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Items: 1 to 20 of 143

1.

Palliative and end-of-life care in cystic fibrosis: what we know and what we need to know.

Robinson WM.

Curr Opin Pulm Med. 2009 Nov;15(6):621-5. doi: 10.1097/MCP.0b013e3283304c29. Review.

PMID:
19644376
2.

End of life care for patients with cystic fibrosis.

Sands D, Repetto T, Dupont LJ, Korzeniewska-Eksterowicz A, Catastini P, Madge S.

J Cyst Fibros. 2011 Jun;10 Suppl 2:S37-44. doi: 10.1016/S1569-1993(11)60007-6. Review.

3.

End-of-life care in cystic fibrosis.

Tonelli MR.

Curr Opin Pulm Med. 1998 Nov;4(6):332-6. Review.

PMID:
10813211
4.

End of life care in CF: patients, families and staff experiences and unmet needs.

Braithwaite M, Philip J, Tranberg H, Finlayson F, Gold M, Kotsimbos T, Wilson J.

J Cyst Fibros. 2011 Jul;10(4):253-7. doi: 10.1016/j.jcf.2011.03.002. Epub 2011 Mar 27.

5.

End-of-life care in adults with cystic fibrosis.

Philip JA, Gold M, Sutherland S, Finlayson F, Ware C, Braithwaite M, Harris J, Kotsimbos T, Wilson JF.

J Palliat Med. 2008 Mar;11(2):198-203. doi: 10.1089/jpm.2007.0106.

PMID:
18333734
6.

End-of-life care in cystic fibrosis.

Robinson WM, Ravilly S, Berde C, Wohl ME.

Pediatrics. 1997 Aug;100(2 Pt 1):205-9.

PMID:
9240800
7.

Advanced lung disease: quality of life and role of palliative care.

Gilbert CR, Smith CM.

Mt Sinai J Med. 2009 Feb;76(1):63-70. doi: 10.1002/msj.20091.

PMID:
19170219
8.

Impact of lung transplantation on site of death in cystic fibrosis.

Ford D, Flume PA.

J Cyst Fibros. 2007 Nov 30;6(6):391-5. Epub 2007 Apr 20.

9.

Health services research on end-of-life care.

Costantini M, Beccaro M.

Curr Opin Support Palliat Care. 2009 Sep;3(3):190-4. doi: 10.1097/SPC.0b013e32832e67c3. Review.

PMID:
19512931
10.

Deaths in childhood from cystic fibrosis: 10-year analysis from two London specialist centres.

Urquhart DS, Thia LP, Francis J, Prasad SA, Dawson C, Wallis C, Balfour-Lynn IM.

Arch Dis Child. 2013 Feb;98(2):123-7. doi: 10.1136/archdischild-2012-303027. Epub 2012 Dec 21.

PMID:
23264431
11.

An integrated model of provision of palliative care to patients with cystic fibrosis.

Bourke SJ, Doe SJ, Gascoigne AD, Heslop K, Fields M, Reynolds D, Mannix K.

Palliat Med. 2009 Sep;23(6):512-7. doi: 10.1177/0269216309106312. Epub 2009 May 21.

PMID:
19460834
12.

Palliative care for people with non-malignant lung disease: summary of current evidence and future direction.

Boland J, Martin J, Wells AU, Ross JR.

Palliat Med. 2013 Oct;27(9):811-6. doi: 10.1177/0269216313493467. Epub 2013 Jul 9.

PMID:
23838376
13.

Evidence for improving palliative care at the end of life: a systematic review.

Lorenz KA, Lynn J, Dy SM, Shugarman LR, Wilkinson A, Mularski RA, Morton SC, Hughes RG, Hilton LK, Maglione M, Rhodes SL, Rolon C, Sun VC, Shekelle PG.

Ann Intern Med. 2008 Jan 15;148(2):147-59. Review. Erratum in: Ann Intern Med. 2009 Nov 3;151(9):674.

PMID:
18195339
14.
15.

'A bed in the middle of nowhere': parents' meanings of place of death for adults with cystic fibrosis.

Lowton K.

Soc Sci Med. 2009 Oct;69(7):1056-62. doi: 10.1016/j.socscimed.2009.07.007. Epub 2009 Aug 18.

PMID:
19692159
16.

Lung transplantation and end of life issues in cystic fibrosis.

Aurora P, Lynn IM.

Paediatr Respir Rev. 2000 Jun;1(2):114-20. Review.

PMID:
12531103
17.

CF healthcare workers feel unprepared in providing suitable end of life care and desire more education: Results of a nationwide survey.

Goggin J, Cohen RI.

J Cyst Fibros. 2016 Jan;15(1):85-9. doi: 10.1016/j.jcf.2015.08.005. Epub 2015 Sep 8.

PMID:
26362397
18.

Cystic fibrosis. End-stage care in Canada.

Mitchell I, Nakielna E, Tullis E, Adair C.

Chest. 2000 Jul;118(1):80-4.

PMID:
10893363
19.

Early integration of pediatric palliative care: for some children, palliative care starts at diagnosis.

Mack JW, Wolfe J.

Curr Opin Pediatr. 2006 Feb;18(1):10-4. Review.

PMID:
16470155

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