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Items: 13

1.

Diagnostic Accuracy of Phenotype Classification in Duchenne and Becker Muscular Dystrophy Using Medical Record Data1.

Andrews JG, Lamb MM, Conway K, Street N, Westfield C, Ciafaloni E, Matthews D, Cunniff C, Pandya S, Fox DJ; MD STARnet.

J Neuromuscul Dis. 2018;5(4):481-495. doi: 10.3233/JND-180306.

2.

Evaluating Implementation of the Updated Care Considerations for Duchenne Muscular Dystrophy.

Ong KS, Kinnett K, Soelaeman R, Webb L, Bain JS, Martin AS, Westfield C, Bolen J, Street N.

Pediatrics. 2018 Oct;142(Suppl 2):S118-S128. doi: 10.1542/peds.2018-0333N.

3.

A Pilot Survey Study of Adherence to Care Considerations for Duchenne Muscular Dystrophy.

Conway K, Trout C, Westfield C, Fox D, Pandya S.

PLoS Curr. 2018 May 11;10. pii: ecurrents.md.5f533e6e60ee172d6bf6b2b8375dfadf. doi: 10.1371/currents.md.5f533e6e60ee172d6bf6b2b8375dfadf.

4.

Bone Health and Endocrine Care of Boys with Duchenne Muscular Dystrophy: Data from the MD STARnet.

Weber DR, Thomas S, Erickson SW, Fox D, Oleszek J, Pandya S, Venkatesh Y, Westfield C, Ciafaloni E; Muscular Dystrophy Tracking and Research Network (MD STAR.

J Neuromuscul Dis. 2018;5(4):497-507. doi: 10.3233/JND-180317.

5.

Muscular Dystrophy Surveillance, Tracking, and Research Network pilot: Population-based surveillance of major muscular dystrophies at four U.S. sites, 2007-2011.

Do TN, Street N, Donnelly J, Adams MM, Cunniff C, Fox DJ, Weinert RO, Oleszek J, Romitti PA, Westfield CP, Bolen J; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet).

Birth Defects Res. 2018 Nov 15;110(19):1404-1411. doi: 10.1002/bdr2.1371. Epub 2018 Aug 2.

6.

Implementation of Duchenne Muscular Dystrophy Care Considerations.

Andrews JG, Conway K, Westfield C, Trout C, Meaney FJ, Mathews K, Ciafaloni E, Cunniff C, Fox DJ, Matthews D, Pandya S.

Pediatrics. 2018 Jul;142(1). pii: e20174006. doi: 10.1542/peds.2017-4006. Epub 2018 Jun 20.

7.

Health profile of a cohort of adults with Duchenne muscular dystrophy.

Pandya S, James KA, Westfield C, Thomas S, Fox DJ, Ciafaloni E, Moxley RT.

Muscle Nerve. 2018 Aug;58(2):219-223. doi: 10.1002/mus.26129. Epub 2018 Mar 30.

PMID:
29543994
8.

Noninvasive Respiratory Care Received by Individuals With Duchenne Muscular Dystrophy Since 1979-Reply.

Andrews JG, Soim A, Pandya S, Westfield CP, Ciafaloni E, Fox DJ, Birnkrant DJ, Cunniff CM, Sheehan DW.

Respir Care. 2017 Aug;62(8):1121-1122. doi: 10.4187/respcare.05675. No abstract available.

9.

Application of the International Classification of Functioning, Disability and Health system to symptoms of the Duchenne and Becker muscular dystrophies.

Conway KM, Ciafaloni E, Matthews D, Westfield C, James K, Paramsothy P, Romitti PA.

Disabil Rehabil. 2018 Jul;40(15):1773-1780. doi: 10.1080/09638288.2017.1312567. Epub 2017 Apr 11.

10.

Secondary Conditions Among Males With Duchenne or Becker Muscular Dystrophy.

Latimer R, Street N, Conway KC, James K, Cunniff C, Oleszek J, Fox D, Ciafaloni E, Westfield C, Paramsothy P; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STAR net).

J Child Neurol. 2017 Jun;32(7):663-670. doi: 10.1177/0883073817701368. Epub 2017 Apr 9.

11.

Respiratory Care Received by Individuals With Duchenne Muscular Dystrophy From 2000 to 2011.

Andrews JG, Soim A, Pandya S, Westfield CP, Ciafaloni E, Fox DJ, Birnkrant DJ, Cunniff CM, Sheehan DW; Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet).

Respir Care. 2016 Oct;61(10):1349-59. doi: 10.4187/respcare.04676. Epub 2016 Aug 9.

12.

Age at onset of first signs or symptoms predicts age at loss of ambulation in Duchenne and Becker Muscular Dystrophy: Data from the MD STARnet.

Ciafaloni E, Kumar A, Liu K, Pandya S, Westfield C, Fox DJ, Caspers Conway KM, Cunniff C, Mathews K, West N, Romitti PA, McDermott MP.

J Pediatr Rehabil Med. 2016;9(1):5-11. doi: 10.3233/PRM-160361.

13.

Delayed diagnosis in duchenne muscular dystrophy: data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet).

Ciafaloni E, Fox DJ, Pandya S, Westfield CP, Puzhankara S, Romitti PA, Mathews KD, Miller TM, Matthews DJ, Miller LA, Cunniff C, Druschel CM, Moxley RT.

J Pediatr. 2009 Sep;155(3):380-5. doi: 10.1016/j.jpeds.2009.02.007. Epub 2009 Apr 25.

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