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Items: 14

1.

To Pay or Not to Pay? Is that the Question?

Terry PF, Terry SF.

Genet Test Mol Biomarkers. 2016 Feb;20(2):53-4. doi: 10.1089/gtmb.2016.29010.sjt. Epub 2016 Jan 28. No abstract available.

PMID:
26859258
2.

Pseudoxanthoma elasticum: progress in research toward treatment: summary of the 2012 PXE international research meeting.

Uitto J, VĂ¡radi A, Bercovitch L, Terry PF, Terry SF.

J Invest Dermatol. 2013 Jun;133(6):1444-9. doi: 10.1038/jid.2013.20. No abstract available.

3.

An end to the myth: there is no drug development pipeline.

Baxter K, Horn E, Gal-Edd N, Zonno K, O'Leary J, Terry PF, Terry SF.

Sci Transl Med. 2013 Feb 6;5(171):171cm1. doi: 10.1126/scitranslmed.3003505. Review.

PMID:
23390245
4.

Genomics, Cancer Care & Advocacy.

Terry SF, Zeitz K, Majumder MA, Terry PF.

Washington (DC): Genetic Alliance; 2006.

5.

Pseudoxanthoma elasticum: progress in diagnostics and research towards treatment : Summary of the 2010 PXE International Research Meeting.

Uitto J, Bercovitch L, Terry SF, Terry PF.

Am J Med Genet A. 2011 Jul;155A(7):1517-26. doi: 10.1002/ajmg.a.34067. Epub 2011 Jun 10. Review. Erratum in: Am J Med Genet A. 2011 Dec;155A(12):3176.

6.

Market access challenges in the EU for high medical value diagnostic tests.

Miller I, Ashton-Chess J, Spolders H, Fert V, Ferrara J, Kroll W, Askaa J, Larcier P, Terry PF, Bruinvels A, Huriez A.

Per Med. 2011 Mar;8(2):137-148. doi: 10.2217/pme.11.2.

PMID:
29783414
7.

Genetic Alliance Registry and BioBank: a novel disease advocacy-driven research solution.

Terry SF, Horn EJ, Scott J, Terry PF.

Per Med. 2011 Mar;8(2):207-213. doi: 10.2217/pme.11.1.

PMID:
29783403
8.

Power to the people: participant ownership of clinical trial data.

Terry SF, Terry PF.

Sci Transl Med. 2011 Feb 9;3(69):69cm3. doi: 10.1126/scitranslmed.3001857.

PMID:
21307299
9.

A measure of truth in genetic testing.

Zonno KD, Terry PF, Terry SF.

Genet Test Mol Biomarkers. 2009 Jun;13(3):285-6. doi: 10.1089/gtmb.2009.1504. No abstract available.

PMID:
19473075
10.

Mutation detection in the ABCC6 gene and genotype-phenotype analysis in a large international case series affected by pseudoxanthoma elasticum.

Pfendner EG, Vanakker OM, Terry SF, Vourthis S, McAndrew PE, McClain MR, Fratta S, Marais AS, Hariri S, Coucke PJ, Ramsay M, Viljoen D, Terry PF, De Paepe A, Uitto J, Bercovitch LG.

J Med Genet. 2007 Oct;44(10):621-8. Epub 2007 Jul 6.

11.

Development of a rapid, reliable genetic test for pseudoxanthoma elasticum.

Shi Y, Terry SF, Terry PF, Bercovitch LG, Gerard GF.

J Mol Diagn. 2007 Feb;9(1):105-12.

12.

Advocacy groups as research organizations: the PXE International example.

Terry SF, Terry PF, Rauen KA, Uitto J, Bercovitch LG.

Nat Rev Genet. 2007 Feb;8(2):157-64. doi: 10.1038/nrg1991. Review.

PMID:
17230202
13.

A consumer perspective on forensic DNA banking.

Terry SF, Terry PF.

J Law Med Ethics. 2006 Summer;34(2):408-14. No abstract available.

PMID:
16789963
14.

A consumer perspective on informed consent and third-party issues.

Terry SF, Terry PF.

J Contin Educ Health Prof. 2001 Fall;21(4):256-64.

PMID:
11803770

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