PMID- 30766997
OWN - NLM
STAT- Publisher
LR  - 20190326
IS  - 1876-4479 (Electronic)
IS  - 1873-9946 (Linking)
DP  - 2019 Feb 14
TI  - Health Care Transition Outcomes in Inflammatory Bowel Disease: a Multinational
      Delphi Study.
LID - jjz044 [pii]
LID - 10.1093/ecco-jcc/jjz044 [doi]
AB  - BACKGROUND: Transition programs are designed to prepare adolescent Inflammatory
      Bowel Disease (IBD) patients for transfer to adult care. It is still unclear
      which outcome parameters define "successful transition". Therefore, this study
      aimed to identify outcomes important for success of transition in IBD. METHODS: A
      multinational Delphi study in patients, IBD-nurses and paediatric and adult
      gastroenterologists was conducted. In Stage 1, panellists commented on an outcome
      list. In Stage 2, the refined list was graded from 1-9 (least-very important), by
      an expert and a patient panel. In stage 3, the expert panel ranked important
      outcomes from 1 to 10 (least-most important). Descriptive statistics and
      Mann-Whitney-U tests were performed. RESULTS: The final item list developed in
      Stage 1 was tested by the expert (n=74 participants,52.7% paediatrics) and
      patient panel (n=61, aged 16-25 y, 49.2% male). Respectively, 10 and 11 items
      were found to be important by the expert and patient panel. Both panels agreed on
      8 of these items, of which 6 reflected self-management skills. In Stage 3, the
      expert panel formed a top-10 list. The three most important items were: decision 
      making regarding IBD (mean score 6.7), independent communication (mean score 6.3)
      and patient satisfaction (mean score 5.8). CONCLUSION: This is the first study
      identifying outcomes that IBD-health care providers and patients deem important
      factors for successful transition. Self-management skills were considered more
      important than IBD-specific items. This is a first step to further define success
      of transition in IBD and subsequently evaluate the efficacy of different
      transition models.
CI  - Copyright (c) 2019 European Crohn's and Colitis Organisation (ECCO). Published by
      Oxford University Press. All rights reserved. For permissions, please email:
      journals.permissions@oup.com.
FAU - van den Brink, Gertrude
AU  - van den Brink G
AD  - Department of Paediatric Gastroenterology, Erasmus MC-Sophia Children's Hospital,
      Rotterdam, The Netherlands.
FAU - van Gaalen, Martha A C
AU  - van Gaalen MAC
AD  - Department of Paediatric Gastroenterology, Erasmus MC-Sophia Children's Hospital,
      Rotterdam, The Netherlands.
FAU - de Ridder, Lissy
AU  - de Ridder L
AD  - Department of Paediatric Gastroenterology, Erasmus MC-Sophia Children's Hospital,
      Rotterdam, The Netherlands.
FAU - van der Woude, C Janneke
AU  - van der Woude CJ
AD  - Department of Gastroenterology, Erasmus MC, 's-Gravendijkwal 230, 3015 CE
      Rotterdam, Rotterdam, The Netherlands.
FAU - Escher, Johanna C
AU  - Escher JC
AD  - Department of Paediatric Gastroenterology, Erasmus MC-Sophia Children's Hospital,
      Rotterdam, The Netherlands.
LA  - eng
PT  - Journal Article
DEP - 20190214
PL  - England
TA  - J Crohns Colitis
JT  - Journal of Crohn's & colitis
JID - 101318676
OTO - NOTNLM
OT  - *IBD
OT  - *outcome
OT  - *success
OT  - *transfer
OT  - *transition
EDAT- 2019/02/16 06:00
MHDA- 2019/02/16 06:00
CRDT- 2019/02/16 06:00
PHST- 2018/12/03 00:00 [received]
PHST- 2019/02/16 06:00 [entrez]
PHST- 2019/02/16 06:00 [pubmed]
PHST- 2019/02/16 06:00 [medline]
AID - 5320372 [pii]
AID - 10.1093/ecco-jcc/jjz044 [doi]
PST - aheadofprint
SO  - J Crohns Colitis. 2019 Feb 14. pii: 5320372. doi: 10.1093/ecco-jcc/jjz044.