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Is There a Relationship between Shared Decision Making and Breast Cancer Patients' Trust in Their Medical Oncologists?

Engelhardt EG, Smets EMA, Sorial I, Stiggelbout AM, Pieterse AH, Hillen MA.

Med Decis Making. 2019 Dec 2:272989X19889905. doi: 10.1177/0272989X19889905. [Epub ahead of print]


'We don't know for sure': discussion of uncertainty concerning multigene panel testing during initial cancer genetic consultations.

Medendorp NM, Hillen MA, van Maarschalkerweerd PEA, Aalfs CM, Ausems MGEM, Verhoef S, van der Kolk LE, Berger LPV, Wevers MR, Wagner A, Caanen BAH, Stiggelbout AM, Smets EMA.

Fam Cancer. 2019 Nov 26. doi: 10.1007/s10689-019-00154-4. [Epub ahead of print]


Effect of a Skills Training for Oncologists and a Patient Communication Aid on Shared Decision Making About Palliative Systemic Treatment: A Randomized Clinical Trial.

Henselmans I, van Laarhoven HWM, van Maarschalkerweerd P, de Haes HCJM, Dijkgraaf MGW, Sommeijer DW, Ottevanger PB, Fiebrich HB, Dohmen S, Creemers GJ, de Vos FYFL, Smets EMA.

Oncologist. 2019 Nov 26. pii: theoncologist.2019-0453. doi: 10.1634/theoncologist.2019-0453. [Epub ahead of print]


The Role of Health Literacy in Explaining the Relation between Educational Level and Decision Making about Colorectal Cancer Screening.

Woudstra AJ, Smets EMA, Verdam MGE, Fransen MP.

Int J Environ Res Public Health. 2019 Nov 22;16(23). pii: E4644. doi: 10.3390/ijerph16234644.


Communicating uncertainties when disclosing diagnostic test results for (Alzheimer's) dementia in the memory clinic: The ABIDE project.

Visser LNC, Pelt SAR, Kunneman M, Bouwman FH, Claus JJ, Kalisvaart KJ, Hempenius L, de Beer MH, Roks G, Boelaarts L, Kleijer M, van der Flier WM, Smets EMA, Hillen MA.

Health Expect. 2019 Oct 22. doi: 10.1111/hex.12964. [Epub ahead of print]


Tailoring the amount of treatment information to cancer patients' and survivors' preferences: Effects on patient-reported outcomes.

Lehmann V, Labrie NHM, van Weert JCM, van Dulmen S, de Haes HJCJM, Kersten MJ, Pieterse AH, Smets EMA.

Patient Educ Couns. 2019 Sep 26. pii: S0738-3991(19)30432-X. doi: 10.1016/j.pec.2019.09.024. [Epub ahead of print]


Tailored Web-Based Information for Younger and Older Patients with Cancer: Randomized Controlled Trial of a Preparatory Educational Intervention on Patient Outcomes.

Nguyen MH, Smets EM, Bol N, Loos EF, van Laarhoven HW, Geijsen D, van Berge Henegouwen MI, Tytgat KM, van Weert JC.

J Med Internet Res. 2019 Oct 1;21(10):e14407. doi: 10.2196/14407.


Validation of health literacy domains for informed decision making about colorectal cancer screening using classical test theory and item response theory.

Woudstra AJ, Smets EMA, Galenkamp H, Fransen MP.

Patient Educ Couns. 2019 Dec;102(12):2335-2343. doi: 10.1016/j.pec.2019.09.016. Epub 2019 Sep 18.


ABIDE Delphi study: topics to discuss in diagnostic consultations in memory clinics.

Fruijtier AD, Visser LNC, van Maurik IS, Zwan MD, Bouwman FH, van der Flier WM, Smets EMA.

Alzheimers Res Ther. 2019 Aug 31;11(1):77. doi: 10.1186/s13195-019-0531-y.


Clinician-patient communication during the diagnostic workup: The ABIDE project.

Visser LNC, Kunneman M, Murugesu L, van Maurik I, Zwan M, Bouwman FH, Schuur J, Wind HA, Blaauw MSJ, Kragt JJ, Roks G, Boelaarts L, Schipper AC, Schooneboom N, Scheltens P, van der Flier WM, Smets EMA.

Alzheimers Dement (Amst). 2019 Jul 29;11:520-528. doi: 10.1016/j.dadm.2019.06.001. eCollection 2019 Dec.


Provider caring and structuring treatment information to improve cancer patients' recall: Does it help?

Lehmann V, Labrie NHM, van Weert JCM, van Dulmen S, de Haes HJCJM, Kersten MJ, Pieterse AH, Smets EMA.

Patient Educ Couns. 2020 Jan;103(1):55-62. doi: 10.1016/j.pec.2019.07.011. Epub 2019 Jul 10.


A tailored approach towards informing relatives at risk of inherited cardiac conditions: study protocol for a randomised controlled trial.

van den Heuvel LM, Hoedemaekers YM, Baas AF, van Tintelen JP, Smets EMA, Christiaans I.

BMJ Open. 2019 Jul 9;9(7):e025660. doi: 10.1136/bmjopen-2018-025660.


Development and Usability of ADappt: Web-Based Tool to Support Clinicians, Patients, and Caregivers in the Diagnosis of Mild Cognitive Impairment and Alzheimer Disease.

van Maurik IS, Visser LN, Pel-Littel RE, van Buchem MM, Zwan MD, Kunneman M, Pelkmans W, Bouwman FH, Minkman M, Schoonenboom N, Scheltens P, Smets EM, van der Flier WM.

JMIR Form Res. 2019 Jul 8;3(3):e13417. doi: 10.2196/13417.


Uncertainty in health care: Towards a more systematic program of research.

Han PKJ, Babrow A, Hillen MA, Gulbrandsen P, Smets EM, Ofstad EH.

Patient Educ Couns. 2019 Oct;102(10):1756-1766. doi: 10.1016/j.pec.2019.06.012. Epub 2019 Jun 13.


How to inform relatives at risk of hereditary diseases? A mixed-methods systematic review on patient attitudes.

van den Heuvel LM, Smets EMA, van Tintelen JP, Christiaans I.

J Genet Couns. 2019 Oct;28(5):1042-1058. doi: 10.1002/jgc4.1143. Epub 2019 Jun 19. Review.


Genetic counseling of patients with ovarian carcinoma: acceptance, timing, and psychological wellbeing.

Van de Beek I, Smets EMA, Legdeur MA, de Hullu JA, Lok CAR, Buist MR, Mourits MJE, Kets CM, van der Kolk LE, Oosterwijk JC, Aalfs CM.

J Community Genet. 2019 Jun 5. doi: 10.1007/s12687-019-00427-6. [Epub ahead of print]


Effects of communication about uncertainty and oncologist gender on the physician-patient relationship.

Blanch-Hartigan D, van Eeden M, Verdam MGE, Han PKJ, Smets EMA, Hillen MA.

Patient Educ Couns. 2019 Sep;102(9):1613-1620. doi: 10.1016/j.pec.2019.05.002. Epub 2019 May 2.


Development and pilot-testing of a colorectal cancer screening decision aid for individuals with varying health literacy levels.

Woudstra AJ, Smets EMA, Dekker E, Broens THF, Penning J, Smith S, McCaffery K, Fransen MP.

Patient Educ Couns. 2019 Oct;102(10):1847-1858. doi: 10.1016/j.pec.2019.04.029. Epub 2019 Apr 30.


Informing relatives at risk of inherited cardiac conditions: experiences and attitudes of healthcare professionals and counselees.

van den Heuvel LM, Huisinga MJ, Hoedemaekers YM, Baas AF, Plantinga M, Henneman L, van Tintelen JP, Smets EMA, Christiaans I.

Eur J Hum Genet. 2019 Sep;27(9):1341-1350. doi: 10.1038/s41431-019-0410-9. Epub 2019 May 3.


Effective Information Provision About the Side Effects of Treatment for Malignant Lymphoma: Protocol of a Randomized Controlled Trial Using Video Vignettes.

Labrie N, van Dulmen S, Kersten MJ, de Haes HJ, Pieterse AH, van Weert JC, van Spronsen DJ, Smets EM; INSTRUCT Group.

JMIR Res Protoc. 2019 May 2;8(5):e12453. doi: 10.2196/12453.


Promoting shared decision making in advanced cancer: Development and piloting of a patient communication aid.

Henselmans I, Brugel SD, de Haes HCJM, Wolvetang KJA, de Vries LM, Pieterse AH, Baas-Thijssen MCM, de Vos FYF, van Laarhoven HWM, Smets EMA.

Patient Educ Couns. 2019 May;102(5):916-923. doi: 10.1016/j.pec.2018.12.018. Epub 2018 Dec 14.


Communication skills training for healthcare professionals in oncology over the past decade: a systematic review of reviews.

Bos-van den Hoek DW, Visser LNC, Brown RF, Smets EMA, Henselmans I.

Curr Opin Support Palliat Care. 2019 Mar;13(1):33-45. doi: 10.1097/SPC.0000000000000409.


Uncertainty related to multigene panel testing for cancer: a qualitative study on counsellors' and counselees' views.

Medendorp NM, Hillen MA, Murugesu L, Aalfs CM, Stiggelbout AM, Smets EMA.

J Community Genet. 2019 Apr;10(2):303-312. doi: 10.1007/s12687-018-0393-1. Epub 2018 Nov 14.


Assessment of Challenges Encountered by Dutch Oncologists When Patients Ask for Second Opinions.

Hillen MA, Woei-A-Jin FJSH, Smets EMA, van Maarschalkerweerd PEA, van Laarhoven HWM, Sommeijer DW.

JAMA Oncol. 2018 Oct 1;4(10):1425-1426. doi: 10.1001/jamaoncol.2018.3495. No abstract available.


Fear and forget: how anxiety impacts information recall in newly diagnosed cancer patients visiting a fast-track clinic.

Nguyen MH, Smets EMA, Bol N, Bronner MB, Tytgat KMAJ, Loos EF, van Weert JCM.

Acta Oncol. 2019 Feb;58(2):182-188. doi: 10.1080/0284186X.2018.1512156. Epub 2018 Sep 28.


Does silence speak louder than words? The impact of oncologists' emotion-oriented communication on analogue patients' information recall and emotional stress.

Visser LNC, Tollenaar MS, van Doornen LJP, de Haes HCJM, Smets EMA.

Patient Educ Couns. 2019 Jan;102(1):43-52. doi: 10.1016/j.pec.2018.08.032. Epub 2018 Aug 28.


Medical decision making for older patients during multidisciplinary oncology team meetings.

Bolle S, Smets EMA, Hamaker ME, Loos EF, van Weert JCM.

J Geriatr Oncol. 2019 Jan;10(1):74-83. doi: 10.1016/j.jgo.2018.07.016. Epub 2018 Sep 11.


[Second opinion abroad; motives and experiences of patients with incurable cancer].

Hillen MA, Smets EMA, Onderwater A, van Laarhoven HWM, Sommeijer DW.

Ned Tijdschr Geneeskd. 2018 Aug 10;162. pii: D2513. Dutch.


Information exchange between patients with Lynch syndrome and their genetic and non-genetic health professionals: whose responsibility?

Douma KFL, Bleeker FE, Medendorp NM, Croes EAJ, Smets EMA.

J Community Genet. 2019 Apr;10(2):237-247. doi: 10.1007/s12687-018-0381-5. Epub 2018 Sep 12.


Uncertainty in consultations about genetic testing for cancer: an explorative observational study.

Medendorp NM, Hillen MA, Murugesu L, Aalfs CM, Stiggelbout AM, Smets EMA.

Patient Educ Couns. 2018 Dec;101(12):2083-2089. doi: 10.1016/j.pec.2018.08.002. Epub 2018 Aug 2.


Optimising eHealth tools for older patients: Collaborative redesign of a hospital website.

Nguyen MH, Bol N, van Weert JCM, Loos EF, Tytgat KMAJ, Geijsen D, Drenth E, Janse M, Smets EMA.

Eur J Cancer Care (Engl). 2019 Jan;28(1):e12882. doi: 10.1111/ecc.12882. Epub 2018 Jul 17.


Training for Medical Oncologists on Shared Decision-Making About Palliative Chemotherapy: A Randomized Controlled Trial.

Henselmans I, van Laarhoven HWM, de Haes HCJM, Tokat M, Engelhardt EG, van Maarschalkerweerd PEA, Kunneman M, Ottevanger PB, Dohmen SE, Creemers GJ, Sommeijer DW, de Vos FYFL, Smets EMA.

Oncologist. 2019 Feb;24(2):259-265. doi: 10.1634/theoncologist.2018-0090. Epub 2018 Jun 29.


Association of Amyloid Positron Emission Tomography With Changes in Diagnosis and Patient Treatment in an Unselected Memory Clinic Cohort: The ABIDE Project.

de Wilde A, van der Flier WM, Pelkmans W, Bouwman F, Verwer J, Groot C, van Buchem MM, Zwan M, Ossenkoppele R, Yaqub M, Kunneman M, Smets EMA, Barkhof F, Lammertsma AA, Stephens A, van Lier E, Biessels GJ, van Berckel BN, Scheltens P.

JAMA Neurol. 2018 Sep 1;75(9):1062-1070. doi: 10.1001/jamaneurol.2018.1346.


How to support cancer genetics counselees in informing at-risk relatives? Lessons from a randomized controlled trial.

Eijzenga W, de Geus E, Aalfs CM, Menko FH, Sijmons RH, de Haes HCJM, Smets EMA.

Patient Educ Couns. 2018 Sep;101(9):1611-1619. doi: 10.1016/j.pec.2018.05.009. Epub 2018 May 8.


Patients' and oncologists' views on how oncologists may best address patients' emotions during consultations: An interview study.

Visser LNC, Schepers S, Tollenaar MS, de Haes HCJM, Smets EMA.

Patient Educ Couns. 2018 Jul;101(7):1223-1231. doi: 10.1016/j.pec.2018.02.012. Epub 2018 Feb 21.


Patients' preferences for information in bariatric surgery.

Coblijn UK, Lagarde SM, de Raaff CAL, van Wagensveld BA, Smets EMA.

Surg Obes Relat Dis. 2018 May;14(5):665-673. doi: 10.1016/j.soard.2018.01.029. Epub 2018 Jan 31.


Studying medical communication with video vignettes: a randomized study on how variations in video-vignette introduction format and camera focus influence analogue patients' engagement.

Visser LNC, Bol N, Hillen MA, Verdam MGE, de Haes HCJM, van Weert JCM, Smets EMA.

BMC Med Res Methodol. 2018 Jan 19;18(1):15. doi: 10.1186/s12874-018-0472-3.


How Tailoring the Mode of Information Presentation Influences Younger and Older Adults' Satisfaction with Health Websites.

Nguyen MH, Smets EMA, Bol N, Loos EF, Van Weert JCM.

J Health Commun. 2018;23(2):170-180. doi: 10.1080/10810730.2017.1421729. Epub 2018 Jan 18.


A randomized controlled trial of a skills training for oncologists and a communication aid for patients to stimulate shared decision making about palliative systemic treatment (CHOICE): study protocol.

Henselmans I, Smets EMA, de Haes JCJM, Dijkgraaf MGW, de Vos FY, van Laarhoven HWM.

BMC Cancer. 2018 Jan 8;18(1):55. doi: 10.1186/s12885-017-3838-8.


Health literacy skills for informed decision making in colorectal cancer screening: Perceptions of screening invitees and experts.

Woudstra AJ, Timmermans DRM, Uiters E, Dekker E, Smets EMA, Fransen MP.

Health Expect. 2018 Jun;21(3):636-646. doi: 10.1111/hex.12658. Epub 2017 Dec 20.


An E-Learning Module to Improve Nongenetic Health Professionals' Assessment of Colorectal Cancer Genetic Risk: Feasibility Study.

Douma KFL, Aalfs CM, Dekker E, Tanis PJ, Smets EM.

JMIR Med Educ. 2017 Dec 18;3(2):e24. doi: 10.2196/mededu.7173.


Older Patients' Recall of Online Cancer Information: Do Ability and Motivation Matter More than Chronological Age?

Bol N, Smets EMA, Burgers JA, Samii SM, De Haes HCJM, Van Weert JCM.

J Health Commun. 2018;23(1):9-19. doi: 10.1080/10810730.2017.1394400. Epub 2017 Dec 11.


Patients' and caregivers' views on conversations and shared decision making in diagnostic testing for Alzheimer's disease: The ABIDE project.

Kunneman M, Pel-Littel R, Bouwman FH, Gillissen F, Schoonenboom NSM, Claus JJ, van der Flier WM, Smets EMA.

Alzheimers Dement (N Y). 2017 May 10;3(3):314-322. doi: 10.1016/j.trci.2017.04.002. eCollection 2017 Sep.


Clinicians' views on conversations and shared decision making in diagnostic testing for Alzheimer's disease: The ABIDE project.

Kunneman M, Smets EMA, Bouwman FH, Schoonenboom NSM, Zwan MD, Pel-Littel R, van der Flier WM.

Alzheimers Dement (N Y). 2017 May 10;3(3):305-313. doi: 10.1016/j.trci.2017.03.009. eCollection 2017 Sep.


Diagnostic dilemmas in Alzheimer's disease: Room for shared decision making.

van der Flier WM, Kunneman M, Bouwman FH, Petersen RC, Smets EMA.

Alzheimers Dement (N Y). 2017 May 9;3(3):301-304. doi: 10.1016/j.trci.2017.03.008. eCollection 2017 Sep. Review.


Anxiety during cancer diagnosis: Examining the influence of monitoring coping style and treatment plan.

Bronner MB, Nguyen MH, Smets EMA, van de Ven AWH, van Weert JCM.

Psychooncology. 2018 Feb;27(2):661-667. doi: 10.1002/pon.4560. Epub 2017 Oct 26.


A systematic review of decision aids that facilitate elements of shared decision-making in chronic illnesses: a review protocol.

Wieringa TH, Kunneman M, Rodriguez-Gutierrez R, Montori VM, de Wit M, Smets EMA, Schoonmade LJ, Spencer-Bonilla G, Snoek FJ.

Syst Rev. 2017 Aug 7;6(1):155. doi: 10.1186/s13643-017-0557-9.


The value of physicians' affect-oriented communication for patients' recall of information.

Visser LNC, Tollenaar MS, de Haes HCJM, Smets EMA.

Patient Educ Couns. 2017 Nov;100(11):2116-2120. doi: 10.1016/j.pec.2017.06.005. Epub 2017 Jun 19. Review.


Shared decision making about palliative chemotherapy: A qualitative observation of talk about patients' preferences.

Henselmans I, Van Laarhoven HW, Van der Vloodt J, De Haes HC, Smets EM.

Palliat Med. 2017 Jul;31(7):625-633. doi: 10.1177/0269216316676010. Epub 2016 Oct 26.


Patient-Driven Second Opinions in Oncology: A Systematic Review.

Hillen MA, Medendorp NM, Daams JG, Smets EMA.

Oncologist. 2017 Oct;22(10):1197-1211. doi: 10.1634/theoncologist.2016-0429. Epub 2017 Jun 12. Review.

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