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What do relatives value most in end-of-life care for people with dementia?

Bolt S, van der Steen J, Schols J, Zwakhalen S, Meijers J.

Int J Palliat Nurs. 2019 Sep 2;25(9):432-442. doi: 10.12968/ijpn.2019.25.9.432.


Observational pain assessment in older persons with dementia in four countries: observer agreement of items and factor structure of the Pain Assessment in Impaired Cognition.

de Waal MWM, van Dalen-Kok AH, de Vet HCW, Gimenez-Llort L, Konstantinovic L, de Tommaso M, Fischer T, Lukas A, Kunz M, Lautenbacher S, Lobbezoo F, McGuire BE, van der Steen JT, Achterberg WP; Collaborators.

Eur J Pain. 2019 Sep 13. doi: 10.1002/ejp.1484. [Epub ahead of print]


Causes of reporting bias: a theoretical framework.

van der Steen JT, Ter Riet G, van den Bogert CA, Bouter LM.

Version 2. F1000Res. 2019 Mar 12 [revised 2019 Jan 1];8:280. doi: 10.12688/f1000research.18310.2. eCollection 2019.


The Pain Assessment in Impaired Cognition scale (PAIC15): A multidisciplinary and international approach to develop and test a meta-tool for pain assessment in impaired cognition, especially dementia.

Kunz M, de Waal MWM, Achterberg WP, Gimenez-Llort L, Lobbezoo F, Sampson EL, van Dalen-Kok AH, Defrin R, Invitto S, Konstantinovic L, Oosterman J, Petrini L, van der Steen JT, Strand LI, de Tommaso M, Zwakhalen S, Husebo BS, Lautenbacher S.

Eur J Pain. 2019 Sep 5. doi: 10.1002/ejp.1477. [Epub ahead of print]


Consensus on treatment for residents in long-term care facilities: perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries.

Ten Koppel M, Pasman HRW, van der Steen JT, van Hout HPJ, Kylänen M, Van den Block L, Smets T, Deliens L, Gambassi G, Froggatt K, Szczerbińska K, Onwuteaka-Philipsen BD; PACE.

BMC Palliat Care. 2019 Aug 29;18(1):73. doi: 10.1186/s12904-019-0459-9.


Conceptualization of a good end-of-life experience with dementia in Japan: a qualitative study.

Nishimura M, Kohno A, van der Steen JT, Naganuma T, Nakayama T.

Int Psychogeriatr. 2019 Aug 28:1-11. doi: 10.1017/S1041610219001017. [Epub ahead of print]


Effect of Age, Sex, Stimulus Intensity, and Eccentricity on Saccadic Reaction Time in Eye Movement Perimetry.

Mazumdar D, Meethal NSK, Panday M, Asokan R, Thepass G, George RJ, van der Steen J, Pel JJM.

Transl Vis Sci Technol. 2019 Jul 30;8(4):13. doi: 10.1167/tvst.8.4.13. eCollection 2019 Jul.


Limited engagement in, yet clear preferences for advance care planning in young-onset dementia: An exploratory interview-study with family caregivers.

Van Rickstal R, De Vleminck A, Aldridge MD, Morrison SR, Koopmans RT, van der Steen JT, Engelborghs S, Van den Block L.

Palliat Med. 2019 Jul 25:269216319864777. doi: 10.1177/0269216319864777. [Epub ahead of print]


Palliative care for persons with Parkinson's disease: a qualitative study on the experiences of health care professionals.

Lennaerts H, Steppe M, Munneke M, Meinders MJ, van der Steen JT, Van den Brand M, van Amelsvoort D, Vissers K, Bloem BR, Groot M.

BMC Palliat Care. 2019 Jul 9;18(1):53. doi: 10.1186/s12904-019-0441-6.


Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE).

Ten Koppel M, Onwuteaka-Philipsen BD, Van den Block L, Deliens L, Gambassi G, Heymans MW, Kylänen M, Oosterveld-Vlug MG, Pasman HRW, Payne S, Smets T, Szczerbińska K, Twisk JW, van der Steen JT; PACE.

Palliat Med. 2019 Jul 1:269216319861229. doi: 10.1177/0269216319861229. [Epub ahead of print]


How Is End-of-Life Care With and Without Dementia Associated With Informal Caregivers' Outcomes?

Boogaard JA, van der Steen JT, de Boer AH, van Groenou MIB.

Am J Hosp Palliat Care. 2019 Nov;36(11):1008-1015. doi: 10.1177/1049909119836932. Epub 2019 Apr 14.


Spiritual care provided by nursing home physicians: a nationwide survey.

Gijsberts MHE, van der Steen JT, Hertogh CMPM, Deliens L.

BMJ Support Palliat Care. 2019 Apr 4. pii: bmjspcare-2018-001756. doi: 10.1136/bmjspcare-2018-001756. [Epub ahead of print]


Eye Movement Perimetry and Frequency Doubling Perimetry: clinical performance and patient preference during glaucoma screening.

Meethal NSK, Pel JJM, Mazumdar D, Asokan R, Panday M, van der Steen J, George R.

Graefes Arch Clin Exp Ophthalmol. 2019 Jun;257(6):1277-1287. doi: 10.1007/s00417-019-04311-4. Epub 2019 Apr 3.


Nursing staff needs in providing palliative care for people with dementia at home or in long-term care facilities: A scoping review.

Bolt SR, van der Steen JT, Schols JMGA, Zwakhalen SMG, Pieters S, Meijers JMM.

Int J Nurs Stud. 2019 Aug;96:143-152. doi: 10.1016/j.ijnurstu.2018.12.011. Epub 2019 Jan 3.


Dementia and Parkinson's Disease: Similar and Divergent Challenges in Providing Palliative Care.

van der Steen JT, Lennaerts H, Hommel D, Augustijn B, Groot M, Hasselaar J, Bloem BR, Koopmans RTCM.

Front Neurol. 2019 Mar 11;10:54. doi: 10.3389/fneur.2019.00054. eCollection 2019. Review.


Processing speed in perceptual visual crowding.

Pel JJM, Boer AC, van der Steen J.

J Vis. 2019 Mar 1;19(3):9. doi: 10.1167/19.3.9.


Care staff's self-efficacy regarding end-of-life communication in the long-term care setting: Results of the PACE cross-sectional study in six European countries.

Ten Koppel M, Onwuteaka-Philipsen BD, van der Steen JT, Kylänen M, Van den Block L, Smets T, Deliens L, Gambassi G, Collingridge Moore D, Szczerbińska K, Pasman HRW; PACE.

Int J Nurs Stud. 2019 Apr;92:135-143. doi: 10.1016/j.ijnurstu.2018.09.019. Epub 2019 Jan 30.


Families' Experiences With End-of-Life Care in Nursing Homes and Associations With Dying Peacefully With Dementia.

Bolt SR, Verbeek L, Meijers JMM, van der Steen JT.

J Am Med Dir Assoc. 2019 Mar;20(3):268-272. doi: 10.1016/j.jamda.2018.12.001. Epub 2019 Feb 1.


Vitamin D Supplementation in Older Persons: Guidelines Versus Practice.

Veleva BI, Caljouw MAA, van der Steen JT, Chel VGM, Numans ME.

J Am Med Dir Assoc. 2019 May;20(5):639-640. doi: 10.1016/j.jamda.2018.11.001. Epub 2018 Dec 19. No abstract available.


Comparison of Pesticide Exposure in Honey Bees (Hymenoptera: Apidae) and Bumble Bees (Hymenoptera: Apidae): Implications for Risk Assessments.

Gradish AE, van der Steen J, Scott-Dupree CD, Cabrera AR, Cutler GC, Goulson D, Klein O, Lehmann DM, Lückmann J, O'Neill B, Raine NE, Sharma B, Thompson H.

Environ Entomol. 2019 Feb 13;48(1):12-21. doi: 10.1093/ee/nvy168.


Predicting Mortality in Nursing Home Residents with Dementia and Pneumonia Treated with Antibiotics: Validation of a Prediction Model in a More Recent Population.

Rauh SP, Heymans MW, van der Maaden T, Mehr DR, Kruse RL, de Vet HCW, van der Steen JT.

J Gerontol A Biol Sci Med Sci. 2018 Nov 12. doi: 10.1093/gerona/gly260. [Epub ahead of print]


Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries.

Oosterveld-Vlug MG, Pasman HRW, Ten Koppel M, van Hout HPJ, van der Steen JT, Collingridge Moore D, Deliens L, Gambassi G, Kylänen M, Smets T, Szczerbińska K, Van den Block L, Onwuteaka-Philipsen BD; PACE.

J Am Med Dir Assoc. 2019 Jun;20(6):696-702.e1. doi: 10.1016/j.jamda.2018.08.015. Epub 2018 Oct 23.


Effects of the Namaste Care Family programme on quality of life of nursing home residents with advanced dementia and on family caregiving experiences: study protocol of a cluster-randomised controlled trial.

Smaling HJA, Joling KJ, van de Ven PM, Bosmans JE, Simard J, Volicer L, Achterberg WP, Francke AL, van der Steen JT.

BMJ Open. 2018 Oct 15;8(10):e025411. doi: 10.1136/bmjopen-2018-025411. Erratum in: BMJ Open. 2019 Jul 10;9(7):e025411corr1.


Combining visual sensory functions and visuospatial orienting functions in children with visual pathology: A longitudinal study.

Kooiker MJG, Verbunt HJM, van der Steen J, Pel JJM.

Brain Dev. 2019 Feb;41(2):135-149. doi: 10.1016/j.braindev.2018.09.006. Epub 2018 Oct 6.


Implementation of a Stepwise, Multidisciplinary Intervention for Pain and Challenging Behaviour in Dementia (STA OP!): A Process Evaluation.

Pieper MJC, Achterberg WP, van der Steen JT, Francke AL.

Int J Integr Care. 2018 Sep 7;18(3):15. doi: 10.5334/ijic.3973.


Music-based therapeutic interventions for people with dementia.

van der Steen JT, Smaling HJ, van der Wouden JC, Bruinsma MS, Scholten RJ, Vink AC.

Cochrane Database Syst Rev. 2018 Jul 23;7:CD003477. doi: 10.1002/14651858.CD003477.pub4. Review.


Change in quality of life after a multidisciplinary intervention for people with dementia: A cluster randomized controlled trial.

Klapwijk MS, Caljouw MAA, Pieper MJC, Putter H, van der Steen JT, Achterberg WP.

Int J Geriatr Psychiatry. 2018 Jun 11. doi: 10.1002/gps.4912. [Epub ahead of print]


Complexity and gaps: The high-hanging fruit of dementia and palliative care research.

Hughes JC, Volicer L, van der Steen JT.

Palliat Med. 2018 Mar;32(3):591-593. doi: 10.1177/0269216318755280. No abstract available.


It's Not a Small World After All.

Zimmerman S, van der Steen JT.

J Am Med Dir Assoc. 2018 Mar;19(3):187-189. doi: 10.1016/j.jamda.2018.01.002. No abstract available. Erratum in: J Am Med Dir Assoc. 2018 Apr;19(4):370.


Deletion of sll1541 in Synechocystis sp. Strain PCC 6803 Allows Formation of a Far-Red-Shifted holo-Proteorhodopsin In Vivo.

Chen Q, van der Steen JB, Arents JC, Hartog AF, Ganapathy S, de Grip WJ, Hellingwerf KJ.

Appl Environ Microbiol. 2018 Apr 16;84(9). pii: e02435-17. doi: 10.1128/AEM.02435-17. Print 2018 May 1.


Determinants of selective reporting: A taxonomy based on content analysis of a random selection of the literature.

van der Steen JT, van den Bogert CA, van Soest-Poortvliet MC, Fazeli Farsani S, Otten RHJ, Ter Riet G, Bouter LM.

PLoS One. 2018 Feb 5;13(2):e0188247. doi: 10.1371/journal.pone.0188247. eCollection 2018.


Effects of two feedback interventions on end-of-life outcomes in nursing home residents with dementia: A cluster-randomized controlled three-armed trial.

Boogaard JA, de Vet HCW, van Soest-Poortvliet MC, Anema JR, Achterberg WP, van der Steen JT.

Palliat Med. 2018 Mar;32(3):693-702. doi: 10.1177/0269216317750071. Epub 2018 Jan 18.


Development of a test grid using Eye Movement Perimetry for screening glaucomatous visual field defects.

Kadavath Meethal NS, Mazumdar D, Asokan R, Panday M, van der Steen J, Vermeer KA, Lemij HG, George RJ, Pel JJM.

Graefes Arch Clin Exp Ophthalmol. 2018 Feb;256(2):371-379. doi: 10.1007/s00417-017-3872-x. Epub 2017 Dec 28.


Palliative care for patients with Parkinson's disease: study protocol for a mixed methods study.

Lennaerts H, Groot M, Steppe M, van der Steen JT, Van den Brand M, van Amelsvoort D, Vissers K, Munneke M, Bloem BR.

BMC Palliat Care. 2017 Nov 25;16(1):61. doi: 10.1186/s12904-017-0248-2.


Examining trust in health professionals among family caregivers of nursing home residents with advanced dementia.

Boogaard JA, Werner P, Zisberg A, van der Steen JT.

Geriatr Gerontol Int. 2017 Dec;17(12):2466-2471. doi: 10.1111/ggi.13107. Epub 2017 Jul 20.


Professional caregivers' experiences with the Liverpool Care Pathway in dementia: An ethnographic study in a Dutch nursing home.

Lemos Dekker N, Gysels M, van der Steen JT.

Palliat Support Care. 2018 Aug;16(4):479-486. doi: 10.1017/S1478951517000645. Epub 2017 Jul 11.


Incidence of pneumonia in nursing home residents with dementia in the Netherlands: an estimation based on three differently designed studies.

Zomer TP, VAN DER Maaden T, VAN Gageldonk-Lafeber AB, DE Greeff SC, VAN DER Steen JT, Verhoef L.

Epidemiol Infect. 2017 Aug;145(11):2400-2408. doi: 10.1017/S0950268817001339. Epub 2017 Jul 3.


Pneumonia in Nursing Home Patients With Advanced Dementia: Decisions, Intravenous Rehydration Therapy, and Discomfort.

van der Steen JT, Di Giulio P, Giunco F, Monti M, Gentile S, Villani D, Finetti S, Pettenati F, Charrier L, Toscani F; End of Life Observatory–Prospective Study on DEmentia Patients Care (EoLO-PSODEC) Research Group.

Am J Hosp Palliat Care. 2018 Mar;35(3):423-430. doi: 10.1177/1049909117709002. Epub 2017 May 22.


Music-based therapeutic interventions for people with dementia.

van der Steen JT, van Soest-Poortvliet MC, van der Wouden JC, Bruinsma MS, Scholten RJ, Vink AC.

Cochrane Database Syst Rev. 2017 May 2;5:CD003477. doi: 10.1002/14651858.CD003477.pub3. Review. Update in: Cochrane Database Syst Rev. 2018 Jul 23;7:CD003477.


Palliative care for people with dementia in the terminal phase: a mixed-methods qualitative study to inform service development.

van der Steen JT, Lemos Dekker N, Gijsberts MHE, Vermeulen LH, Mahler MM, The BA.

BMC Palliat Care. 2017 Apr 28;16(1):28. doi: 10.1186/s12904-017-0201-4.


Three years of banning neonicotinoid insecticides based on sub-lethal effects: can we expect to see effects on bees?

Blacquière T, van der Steen JJ.

Pest Manag Sci. 2017 Jul;73(7):1299-1304. doi: 10.1002/ps.4583. Epub 2017 May 4.


Antimicrobial Use in Patients with Dementia: Current Concerns and Future Recommendations.

Parsons C, van der Steen JT.

CNS Drugs. 2017 Jun;31(6):433-438. doi: 10.1007/s40263-017-0427-y.


Effects on pain of a stepwise multidisciplinary intervention (STA OP!) that targets pain and behavior in advanced dementia: A cluster randomized controlled trial.

Pieper MJC, van der Steen JT, Francke AL, Scherder EJA, Twisk JWR, Achterberg WP.

Palliat Med. 2018 Mar;32(3):682-692. doi: 10.1177/0269216316689237. Epub 2017 Feb 1.


Physicians' perceptions of suffering in people with dementia at the end of life.

van der Steen JT, Deliens L, Koopmans RTCM, Onwuteaka-Philipsen BD.

Palliat Support Care. 2017 Oct;15(5):587-599. doi: 10.1017/S1478951516000985. Epub 2017 Jan 23.


Palliative Care in Dementia 1986-2016: Progress and Remaining Challenges.

van der Steen JT, Sternberg S, Volicer L.

J Am Med Dir Assoc. 2017 Feb 1;18(2):190-191. doi: 10.1016/j.jamda.2016.11.009. Epub 2016 Dec 31. No abstract available.


End-of-life treatment decisions in nursing home residents dying with dementia in the Netherlands.

Hendriks SA, Smalbrugge M, Deliens L, Koopmans RTCM, Onwuteaka-Philipsen BD, Hertogh CMPM, van der Steen JT.

Int J Geriatr Psychiatry. 2017 Dec;32(12):e43-e49. doi: 10.1002/gps.4650. Epub 2016 Dec 29.


Providing Optimal Palliative Care for Persons Living with Dementia: A Comparison of Physician Perceptions in the Netherlands and the United Kingdom.

Brazil K, Galway K, Carter G, van der Steen JT.

J Palliat Med. 2017 May;20(5):473-477. doi: 10.1089/jpm.2015.0274. Epub 2016 Dec 12.


Changes in Care Goals and Treatment Orders Around the Occurrence of Health Problems and Hospital Transfers in Dementia: A Prospective Study.

Hendriks SA, Smalbrugge M, Hertogh CMPM, van der Steen JT.

J Am Geriatr Soc. 2017 Apr;65(4):769-776. doi: 10.1111/jgs.14667. Epub 2016 Nov 21.


Pneumonia, Intake Problems, and Survival Among Nursing Home Residents With Variable Stages of Dementia in the Netherlands: Results From a Prospective Observational Study.

Hendriks SA, Smalbrugge M, van Gageldonk-Lafeber AB, Galindo-Garre F, Schipper M, Hertogh CMPM, van der Steen JT.

Alzheimer Dis Assoc Disord. 2017 Jul-Sep;31(3):200-208. doi: 10.1097/WAD.0000000000000171.


Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study.

Klapwijk MS, Caljouw MA, Pieper MJ, van der Steen JT, Achterberg WP.

Dement Geriatr Cogn Disord. 2016;42(3-4):186-197. Epub 2016 Sep 27.

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