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Items: 1 to 20 of 104

1.

Tailoring the process of informed consent in genetic and genomic research.

Rotimi CN, Marshall PA.

Genome Med. 2010 Mar 24;2(3):20. doi: 10.1186/gm141.

2.

Informed consent for human genetic and genomic studies: a systematic review.

Khan A, Capps BJ, Sum MY, Kuswanto CN, Sim K.

Clin Genet. 2014 Sep;86(3):199-206. doi: 10.1111/cge.12384. Epub 2014 Apr 18. Review.

PMID:
24646408
3.
4.

American Society of Clinical Oncology policy statement: oversight of clinical research.

American Society of Clinical Oncology.

J Clin Oncol. 2003 Jun 15;21(12):2377-86. Epub 2003 Apr 29.

PMID:
12721281
5.

Broadening research consent in the era of genome-informed medicine.

Kronenthal C, Delaney SK, Christman MF.

Genet Med. 2012 Apr;14(4):432-6. doi: 10.1038/gim.2011.76. Epub 2012 Mar 15.

PMID:
22422050
6.

[The origin of informed consent].

Mallardi V.

Acta Otorhinolaryngol Ital. 2005 Oct;25(5):312-27. Italian.

PMID:
16602332
7.

Seeking consent to genetic and genomic research in a rural Ghanaian setting: a qualitative study of the MalariaGEN experience.

Tindana P, Bull S, Amenga-Etego L, de Vries J, Aborigo R, Koram K, Kwiatkowski D, Parker M.

BMC Med Ethics. 2012 Jul 2;13:15. doi: 10.1186/1472-6939-13-15.

8.

The effectiveness of health literacy interventions on the informed consent process of health care users: a systematic review protocol.

Perrenoud B, Velonaki VS, Bodenmann P, Ramelet AS.

JBI Database System Rev Implement Rep. 2015 Oct;13(10):82-94. doi: 10.11124/jbisrir-2015-2304.

PMID:
26571285
9.

Evolving approaches to the ethical management of genomic data.

McEwen JE, Boyer JT, Sun KY.

Trends Genet. 2013 Jun;29(6):375-82. doi: 10.1016/j.tig.2013.02.001. Epub 2013 Feb 28. Review.

10.

Patient-controlled encrypted genomic data: an approach to advance clinical genomics.

Trakadis YJ.

BMC Med Genomics. 2012 Jul 20;5:31. doi: 10.1186/1755-8794-5-31.

11.

Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives.

Oliver JM, Slashinski MJ, Wang T, Kelly PA, Hilsenbeck SG, McGuire AL.

Public Health Genomics. 2012;15(2):106-14. doi: 10.1159/000334718. Epub 2011 Dec 30.

12.

Informed consent for whole genome sequencing: a qualitative analysis of participant expectations and perceptions of risks, benefits, and harms.

Tabor HK, Stock J, Brazg T, McMillin MJ, Dent KM, Yu JH, Shendure J, Bamshad MJ.

Am J Med Genet A. 2012 Jun;158A(6):1310-9. doi: 10.1002/ajmg.a.35328. Epub 2012 Apr 24.

13.

Is informed consent broken?

Henderson GE.

Am J Med Sci. 2011 Oct;342(4):267-72. doi: 10.1097/MAJ.0b013e31822a6c47. Review.

PMID:
21817873
14.

Ethical issues in consumer genome sequencing: Use of consumers' samples and data.

Niemiec E, Howard HC.

Appl Transl Genom. 2016 Feb 1;8:23-30. doi: 10.1016/j.atg.2016.01.005. eCollection 2016 Mar.

15.

"Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing.

Tomlinson AN, Skinner D, Perry DL, Scollon SR, Roche MI, Bernhardt BA.

J Genet Couns. 2016 Feb;25(1):62-72. doi: 10.1007/s10897-015-9842-8. Epub 2015 Apr 26.

16.

The informed consent aftermath of the genetic revolution. An Italian example of implementation.

Artizzu F.

Med Health Care Philos. 2008 Jun;11(2):181-90. Epub 2007 Jul 19.

PMID:
17638119
17.

Participants' recall and understanding of genomic research and large-scale data sharing.

Robinson JO, Slashinski MJ, Wang T, Hilsenbeck SG, McGuire AL.

J Empir Res Hum Res Ethics. 2013 Oct;8(4):42-52. doi: 10.1525/jer.2013.8.4.42.

18.

Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance.

Simon C, Shinkunas LA, Brandt D, Williams JK.

J Med Ethics. 2012 Jul;38(7):417-22. doi: 10.1136/medethics-2011-100273. Epub 2012 Mar 5.

19.

Informed consent for exome sequencing research in families with genetic disease: the emerging issue of incidental findings.

Bergner AL, Bollinger J, Raraigh KS, Tichnell C, Murray B, Blout CL, Telegrafi AB, James CA.

Am J Med Genet A. 2014 Nov;164A(11):2745-52. doi: 10.1002/ajmg.a.36706. Epub 2014 Sep 22.

20.

Genetic counseling practice in next generation sequencing research: implications for the ethical oversight of the informed consent process.

Egalite N, Groisman IJ, Godard B.

J Genet Couns. 2014 Aug;23(4):661-70. doi: 10.1007/s10897-014-9703-x. Epub 2014 Mar 25.

PMID:
24664856

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