PMID- 29617425
DCOM- 20180713
LR  - 20181114
IS  - 1932-6203 (Electronic)
IS  - 1932-6203 (Linking)
VI  - 13
IP  - 4
DP  - 2018
TI  - Critical points in the experience of spouse caregivers of patients who have
      suffered a stroke. A phenomenological interpretive study.
PG  - e0195190
LID - 10.1371/journal.pone.0195190 [doi]
AB  - AIMS: To explore and document the experiences and values of spouse caregivers of 
      stroke survivors. To gain more in-depth knowledge of how the act of caring and
      the adaption process affects caregiving spouses. MATERIALS AND METHODS:
      Phenomenological, qualitative study. This study included spouses of stroke
      survivors who also served as primary caregivers. Individual, semi-structured,
      in-depth interviews were conducted, transcribed, and analysed using a thematic
      content analysis as proposed by Giorgi. Data was analysed and managed using
      Atlas-ti (version 7.0). This study was approved by our institution s Complejo
      Hospitalario de Caceres Ethics and Research Committee. RESULTS: Spouse caregivers
      of stroke survivors undergo a process of disruption in their private lives and
      relationships, marked by their caregiving duties. The experiences of spouses
      caring for stroke survivors is condensed into topics and subtopics: "Caregiving
      and that s all" summarizes the sense of having no life horizons and also
      caregiver impossibility of moving away from caring role. Otherwise, "Breaking the
      couple s life together" enlightens the further consequences of stroke in couples 
      shared live biography, which needs to be understood and rebuilt. Finally, "Going 
      through the (non) loss alone" alludes to how spouses reinterpret meaning of loss,
      which is not appreciated by others and that refers to the balance between stroke 
      survival and any acquired global disability. CONCLUSIONS: A comprehensive
      approach to the couple (family), from a psycho-socio-emotional and relational
      perspective, is essential for ensuring adequate quality of life for people who
      suffered a stroke as well as their caregivers. Spouses-caregivers must be
      considered as individuals living a transition process due to their unexpected
      disrupting change, which nurses should address through a comprehensive and
      integrated approach focused on transition care. Care resources must be adapted to
      the interpretation that the spouses have of their caregiving role and their
      relationship with the different components of the caregiving process.
FAU - Lopez-Espuela, Fidel
AU  - Lopez-Espuela F
AUID- ORCID: 0000-0002-7509-1192
AD  - Department of Nursing, University of Extremadura, Facultad de Enfermeria y
      Terapia Ocupacional, Caceres, Spain.
FAU - Gonzalez-Gil, Teresa
AU  - Gonzalez-Gil T
AD  - Nursing Section Department, Faculty of Medicine, Universidad Autonoma de Madrid, 
      Madrid, Spain.
FAU - Amarilla-Donoso, Javier
AU  - Amarilla-Donoso J
AD  - Department of Nursing, Hospital Campo Aranuelo, Navalmoral de la Mata, Caceres,
FAU - Cordovilla-Guardia, Sergio
AU  - Cordovilla-Guardia S
AD  - Department of Nursing, University of Extremadura, Facultad de Enfermeria y
      Terapia Ocupacional, Caceres, Spain.
FAU - Portilla-Cuenca, Juan Carlos
AU  - Portilla-Cuenca JC
AD  - Stroke Unit, Hospital San Pedro de Alcantara, Caceres, Spain.
FAU - Casado-Naranjo, Ignacio
AU  - Casado-Naranjo I
AD  - Stroke Unit, Hospital San Pedro de Alcantara, Caceres, Spain.
LA  - eng
PT  - Journal Article
PT  - Research Support, Non-U.S. Gov't
DEP - 20180404
PL  - United States
TA  - PLoS One
JT  - PloS one
JID - 101285081
SB  - IM
MH  - Adaptation, Psychological
MH  - Adult
MH  - Aged
MH  - Aged, 80 and over
MH  - Caregivers/*psychology
MH  - Emotions
MH  - Female
MH  - Home Nursing
MH  - Humans
MH  - Interviews as Topic
MH  - Male
MH  - Middle Aged
MH  - Spouses/*psychology
MH  - Stroke/*pathology
PMC - PMC5884540
EDAT- 2018/04/05 06:00
MHDA- 2018/07/14 06:00
CRDT- 2018/04/05 06:00
PHST- 2017/01/15 00:00 [received]
PHST- 2018/03/06 00:00 [accepted]
PHST- 2018/04/05 06:00 [entrez]
PHST- 2018/04/05 06:00 [pubmed]
PHST- 2018/07/14 06:00 [medline]
AID - 10.1371/journal.pone.0195190 [doi]
AID - PONE-D-17-01904 [pii]
PST - epublish
SO  - PLoS One. 2018 Apr 4;13(4):e0195190. doi: 10.1371/journal.pone.0195190.
      eCollection 2018.