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Palliat Support Care. 2016 Jun;14(3):187-98. doi: 10.1017/S1478951515000905. Epub 2015 Oct 14.

Parenting in the face of childhood life-threatening conditions: The ordinary in the context of the extraordinary.

Author information

1
The Center for Global Women's Health and The Center for Health Equity Research,University of Pennsylvania School of Nursing,Philadelphia,Pennsylvania.
2
Center for Health Equity Research,University of Pennsylvania School of Nursing,Philadelphia,Pennsylvania.

Abstract

OBJECTIVE:

Uncovering what it means to be a parent during the extraordinary time of a child's life-threatening condition (LTC) is important for understanding family goals, decision making, and the work of parenting within this context.

METHOD:

Qualitative descriptive methods were employed to describe the everyday experience of parenting both children who have an LTC and their healthy siblings.

RESULTS:

Some 31 parents of 28 children with an LTC who have healthy siblings participated in our study. Four themes emerged from the data that describe a parental desire to maintain emotional connection with all of their children, how parents use cues from their children to know them better and develop parenting strategies, how parents change as a result of caring for a child with an LTC, and how they strive to decrease suffering for all of their children.

SIGNIFICANCE OF RESULTS:

The findings of our study have implications for clinical practice, family-focused research, and health policy pertaining to families of children with life-threatening conditions.

KEYWORDS:

Life-threatening condition; Palliative care; Parenting; Pediatric; Qualitative description

PMID:
26462446
DOI:
10.1017/S1478951515000905
[Indexed for MEDLINE]

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