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Items: 33

1.

Consent insufficient for data release.

Nicol D, Eckstein L, Bentzen HB, Borry P, Burgess M, Burke W, Chalmers D, Cho M, Dove E, Fullerton S, Ida R, Kato K, Kaye J, Koenig B, Manson S, McGrail K, Meslin E, O'Doherty K, Prainsack B, Shabani M, Tabor H, Thorogood A, de Vries J.

Science. 2019 May 3;364(6439):445-446. doi: 10.1126/science.aax0892. No abstract available.

PMID:
31048483
2.

A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research.

Dalpé G, Thorogood A, Knoppers BM.

Front Genet. 2019 Apr 5;10:289. doi: 10.3389/fgene.2019.00289. eCollection 2019.

3.

Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.

McGuire AL, Majumder MA, Villanueva AG, Bardill J, Bollinger JM, Boerwinkle E, Bubela T, Deverka PA, Evans BJ, Garrison NA, Glazer D, Goldstein MM, Greely HT, Kahn SD, Knoppers BM, Koenig BA, Lambright JM, Mattison JE, O'Donnell C, Rai AK, Rodriguez LL, Simoncelli T, Terry SF, Thorogood AM, Watson MS, Wilbanks JT, Cook-Deegan R.

J Law Med Ethics. 2019 Mar;47(1):12-20. doi: 10.1177/1073110519840480.

PMID:
30994067
4.

Letter: Relearning the 3 R's? Reinterpretation, recontact, and return of genetic variants.

Knoppers BM, Thorogood A, Zawati MH.

Genet Med. 2019 Apr 11. doi: 10.1038/s41436-019-0494-1. [Epub ahead of print] No abstract available.

PMID:
30971835
5.

Openness, inclusion, and respect in dementia research.

Thorogood A, Mäki-Petäjä-Leinonen A, Dalpé G, Gastmans C, Gauthier S.

Lancet Neurol. 2019 Feb;18(2):135-136. doi: 10.1016/S1474-4422(18)30445-9. No abstract available.

PMID:
30663603
6.

Return of individual genomic research results: are laws and policies keeping step?

Thorogood A, Dalpé G, Knoppers BM.

Eur J Hum Genet. 2019 Apr;27(4):535-546. doi: 10.1038/s41431-018-0311-3. Epub 2019 Jan 8.

PMID:
30622328
7.

BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2.

Cline MS, Liao RG, Parsons MT, Paten B, Alquaddoomi F, Antoniou A, Baxter S, Brody L, Cook-Deegan R, Coffin A, Couch FJ, Craft B, Currie R, Dlott CC, Dolman L, den Dunnen JT, Dyke SOM, Domchek SM, Easton D, Fischmann Z, Foulkes WD, Garber J, Goldgar D, Goldman MJ, Goodhand P, Harrison S, Haussler D, Kato K, Knoppers B, Markello C, Nussbaum R, Offit K, Plon SE, Rashbass J, Rehm HL, Robson M, Rubinstein WS, Stoppa-Lyonnet D, Tavtigian S, Thorogood A, Zhang C, Zimmermann M; BRCA Challenge Authors, Burn J, Chanock S, Rätsch G, Spurdle AB.

PLoS Genet. 2018 Dec 26;14(12):e1007752. doi: 10.1371/journal.pgen.1007752. eCollection 2018 Dec.

8.

Attitudes of publics who are unwilling to donate DNA data for research.

Middleton A, Milne R, Thorogood A, Kleiderman E, Niemiec E, Prainsack B, Farley L, Bevan P, Steed C, Smith J, Vears D, Atutornu J, Howard HC, Morley KI.

Eur J Med Genet. 2019 May;62(5):316-323. doi: 10.1016/j.ejmg.2018.11.014. Epub 2018 Nov 23.

9.

Genetic database software as medical devices.

Thorogood A, Touré SB, Ordish J, Hall A, Knoppers B.

Hum Mutat. 2018 Nov;39(11):1702-1712. doi: 10.1002/humu.23621.

10.

Consent recommendations for research and international data sharing involving persons with dementia.

Thorogood A, Mäki-Petäjä-Leinonen A, Brodaty H, Dalpé G, Gastmans C, Gauthier S, Gove D, Harding R, Knoppers BM, Rossor M, Bobrow M; Global Alliance for Genomics and Health, Ageing and Dementia Task Team.

Alzheimers Dement. 2018 Oct;14(10):1334-1343. doi: 10.1016/j.jalz.2018.05.011. Epub 2018 Jul 2.

11.

Correction to: Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations.

Issa AM, Thorogood A, Joly Y, Knoppers BM.

Genet Med. 2018 Sep 4. doi: 10.1038/s41436-018-0264-5. [Epub ahead of print]

PMID:
30177852
12.

Correction to: Canada: will privacy rules continue to favour open science?

Thorogood A.

Hum Genet. 2018 Aug;137(8):603. doi: 10.1007/s00439-018-1922-z.

13.

Responsible sharing of biomedical data and biospecimens via the "Automatable Discovery and Access Matrix" (ADA-M).

Woolley JP, Kirby E, Leslie J, Jeanson F, Cabili MN, Rushton G, Hazard JG, Ladas V, Veal CD, Gibson SJ, Tassé AM, Dyke SOM, Gaff C, Thorogood A, Knoppers BM, Wilbanks J, Brookes AJ.

NPJ Genom Med. 2018 Jul 23;3:17. doi: 10.1038/s41525-018-0057-4. eCollection 2018. Review.

14.

Canada: will privacy rules continue to favour open science?

Thorogood A.

Hum Genet. 2018 Aug;137(8):595-602. doi: 10.1007/s00439-018-1905-0. Epub 2018 Jul 16. Review. Erratum in: Hum Genet. 2018 Aug 17;:.

15.

Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations.

Issa AM, Thorogood A, Joly Y, Knoppers BM.

Genet Med. 2019 Mar;21(3):542-544. doi: 10.1038/s41436-018-0099-0. Epub 2018 Jul 10. No abstract available. Erratum in: Genet Med. 2018 Sep 4;:.

PMID:
29988078
16.

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods.

Middleton A, Niemiec E, Prainsack B, Bobe J, Farley L, Steed C, Smith J, Bevan P, Bonhomme N, Kleiderman E, Thorogood A, Schickhardt C, Garattini C, Vears D, Littler K, Banner N, Scott E, Kovalevskaya NV, Levin E, Morley KI, Howard HC.

Per Med. 2018 Jul 1;15(4):311-318. doi: 10.2217/pme-2018-0032. Epub 2018 Jun 1.

17.

APPLaUD: access for patients and participants to individual level uninterpreted genomic data.

Thorogood A, Bobe J, Prainsack B, Middleton A, Scott E, Nelson S, Corpas M, Bonhomme N, Rodriguez LL, Murtagh M, Kleiderman E; Participant Values Task Team of the Global Alliance for Genomics and Health.

Hum Genomics. 2018 Feb 17;12(1):7. doi: 10.1186/s40246-018-0139-5. Review.

18.

Reproducibility and Reuse of Adaptive Immune Receptor Repertoire Data.

Breden F, Luning Prak ET, Peters B, Rubelt F, Schramm CA, Busse CE, Vander Heiden JA, Christley S, Bukhari SAC, Thorogood A, Matsen Iv FA, Wine Y, Laserson U, Klatzmann D, Douek DC, Lefranc MP, Collins AM, Bubela T, Kleinstein SH, Watson CT, Cowell LG, Scott JK, Kepler TB.

Front Immunol. 2017 Nov 1;8:1418. doi: 10.3389/fimmu.2017.01418. eCollection 2017.

19.

Consent Processes for Mobile App Mediated Research: Systematic Review.

Moore S, Tassé AM, Thorogood A, Winship I, Zawati M, Doerr M.

JMIR Mhealth Uhealth. 2017 Aug 30;5(8):e126. doi: 10.2196/mhealth.7014.

20.

Substitute consent to data sharing: a way forward for international dementia research?

Thorogood A, Deschênes St-Pierre C, Knoppers BM.

J Law Biosci. 2017 Jan 10;4(1):133-158. doi: 10.1093/jlb/lsw063. eCollection 2017 Apr.

21.

Public variant databases: liability?

Thorogood A, Cook-Deegan R, Knoppers BM.

Genet Med. 2017 Jul;19(7):838-841. doi: 10.1038/gim.2016.189. Epub 2016 Dec 15.

22.

Registered access: a 'Triple-A' approach.

Dyke SO, Kirby E, Shabani M, Thorogood A, Kato K, Knoppers BM.

Eur J Hum Genet. 2016 Dec;24(12):1676-1680. doi: 10.1038/ejhg.2016.115. Epub 2016 Sep 28.

23.

Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts.

Shabani M, Thorogood A, Borry P.

Eur J Hum Genet. 2016 Dec;24(12):1671-1675. doi: 10.1038/ejhg.2016.111. Epub 2016 Aug 24.

24.

International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism).

Thorogood A, Zawati MH.

J Law Med Ethics. 2015 Winter;43(4):690-702. doi: 10.1111/jlme.12312.

PMID:
26711410
25.

An implementation framework for the feedback of individual research results and incidental findings in research.

Thorogood A, Joly Y, Knoppers BM, Nilsson T, Metrakos P, Lazaris A, Salman A.

BMC Med Ethics. 2014 Dec 23;15:88. doi: 10.1186/1472-6939-15-88.

26.

Population biobanking and international collaboration.

Zawati MH, Knoppers B, Thorogood A.

Pathobiology. 2014;81(5-6):276-85. doi: 10.1159/000357527. Epub 2015 Mar 16. Review.

27.

Reporting results from whole-genome and whole-exome sequencing in clinical practice: a proposal for Canada?

Zawati MH, Parry D, Thorogood A, Nguyen MT, Boycott KM, Rosenblatt D, Knoppers BM.

J Med Genet. 2014 Jan;51(1):68-70. doi: 10.1136/jmedgenet-2013-101934. Epub 2013 Sep 27.

PMID:
24078715
28.

The Human Genome Organisation: towards next-generation ethics.

Knoppers BM, Thorogood A, Chadwick R.

Genome Med. 2013 Apr 29;5(4):38. doi: 10.1186/gm442. eCollection 2013. No abstract available.

29.

A P3G generic access agreement for population genomic studies.

Knoppers BM, Chisholm RL, Kaye J, Cox D; P3G International Steering Committee, Thorogood A, Burton P, Brookes AJ, Fortier I, Goodwin P, Harris JR, Hveem K, Kent A, Little J, Riegman PH, Ripatti S, Stolk RP.

Nat Biotechnol. 2013 May;31(5):384-5. doi: 10.1038/nbt.2567. No abstract available.

30.

Whole-genome sequencing and the physician.

Thorogood A, Knoppers BM, Dondorp WJ, de Wert GM.

Clin Genet. 2012 Jun;81(6):511-3. doi: 10.1111/j.1399-0004.2012.01868.x. Epub 2012 Apr 9. No abstract available.

PMID:
22404433
31.

Isolated aerobic exercise and weight loss: a systematic review and meta-analysis of randomized controlled trials.

Thorogood A, Mottillo S, Shimony A, Filion KB, Joseph L, Genest J, Pilote L, Poirier P, Schiffrin EL, Eisenberg MJ.

Am J Med. 2011 Aug;124(8):747-55. doi: 10.1016/j.amjmed.2011.02.037. Review.

PMID:
21787904
32.

Review of domiciliary consultations for pain relief.

Casale FF, Thorogood A.

Anaesthesia. 1985 Apr;40(4):366-8.

33.

Clinical comparison of halothane (Fluothane) and chloroform.

MCREYNOLDS EC, THOROGOOD A, MORRIS LE.

Arch Surg. 1963 Apr;86:633-40. No abstract available.

PMID:
13932277

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