PMID- 26046555
OWN - NLM
STAT- MEDLINE
DCOM- 20160104
LR  - 20150606
IS  - 1600-0404 (Electronic)
IS  - 0001-6314 (Linking)
VI  - 132
IP  - 199
DP  - 2015
TI  - The Norwegian Multiple Sclerosis Registry and Biobank.
PG  - 24-8
LID - 10.1111/ane.12427 [doi]
AB  - Multiple sclerosis (MS) is a chronic inflammatory disease of the central nervous 
      system with unknown cause and various benefits from disease modifying therapies. 
      Systematic recording of data into national MS registries is therefore needed to
      optimize treatment and define the pathogenesis of the disease. The Norwegian MS
      Registry and Biobank was established for systematic collection of clinical and
      epidemiological data, as well as biological samples. Data collection is based on 
      informed consent from the individual patients and recordings by treating
      neurologists. All researchers have, by application, access to data and biological
      samples from the Norwegian Multiple Sclerosis Registry and Biobank. By this
      combined effort from both patients and healthcare personnel, the Registry and
      Biobank aims to facilitate research for improved understanding of disease
      mechanisms and improved health care in MS.
CI  - (c) 2015 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.
FAU - Myhr, K-M
AU  - Myhr KM
AD  - Norwegian Multiple Sclerosis Registry and Biobank, Department of Neurology,
      Haukeland University Hospital, Bergen, Norway.
AD  - KG Jebsen MS Research Centre, Department of Clinical Medicine, University of
      Bergen, Bergen, Norway.
FAU - Grytten, N
AU  - Grytten N
AD  - KG Jebsen MS Research Centre, Department of Clinical Medicine, University of
      Bergen, Bergen, Norway.
AD  - Norwegian Multiple Sclerosis Competence Centre, Department of Neurology,
      Haukeland University Hospital, Bergen, Norway.
FAU - Torkildsen, O
AU  - Torkildsen O
AD  - KG Jebsen MS Research Centre, Department of Clinical Medicine, University of
      Bergen, Bergen, Norway.
AD  - Norwegian Multiple Sclerosis Competence Centre, Department of Neurology,
      Haukeland University Hospital, Bergen, Norway.
FAU - Wergeland, S
AU  - Wergeland S
AD  - KG Jebsen MS Research Centre, Department of Clinical Medicine, University of
      Bergen, Bergen, Norway.
AD  - Norwegian Multiple Sclerosis Competence Centre, Department of Neurology,
      Haukeland University Hospital, Bergen, Norway.
FAU - Bo, L
AU  - Bo L
AD  - KG Jebsen MS Research Centre, Department of Clinical Medicine, University of
      Bergen, Bergen, Norway.
AD  - Norwegian Multiple Sclerosis Competence Centre, Department of Neurology,
      Haukeland University Hospital, Bergen, Norway.
FAU - Aarseth, J H
AU  - Aarseth JH
AD  - Norwegian Multiple Sclerosis Registry and Biobank, Department of Neurology,
      Haukeland University Hospital, Bergen, Norway.
AD  - KG Jebsen MS Research Centre, Department of Clinical Medicine, University of
      Bergen, Bergen, Norway.
LA  - eng
PT  - Journal Article
PT  - Research Support, Non-U.S. Gov't
PT  - Review
PL  - Denmark
TA  - Acta Neurol Scand
JT  - Acta neurologica Scandinavica
JID - 0370336
SB  - IM
MH  - Biological Specimen Banks/*statistics & numerical data
MH  - Databases, Nucleic Acid/*statistics & numerical data
MH  - Humans
MH  - Multiple Sclerosis/*epidemiology
MH  - Norway/epidemiology
MH  - *Registries
OTO - NOTNLM
OT  - biobank
OT  - multiple sclerosis
OT  - registry
EDAT- 2015/06/06 06:00
MHDA- 2016/01/05 06:00
CRDT- 2015/06/06 06:00
PHST- 2015/01/04 00:00 [accepted]
PHST- 2015/06/06 06:00 [entrez]
PHST- 2015/06/06 06:00 [pubmed]
PHST- 2016/01/05 06:00 [medline]
AID - 10.1111/ane.12427 [doi]
PST - ppublish
SO  - Acta Neurol Scand. 2015;132(199):24-8. doi: 10.1111/ane.12427.