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Lack of knowledge and misperceptions about thalassaemia among college students in Bangladesh: a cross-sectional baseline study.

Hossain MS, Hasan MM, Raheem E, Islam MS, Al Mosabbir A, Petrou M, Telfer P, Siddiqee MH.

Orphanet J Rare Dis. 2020 Feb 21;15(1):54. doi: 10.1186/s13023-020-1323-y.


Not being heard: barriers to high quality unplanned hospital care during young people's transition to adult services - evidence from 'this sickle cell life' research.

Renedo A, Miles S, Chakravorty S, Leigh A, Telfer P, Warner JO, Marston C.

BMC Health Serv Res. 2019 Nov 21;19(1):876. doi: 10.1186/s12913-019-4726-5.


Evaluation of a Non-Parenteral Opioid Analgesia Protocol for Acute Sickle Cell Pain Episodes in Children.

Telfer P, Barroso F, Newell K, Challands J, Kaya B.

J Clin Med. 2019 Oct 18;8(10). pii: E1728. doi: 10.3390/jcm8101728.


Gene-set association and epistatic analyses reveal complex gene interaction networks affecting flowering time in a worldwide barley collection.

He T, Hill CB, Angessa TT, Zhang XQ, Chen K, Moody D, Telfer P, Westcott S, Li C.

J Exp Bot. 2019 Oct 24;70(20):5603-5616. doi: 10.1093/jxb/erz332.


The Role of Family Functioning in the Development of Executive Functions in Preschool Children with Sickle Cell Anemia.

Downes M, de Haan M, Telfer PT, Kirkham FJ.

Dev Neuropsychol. 2019 Sep;44(6):452-467. doi: 10.1080/87565641.2019.1660779. Epub 2019 Aug 26.


Development and validation of the Satisfaction with Treatment for Pain Questionnaire (STPQ) among patients with sickle cell disease.

Elander J, Bij D, Kapadi R, Schofield MB, Osias A, Khalid N, Kaya B, Telfer P.

Br J Haematol. 2019 Oct;187(1):105-116. doi: 10.1111/bjh.16015. Epub 2019 Jun 23.


A Phase 3 Randomized Trial of Voxelotor in Sickle Cell Disease.

Vichinsky E, Hoppe CC, Ataga KI, Ware RE, Nduba V, El-Beshlawy A, Hassab H, Achebe MM, Alkindi S, Brown RC, Diuguid DL, Telfer P, Tsitsikas DA, Elghandour A, Gordeuk VR, Kanter J, Abboud MR, Lehrer-Graiwer J, Tonda M, Intondi A, Tong B, Howard J; HOPE Trial Investigators.

N Engl J Med. 2019 Aug 8;381(6):509-519. doi: 10.1056/NEJMoa1903212. Epub 2019 Jun 14.


Psychometric analysis of the adult sickle cell quality of life measurement information system (ACSQ-Me) in a UK population.

Cooper O, McBain H, Tangayi S, Telfer P, Tsitsikas D, Yardumian A, Mulligan K.

Health Qual Life Outcomes. 2019 Apr 29;17(1):74. doi: 10.1186/s12955-019-1136-7.


Extreme cardiac iron loading in transfusion-dependent thalassaemia major: cardiac T2* and T1 mapping guiding treatment.

Brown RA, Moon JC, Telfer PT, Khanji MY.

Eur Heart J. 2019 Nov 14;40(43):3578. doi: 10.1093/eurheartj/ehz137. No abstract available.


A phase 1/2 ascending dose study and open-label extension study of voxelotor in patients with sickle cell disease.

Howard J, Hemmaway CJ, Telfer P, Layton DM, Porter J, Awogbade M, Mant T, Gretler DD, Dufu K, Hutchaleelaha A, Patel M, Siu V, Dixon S, Landsman N, Tonda M, Lehrer-Graiwer J.

Blood. 2019 Apr 25;133(17):1865-1875. doi: 10.1182/blood-2018-08-868893. Epub 2019 Jan 17.


Temperament in preschool children with sickle cell anaemia.

Downes M, de Haan M, O'Leary T, Telfer PT, Kirkham FJ.

Arch Dis Child. 2018 Dec 21. doi: 10.1136/archdischild-2018-315054. [Epub ahead of print]


Hybridisation-based target enrichment of phenology genes to dissect the genetic basis of yield and adaptation in barley.

Hill CB, Angessa TT, McFawn LA, Wong D, Tibbits J, Zhang XQ, Forrest K, Moody D, Telfer P, Westcott S, Diepeveen D, Xu Y, Tan C, Hayden M, Li C.

Plant Biotechnol J. 2019 May;17(5):932-944. doi: 10.1111/pbi.13029. Epub 2018 Dec 6.


Newborn screening for sickle cell disease in Europe: recommendations from a Pan-European Consensus Conference.

Lobitz S, Telfer P, Cela E, Allaf B, Angastiniotis M, Backman Johansson C, Badens C, Bento C, Bouva MJ, Canatan D, Charlton M, Coppinger C, Daniel Y, de Montalembert M, Ducoroy P, Dulin E, Fingerhut R, Frömmel C, García-Morin M, Gulbis B, Holtkamp U, Inusa B, James J, Kleanthous M, Klein J, Kunz JB, Langabeer L, Lapouméroulie C, Marcao A, Marín Soria JL, McMahon C, Ohene-Frempong K, Périni JM, Piel FB, Russo G, Sainati L, Schmugge M, Streetly A, Tshilolo L, Turner C, Venturelli D, Vilarinho L, Yahyaoui R, Elion J, Colombatti R; with the endorsement of EuroBloodNet, the European Reference Network in Rare Haematological Diseases.

Br J Haematol. 2018 Nov;183(4):648-660. doi: 10.1111/bjh.15600. Epub 2018 Oct 18.


Impact of voxelotor (GBT440) on unconjugated bilirubin and jaundice in sickle cell disease.

Telfer P, Agodoa I, Fox KM, Burke L, Mant T, Jurek M, Tonda M, Lehrer-Graiwer J.

Hematol Rep. 2018 May 22;10(2):7643. doi: 10.4081/hr.2018.7643. eCollection 2018 May 14.


Executive performance on the preschool executive task assessment in children with sickle cell anemia and matched controls.

Downes M, Kirkham FJ, Berg C, Telfer P, de Haan M.

Child Neuropsychol. 2019 Feb;25(2):278-285. doi: 10.1080/09297049.2018.1491962. Epub 2018 Jun 28.


Assessment of Executive Functions in Preschool Children With Sickle Cell Anemia.

Downes M, Kirkham FJ, Telfer PT, de Haan M.

J Int Neuropsychol Soc. 2018 Oct;24(9):949-954. doi: 10.1017/S1355617718000255. Epub 2018 May 30.


Optimizing the care model for an uncomplicated acute pain episode in sickle cell disease.

Telfer P, Kaya B.

Hematology Am Soc Hematol Educ Program. 2017 Dec 8;2017(1):525-533. doi: 10.1182/asheducation-2017.1.525. Review.


Are the risks of treatment to cure a child with severe sickle cell disease too high?

de Montalembert M, Brousse V, Chakravorty S, Pagliuca A, Porter J, Telfer P, Vora A, Rees DC.

BMJ. 2017 Nov 23;359:j5250. doi: 10.1136/bmj.j5250. No abstract available.


Altered Neurophysiological Processing of Auditory Attention in Preschool Children With Sickle Cell Disease.

Downes M, Kirkham FJ, Telfer PT, de Haan M.

J Pediatr Psychol. 2018 Sep 1;43(8):856-869. doi: 10.1093/jpepsy/jsx115.


Increased genomic prediction accuracy in wheat breeding using a large Australian panel.

Norman A, Taylor J, Tanaka E, Telfer P, Edwards J, Martinant JP, Kuchel H.

Theor Appl Genet. 2017 Dec;130(12):2543-2555. doi: 10.1007/s00122-017-2975-4. Epub 2017 Sep 8.


Associations between environmental factors and hospital admissions for sickle cell disease.

Piel FB, Tewari S, Brousse V, Analitis A, Font A, Menzel S, Chakravorty S, Thein SL, Inusa B, Telfer P, de Montalembert M, Fuller GW, Katsouyanni K, Rees DC.

Haematologica. 2017 Apr;102(4):666-675. doi: 10.3324/haematol.2016.154245. Epub 2016 Dec 1.


Parent reported sleep problems in preschool children with sickle cell anemia and controls in East London.

Downes M, de Haan M, Kirkham FJ, Telfer PT.

Pediatr Blood Cancer. 2017 Jun;64(6). doi: 10.1002/pbc.26337. Epub 2016 Nov 15.


Transcranial Doppler Screening in a Regional Care Network for Sickle Cell Disease in the United Kingdom.

Telfer P, Dwan K, Simmons A, Evanson J, Gadong N, Newell K, Tangayi S, Leigh A, Tsouana E, Hemmaway C, Kaya B.

J Pediatr Hematol Oncol. 2016 Oct;38(7):517-24. doi: 10.1097/MPH.0000000000000633.


Presentations of sickle cell disease patients to hospital in Ghana: key findings from a preliminary study at Volta Regional Hospital.

Fisher AE, Oduro AKY, Adzaku F, Telfer P.

Br J Haematol. 2017 Aug;178(3):489-491. doi: 10.1111/bjh.14154. Epub 2016 May 25. No abstract available.


Extracorporeal membrane oxygenation for the treatment of adult sickle cell acute chest syndrome.

Parhar K, Parizkova B, Jones N, Valchanov K, Fowles JA, Besser M, Telfer P, Kaya B, Vuylsteke A, Rubino A.

Perfusion. 2016 Apr;31(3):262-5. doi: 10.1177/0267659115593172. Epub 2015 Jun 30.


Optimal Manual Exchange Transfusion Protocol for Sickle Cell Disease: A Retrospective Comparison of Two Comprehensive Care Centers in the United Kingdom and Canada.

Mian HS, Ward R, Telfer P, Kaya B, Kuo KH.

Hemoglobin. 2015;39(5):310-5. doi: 10.3109/03630269.2015.1057734. Epub 2015 Jun 26.


White Matter Damage Relates to Oxygen Saturation in Children With Sickle Cell Anemia Without Silent Cerebral Infarcts.

Kawadler JM, Kirkham FJ, Clayden JD, Hollocks MJ, Seymour EL, Edey R, Telfer P, Robins A, Wilkey O, Barker S, Cox TC, Clark CA.

Stroke. 2015 Jul;46(7):1793-9. doi: 10.1161/STROKEAHA.115.008721. Epub 2015 May 12.


Combination-therapy with concurrent deferoxamine and deferiprone is effective in treating resistant cardiac iron-loading in aceruloplasminaemia.

Badat M, Kaya B, Telfer P.

Br J Haematol. 2015 Nov;171(3):430-2. doi: 10.1111/bjh.13401. Epub 2015 Apr 8. No abstract available.


13-valent pneumococcal conjugate vaccine (PCV13) is immunogenic and safe in children 6-17 years of age with sickle cell disease previously vaccinated with 23-valent pneumococcal polysaccharide vaccine (PPSV23): Results of a phase 3 study.

De Montalembert M, Abboud MR, Fiquet A, Inati A, Lebensburger JD, Kaddah N, Mokhtar G, Piga A, Halasa N, Inusa B, Rees DC, Heath PT, Telfer P, Driscoll C, Al Hajjar S, Tozzi A, Jiang Q, Emini EA, Gruber WC, Gurtman A, Scott DA.

Pediatr Blood Cancer. 2015 Aug;62(8):1427-36. doi: 10.1002/pbc.25502. Epub 2015 Mar 23. Erratum in: Pediatr Blood Cancer. 2019 Feb;66(2):e27554.


A comparison of chronic manual and automated red blood cell exchange transfusion in sickle cell disease patients.

Kuo KH, Ward R, Kaya B, Howard J, Telfer P.

Br J Haematol. 2015 Aug;170(3):425-8. doi: 10.1111/bjh.13294. Epub 2015 Jan 27. No abstract available.


Controlled trial of transfusions for silent cerebral infarcts in sickle cell anemia.

DeBaun MR, Gordon M, McKinstry RC, Noetzel MJ, White DA, Sarnaik SA, Meier ER, Howard TH, Majumdar S, Inusa BP, Telfer PT, Kirby-Allen M, McCavit TL, Kamdem A, Airewele G, Woods GM, Berman B, Panepinto JA, Fuh BR, Kwiatkowski JL, King AA, Fixler JM, Rhodes MM, Thompson AA, Heiny ME, Redding-Lallinger RC, Kirkham FJ, Dixon N, Gonzalez CE, Kalinyak KA, Quinn CT, Strouse JJ, Miller JP, Lehmann H, Kraut MA, Ball WS Jr, Hirtz D, Casella JF.

N Engl J Med. 2014 Aug 21;371(8):699-710. doi: 10.1056/NEJMoa1401731.


Deferasirox for iron chelation in multitransfused children with sickle cell disease; long-term experience in the East London clinical haemoglobinopathy network.

Tsouana E, Kaya B, Gadong N, Hemmaway C, Newell H, Simmons A, Whitmarsh S, Telfer P.

Eur J Haematol. 2015 Apr;94(4):336-42. doi: 10.1111/ejh.12435. Epub 2014 Sep 24.


Deferiprone versus deferoxamine in sickle cell disease: results from a 5-year long-term Italian multi-center randomized clinical trial.

Calvaruso G, Vitrano A, Di Maggio R, Ballas S, Steinberg MH, Rigano P, Sacco M, Telfer P, Renda D, Barone R, Maggio A; Investigators of the Multicenter Randomized Clinical Trial of Deferiprone versus Deferoxamine in Sickle-Cell-Disease.

Blood Cells Mol Dis. 2014 Dec;53(4):265-71. doi: 10.1016/j.bcmd.2014.04.004. Epub 2014 May 9.


Management of the acute painful crisis in sickle cell disease- a re-evaluation of the use of opioids in adult patients.

Telfer P, Bahal N, Lo A, Challands J.

Br J Haematol. 2014 Jul;166(2):157-64. doi: 10.1111/bjh.12879. Epub 2014 Apr 18. Review.


Serial echocardiographic left ventricular ejection fraction measurements: a tool for detecting thalassemia major patients at risk of cardiac death.

Maggio A, Vitrano A, Calvaruso G, Barone R, Rigano P, Mancuso L, Cuccia L, Capra M, Pitrolo L, Prossomariti L, Filosa A, Caruso V, Gerardi C, Campisi S, Cianciulli P, Elefteriou A, Angastiniotis M, Hamza H, Telfer P, Walker JM, Phrommintikul A, Chattipakorn N.

Blood Cells Mol Dis. 2013 Apr;50(4):241-6. doi: 10.1016/j.bcmd.2012.12.002. Epub 2013 Jan 20.


Precursors of executive function in infants with sickle cell anemia.

Hogan AM, Telfer PT, Kirkham FJ, de Haan M.

J Child Neurol. 2013 Oct;28(10):1197-202. doi: 10.1177/0883073812453495. Epub 2012 Aug 1.


Prevalence of transcranial Doppler abnormalities in Nigerian children with sickle cell disease.

Lagunju I, Sodeinde O, Telfer P.

Am J Hematol. 2012 May;87(5):544-7. doi: 10.1002/ajh.23152. Epub 2012 Mar 28.


Correlates of bushmeat hunting among remote rural households in Gabon, Central Africa.

Foerster S, Wilkie DS, Morelli GA, Demmer J, Starkey M, Telfer P, Steil M, Lewbel A.

Conserv Biol. 2012 Apr;26(2):335-44. doi: 10.1111/j.1523-1739.2011.01802.x. Epub 2011 Dec 19.


Hydroxycarbamide use in young children with sickle-cell anaemia.

Obaro SK, Inusa B, Telfer P.

Lancet. 2011 Nov 19;378(9805):1777. doi: 10.1016/S0140-6736(11)61770-4. No abstract available.


Associated risk factors for silent cerebral infarcts in sickle cell anemia: low baseline hemoglobin, sex, and relative high systolic blood pressure.

DeBaun MR, Sarnaik SA, Rodeghier MJ, Minniti CP, Howard TH, Iyer RV, Inusa B, Telfer PT, Kirby-Allen M, Quinn CT, Bernaudin F, Airewele G, Woods GM, Panepinto JA, Fuh B, Kwiatkowski JK, King AA, Rhodes MM, Thompson AA, Heiny ME, Redding-Lallinger RC, Kirkham FJ, Sabio H, Gonzalez CE, Saccente SL, Kalinyak KA, Strouse JJ, Fixler JM, Gordon MO, Miller JP, Noetzel MJ, Ichord RN, Casella JF.

Blood. 2012 Apr 19;119(16):3684-90. doi: 10.1182/blood-2011-05-349621. Epub 2011 Nov 17.


Cross-species transmission of simian foamy virus to humans in rural Gabon, Central Africa.

Mouinga-Ondémé A, Caron M, Nkoghé D, Telfer P, Marx P, Saïb A, Leroy E, Gonzalez JP, Gessain A, Kazanji M.

J Virol. 2012 Jan;86(2):1255-60. doi: 10.1128/JVI.06016-11. Epub 2011 Nov 9.


Cervical carotid artery disease in sickle cell anemia: clinical and radiological features.

Telfer PT, Evanson J, Butler P, Hemmaway C, Abdulla C, Gadong N, Whitmarsh S, Kaya B, Kirkham FJ.

Blood. 2011 Dec 1;118(23):6192-9. doi: 10.1182/blood-2011-03-337915. Epub 2011 Sep 1.


Two distinct variants of simian foamy virus in naturally infected mandrills (Mandrillus sphinx) and cross-species transmission to humans.

Mouinga-Ondémé A, Betsem E, Caron M, Makuwa M, Sallé B, Renault N, Saib A, Telfer P, Marx P, Gessain A, Kazanji M.

Retrovirology. 2010 Dec 14;7:105. doi: 10.1186/1742-4690-7-105.


Island biogeography reveals the deep history of SIV.

Worobey M, Telfer P, Souquière S, Hunter M, Coleman CA, Metzger MJ, Reed P, Makuwa M, Hearn G, Honarvar S, Roques P, Apetrei C, Kazanji M, Marx PA.

Science. 2010 Sep 17;329(5998):1487. doi: 10.1126/science.1193550. Erratum in: Science. 2010 Dec 3;330(6009):1319.


Management of chronic viral hepatitis in patients with thalassemia: recommendations from an international panel.

Di Marco V, Capra M, Angelucci E, Borgna-Pignatti C, Telfer P, Harmatz P, Kattamis A, Prossamariti L, Filosa A, Rund D, Gamberini MR, Cianciulli P, De Montalembert M, Gagliardotto F, Foster G, Grangè JD, Cassarà F, Iacono A, Cappellini MD, Brittenham GM, Prati D, Pietrangelo A, Craxì A, Maggio A; Italian Society for the Study of Thalassemia and Haemoglobinopathies; Italian Association for the Study of the Liver.

Blood. 2010 Oct 21;116(16):2875-83. doi: 10.1182/blood-2009-11-248724. Epub 2010 Jun 15.


Update on survival in thalassemia major.

Telfer P.

Hemoglobin. 2009;33 Suppl 1:S76-80. doi: 10.3109/03630260903347336. Review.


Improved survival in thalassemia major patients on switching from desferrioxamine to combined chelation therapy with desferrioxamine and deferiprone.

Telfer PT, Warburton F, Christou S, Hadjigavriel M, Sitarou M, Kolnagou A, Angastiniotis M.

Haematologica. 2009 Dec;94(12):1777-8. doi: 10.3324/haematol.2009.009118. Epub 2009 Oct 8. No abstract available.


Intranasal diamorphine for acute sickle cell pain.

Telfer P, Criddle J, Sandell J, Davies F, Morrison I, Challands J.

Arch Dis Child. 2009 Dec;94(12):979-80. doi: 10.1136/adc.2008.138875. Epub 2009 Mar 25.


Deferasirox for the treatment of iron overload associated with regular blood transfusions (transfusional haemosiderosis) in patients suffering with chronic anaemia: a systematic review and economic evaluation.

McLeod C, Fleeman N, Kirkham J, Bagust A, Boland A, Chu P, Dickson R, Dundar Y, Greenhalgh J, Modell B, Olujohungbe A, Telfer P, Walley T.

Health Technol Assess. 2009 Jan;13(1):iii-iv, ix-xi, 1-121. doi: 10.3310/hta13010. Review.


A patient with beta thalassaemia major and back pain.

Tsitsikas DA, Barroso FA, Telfer P, Kaya B, Evanson J, Provan A.

BMJ. 2008 Nov 19;337:a2304. doi: 10.1136/bmj.a2304. No abstract available.


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