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Items: 1 to 50 of 150

1.

OMERACT 2018 Modified Patient-reported Outcome Domain Core Set in the Life Impact Area for Adult Idiopathic Inflammatory Myopathies.

Regardt M, Mecoli CA, Park JK, de Groot I, Sarver C, Needham M, de Visser M, Shea B, Bingham CO III, Lundberg IE, Song YW, Christopher-Stine L, Alexanderson H.

J Rheumatol. 2019 Feb 15. pii: jrheum.181065. doi: 10.3899/jrheum.181065. [Epub ahead of print]

PMID:
30770504
2.

Daily Functioning and Quality of Life in Patients with Sjögren-Larsson Syndrome.

Staps P, de Groot IJM, van Gerven MHJC, Willemsen MAAP.

Neuropediatrics. 2019 Jan 4. doi: 10.1055/s-0038-1676854. [Epub ahead of print]

PMID:
30609437
3.

Correction to: Trunk, head and pelvis interactions in healthy children when performing seated daily arm tasks.

Peeters LHC, Kingma I, Faber GS, van Dieën JH, de Groot IJM.

Exp Brain Res. 2019 Jan;237(1):289. doi: 10.1007/s00221-018-5429-6.

PMID:
30443670
4.

Perceptions of Patients, Caregivers, and Healthcare Providers of Idiopathic Inflammatory Myopathies: An International OMERACT Study.

Mecoli CA, Park JK, Alexanderson H, Regardt M, Needham M, de Groot I, Sarver C, Lundberg IE, Shea B, de Visser M, Song YW, Bingham CO 3rd, Christopher-Stine L.

J Rheumatol. 2019 Jan;46(1):106-111. doi: 10.3899/jrheum.180353. Epub 2018 Sep 15.

PMID:
30219767
5.

Facioscapulohumeral Dystrophy in Childhood: A Nationwide Natural History Study.

Goselink RJM, Schreuder THA, van Alfen N, de Groot IJM, Jansen M, Lemmers RJLF, van der Vliet PJ, van der Stoep N, Theelen T, Voermans NC, van der Maarel SM, van Engelen BGM, Erasmus CE.

Ann Neurol. 2018 Nov;84(5):627-637. doi: 10.1002/ana.25326. Epub 2018 Oct 16.

6.

Outcome measures for children with mitochondrial disease: consensus recommendations for future studies from a Delphi-based international workshop.

Koene S, van Bon L, Bertini E, Jimenez-Moreno C, van der Giessen L, de Groot I, McFarland R, Parikh S, Rahman S, Wood M, Zeman J, Janssen A, Smeitink J.

J Inherit Metab Dis. 2018 Nov;41(6):1267-1273. doi: 10.1007/s10545-018-0229-5. Epub 2018 Jul 19.

7.

Virtual Reality Computer Gaming with Dynamic Arm Support in Boys with Duchenne Muscular Dystrophy.

Heutinck L, Jansen M, van den Elzen Y, van der Pijl D, de Groot IJM.

J Neuromuscul Dis. 2018;5(3):359-372. doi: 10.3233/JND-180307.

PMID:
29991140
8.

Everyday Activities for Children with Mitochondrial Disorder: A Retrospective Chart Review.

Lindenschot M, de Groot IJM, Koene S, Satink T, Steultjens EMJ, Nijhuis-van der Sanden MWG.

Occup Ther Int. 2018 Jun 6;2018:5716947. doi: 10.1155/2018/5716947. eCollection 2018.

9.

Advancing the Development of Patient-reported Outcomes for Adult Myositis at OMERACT 2016: An International Delphi Study.

Park JK, Mecoli CA, Alexanderson H, Regardt M, Christopher-Stine L, Casal-Domínguez M, de Groot I, Sarver C, Lundberg IE, Bingham CO 3rd, Song YW.

J Rheumatol. 2018 Jul;45(7):1071. doi: 10.3899/jrheum.161252.C2. No abstract available.

PMID:
29961681
10.

Trunk, head and pelvis interactions in healthy children when performing seated daily arm tasks.

Peeters LHC, Kingma I, Faber GS, van Dieën JH, de Groot IJM.

Exp Brain Res. 2018 Jul;236(7):2023-2036. doi: 10.1007/s00221-018-5279-2. Epub 2018 May 8. Erratum in: Exp Brain Res. 2019 Jan;237(1):289.

11.

Home-based bimanual training based on motor learning principles in children with unilateral cerebral palsy and their parents (the COAD-study): rationale and protocols.

Schnackers M, Beckers L, Janssen-Potten Y, Aarts P, Rameckers E, van der Burg J, de Groot I; COAD Focus Group, Smeets R, Geurts S, Steenbergen B.

BMC Pediatr. 2018 Apr 18;18(1):139. doi: 10.1186/s12887-018-1110-2.

12.

Quantification of gait in children with mitochondrial disease.

Koene S, Stolwijk NM, Ramakers R, de Vries M, de Boer L, Janssen MCH, de Groot I, Smeitink J.

J Inherit Metab Dis. 2018 Jul;41(4):731-740. doi: 10.1007/s10545-018-0148-5. Epub 2018 Mar 12.

PMID:
29532198
13.

Trunk involvement in performing upper extremity activities while seated in neurological patients with a flaccid trunk - A review.

Peeters LHC, de Groot IJM, Geurts ACH.

Gait Posture. 2018 May;62:46-55. doi: 10.1016/j.gaitpost.2018.02.028. Epub 2018 Mar 6. Review.

PMID:
29524797
14.

Advancing the Development of Patient-reported Outcomes for Adult Myositis at OMERACT 2016: An International Delphi Study.

Park JK, Mecoli CA, Alexanderson H, Regardt M, Christopher-Stine L, Casal-Domínguez M, de Groot I, Sarver C, Lundberg IE, Bingham CO 3rd, Song YW.

J Rheumatol. 2017 Dec;44(12):1944. doi: 10.3899/jrheum.161252.C1. No abstract available.

PMID:
29196552
15.

The Effect of EMDR and CBT on Low Self-esteem in a General Psychiatric Population: A Randomized Controlled Trial.

Griffioen BT, van der Vegt AA, de Groot IW, de Jongh A.

Front Psychol. 2017 Nov 8;8:1910. doi: 10.3389/fpsyg.2017.01910. eCollection 2017.

16.

[The effect of a short-term group stabilisation training in patients with complex posttraumatic stress disorder].

Beldman G, Kessels HHLM, de Groot IW.

Tijdschr Psychiatr. 2017;59(11):672-679. Dutch.

17.

Different profiles of upper limb function in four types of neuromuscular disorders.

Bergsma A, Janssen MMHP, Geurts ACH, Cup EHC, de Groot IJM.

Neuromuscul Disord. 2017 Dec;27(12):1115-1122. doi: 10.1016/j.nmd.2017.09.003. Epub 2017 Sep 15.

PMID:
29033278
18.

Surface EMG signals in very late-stage of Duchenne muscular dystrophy: a case study.

Lobo-Prat J, Janssen MMHP, Koopman BFJM, Stienen AHA, de Groot IJM.

J Neuroeng Rehabil. 2017 Aug 29;14(1):86. doi: 10.1186/s12984-017-0292-4.

19.

Advancing the Development of Patient-reported Outcomes for Adult Myositis at OMERACT 2016: An International Delphi Study.

Park JK, Mecoli CA, Alexanderson H, Regardt M, Christopher-Stine L, Casal-Domínguez M, de Groot I, Sarver C, Lundberg IE, Bingham CO 3rd, Song YW.

J Rheumatol. 2017 Nov;44(11):1683-1687. doi: 10.3899/jrheum.161252. Epub 2017 Aug 1. Erratum in: J Rheumatol. 2017 Dec;44(12 ):1944. J Rheumatol. 2018 Jul;45(7):1071.

20.

Treatment Outcome, Duration, and Costs: A Comparison of Performance Indicators Using Data from Eight Mental Health Care Providers in The Netherlands.

de Beurs E, Warmerdam EH, Oudejans SCC, Spits M, Dingemanse P, de Graaf SDD, de Groot IW, Houben H, Kuyck WGE, Noorthoorn EO, Nugter MA, Robbers SCC, van Son GE.

Adm Policy Ment Health. 2018 Mar;45(2):212-223. doi: 10.1007/s10488-017-0818-x.

21.

Dynamic arm study: quantitative description of upper extremity function and activity of boys and men with duchenne muscular dystrophy.

Janssen MMHP, Harlaar J, Koopman B, de Groot IJM.

J Neuroeng Rehabil. 2017 May 26;14(1):45. doi: 10.1186/s12984-017-0259-5.

22.

[The bidirectional relationship between physical activity and sleep in depressed versus non-depressed individuals].

Oude Oosterik NA, Bouwmans ME, de Groot IW, Bos EH, de Jonge P.

Tijdschr Psychiatr. 2017;59(2):78-86. Dutch.

23.

Ataxia-telangiectasia: recommendations for multidisciplinary treatment.

van Os NJH, Haaxma CA, van der Flier M, Merkus PJFM, van Deuren M, de Groot IJM, Loeffen J, van de Warrenburg BPC, Willemsen MAAP; A-T Study Group.

Dev Med Child Neurol. 2017 Jul;59(7):680-689. doi: 10.1111/dmcn.13424. Epub 2017 Mar 20. Review.

24.

Domains of Daily Physical Activity in Children with Mitochondrial Disease: A 3D Accelerometry Approach.

Koene S, Dirks I, van Mierlo E, de Vries PR, Janssen AJWM, Smeitink JAM, Bergsma A, Essers H, Meijer K, de Groot IJM.

JIMD Rep. 2017;36:7-17. doi: 10.1007/8904_2016_35. Epub 2017 Jan 17.

25.

Towards a short questionnaire for stepwise assessment of upper limb function, pain and stiffness in Duchenne muscular dystrophy.

Janssen MMHP, Geurts ACH, de Groot IJM.

Disabil Rehabil. 2018 Apr;40(7):842-847. doi: 10.1080/09638288.2016.1274336. Epub 2017 Jan 13.

PMID:
28084836
26.

The 6-min mastication test: a unique test to assess endurance of continuous chewing, normal values, reliability, reproducibility and usability in patients with mitochondrial disease.

van den Engel-Hoek L, Knuijt S, van Gerven MH, Lagarde ML, Groothuis JT, de Groot IJ, Janssen MC.

J Oral Rehabil. 2017 Mar;44(3):155-162. doi: 10.1111/joor.12481. Epub 2017 Jan 30.

PMID:
28054362
27.

Feeding and Swallowing Disorders in Pediatric Neuromuscular Diseases: An Overview.

van den Engel-Hoek L, de Groot IJ, de Swart BJ, Erasmus CE.

J Neuromuscul Dis. 2015 Nov 20;2(4):357-369.

28.

Multidisciplinary Treatment for Adolescents with Chronic Pain and/or Fatigue: Who Will Benefit?

Westendorp T, Verbunt JA, de Groot IJM, Remerie SC, Ter Steeg A, Smeets RJEM.

Pain Pract. 2017 Jun;17(5):633-642. doi: 10.1111/papr.12495. Epub 2016 Oct 13.

PMID:
27739178
29.

External validation of prognostic models to predict risk of gestational diabetes mellitus in one Dutch cohort: prospective multicentre cohort study.

Lamain-de Ruiter M, Kwee A, Naaktgeboren CA, de Groot I, Evers IM, Groenendaal F, Hering YR, Huisjes AJ, Kirpestein C, Monincx WM, Siljee JE, Van 't Zelfde A, van Oirschot CM, Vankan-Buitelaar SA, Vonk MA, Wiegers TA, Zwart JJ, Franx A, Moons KG, Koster MP.

BMJ. 2016 Aug 30;354:i4338. doi: 10.1136/bmj.i4338.

30.

Facioscapulohumeral dystrophy in children: design of a prospective, observational study on natural history, predictors and clinical impact (iFocus FSHD).

Goselink RJ, Schreuder TH, Mul K, Voermans NC, Pelsma M, de Groot IJ, van Alfen N, Franck B, Theelen T, Lemmers RJ, Mah JK, van der Maarel SM, van Engelen BG, Erasmus CE.

BMC Neurol. 2016 Aug 17;16:138. doi: 10.1186/s12883-016-0664-6.

31.

Variables associated with upper extremity function in patients with Duchenne muscular dystrophy.

Janssen MM, Hendriks JC, Geurts AC, de Groot IJ.

J Neurol. 2016 Sep;263(9):1810-8. doi: 10.1007/s00415-016-8193-1. Epub 2016 Jun 17.

32.

International Paediatric Mitochondrial Disease Scale.

Koene S, Hendriks JCM, Dirks I, de Boer L, de Vries MC, Janssen MCH, Smuts I, Fung CW, Wong VCN, de Coo IRFM, Vill K, Stendel C, Klopstock T, Falk MJ, McCormick EM, McFarland R, de Groot IJM, Smeitink JAM.

J Inherit Metab Dis. 2016 Sep;39(5):705-712. doi: 10.1007/s10545-016-9948-7. Epub 2016 Jun 9. Erratum in: J Inherit Metab Dis. 2017 May;40(3):463.

33.

The Temporal Order of Changes in Physical Activity and Subjective Sleep in Depressed Versus Nondepressed Individuals: Findings From the MOOVD Study.

Bouwmans MEJ, Oude Oosterik NAM, Bos EH, de Groot IW, Oldehinkel AJ, de Jonge P.

Behav Sleep Med. 2018 Mar-Apr;16(2):154-168. doi: 10.1080/15402002.2016.1180521. Epub 2016 Jun 2.

PMID:
27254292
34.

Dystrophic changes in masticatory muscles related chewing problems and malocclusions in Duchenne muscular dystrophy.

van den Engel-Hoek L, de Groot IJ, Sie LT, van Bruggen HW, de Groot SA, Erasmus CE, van Alfen N.

Neuromuscul Disord. 2016 Jun;26(6):354-60. doi: 10.1016/j.nmd.2016.03.008. Epub 2016 Apr 6.

PMID:
27132120
35.
36.

Quality of life, fatigue and mental health in patients with the m.3243A > G mutation and its correlates with genetic characteristics and disease manifestation.

Verhaak C, de Laat P, Koene S, Tibosch M, Rodenburg R, de Groot I, Knoop H, Janssen M, Smeitink J.

Orphanet J Rare Dis. 2016 Mar 18;11:25. doi: 10.1186/s13023-016-0403-5.

37.

Comment on "Nutrition Considerations in Duchenne Muscular Dystrophy".

van den Engel-Hoek L, de Groot IJ, Erasmus CE.

Nutr Clin Pract. 2016 Apr;31(2):273. doi: 10.1177/0884533615618901. No abstract available.

PMID:
26985067
38.

Upper limb function and activity in people with facioscapulohumeral muscular dystrophy: a web-based survey.

Bergsma A, Cup EH, Janssen MM, Geurts AC, de Groot IJ.

Disabil Rehabil. 2017 Feb;39(3):236-243. doi: 10.3109/09638288.2016.1140834. Epub 2016 Mar 4.

PMID:
26942834
39.

Erratum to: Design and pilot validation of A-gear: a novel wearable dynamic arm support.

Kooren PN, Dunning AG, Janssen MM, Lobo-Prat J, Koopman BF, Paalman MI, de Groot IJ, Herder JL.

J Neuroeng Rehabil. 2015 Dec 4;12:111. doi: 10.1186/s12984-015-0106-5.

40.

Imagery rehearsal therapy in addition to treatment as usual for patients with diverse psychiatric diagnoses suffering from nightmares: a randomized controlled trial.

van Schagen AM, Lancee J, de Groot IW, Spoormaker VI, van den Bout J.

J Clin Psychiatry. 2015 Sep;76(9):e1105-13. doi: 10.4088/JCP.14m09216.

PMID:
26455674
41.

Design and pilot validation of A-gear: a novel wearable dynamic arm support.

Kooren PN, Dunning AG, Janssen MM, Lobo-Prat J, Koopman BF, Paalman MI, de Groot IJ, Herder JL.

J Neuroeng Rehabil. 2015 Sep 18;12:83. doi: 10.1186/s12984-015-0072-y. Erratum in: J Neuroeng Rehabil. 2015;12:111.

42.

206th ENMC International Workshop: Care for a novel group of patients - adults with Duchenne muscular dystrophy Naarden, The Netherlands, 23-25 May 2014.

Rahbek J, Steffensen BF, Bushby K, de Groot IJ.

Neuromuscul Disord. 2015 Sep;25(9):727-38. doi: 10.1016/j.nmd.2015.05.005. Epub 2015 May 27. No abstract available.

PMID:
26099652
43.

Fighting Against Disuse of the Masticatory System in Duchenne Muscular Dystrophy: A Pilot Study Using Chewing Gum.

van Bruggen HW, van den Engel-Hoek L, Steenks MH, van der Bilt A, Bronkhorst EM, Creugers NH, de Groot IJ, Kalaykova SI.

J Child Neurol. 2015 Oct;30(12):1625-32. doi: 10.1177/0883073815575575. Epub 2015 Mar 19.

PMID:
25792431
44.

Comparing the hta core model with a national health technology assessment report.

Pasternack I, de Groot I, Kleijnen S, Polman P.

Int J Technol Assess Health Care. 2014 Nov;30(5):530-5. doi: 10.1017/S0266462314000610.

PMID:
25747563
45.

Evaluating fine motor coordination in children who are not ready for handwriting: which test should we take?

de Vries L, van Hartingsveldt MJ, Cup EH, Nijhuis-van der Sanden MW, de Groot IJ.

Occup Ther Int. 2015 Jun;22(2):61-70. doi: 10.1002/oti.1385. Epub 2015 Feb 23.

PMID:
25706348
46.

Surface EMG to assess arm function in boys with DMD: a pilot study.

Janssen MM, Harlaar J, de Groot IJ.

J Electromyogr Kinesiol. 2015 Apr;25(2):323-8. doi: 10.1016/j.jelekin.2015.01.008. Epub 2015 Feb 3.

PMID:
25701200
47.

Reduced mandibular range of motion in Duchenne Muscular Dystrophy: predictive factors.

van Bruggen HW, Van Den Engel-Hoek L, Steenks MH, Bronkhorst EM, Creugers NH, de Groot IJ, Kalaykova SI.

J Oral Rehabil. 2015 Jun;42(6):430-8. doi: 10.1111/joor.12274. Epub 2015 Jan 20.

PMID:
25600935
48.

Age-related longitudinal changes in metabolic energy expenditure during walking in boys with Duchenne muscular dystrophy.

Brehm MA, Kempen JC, van der Kooi AJ, de Groot IJ, van den Bergen JC, Verschuuren JJ, Niks EH, Harlaar J.

PLoS One. 2014 Dec 15;9(12):e115200. doi: 10.1371/journal.pone.0115200. eCollection 2014.

49.

Predictive validity of kindergarten assessments on handwriting readiness.

van Hartingsveldt MJ, Cup EH, Hendriks JC, de Vries L, de Groot IJ, Nijhuis-van der Sanden MW.

Res Dev Disabil. 2015 Jan;36C:114-124. doi: 10.1016/j.ridd.2014.08.014. Epub 2014 Oct 16.

PMID:
25462472
50.

Both aerobic exercise and cognitive-behavioral therapy reduce chronic fatigue in FSHD: an RCT.

Voet N, Bleijenberg G, Hendriks J, de Groot I, Padberg G, van Engelen B, Geurts A.

Neurology. 2014 Nov 18;83(21):1914-22. doi: 10.1212/WNL.0000000000001008. Epub 2014 Oct 22.

PMID:
25339206

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