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Items: 1 to 50 of 238

1.

Hospital Utilization and Costs in Older Patients with Advanced Chronic Kidney Disease Choosing Conservative Care or Dialysis: A Retrospective Cohort Study.

Verberne WR, Ocak G, van Gils-Verrij LA, van Delden JJM, Bos WW.

Blood Purif. 2020 Jan 10:1-11. doi: 10.1159/000505569. [Epub ahead of print]

PMID:
31927544
2.

How should the 'privilege' in therapeutic privilege be conceived when considering the decision-making process for patients with borderline capacity?

Menon S, Entwistle V, Campbell AV, van Delden JJM.

J Med Ethics. 2020 Jan 7. pii: medethics-2019-105792. doi: 10.1136/medethics-2019-105792. [Epub ahead of print]

3.

Responsible data sharing in a big data-driven translational research platform: lessons learned.

Kalkman S, Mostert M, Udo-Beauvisage N, van Delden JJ, van Thiel GJ.

BMC Med Inform Decis Mak. 2019 Dec 30;19(1):283. doi: 10.1186/s12911-019-1001-y.

4.

Physicians' experiences with euthanasia: a cross-sectional survey amongst a random sample of Dutch physicians to explore their concerns, feelings and pressure.

Evenblij K, Pasman HRW, van Delden JJM, van der Heide A, van de Vathorst S, Willems DL, Onwuteaka-Philipsen BD.

BMC Fam Pract. 2019 Dec 17;20(1):177. doi: 10.1186/s12875-019-1067-8.

5.

Reanalysis of the physical and mental health summary scores of dialysis versus conservative care in older patients with advanced chronic kidney disease: a critical appraisal.

Verberne WR, Dijkers J, Kelder JC, Jellema WT, van Delden JJM, Bos WJW.

BMC Res Notes. 2019 Nov 4;12(1):722. doi: 10.1186/s13104-019-4765-3.

6.

Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial.

Zwakman M, Pollock K, Bulli F, Caswell G, Červ B, van Delden JJM, Deliens L, van der Heide A, Jabbarian LJ, Koba-Čeh H, Lunder U, Miccinesi G, Arnfeldt CAM, Seymour J, Toccafondi A, Verkissen MN, Kars MC; ACTION consortium.

BMC Cancer. 2019 Oct 31;19(1):1026. doi: 10.1186/s12885-019-6170-7.

7.

Coping strategies of patients with advanced lung or colorectal cancer in six European countries: Insights from the ACTION Study.

Jabbarian LJ, Korfage IJ, Červ B, van Delden JJM, Deliens L, Miccinesi G, Payne S, Thit Johnsen A, Verkissen MN, Wilcock A, van der Heide A, Rietjens JAC; ACTION consortium.

Psychooncology. 2019 Oct 29. doi: 10.1002/pon.5259. [Epub ahead of print]

PMID:
31663183
8.

Survey of paediatricians caring for children with life-limiting conditions found that they were involved in advance care planning.

Fahner JC, Rietjens JAC, van der Heide A, van Delden JJM, Kars MC.

Acta Paediatr. 2019 Oct 18. doi: 10.1111/apa.15061. [Epub ahead of print]

PMID:
31625623
9.

Voluntary Informed Consent Is Not Risk Dependent.

Dekking SAS, van der Graaf R, Zwaan CM, van Delden JJM.

Am J Bioeth. 2019 Apr;19(4):33-35. doi: 10.1080/15265161.2019.1572820. No abstract available.

PMID:
31544669
10.

Public and physicians' support for euthanasia in people suffering from psychiatric disorders: a cross-sectional survey study.

Evenblij K, Pasman HRW, van der Heide A, van Delden JJM, Onwuteaka-Philipsen BD.

BMC Med Ethics. 2019 Sep 11;20(1):62. doi: 10.1186/s12910-019-0404-8.

11.

The moral and legal status of Health Care Workers in Cluster Randomized Trials: a response to Weijer and Taljaard.

van der Graaf R, van Thiel GJMW, Hoop EO, Moons KGM, Grobbee DE, van Delden JJM.

J Clin Epidemiol. 2019 Dec;116:146-149. doi: 10.1016/j.jclinepi.2019.08.005. Epub 2019 Aug 23.

PMID:
31449856
12.

The Rising Frequency of Continuous Deep Sedation in the Netherlands, a Repeated Cross-Sectional Survey in 2005, 2010, and 2015.

Rietjens JAC, Heijltjes MT, van Delden JJM, Onwuteaka-Philipsen BD, van der Heide A.

J Am Med Dir Assoc. 2019 Nov;20(11):1367-1372. doi: 10.1016/j.jamda.2019.06.012. Epub 2019 Aug 1.

PMID:
31378702
13.

Older patients' experiences with a shared decision-making process on choosing dialysis or conservative care for advanced chronic kidney disease: a survey study.

Verberne WR, Konijn WS, Prantl K, Dijkers J, Roskam MT, van Delden JJM, Bos WJW.

BMC Nephrol. 2019 Jul 16;20(1):264. doi: 10.1186/s12882-019-1423-x.

14.

Regulatory sanctions for ethically relevant GCP violations.

Bernabe RC, van Thiel GJMW, Breekveldt NS, Gispen CC, van Delden JJM.

Drug Discov Today. 2019 Nov;24(11):2116-2119. doi: 10.1016/j.drudis.2019.07.001. Epub 2019 Jul 6.

15.

Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention: insights gained from the ACTION trial.

Zwakman M, van Delden JJM, Caswell G, Deliens L, Ingravallo F, Jabbarian LJ, Johnsen AT, Korfage IJ, Mimić A, Arnfeldt CM, Preston NJ, Kars MC; ACTION consortium.

Support Care Cancer. 2019 Jul 5. doi: 10.1007/s00520-019-04956-1. [Epub ahead of print]

PMID:
31278462
16.

[The option of non-treatment as part of end-of-life care].

Hendriksen G, van Delden JJM.

Ned Tijdschr Geneeskd. 2019 May 31;163. pii: D3997. Dutch.

PMID:
31187971
17.

Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study.

Verberne LM, Kars MC, Schouten-van Meeteren AYN, van den Bergh EMM, Bosman DK, Colenbrander DA, Grootenhuis MA, van Delden JJM.

Eur J Pediatr. 2019 Jul;178(7):1075-1085. doi: 10.1007/s00431-019-03393-w. Epub 2019 May 19.

18.

[Euthanasia of Dutch psychiatric patients in 2015-2017].

van Veen SMP, Weerheim FW, Mostert M, van Delden JJM.

Tijdschr Psychiatr. 2019;61(4):241-247. Dutch.

19.

An ethics framework and practical guidance for post-trial access to an RSV maternal vaccine.

Mazur NI, Bont LJ, van Delden JJM, Omer SB.

Lancet Respir Med. 2019 Jun;7(6):474-476. doi: 10.1016/S2213-2600(19)30080-3. Epub 2019 Apr 16. No abstract available.

PMID:
31003966
20.

Narrative medicine as a medical education tool: A systematic review.

Milota MM, van Thiel GJMW, van Delden JJM.

Med Teach. 2019 Jul;41(7):802-810. doi: 10.1080/0142159X.2019.1584274. Epub 2019 Apr 14.

PMID:
30983460
21.

Responsible data sharing in international health research: a systematic review of principles and norms.

Kalkman S, Mostert M, Gerlinger C, van Delden JJM, van Thiel GJMW.

BMC Med Ethics. 2019 Mar 28;20(1):21. doi: 10.1186/s12910-019-0359-9.

22.

Determinants of self-reported unacceptable outcome of intensive care treatment 1 year after discharge.

Kerckhoffs MC, Kosasi FFL, Soliman IW, van Delden JJM, Cremer OL, de Lange DW, Slooter AJC, Kesecioglu J, van Dijk D.

Intensive Care Med. 2019 Jun;45(6):806-814. doi: 10.1007/s00134-019-05583-4. Epub 2019 Mar 6.

23.

The Stability of Treatment Preferences Among Patients With Advanced Cancer.

Jabbarian LJ, Maciejewski RC, Maciejewski PK, Rietjens JAC, Korfage IJ, van der Heide A, van Delden JJM, Prigerson HG.

J Pain Symptom Manage. 2019 Jun;57(6):1071-1079.e1. doi: 10.1016/j.jpainsymman.2019.01.016. Epub 2019 Feb 19.

PMID:
30794935
24.

A qualitative study on stakeholders' views on the participation of pregnant women in the APOSTEL VI study: a low-risk obstetrical RCT.

van der Zande ISE, van der Graaf R, Oudijk MA, van Vliet-Lachotzki EH, van Delden JJM.

BMC Pregnancy Childbirth. 2019 Feb 11;19(1):65. doi: 10.1186/s12884-019-2209-7.

25.

Selecting and evaluating decision-making strategies in the intensive care unit: A systematic review.

Kerckhoffs MC, Kant M, van Delden JJM, Hooft L, Kesecioglu J, van Dijk D.

J Crit Care. 2019 Jun;51:39-45. doi: 10.1016/j.jcrc.2019.01.029. Epub 2019 Jan 30. Review.

PMID:
30738286
26.

The willingness to participate in biomedical research involving human beings in low- and middle-income countries: a systematic review.

Browne JL, Rees CO, van Delden JJM, Agyepong I, Grobbee DE, Edwin A, Klipstein-Grobusch K, van der Graaf R.

Trop Med Int Health. 2019 Mar;24(3):264-279. doi: 10.1111/tmi.13195. Epub 2019 Jan 8.

27.

Interventions Guiding Advance Care Planning Conversations: A Systematic Review.

Fahner JC, Beunders AJM, van der Heide A, Rietjens JAC, Vanderschuren MM, van Delden JJM, Kars MC.

J Am Med Dir Assoc. 2019 Mar;20(3):227-248. doi: 10.1016/j.jamda.2018.09.014. Epub 2018 Nov 22. Review.

PMID:
30471947
28.

Developments in euthanasia practice in the Netherlands: Balancing professional responsibility and the patient's autonomy.

Kouwenhoven PSC, van Thiel GJMW, van der Heide A, Rietjens JAC, van Delden JJM.

Eur J Gen Pract. 2019 Jan;25(1):44-48. doi: 10.1080/13814788.2018.1517154. Epub 2018 Nov 1.

29.

Organoids as hybrids: ethical implications for the exchange of human tissues.

Boers SN, van Delden JJM, Bredenoord AL.

J Med Ethics. 2019 Feb;45(2):131-139. doi: 10.1136/medethics-2018-104846. Epub 2018 Oct 26.

PMID:
30367014
30.

How the CIOMS guidelines contribute to fair inclusion of pregnant women in research.

van der Graaf R, van der Zande ISE, van Delden JJM.

Bioethics. 2019 Mar;33(3):367-373. doi: 10.1111/bioe.12520. Epub 2018 Oct 20.

31.

Ethics in clinical trial regulation: ethically relevant issues from EMA inspection reports.

Bernabe RDLC, van Thiel GJMW, Breekveldt NS, Gispen-de Wied CC, van Delden JJM.

Curr Med Res Opin. 2019 Apr;35(4):637-645. doi: 10.1080/03007995.2018.1528214. Epub 2018 Oct 29.

PMID:
30252539
32.

Use and the Users of a Patient Portal: Cross-Sectional Study.

Hoogenbosch B, Postma J, de Man-van Ginkel JM, Tiemessen NA, van Delden JJ, van Os-Medendorp H.

J Med Internet Res. 2018 Sep 17;20(9):e262. doi: 10.2196/jmir.9418.

33.

Privacy in Big Data psychiatric and behavioural research: A multiple-case study.

Mostert M, Koomen BM, van Delden JJM, Bredenoord AL.

Int J Law Psychiatry. 2018 Sep - Oct;60:40-44. doi: 10.1016/j.ijlp.2018.07.002. Epub 2018 Jul 23.

PMID:
30217329
34.

Value-based evaluation of dialysis versus conservative care in older patients with advanced chronic kidney disease: a cohort study.

Verberne WR, Dijkers J, Kelder JC, Geers ABM, Jellema WT, Vincent HH, van Delden JJM, Bos WJW.

BMC Nephrol. 2018 Aug 16;19(1):205. doi: 10.1186/s12882-018-1004-4.

35.

Dementia and advance directives: some empirical and normative concerns.

Jongsma KR, Kars MC, van Delden JJM.

J Med Ethics. 2019 Feb;45(2):92-94. doi: 10.1136/medethics-2018-104951. Epub 2018 Jun 15.

PMID:
29907577
36.

Pragmatic clinical trials: ethical imperatives and opportunities.

Kalkman S, van Thiel GJMW, Grobbee DE, van Delden JJM.

Drug Discov Today. 2018 Dec;23(12):1919-1921. doi: 10.1016/j.drudis.2018.06.007. Epub 2018 Jun 12. No abstract available.

PMID:
29906514
37.

Introducing PALETTE: an iterative method for conducting a literature search for a review in palliative care.

Zwakman M, Verberne LM, Kars MC, Hooft L, van Delden JJM, Spijker R.

BMC Palliat Care. 2018 Jun 2;17(1):82. doi: 10.1186/s12904-018-0335-z.

38.

Advance Care Planning in a Multicultural Family Centric Community: A Qualitative Study of Health Care Professionals', Patients', and Caregivers' Perspectives.

Menon S, Kars MC, Malhotra C, Campbell AV, van Delden JJM.

J Pain Symptom Manage. 2018 Aug;56(2):213-221.e4. doi: 10.1016/j.jpainsymman.2018.05.007. Epub 2018 Jun 20.

PMID:
29775694
39.

Pediatric oncology as a Learning Health System: Ethical implications for best available treatment protocols.

van der Graaf R, Dekking SA, de Vries MC, Zwaan CM, van Delden JJM.

Learn Health Syst. 2018 Apr 16;2(2):e10052. doi: 10.1002/lrh2.10052. eCollection 2018 Apr.

40.

Parental Attitude Toward the Prenatal Diagnosis of Oral Cleft: A Prospective Cohort Study.

Maarse W, Boonacker CWB, Swanenburg de Veye HFN, Kon M, Breugem CC, Mink van der Molen AB, van Delden JJM.

Cleft Palate Craniofac J. 2018 Jan 1:1055665618763337. doi: 10.1177/1055665618763337. [Epub ahead of print]

PMID:
29561713
41.

Palliative sedation: The end of heated debate?

Rietjens JA, van Delden JJ, van der Heide A.

Palliat Med. 2018 Dec;32(11):1639-1640. doi: 10.1177/0269216318762708. Epub 2018 Mar 13. No abstract available.

PMID:
29532705
42.

Mini-guts in a dish: Perspectives of adult Cystic Fibrosis (CF) patients and parents of young CF patients on organoid technology.

Boers SN, de Winter-de Groot KM, Noordhoek J, Gulmans V, van der Ent CK, van Delden JJM, Bredenoord AL.

J Cyst Fibros. 2018 May;17(3):407-415. doi: 10.1016/j.jcf.2018.02.004. Epub 2018 Mar 6.

PMID:
29523474
43.

Barriers and facilitators to the implementation of a paediatric palliative care team.

Verberne LM, Kars MC, Schepers SA, Schouten-van Meeteren AYN, Grootenhuis MA, van Delden JJM.

BMC Palliat Care. 2018 Feb 12;17(1):23. doi: 10.1186/s12904-018-0274-8.

44.

Fair inclusion of pregnant women in clinical trials: an integrated scientific and ethical approach.

van der Graaf R, van der Zande ISE, den Ruijter HM, Oudijk MA, van Delden JJM, Oude Rengerink K, Groenwold RHH.

Trials. 2018 Jan 29;19(1):78. doi: 10.1186/s13063-017-2402-9.

45.

Facilitators and barriers to pregnant women's participation in research: A systematic review.

van der Zande ISE, van der Graaf R, Hooft L, van Delden JJM.

Women Birth. 2018 Oct;31(5):350-361. doi: 10.1016/j.wombi.2017.12.009. Epub 2018 Jan 17. Review.

PMID:
29373261
46.

Is It Our Duty To Hunt for Pathogenic Mutations?

Wouters RHP, Bijlsma RM, Frederix GWJ, Ausems MGEM, van Delden JJM, Voest EE, Bredenoord AL.

Trends Mol Med. 2018 Jan;24(1):3-6. doi: 10.1016/j.molmed.2017.11.008. Epub 2017 Dec 12.

PMID:
29246758
47.

[The objective of advance care planning].

van Delden JJM.

Ned Tijdschr Geneeskd. 2017;161:D1981. Dutch.

PMID:
29125085
48.

Advance care planning for patients with chronic respiratory diseases: a systematic review of preferences and practices.

Jabbarian LJ, Zwakman M, van der Heide A, Kars MC, Janssen DJA, van Delden JJ, Rietjens JAC, Korfage IJ.

Thorax. 2018 Mar;73(3):222-230. doi: 10.1136/thoraxjnl-2016-209806. Epub 2017 Nov 6. Review.

PMID:
29109233
49.

The ambivalent place of ethics in European regulatory documents.

Bernabe RDLC, van Thiel GJMW, Gispen CC, Breekveldt NS, van Delden JJM.

Drug Discov Today. 2018 Feb;23(2):205-207. doi: 10.1016/j.drudis.2017.10.011. Epub 2017 Oct 27. No abstract available.

50.

Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care.

Rietjens JAC, Sudore RL, Connolly M, van Delden JJ, Drickamer MA, Droger M, van der Heide A, Heyland DK, Houttekier D, Janssen DJA, Orsi L, Payne S, Seymour J, Jox RJ, Korfage IJ; European Association for Palliative Care.

Lancet Oncol. 2017 Sep;18(9):e543-e551. doi: 10.1016/S1470-2045(17)30582-X. Review.

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