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Exploring the emotional and behavioural reactions to receiving personalized melanoma genomic risk information: a qualitative study.

Fenton GL, Smit AK, Keogh L, Cust AE.

Br J Dermatol. 2018 Dec 22. doi: 10.1111/bjd.17582. [Epub ahead of print]


Does personalized melanoma genomic risk information trigger conversations about skin cancer prevention and skin examination with family, friends and health professionals?

Smit AK, Keogh LA, Newson AJ, Butow PN, Dunlop K, Morton RL, Kirk J, Espinoza D, Cust AE.

Br J Dermatol. 2017 Sep;177(3):779-790. doi: 10.1111/bjd.15744. Epub 2017 Jul 20.


Implementing an Internet-Delivered Skin Cancer Genetic Testing Intervention to Improve Sun Protection Behavior in a Diverse Population: Protocol for a Randomized Controlled Trial.

Hay JL, Berwick M, Zielaskowski K, White KA, Rodríguez VM, Robers E, Guest DD, Sussman A, Talamantes Y, Schwartz MR, Greb J, Bigney J, Kaphingst KA, Hunley K, Buller DB.

JMIR Res Protoc. 2017 Apr 25;6(4):e52. doi: 10.2196/resprot.7158.


Exploring the Potential Emotional and Behavioural Impact of Providing Personalised Genomic Risk Information to the Public: A Focus Group Study.

Smit AK, Keogh LA, Newson AJ, Hersch J, Butow P, Cust AE.

Public Health Genomics. 2015;18(5):309-17. doi: 10.1159/000439246. Epub 2015 Sep 22.


Public preferences for communicating personal genomic risk information: a focus group study.

Smit AK, Keogh LA, Hersch J, Newson AJ, Butow P, Williams G, Cust AE.

Health Expect. 2016 Dec;19(6):1203-1214. doi: 10.1111/hex.12406. Epub 2015 Sep 1.


A Pilot Randomized Controlled Trial of the Feasibility, Acceptability, and Impact of Giving Information on Personalized Genomic Risk of Melanoma to the Public.

Smit AK, Espinoza D, Newson AJ, Morton RL, Fenton G, Freeman L, Dunlop K, Butow PN, Law MH, Kimlin MG, Keogh LA, Dobbinson SJ, Kirk J, Kanetsky PA, Mann GJ, Cust AE.

Cancer Epidemiol Biomarkers Prev. 2017 Feb;26(2):212-221. doi: 10.1158/1055-9965.EPI-16-0395. Epub 2016 Oct 4.


The melanoma genomics managing your risk study: A protocol for a randomized controlled trial evaluating the impact of personal genomic risk information on skin cancer prevention behaviors.

Smit AK, Newson AJ, Morton RL, Kimlin M, Keogh L, Law MH, Kirk J, Dobbinson S, Kanetsky PA, Fenton G, Allen M, Butow P, Dunlop K, Trevena L, Lo S, Savard J, Dawkins H, Wordsworth S, Jenkins M, Mann GJ, Cust AE.

Contemp Clin Trials. 2018 Jul;70:106-116. doi: 10.1016/j.cct.2018.05.014. Epub 2018 May 23.


Distress, uncertainty, and positive experiences associated with receiving information on personal genomic risk of melanoma.

Smit AK, Newson AJ, Best M, Badcock CA, Butow PN, Kirk J, Dunlop K, Fenton G, Cust AE.

Eur J Hum Genet. 2018 Aug;26(8):1094-1100. doi: 10.1038/s41431-018-0145-z. Epub 2018 Apr 30.


Sun protection practices among offspring of women with personal or family history of skin cancer.

Geller AC, Brooks DR, Colditz GA, Koh HK, Frazier AL.

Pediatrics. 2006 Apr;117(4):e688-94.


High- and average-risk individuals' beliefs about, and perceptions of, malignant melanoma: an Australian perspective.

Kasparian NA, Butow PN, Meiser B, Mann GJ.

Psychooncology. 2008 Mar;17(3):270-9.


Development and Evaluation of a Telephone Communication Protocol for the Delivery of Personalized Melanoma Genomic Risk to the General Population.

Fenton GL, Smit AK, Freeman L, Badcock C, Dunlop K, Butow PN, Kirk J, Cust AE.

J Genet Couns. 2018 Apr;27(2):370-380. doi: 10.1007/s10897-017-0183-7. Epub 2017 Dec 3.


Structured, intensive education maximising engagement, motivation and long-term change for children and young people with diabetes: a cluster randomised controlled trial with integral process and economic evaluation - the CASCADE study.

Christie D, Thompson R, Sawtell M, Allen E, Cairns J, Smith F, Jamieson E, Hargreaves K, Ingold A, Brooks L, Wiggins M, Oliver S, Jones R, Elbourne D, Santos A, Wong IC, O'Neill S, Strange V, Hindmarsh P, Annan F, Viner R.

Health Technol Assess. 2014 Mar;18(20):1-202. doi: 10.3310/hta18200.


Personalized melanoma risk assessments and tailored prevention advice: a pragmatic randomized controlled trial in Australian general practice.

Vuong K, Armstrong BK, McGeechan K, Cust AE.

Fam Pract. 2019 Mar 20;36(2):237-246. doi: 10.1093/fampra/cmy040.


Genetic test reporting of CDKN2A provides informational and motivational benefits for managing melanoma risk.

Aspinwall LG, Stump TK, Taber JM, Drummond DM, Kohlmann W, Champine M, Leachman SA.

Transl Behav Med. 2018 Jan 29;8(1):29-43. doi: 10.1093/tbm/ibx011.


Impact of melanoma diagnosis on sun-awareness and protection: efficacy of education campaigns in a high-risk population.

Freiman A, Yu J, Loutfi A, Wang B.

J Cutan Med Surg. 2004 Sep-Oct;8(5):303-9.


Common genetic risk for melanoma encourages preventive behavior change.

Diseati L, Scheinfeldt LB, Kasper RS, Zhaoyang R, Gharani N, Schmidlen TJ, Gordon ES, Sessions CK, Delaney SK, Jarvis JP, Gerry N, Christman M.

J Pers Med. 2015 Feb 17;5(1):36-49. doi: 10.3390/jpm5010036.


The role of high expectations of self and social desirability in emotional processing in individuals with irritable bowel syndrome: A qualitative study.

Sibelli A, Chalder T, Everitt H, Workman P, Bishop FL, Moss-Morris R.

Br J Health Psychol. 2017 Nov;22(4):737-762. doi: 10.1111/bjhp.12264. Epub 2017 Sep 1.


"It's not like judgment day": public understanding of and reactions to personalized genomic risk information.

Gordon ES, Griffin G, Wawak L, Pang H, Gollust SE, Bernhardt BA.

J Genet Couns. 2012 Jun;21(3):423-32. doi: 10.1007/s10897-011-9476-4. Epub 2011 Dec 17.


Perceptions of genetic research and testing among members of families with an increased risk of malignant melanoma.

Bränström R, Kasparian NA, Affleck P, Tibben A, Chang YM, Azizi E, Baron-Epel O, Bergman W, Chan M, Davies J, Ingvar C, Kanetsky PA, van Leeuwen E, Olsson H, Gruis NA, Brandberg Y, Newton-Bishop J.

Eur J Cancer. 2012 Nov;48(16):3052-62. doi: 10.1016/j.ejca.2012.05.017. Epub 2012 Jun 21.


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