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Items: 39

1.

Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?

Rothstein MA, Zawati MH, Knoppers BM.

J Law Med Ethics. 2019 Jun;47(2):336-341. doi: 10.1177/1073110519857291. No abstract available.

PMID:
31298096
2.

Reciprocity and the Quest for Meaningful Disclosure.

Zawati MH, Knoppers BM.

Am J Bioeth. 2019 May;19(5):36-38. doi: 10.1080/15265161.2019.1587547. No abstract available.

PMID:
31068114
3.

Letter: Relearning the 3 R's? Reinterpretation, recontact, and return of genetic variants.

Knoppers BM, Thorogood A, Zawati MH.

Genet Med. 2019 Apr 11. doi: 10.1038/s41436-019-0494-1. [Epub ahead of print] No abstract available.

PMID:
30971835
4.

The Canadian Partnership for Tomorrow Project: a pan-Canadian platform for research on chronic disease prevention.

Dummer TJB, Awadalla P, Boileau C, Craig C, Fortier I, Goel V, Hicks JMT, Jacquemont S, Knoppers BM, Le N, McDonald T, McLaughlin J, Mes-Masson AM, Nuyt AM, Palmer LJ, Parker L, Purdue M, Robson PJ, Spinelli JJ, Thompson D, Vena J, Zawati M; with the CPTP Regional Cohort Consortium.

CMAJ. 2018 Jun 11;190(23):E710-E717. doi: 10.1503/cmaj.170292.

5.

The app will see you now: mobile health, diagnosis, and the practice of medicine in Quebec and Ontario.

Lang M, Zawati MH.

J Law Biosci. 2018 Mar 15;5(1):142-173. doi: 10.1093/jlb/lsy004. eCollection 2018 May.

6.

Barriers and Opportunities in Consent and Access Procedures in Low- and Middle-Income Country Biobanks: Meeting Notes from the BCNet Training and General Assembly.

Zawati MH, Tassé AM, Mendy M, Caboux E, Lang M.

Biopreserv Biobank. 2018 Apr 18. doi: 10.1089/bio.2017.0081. [Epub ahead of print]

PMID:
29668303
7.

The author who wasn't there? Fairness and attribution in publications following access to population biobanks.

Kleiderman E, Pack A, Borry P, Zawati M.

PLoS One. 2018 Mar 23;13(3):e0194997. doi: 10.1371/journal.pone.0194997. eCollection 2018.

8.

Consent Processes for Mobile App Mediated Research: Systematic Review.

Moore S, Tassé AM, Thorogood A, Winship I, Zawati M, Doerr M.

JMIR Mhealth Uhealth. 2017 Aug 30;5(8):e126. doi: 10.2196/mhealth.7014.

9.

Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority.

Knoppers BM, Sénécal K, Boisjoli J, Borry P, Cornel MC, Fernandez CV, Grewal J, Holm IA, Nelson E, Pinxten W, Shabani M, Tassé AM, Zawati M, Clayton W.

IRB. 2016 Nov-Dec;38(6):1-9.

PMID:
30088377
10.

Next-Generation Sequencing and the Return of Results.

Knoppers BM, Nguyen MT, Sénécal K, Tassé AM, Zawati MH.

Cold Spring Harb Perspect Med. 2016 Oct 3;6(10). pii: a026724. doi: 10.1101/cshperspect.a026724. Review.

11.

Whole Genome Sequencing as a Genetic Test for Autism Spectrum Disorder: From Bench to Bedside and then Back Again.

Szego MJ, Zawati MH.

J Can Acad Child Adolesc Psychiatry. 2016 Spring;25(2):116-21. Epub 2016 May 1.

12.

Ethics education for clinician-researchers in genetics: The combined approach.

Zawati M, Cohen E, Parry D, Avard D, Syncox D.

Appl Transl Genom. 2014 Dec 16;4:16-20. doi: 10.1016/j.atg.2014.12.001. eCollection 2015 Mar. Review.

13.

International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism).

Thorogood A, Zawati MH.

J Law Med Ethics. 2015 Winter;43(4):690-702. doi: 10.1111/jlme.12312.

PMID:
26711410
14.

Return of genetic testing results in the era of whole-genome sequencing.

Knoppers BM, Zawati MH, Sénécal K.

Nat Rev Genet. 2015 Sep;16(9):553-9. doi: 10.1038/nrg3960. Epub 2015 Aug 4. Review.

PMID:
26239711
15.

The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs.

Bertier G, Zawati MH, Joly Y.

Am J Bioeth. 2015;15(7):22-4. doi: 10.1080/15265161.2015.1039732. No abstract available.

PMID:
26147258
16.

Streamlining review of research involving humans: Canadian models.

Zawati MH, Junker A, Knoppers BM, Rahimzadeh V.

J Med Genet. 2015 Aug;52(8):566-9. doi: 10.1136/jmedgenet-2014-102640. Epub 2015 Jun 3. No abstract available.

PMID:
26041760
17.

The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists.

Boycott K, Hartley T, Adam S, Bernier F, Chong K, Fernandez BA, Friedman JM, Geraghty MT, Hume S, Knoppers BM, Laberge AM, Majewski J, Mendoza-Londono R, Meyn MS, Michaud JL, Nelson TN, Richer J, Sadikovic B, Skidmore DL, Stockley T, Taylor S, van Karnebeek C, Zawati MH, Lauzon J, Armour CM; Canadian College of Medical Geneticists.

J Med Genet. 2015 Jul;52(7):431-7. doi: 10.1136/jmedgenet-2015-103144. Epub 2015 May 7.

18.

The best interests of the child and the return of results in genetic research: international comparative perspectives.

Zawati MH, Parry D, Knoppers BM.

BMC Med Ethics. 2014 Oct 4;15:72. doi: 10.1186/1472-6939-15-72.

19.

Special Issue - From Biobanks to the Clinic.

Knoppers BM, Zawati MH, Cohen E.

Appl Transl Genom. 2014 Apr 13;3(2):21-2. doi: 10.1016/j.atg.2014.04.002. eCollection 2014 Jun 1. No abstract available.

20.

Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings.

McGuire AL, Knoppers BM, Zawati MH, Clayton EW.

Genome Res. 2014 May;24(5):719-23. doi: 10.1101/gr.170514.113. Epub 2014 Mar 27.

21.

A review of the key issues associated with the commercialization of biobanks.

Caulfield T, Burningham S, Joly Y, Master Z, Shabani M, Borry P, Becker A, Burgess M, Calder K, Critchley C, Edwards K, Fullerton SM, Gottweis H, Hyde-Lay R, Illes J, Isasi R, Kato K, Kaye J, Knoppers B, Lynch J, McGuire A, Meslin E, Nicol D, O'Doherty K, Ogbogu U, Otlowski M, Pullman D, Ries N, Scott C, Sears M, Wallace H, Zawati MH.

J Law Biosci. 2014 Feb 25;1(1):94-110. eCollection 2014 Mar. No abstract available.

22.

Towards an ethics safe harbor for global biomedical research.

Dove ES, Knoppers BM, Zawati MH.

J Law Biosci. 2014 Feb 14;1(1):3-51. eCollection 2014 Mar.

23.

Population biobanking and international collaboration.

Zawati MH, Knoppers B, Thorogood A.

Pathobiology. 2014;81(5-6):276-85. doi: 10.1159/000357527. Epub 2015 Mar 16. Review.

24.

An ethics safe harbor for international genomics research?

Dove ES, Knoppers BM, Zawati MH.

Genome Med. 2013 Nov 22;5(11):99. doi: 10.1186/gm503. eCollection 2013.

25.

Demystifying biobanks.

Knoppers BM, Dove ES, Zawati MH.

Hastings Cent Rep. 2013 Sep-Oct;43(5):4-5. doi: 10.1002/hast.201. No abstract available.

PMID:
24092579
26.

Reporting results from whole-genome and whole-exome sequencing in clinical practice: a proposal for Canada?

Zawati MH, Parry D, Thorogood A, Nguyen MT, Boycott KM, Rosenblatt D, Knoppers BM.

J Med Genet. 2014 Jan;51(1):68-70. doi: 10.1136/jmedgenet-2013-101934. Epub 2013 Sep 27.

PMID:
24078715
27.

Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform.

Knoppers BM, Avard D, Sénécal K, Zawati MH; P3G International Paediatrics Platform Members.

Eur J Hum Genet. 2014 Jan;22(1):3-5. doi: 10.1038/ejhg.2013.176. Epub 2013 Aug 7. No abstract available. Erratum in: Eur J Hum Genet. 2014 Jan;22(1):153-4.

28.

Funding considerations for the disclosure of genetic incidental findings in biobank research.

Black L, Avard D, Zawati MH, Knoppers BM, Hébert J, Sauvageau G; Leucegene Project.

Clin Genet. 2013 Nov;84(5):397-406. doi: 10.1111/cge.12190. Epub 2013 Jun 10. Review.

29.

Pediatric research 'personalized'? International perspectives on the return of results.

Knoppers BM, Rioux A, Zawati MH.

Per Med. 2013 Jan;10(1):89-95. doi: 10.2217/pme.12.110.

PMID:
29783467
30.

Population studies: return of research results and incidental findings Policy Statement.

Knoppers BM, Deschênes M, Zawati MH, Tassé AM.

Eur J Hum Genet. 2013 Mar;21(3):245-7. doi: 10.1038/ejhg.2012.152. Epub 2012 Jul 11.

31.

Towards an Ecology of Collective Innovation: Human Variome Project (HVP), Rare Disease Consortium for Autosomal Loci (RaDiCAL) and Data-Enabled Life Sciences Alliance (DELSA).

Ozdemir V, Rosenblatt DS, Warnich L, Srivastava S, Tadmouri GO, Aziz RK, Reddy PJ, Manamperi A, Dove ES, Joly Y, Zawati MH, Hızel C, Yazan Y, John L, Vaast E, Ptolemy AS, Faraj SA, Kolker E, Cotton RG.

Curr Pharmacogenomics Person Med. 2011 Dec 1;9(4):243-251. No abstract available.

32.

Sampling populations of humans across the world: ELSI issues.

Knoppers BM, Zawati MH, Kirby ES.

Annu Rev Genomics Hum Genet. 2012;13:395-413. doi: 10.1146/annurev-genom-090711-163834. Epub 2012 Mar 8. Review.

PMID:
22404491
33.

International normative perspectives on the return of individual research results and incidental findings in genomic biobanks.

Zawati MH, Knoppers BM.

Genet Med. 2012 Apr;14(4):484-9. doi: 10.1038/gim.2012.13. Epub 2012 Feb 16.

PMID:
22344229
34.

Biobanks and the return of research results: out with the old and in with the new?

Zawati MH, Rioux A.

J Law Med Ethics. 2011 Winter;39(4):614-20. doi: 10.1111/j.1748-720X.2011.00628.x.

PMID:
22084847
35.

Vaccines of the 21st century and vaccinomics: data-enabled science meets global health to spark collective action for vaccine innovation.

Ozdemir V, Pang T, Knoppers BM, Avard D, Faraj SA, Zawati MH, Kolker E.

OMICS. 2011 Sep;15(9):523-7. doi: 10.1089/omi.2011.03ed. Epub 2011 Aug 17. No abstract available.

PMID:
21848418
36.

Towards a data sharing Code of Conduct for international genomic research.

Knoppers BM, Harris JR, Tassé AM, Budin-Ljøsne I, Kaye J, Deschênes M, Zawati MH.

Genome Med. 2011 Jul 14;3(7):46. doi: 10.1186/gm262.

37.

Diagnostic testing for vaccinomics: is the regulatory approval framework adequate? A comparison of Canada, the United States, and Europe.

Joly Y, Koutrikas G, Ramos-Paque E, Zawati M, Gardy J, Hayden MR, Carleton BC.

OMICS. 2011 Sep;15(9):597-605. doi: 10.1089/omi.2010.0135. Epub 2011 Jul 5. Review.

PMID:
21728814
38.

Incidental findings in data-intensive postgenomics science and legal liability of clinician-researchers: ready for vaccinomics?

Zawati MH, Hendy M, Joly Y.

OMICS. 2011 Sep;15(9):615-24. doi: 10.1089/omi.2010.0137. Epub 2011 Jul 5. Review.

PMID:
21728813
39.

Closure of population biobanks and direct-to-consumer genetic testing companies.

Zawati MH, Borry P, Howard HC.

Hum Genet. 2011 Sep;130(3):425-32. doi: 10.1007/s00439-011-1019-4. Epub 2011 Jun 26. Review.

PMID:
21706343

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