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Items: 1 to 50 of 135

1.

OSSE Goes FAIR - Implementation of the FAIR Data Principles for an Open-Source Registry for Rare Diseases.

Schaaf J, Kadioglu D, Goebel J, Behrendt CA, Roos M, van Enckevort D, Ückert F, Sadiku F, Wagner TOF, Storf H.

Stud Health Technol Inform. 2018;253:209-213.

PMID:
30147075
2.

Mapping of Health Care Providers for People with Rare Diseases - From Vision to Implementation.

Schaefer J, Tegtbauer N, Pfeiffer W, Wagner TOF, Storf H.

Stud Health Technol Inform. 2018;247:940-944.

PMID:
29678099
3.

Conception of an Expert Advisory Board for the European Reference Network for Rare Respiratory Diseases.

Walther D, Steinmann O, Schaefer J, Wagner TOF, Storf H.

Stud Health Technol Inform. 2018;247:236-240.

PMID:
29677958
4.

ECFS best practice guidelines: the 2018 revision.

Castellani C, Duff AJA, Bell SC, Heijerman HGM, Munck A, Ratjen F, Sermet-Gaudelus I, Southern KW, Barben J, Flume PA, Hodková P, Kashirskaya N, Kirszenbaum MN, Madge S, Oxley H, Plant B, Schwarzenberg SJ, Smyth AR, Taccetti G, Wagner TOF, Wolfe SP, Drevinek P.

J Cyst Fibros. 2018 Mar;17(2):153-178. doi: 10.1016/j.jcf.2018.02.006. Epub 2018 Mar 3. Review.

5.

Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany.

Babac A, Frank M, Pauer F, Litzkendorf S, Rosenfeldt D, Lührs V, Biehl L, Hartz T, Storf H, Schauer F, Wagner TOF, Graf von der Schulenburg JM.

BMC Health Serv Res. 2018 Feb 9;18(1):99. doi: 10.1186/s12913-018-2872-9.

6.

[Registries for rare diseases : OSSE - An open-source framework for technical implementation].

Storf H, Schaaf J, Kadioglu D, Göbel J, Wagner TOF, Ückert F.

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2017 May;60(5):523-531. doi: 10.1007/s00103-017-2536-7. German.

PMID:
28289778
7.

[European Reference Networks : Consequences for healthcare in Germany].

Graessner H, Schäfer F, Scarpa M, Wagner TOF.

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2017 May;60(5):537-541. doi: 10.1007/s00103-017-2533-x. German.

PMID:
28275837
8.

[se-atlas - the health service information platform for people with rare diseases : Supporting research on medical care institutions and support groups].

Haase J, Wagner TOF, Storf H.

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2017 May;60(5):503-509. doi: 10.1007/s00103-017-2529-6. Review. German.

PMID:
28275836
9.

Rare respiratory diseases are ready for primetime: from Rare Disease Day to the European Reference Networks.

Humbert M, Wagner TO.

Eur Respir J. 2017 Feb 23;49(2). pii: 1700085. doi: 10.1183/13993003.00085-2017. Print 2017 Feb. No abstract available.

10.

[Possible Significance of Bronchoalveolar Lavage Cytology at Initial Diagnosis and Follow-up of Lung Cancer].

Grünewaldt A, Hügel C, Hermann E, Wagner TO.

Pneumologie. 2017 Feb;71(2):106-110. doi: 10.1055/s-0042-118054. Epub 2017 Feb 21. German.

PMID:
28222478
11.

Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases.

Pauer F, Göbel J, Storf H, Litzkendorf S, Babac A, Frank M, Lührs V, Schauer F, Schmidtke J, Biehl L, Wagner TO, Ückert F, Graf von der Schulenburg JM, Hartz T.

Interact J Med Res. 2016 Aug 25;5(3):e24. doi: 10.2196/ijmr.5822.

12.

Report of the European Respiratory Society/European Cystic Fibrosis Society task force on the care of adults with cystic fibrosis.

Elborn JS, Bell SC, Madge SL, Burgel PR, Castellani C, Conway S, De Rijcke K, Dembski B, Drevinek P, Heijerman HG, Innes JA, Lindblad A, Marshall B, Olesen HV, Reimann AL, Solé A, Viviani L, Wagner TO, Welte T, Blasi F.

Eur Respir J. 2016 Feb;47(2):420-8. doi: 10.1183/13993003.00592-2015. Epub 2015 Oct 9.

13.

[Epitheloid cell granulomas in bronchial invasive mucinous adenocarcinoma].

Grünewaldt A, Wagner TO.

Pneumologie. 2015 Feb;69(2):89-92. doi: 10.1055/s-0034-1391371. Epub 2015 Feb 10. German.

14.

Erratum to "Practical guidelines: lung transplantation in patients with cystic fibrosis".

Hirche TO, Knoop C, Hebestreit H, Shimmin D, Solé A, Elborn JS, Ellemunter H, Aurora P, Hogardt M, Wagner TO; ECORN-CF Study Group.

Pulm Med. 2015;2015:698460. doi: 10.1155/2015/698460. Epub 2015 Jan 28.

15.

[Measures to improve the health situation of patients with rare diseases in Germany. A comparison with the National Action Plan].

Frank M, Eidt-Koch D, Aumann I, Reimann A, Wagner TO, Graf von der Schulenburg JM.

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2014 Oct;57(10):1216-23. doi: 10.1007/s00103-014-2040-2. German.

PMID:
25209683
16.

Ultrasound evaluation of mediastinal lymphadenopathy in patients with sarcoidosis.

Hirche TO, Hirche H, Cui XW, Wagner TO, Dietrich CF.

Med Ultrason. 2014 Sep;16(3):194-200.

17.

Practical guidelines: lung transplantation in patients with cystic fibrosis.

Hirche TO, Knoop C, Hebestreit H, Shimmin D, Solé A, Elborn JS, Ellemunter H, Aurora P, Hogardt M, Wagner TO; ECORN-CF Study Group.

Pulm Med. 2014;2014:621342. doi: 10.1155/2014/621342. Epub 2014 Mar 30. Erratum in: Pulm Med. 2015;2015:698460.

18.

BIIL 284 reduces neutrophil numbers but increases P. aeruginosa bacteremia and inflammation in mouse lungs.

Döring G, Bragonzi A, Paroni M, Aktürk FF, Cigana C, Schmidt A, Gilpin D, Heyder S, Born T, Smaczny C, Kohlhäufl M, Wagner TO, Loebinger MR, Bilton D, Tunney MM, Elborn JS, Pier GB, Konstan MW, Ulrich M.

J Cyst Fibros. 2014 Mar;13(2):156-63. doi: 10.1016/j.jcf.2013.10.007. Epub 2013 Oct 31.

19.

Non-invasive measurement of liver and pancreas fibrosis in patients with cystic fibrosis.

Friedrich-Rust M, Schlueter N, Smaczny C, Eickmeier O, Rosewich M, Feifel K, Herrmann E, Poynard T, Gleiber W, Lais C, Zielen S, Wagner TO, Zeuzem S, Bojunga J.

J Cyst Fibros. 2013 Sep;12(5):431-9. doi: 10.1016/j.jcf.2012.12.013. Epub 2013 Jan 27.

20.

[Emergencies in adult mucoviscidosis patients].

Smaczny C, Born T, Wagner TO.

Internist (Berl). 2012 May;53(5):575-84. doi: 10.1007/s00108-012-3019-4. German.

PMID:
22527665
21.

Quality assessment of expert answers to lay questions about cystic fibrosis from various language zones in Europe: the ECORN-CF project.

d'Alquen D, De Boeck K, Bradley J, Vávrová V, Dembski B, Wagner TO, Pfalz A, Hebestreit H.

BMC Med Res Methodol. 2012 Feb 6;12:11. doi: 10.1186/1471-2288-12-11.

22.

Increased levels of anti-glycan antibodies in patients with cystic fibrosis.

Hirche TO, Stein J, Hirche H, Hausmann J, Wagner TO, Behrens F, Schröder O.

Eur J Med Res. 2011 Sep 12;16(9):385-90.

23.

Resource usage in outpatient care and reimbursement for cystic fibrosis in Germany.

Eidt-Koch D, Wagner TO, Mittendorf T, Reimann A, von der Schulenburg JM.

Pediatr Pulmonol. 2011 Mar;46(3):278-85. doi: 10.1002/ppul.21364. Epub 2010 Nov 17.

PMID:
24081887
24.

[Drug treatment of cystic fibrosis - cost patterns and savings potential for outpatient treatment].

Baltin CT, Smaczny C, Wagner TO.

Med Klin (Munich). 2010 Dec;105(12):887-900. doi: 10.1007/s00063-010-1154-z. Epub 2011 Jan 16. German.

PMID:
21240588
25.

Travelling with cystic fibrosis: recommendations for patients and care team members.

Hirche TO, Bradley J, d'Alquen D, De Boeck K, Dembski B, Elborn JS, Gleiber W, Lais C, Malfroot A, Wagner TO; European Centres of Reference Network for Cystic Fibrosis (ECORN-CF) Study Group.

J Cyst Fibros. 2010 Dec;9(6):385-99. doi: 10.1016/j.jcf.2010.08.013. Epub 2010 Sep 17. Review.

26.

Outpatient medication costs of patients with cystic fibrosis in Germany.

Eidt-Koch D, Wagner TO, Mittendorf T, Graf von der Schulenburg JM.

Appl Health Econ Health Policy. 2010;8(2):111-8. doi: 10.2165/11313980-000000000-00000.

PMID:
20175589
27.

Increased frequency of regulatory T cells and selection of highly potent CD62L+ cells during treatment of human lung transplant recipients with rapamycin.

Lange CM, Tran TY, Farnik H, Jungblut S, Born T, Wagner TO, Hirche TO.

Transpl Int. 2010 Mar 1;23(3):266-76. doi: 10.1111/j.1432-2277.2009.00973.x. Epub 2009 Oct 5.

28.

[Lung transplantation in cystic fibrosis--a position paper].

Gottlieb J, Ballmann M, von Mallinckrodt C, Staab D, Smaczny C, Simon A, Welte T, Wagner TO.

Pneumologie. 2009 Aug;63(8):451-60. doi: 10.1055/s-0029-1214821. Epub 2009 Aug 7. Review. German.

29.

A phase II study on safety and efficacy of high-dose N-acetylcysteine in patients with cystic fibrosis.

Dauletbaev N, Fischer P, Aulbach B, Gross J, Kusche W, Thyroff-Friesinger U, Wagner TO, Bargon J.

Eur J Med Res. 2009 Aug 12;14(8):352-8.

30.

[Cost analysis for ambulatory treatment of cystic fibrosis patients in Germany. Overview of the prospective study results].

Eidt D, Mittendorf T, Wagner TO, Reimann A, Graf von der Schulenburg JM.

Med Klin (Munich). 2009 Jul 15;104(7):529-35. doi: 10.1007/s00063-009-1112-9. Epub 2009 Jul 18. German.

PMID:
19618138
31.

Statistical limitations of percent ideal body weight as measure for nutritional failure in patients with cystic fibrosis.

Hirche TO, Hirche H, Jungblut S, Stern M, Wagner TO, Wiedemann B; German CFQA Group.

J Cyst Fibros. 2009 Jul;8(4):238-44. doi: 10.1016/j.jcf.2009.03.004. Epub 2009 May 5.

32.

Oxygen generation by combined electrolysis and fuel-cell technology: clinical use in COPD patients requiring long time oxygen therapy.

Hirche TO, Born T, Jungblut S, Sczepanski B, Kenn K, Köhnlein T, Hirche H, Wagner TO.

Eur J Med Res. 2008 Oct 27;13(10):451-8.

PMID:
19008171
33.

Variables affecting the risk of pneumothorax and intrapulmonal hemorrhage in CT-guided transthoracic biopsy.

Khan MF, Straub R, Moghaddam SR, Maataoui A, Gurung J, Wagner TO, Ackermann H, Thalhammer A, Vogl TJ, Jacobi V.

Eur Radiol. 2008 Jul;18(7):1356-63. doi: 10.1007/s00330-008-0893-1. Epub 2008 Mar 20.

PMID:
18351356
34.

[Damage to the respiratory tract due to aspirated alendronate].

Jungblut SA, Frickmann H, Achenbach HJ, Wagner TO.

Pneumologie. 2007 Dec;61(12):771-3. Epub 2007 Oct 10. German.

PMID:
17929215
35.

Evaluation of body mass index percentiles for assessment of malnutrition in children with cystic fibrosis.

Wiedemann B, Paul KD, Stern M, Wagner TO, Hirche TO; German CFQA Group.

Eur J Clin Nutr. 2007 Jun;61(6):759-68. Epub 2007 Jan 10.

PMID:
17213872
36.

Determination of the optimal MRI sequence for the detection of malignant lung nodules.

Luboldt W, Wetter A, Eichler K, Vogl TJ, Wagner TO, Seemann MD.

Eur J Med Res. 2006 Aug 30;11(8):336-42.

PMID:
17052969
37.

Serum leptin and cytokines in whole blood in relation to clinical and nutritional status in cystic fibrosis.

Schmitt-Grohé S, Hippe V, Igel M, von Bergmann K, Posselt HG, Krahl A, Smaczny C, Wagner TO, Nikolaizik W, Lentze MJ, Zielen S.

J Pediatr Gastroenterol Nutr. 2006 Aug;43(2):228-33.

PMID:
16877990
39.

TNF-alpha promoter polymorphism in relation to TNF-alpha production and clinical status in cystic fibrosis.

Schmitt-Grohé S, Stüber F, Book M, Bargon J, Wagner TO, Naujoks C, Schubert R, Lentze MJ, Zielen S.

Lung. 2006 Mar-Apr;184(2):99-104.

PMID:
16622779
40.

[New concepts of pathophysiology and therapy in cystic fibrosis].

Hirche TO, Loitsch S, Smaczny C, Wagner TO.

Pneumologie. 2005 Nov;59(11):811-8. Review. German.

PMID:
16385442
41.

Lipopolysaccharide binding protein, cytokine production in whole blood, and lipoproteins in cystic fibrosis.

Schmitt-Grohé S, Hippe V, Igel M, von Bergmann K, Posselt HG, Krahl A, Smaczny C, Wagner TO, Nikolazik W, Schubert R, Lentze MJ, Zielen S.

Pediatr Res. 2005 Nov;58(5):903-7. Epub 2005 Sep 23.

PMID:
16183806
42.

Antioxidant properties of cystic fibrosis sputum.

Dauletbaev N, Rickmann J, Viel K, Diegel H, von Mallinckrodt C, Stein J, Wagner TO, Bargon J.

Am J Physiol Lung Cell Mol Physiol. 2005 May;288(5):L903-9. Epub 2005 Jan 7.

43.

Interleukin-8 in whole blood and clinical status in cystic fibrosis.

Schmitt-Grohé S, Naujoks C, Bargon J, Wagner TO, Schubert R, Hippe V, Zielen S.

Cytokine. 2005 Jan 7;29(1):18-23.

PMID:
15579374
44.

Glutathione and glutathione peroxidase in sputum samples of adult patients with cystic fibrosis.

Dauletbaev N, Viel K, Buhl R, Wagner TO, Bargon J.

J Cyst Fibros. 2004 Jun;3(2):119-24.

45.

[Bronchioloalveolar carcinoma of the lung associated with a highly positive pANCA-titer and clinical signs of microscopic polyangiitis].

Watz H, Hammerl P, Matter C, Degen M, Heimann F, Heitmann H, Ermert L, Wagner TO.

Pneumologie. 2004 Jul;58(7):493-8. German.

PMID:
15257471
46.

Virtual endoscopy of the tracheo-bronchial system: sub-millimeter collimation with the 16-row multidetector scanner.

Khan MF, Herzog C, Ackermann H, Wagner TO, Maataoui A, Harth M, Abolmaali ND, Jacobi V, Vogl TJ.

Eur Radiol. 2004 Aug;14(8):1400-5. Epub 2004 May 7.

PMID:
15133710
47.

Incorporation of biodegradable nanoparticles into human airway epithelium cells-in vitro study of the suitability as a vehicle for drug or gene delivery in pulmonary diseases.

Brzoska M, Langer K, Coester C, Loitsch S, Wagner TO, Mallinckrodt Cv.

Biochem Biophys Res Commun. 2004 May 28;318(2):562-70.

PMID:
15120637
48.

[Pneumonology in the course of time].

Wagner TO, Seeger W.

Dtsch Med Wochenschr. 2004 Mar 5;129(10):483. German. No abstract available.

PMID:
14986235
49.

[Sonographie von pleura und lunge].

Dietrich CF, Hirche TO, Schreiber D, Wagner TO.

Ultraschall Med. 2003 Oct;24(5):303-11. Review. German.

PMID:
14562208
50.

[44th Congress of the German Society for Pneumology, Mar 26-29, 2003 and Munich. Recent findings from and pneumology section of the Society]].

Bergmann KC, Stanzel F, Merget R, Bauer T, Wagner TO, Paul K; Deutschen Gesellschaft für Pneumologie.

Pneumologie. 2003 Jun;57(6):299-309. German. No abstract available.

PMID:
12875277

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