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Items: 1 to 20 of 432

1.

Being the lifeline: the parent experience of caring for a child with neuromuscular disease on home mechanical ventilation.

Mah JK, Thannhauser JE, McNeil DA, Dewey D.

Neuromuscul Disord. 2008 Dec;18(12):983-8. doi: 10.1016/j.nmd.2008.09.001. Epub 2008 Oct 29.

PMID:
18974004
2.

Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home.

Carnevale FA, Alexander E, Davis M, Rennick J, Troini R.

Pediatrics. 2006 Jan;117(1):e48-60.

PMID:
16396848
3.

Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer.

Hechler T, Blankenburg M, Friedrichsdorf SJ, Garske D, Hübner B, Menke A, Wamsler C, Wolfe J, Zernikow B.

Klin Padiatr. 2008 May-Jun;220(3):166-74. doi: 10.1055/s-2008-1065347.

PMID:
18478489
4.

Parental stress and quality of life in children with neuromuscular disease.

Mah JK, Thannhauser JE, Kolski H, Dewey D.

Pediatr Neurol. 2008 Aug;39(2):102-7. doi: 10.1016/j.pediatrneurol.2008.04.011.

PMID:
18639753
5.

Different priorities: a comparison of parents' and health professionals' perceptions of quality of life in quadriplegic cerebral palsy.

Morrow AM, Quine S, Loughlin EV, Craig JC.

Arch Dis Child. 2008 Feb;93(2):119-25. Epub 2007 Oct 11.

PMID:
17932123
6.

Agreement between children with cancer and their parents in reporting the child's health-related quality of life during a stay at the hospital and at home.

Speyer E, Herbinet A, Vuillemin A, Chastagner P, Briançon S.

Child Care Health Dev. 2009 Jul;35(4):489-95. doi: 10.1111/j.1365-2214.2009.00972.x.

PMID:
19638023
7.

Parental handling of fear in children with cancer; caring in the best interests of the child.

Anderzén-Carlsson A, Kihlgren M, Svantesson M, Sorlie V.

J Pediatr Nurs. 2010 Oct;25(5):317-26. doi: 10.1016/j.pedn.2008.10.004. Epub 2009 Apr 8.

PMID:
20816553
8.
9.

Parent or nurse? The experience of being the parent of a technology-dependent child.

Kirk S, Glendinning C, Callery P.

J Adv Nurs. 2005 Sep;51(5):456-64.

PMID:
16098162
10.

Parental perceptions of newborn pharmacologic paralysis.

Rudek ME.

Matern Child Nurs J. 1990 Fall;19(3):221-37.

PMID:
2152103
11.

Children with a long-term illness: parents' experiences of care.

Nuutila L, Salanterä S.

J Pediatr Nurs. 2006 Apr;21(2):153-60.

PMID:
16545675
12.

Initiation of home mechanical ventilation in children with neuromuscular diseases.

Sritippayawan S, Kun SS, Keens TG, Davidson Ward SL.

J Pediatr. 2003 May;142(5):481-5.

PMID:
12756377
13.

Childhood diabetes: parents' experience of home management and the first year following diagnosis.

Lowes L, Lyne P, Gregory JW.

Diabet Med. 2004 Jun;21(6):531-8.

PMID:
15154935
15.
16.

Parent experience of implementing effective home programs.

Novak I.

Phys Occup Ther Pediatr. 2011 May;31(2):198-213. doi: 10.3109/01942638.2010.533746. Epub 2010 Dec 1.

PMID:
21121708
17.

Family life and the impact of previous and present residential and day care support for children with major cognitive and behavioural challenges: a dilemma for services and policy.

Brown RI, Geider S, Primrose A, Jokinen NS.

J Intellect Disabil Res. 2011 Sep;55(9):904-17. doi: 10.1111/j.1365-2788.2011.01453.x. Epub 2011 Aug 1.

PMID:
21801262
18.

[The experience of parents caring for adult children with HIV/AIDS].

Feng MC, Kao SC, Lu PL, Ko NY.

Hu Li Za Zhi. 2008 Feb;55(1):24-32. Chinese.

PMID:
18270930
19.

Parent participation in the care of hospitalized children: a systematic review.

Power N, Franck L.

J Adv Nurs. 2008 Jun;62(6):622-41. doi: 10.1111/j.1365-2648.2008.04643.x. Review.

PMID:
18503645
20.

[Quality of life of various patient groups during home mechanical ventilation].

Hein H, Schucher B, Magnussen H.

Med Klin (Munich). 1999 Apr;94(1 Spec No):99-101. German.

PMID:
10373750

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