne D, Williamson J, Chung W, Marder K.

Am J Med Genet A. 2007 Aug 15;143A(16):1835-49.

PMID:
17632780
10.

Predictive DNA-testing for Huntington's disease and reproductive decision making: a European collaborative study.

Evers-Kiebooms G, Nys K, Harper P, Zoeteweij M, Dürr A, Jacopini G, Yapijakis C, Simpson S.

Eur J Hum Genet. 2002 Mar;10(3):167-76.

11.

Controlled trial of pretest education approaches to enhance informed decision-making for BRCA1 gene testing.

Lerman C, Biesecker B, Benkendorf JL, Kerner J, Gomez-Caminero A, Hughes C, Reed MM.

J Natl Cancer Inst. 1997 Jan 15;89(2):148-57.

PMID:
8998184
12.

Fear of health insurance loss among individuals at risk for Huntington disease.

Oster E, Dorsey ER, Bausch J, Shinaman A, Kayson E, Oakes D, Shoulson I, Quaid K; Huntington Study Group PHAROS Investigators.

Am J Med Genet A. 2008 Aug 15;146A(16):2070-7. doi: 10.1002/ajmg.a.32422.

13.

Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-making.

Geller G, Tambor ES, Bernhardt BA, Fraser G, Wissow LS.

J Adolesc Health. 2003 Apr;32(4):260-71. Erratum in: J Adolesc Health. 2003 Jul;33(1):49.

PMID:
12667730
14.

[Analysis of 14 individuals who requested predictive genetic testing for hereditary neuromuscular diseases].

Yoshida K, Tamai M, Kubota T, Kawame H, Amano N, Ikeda S, Fukushima Y.

Rinsho Shinkeigaku. 2002 Feb;42(2):113-7. Japanese.

PMID:
12424959
15.
16.

Experiences of teens living in the shadow of Huntington Disease.

Sparbel KJ, Driessnack M, Williams JK, Schutte DL, Tripp-Reimer T, McGonigal-Kenney M, Jarmon L, Paulsen JS.

J Genet Couns. 2008 Aug;17(4):327-35. doi: 10.1007/s10897-008-9151-6. Epub 2008 Mar 18.

17.

Health-related quality of life in early breast cancer.

Groenvold M.

Dan Med Bull. 2010 Sep;57(9):B4184.

PMID:
20816024
18.
19.

Differences between women who pursued genetic testing for hereditary breast and ovarian cancer and their at-risk relatives who did not.

Katapodi MC, Northouse L, Pierce P, Milliron KJ, Liu G, Merajver SD.

Oncol Nurs Forum. 2011 Sep;38(5):572-81. doi: 10.1188/11.ONF.572-581.

PMID:
21875844
20.

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