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Items: 49

1.

Is there a duty to participate in digital epidemiology?

Mittelstadt B, Benzler J, Engelmann L, Prainsack B, Vayena E.

Life Sci Soc Policy. 2018 May 9;14(1):9. doi: 10.1186/s40504-018-0074-1.

2.

Data Sharing For Precision Medicine: Policy Lessons And Future Directions.

Blasimme A, Fadda M, Schneider M, Vayena E.

Health Aff (Millwood). 2018 May;37(5):702-709. doi: 10.1377/hlthaff.2017.1558.

PMID:
29733719
3.

Odon device for instrumental vaginal deliveries: results of a medical device pilot clinical study.

Schvartzman JA, Krupitzki H, Merialdi M, Betrán AP, Requejo J, Nguyen MH, Vayena E, Fiorillo AE, Gadow EC, Vizcaino FM, von Petery F, Marroquin V, Cafferata ML, Mazzoni A, Vannevel V, Pattinson RC, Gülmezoglu AM, Althabe F, Bonet M; World Health Organization Odon Device Research Group.

Reprod Health. 2018 Mar 12;15(1):45. doi: 10.1186/s12978-018-0485-8.

4.

Big Data and Dementia: Charting the Route Ahead for Research, Ethics, and Policy.

Ienca M, Vayena E, Blasimme A.

Front Med (Lausanne). 2018 Feb 6;5:13. doi: 10.3389/fmed.2018.00013. eCollection 2018.

5.

Policy implications of big data in the health sector.

Vayena E, Dzenowagis J, Brownstein JS, Sheikh A.

Bull World Health Organ. 2018 Jan 1;96(1):66-68. doi: 10.2471/BLT.17.197426. Epub 2017 Nov 23. No abstract available.

6.

Digital health: meeting the ethical and policy challenges.

Vayena E, Haeusermann T, Adjekum A, Blasimme A.

Swiss Med Wkly. 2018 Jan 29;148:w14571. doi: 10.4414/smw.2018.14571. eCollection 2018 Jan 29.

7.

What Is Trust? Ethics and Risk Governance in Precision Medicine and Predictive Analytics.

Adjekum A, Ienca M, Vayena E.

OMICS. 2017 Dec;21(12):704-710. doi: 10.1089/omi.2017.0156.

8.

Biomedical Big Data: New Models of Control Over Access, Use and Governance.

Vayena E, Blasimme A.

J Bioeth Inq. 2017 Dec;14(4):501-513. doi: 10.1007/s11673-017-9809-6. Epub 2017 Oct 5.

9.

Philanthropy on trial: can the rich rescue shelved compounds?

Vayena E.

J Med Ethics. 2017 Nov;43(11):737-738. doi: 10.1136/medethics-2017-104251. Epub 2017 Aug 3. No abstract available.

PMID:
28774958
10.

Informed Consent and the Disclosure of Clinical Results to Research Participants.

Blasimme A, Moret C, Hurst SA, Vayena E.

Am J Bioeth. 2017 Jul;17(7):58-60. doi: 10.1080/15265161.2017.1328532. No abstract available.

PMID:
28661744
11.

Open sharing of genomic data: Who does it and why?

Haeusermann T, Greshake B, Blasimme A, Irdam D, Richards M, Vayena E.

PLoS One. 2017 May 9;12(5):e0177158. doi: 10.1371/journal.pone.0177158. eCollection 2017.

12.
13.

Test Pricing and Reimbursement in Genomic Medicine: Towards a General Strategy.

Vozikis A, Cooper DN, Mitropoulou C, Kambouris ME, Brand A, Dolzan V, Fortina P, Innocenti F, Lee MT, Leyens L, Macek M Jr, Al-Mulla F, Prainsack B, Squassina A, Taruscio D, van Schaik RH, Vayena E, Williams MS, Patrinos GP.

Public Health Genomics. 2016;19(6):352-363. doi: 10.1159/000449152. Epub 2016 Sep 28. Review.

14.

The place of human rights and the common good in global health policy.

Tasioulas J, Vayena E.

Theor Med Bioeth. 2016 Aug;37(4):365-82. doi: 10.1007/s11017-016-9372-x.

15.

Public Health and Human Rights.

Tasioulas J, Vayena E.

JAMA. 2016 Jul 5;316(1):103-4. doi: 10.1001/jama.2016.5244. No abstract available.

16.

Attitudes towards personal genomics among older Swiss adults: An exploratory study.

Mählmann L, Röcke C, Brand A, Hafen E, Vayena E.

Appl Transl Genom. 2016 Feb 1;8:9-15. doi: 10.1016/j.atg.2016.01.009. eCollection 2016 Mar.

17.

Between Openness and Privacy in Genomics.

Vayena E, Gasser U.

PLoS Med. 2016 Jan 12;13(1):e1001937. doi: 10.1371/journal.pmed.1001937. eCollection 2016 Jan. Review. No abstract available.

18.

The dynamics of big data and human rights: the case of scientific research.

Vayena E, Tasioulas J.

Philos Trans A Math Phys Eng Sci. 2016 Dec 28;374(2083). pii: 20160129. doi: 10.1098/rsta.2016.0129.

19.

An Appeal to the Global Health Community for a Tripartite Innovation: An "Essential Diagnostics List," "Health in All Policies," and "See-Through 21(st) Century Science and Ethics".

Dove ES, Barlas IÖ, Birch K, Boehme C, Borda-Rodriguez A, Byne WM, Chaverneff F, Coşkun Y, Dahl ML, Dereli T, Diwakar S, Elbeyli L, Endrenyi L, Eroğlu-Kesim B, Ferguson LR, Güngör K, Gürsoy U, Hekim N, Huzair F, Kaushik K, Kickbusch I, Kıroğlu O, Kolker E, Könönen E, Lin B, Llerena A, Malhan F, Nair B, Patrinos GP, Şardaş S, Sert Ö, Srivastava S, Steuten LM, Toraman C, Vayena E, Wang W, Warnich L, Özdemir V.

OMICS. 2015 Aug;19(8):435-42. doi: 10.1089/omi.2015.0075. Epub 2015 Jul 10.

PMID:
26161545
20.

A code of ethics for ethicists: what would Pierre Bourdieu say? "Do not misuse social capital in the age of consortia ethics".

Özdemir V, Kılıç H, Yıldırım A, Vayena E, Dove ES, Güngör K, LLerena A, Şardaş S.

Am J Bioeth. 2015;15(5):64-7. doi: 10.1080/15265161.2015.1021976. No abstract available.

PMID:
25970399
21.

Research led by participants: a new social contract for a new kind of research.

Vayena E, Brownsword R, Edwards SJ, Greshake B, Kahn JP, Ladher N, Montgomery J, O'Connor D, O'Neill O, Richards MP, Rid A, Sheehan M, Wicks P, Tasioulas J.

J Med Ethics. 2016 Apr;42(4):216-9. doi: 10.1136/medethics-2015-102663. Epub 2015 Mar 30.

22.

Ethical challenges of big data in public health.

Vayena E, Salathé M, Madoff LC, Brownstein JS.

PLoS Comput Biol. 2015 Feb 9;11(2):e1003904. doi: 10.1371/journal.pcbi.1003904. eCollection 2015 Feb. No abstract available.

23.

Getting human rights right in global health policy.

Tasioulas J, Vayena E.

Lancet. 2015 Apr 25;385(9978):e42-4. doi: 10.1016/S0140-6736(14)61418-5. Epub 2014 Oct 9. No abstract available.

PMID:
25308288
24.

Personal genomics in Greece: an overview of available direct-to-consumer genomic services and the relevant legal framework.

Kechagia S, Mai Y, Vidalis T, Patrinos GP, Vayena E.

Public Health Genomics. 2014;17(5-6):299-305. doi: 10.1159/000366175. Epub 2014 Oct 1.

PMID:
25278084
25.

Opinion: Learning as we go: lessons from the publication of Facebook's social-computing research.

Kahn JP, Vayena E, Mastroianni AC.

Proc Natl Acad Sci U S A. 2014 Sep 23;111(38):13677-9. doi: 10.1073/pnas.1416405111. Epub 2014 Sep 12. No abstract available.

26.

Bridging genomics research between developed and developing countries: the Genomic Medicine Alliance.

Cooper DN, Brand A, Dolzan V, Fortina P, Innocenti F, Michael Lee MT, Macek M Jr, Al-Mulla F, Prainsack B, Squassina A, Vayena E, Vozikis A, Williams MS, Patrinos GP.

Per Med. 2014 Sep;11(7):615-623. doi: 10.2217/pme.14.59.

PMID:
29764053
27.

The next step in the patient revolution: patients initiating and leading research.

Vayena E.

BMJ. 2014 Jul 1;349:g4318. doi: 10.1136/bmj.g4318. No abstract available.

PMID:
24986856
28.

Direct-to-consumer genomics on the scales of autonomy.

Vayena E.

J Med Ethics. 2015 Apr;41(4):310-4. doi: 10.1136/medethics-2014-102026. Epub 2014 May 5.

29.

Playing a part in research? University students' attitudes to direct-to-consumer genomics.

Vayena E, Ineichen C, Stoupka E, Hafen E.

Public Health Genomics. 2014;17(3):158-68. doi: 10.1159/000360257. Epub 2014 Apr 25.

30.

Key challenges for next-generation pharmacogenomics: Science & Society series on Science and Drugs.

Kampourakis K, Vayena E, Mitropoulou C, van Schaik RH, Cooper DN, Borg J, Patrinos GP.

EMBO Rep. 2014 May;15(5):472-6. doi: 10.1002/embr.201438641. Epub 2014 Apr 10. No abstract available.

31.

Bernard Lerer: recipient of the 2014 inaugural Werner Kalow Responsible Innovation Prize in Global Omics and Personalized Medicine (Pacific Rim Association for Clinical Pharmacogenetics).

Ozdemir V, Endrenyi L, Aynacıoğlu S, Bragazzi NL, Dandara C, Dove ES, Ferguson LR, Geraci CJ, Hafen E, Kesim BE, Kolker E, Lee EJ, Llerena A, Nacak M, Shimoda K, Someya T, Srivastava S, Tomlinson B, Vayena E, Warnich L, Yaşar U.

OMICS. 2014 Apr;18(4):211-21. doi: 10.1089/omi.2014.0029. Epub 2014 Mar 20.

32.

Ready to put metadata on the post-2015 development agenda? Linking data publications to responsible innovation and science diplomacy.

Özdemir V, Kolker E, Hotez PJ, Mohin S, Prainsack B, Wynne B, Vayena E, Coşkun Y, Dereli T, Huzair F, Borda-Rodriguez A, Bragazzi NL, Faris J, Ramesar R, Wonkam A, Dandara C, Nair B, Llerena A, Kılıç K, Jain R, Reddy PJ, Gollapalli K, Srivastava S, Kickbusch I.

OMICS. 2014 Jan;18(1):1-9. doi: 10.1089/omi.2013.0170. Review.

PMID:
24456464
33.

The ethics of participant-led biomedical research.

Vayena E, Tasioulas J.

Nat Biotechnol. 2013 Sep;31(9):786-7. doi: 10.1038/nbt.2692. No abstract available.

PMID:
24022150
34.

Regulating genomics: time for a broader vision.

Vayena E, Prainsack B.

Sci Transl Med. 2013 Aug 14;5(198):198ed12. doi: 10.1126/scitranslmed.3005797. No abstract available.

35.

Genetic incidental findings: autonomy regained?

Vayena E, Tasioulas J.

Genet Med. 2013 Nov;15(11):868-70. doi: 10.1038/gim.2013.104. Epub 2013 Aug 1. No abstract available.

36.

Feasibility and safety study of a new device (Odón device) for assisted vaginal deliveries: study protocol.

World Health Organization Odon Device Research Group, Schvartzman JA, Krupitzki H, Betran AP, Requejo J, Bergel E, Fiorillo AE, Gadow EC, Vizcaino FM, von Petery F, Althabe F, Belizan J, Borruto F, Boulvain M, Di Renzo GC, Gülmezoglu M, Hofmeyr J, Judge K, Leung TY, Nguyen MH, Saugstad OD, Temmerman M, Treisser A, Vayena E, Merialdi M.

Reprod Health. 2013 Jul 2;10:33. doi: 10.1186/1742-4755-10-33.

37.

Shaping parents: impact of contrasting professional counseling on parents' decision making for children with disorders of sex development.

Streuli JC, Vayena E, Cavicchia-Balmer Y, Huber J.

J Sex Med. 2013 Aug;10(8):1953-60. doi: 10.1111/jsm.12214. Epub 2013 Jun 6.

PMID:
23742202
38.

Adapting standards: ethical oversight of participant-led health research.

Vayena E, Tasioulas J.

PLoS Med. 2013;10(3):e1001402. doi: 10.1371/journal.pmed.1001402. Epub 2013 Mar 12.

39.

Beyond the clinic: 'direct-to-consumer' genomic profiling services and pharmacogenomics.

Prainsack B, Vayena E.

Pharmacogenomics. 2013 Mar;14(4):403-12. doi: 10.2217/pgs.13.10. Review.

PMID:
23438887
40.

Caught in the web: informed consent for online health research.

Vayena E, Mastroianni A, Kahn J.

Sci Transl Med. 2013 Feb 20;5(173):173fs6. doi: 10.1126/scitranslmed.3004798.

PMID:
23427242
41.

The challenge of personal genomics in Germany.

Vayena E, Prainsack B.

Nat Biotechnol. 2013 Jan;31(1):16-7. doi: 10.1038/nbt.2469. No abstract available.

PMID:
23302923
42.

Experiences of early users of direct-to-consumer genomics in Switzerland: an exploratory study.

Vayena E, Gourna E, Streuli J, Hafen E, Prainsack B.

Public Health Genomics. 2012;15(6):352-62. doi: 10.1159/000343792. Epub 2012 Nov 15.

43.

Ethical issues in health research with novel online sources.

Vayena E, Mastroianni A, Kahn J.

Am J Public Health. 2012 Dec;102(12):2225-30. doi: 10.2105/AJPH.2012.300813. Epub 2012 Oct 18.

44.

[Personal genomics: are we debating the right Issues?].

Vayena E, Mauch F.

Praxis (Bern 1994). 2012 Jul 25;101(15):961-4. doi: 10.1024/1661-8157/a001008. Review. German.

PMID:
22811328
45.

Children's rights in pediatrics.

Streuli JC, Michel M, Vayena E.

Eur J Pediatr. 2011 Jan;170(1):9-14. doi: 10.1007/s00431-010-1205-8. Epub 2010 May 12. Review.

PMID:
20461530
46.

Assisted reproductive technologies in developing countries: are we caring yet?

Vayena E, Peterson HB, Adamson D, Nygren KG.

Fertil Steril. 2009 Aug;92(2):413-6. doi: 10.1016/j.fertnstert.2009.02.011. Epub 2009 Mar 25.

PMID:
19324335
47.

Use of modern contraception by the poor is falling behind.

Gakidou E, Vayena E.

PLoS Med. 2007 Feb;4(2):e31.

48.

Sharing benefits in international health research. Research-capacity building as an example of an indirect collective benefit.

Schulz-Baldes A, Vayena E, Biller-Andorno N.

EMBO Rep. 2007 Jan;8(1):8-13. No abstract available.

49.

Assisted reproductive technology in developing countries: why should we care?

Vayena E, Rowe PJ, Peterson HB.

Fertil Steril. 2002 Jul;78(1):13-5. No abstract available.

PMID:
12095483

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