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Items: 1 to 50 of 155

1.

Examining Physician Interactions with Disease Advocacy Organizations.

Horrow C, Pacyna JE, Cosenza C, Sharp RR.

AJOB Empir Bioeth. 2019 Aug 26:1-9. doi: 10.1080/23294515.2019.1652213. [Epub ahead of print]

PMID:
31449475
2.

Cohort Profile: The Right Drug, Right Dose, Right Time: Using Genomic Data to Individualize Treatment Protocol (RIGHT Protocol).

Bielinski SJ, St Sauver JL, Olson JE, Larson NB, Black JL, Scherer SE, Bernard ME, Boerwinkle E, Borah BJ, Caraballo PJ, Curry TB, Doddapaneni H, Formea CM, Freimuth RR, Gibbs RA, Giri J, Hathcock MA, Hu J, Jacobson DJ, Jones LA, Kalla S, Koep TH, Korchina V, Kovar CL, Lee S, Liu H, Matey ET, McGree ME, McAllister TM, Moyer AM, Muzny DM, Nicholson WT, Oyen LJ, Qin X, Raj R, Roger VL, Rohrer Vitek CR, Ross JL, Sharp RR, Takahashi PY, Venner E, Walker K, Wang L, Wang Q, Wright JA, Wu TJ, Wang L, Weinshilboum RM.

Int J Epidemiol. 2019 Aug 4. pii: dyz123. doi: 10.1093/ije/dyz123. [Epub ahead of print] No abstract available.

PMID:
31378813
3.

Marketing the Research Missions of Academic Medical Centers: Why Messages Blurring Lines Between Clinical Care and Research Are Bad for both Business and Ethics.

Yarborough M, Houk T, Perrault ST, Schenker Y, Sharp RR.

Camb Q Healthc Ethics. 2019 Jul;28(3):468-475. doi: 10.1017/S0963180119000392.

PMID:
31298193
4.

A Focus Group Study on African American Living Donors' Treatment Preferences, Sociocultural Factors, and Health Beliefs About Apolipoprotein L1 Genetic Testing.

Gordon EJ, Amórtegui D, Blancas I, Wicklund C, Friedewald J, Sharp RR.

Prog Transplant. 2019 Sep;29(3):239-247. doi: 10.1177/1526924819854485. Epub 2019 May 30.

PMID:
31146624
5.

Where Will We Draw the Line? Public Opinions of Human Gene Editing.

Riggan KA, Sharp RR, Allyse M.

Qual Health Res. 2019 May 5:1049732319846867. doi: 10.1177/1049732319846867. [Epub ahead of print]

PMID:
31057062
6.

The Compass: A New Mayo Clinic Proceedings Feature Dedicated to Topics in Bioethics and Health Humanities.

Hall-Flavin DK, Sharp RR.

Mayo Clin Proc. 2019 May;94(5):754-756. doi: 10.1016/j.mayocp.2019.03.016. No abstract available.

PMID:
31054603
7.

A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century.

Brothers KB, Rivera SM, Cadigan RJ, Sharp RR, Goldenberg AJ.

J Law Med Ethics. 2019 Mar;47(1):165-172. doi: 10.1177/1073110519840497. No abstract available.

8.

Managing the Unimaginable: Biobank Participant Views on Reconsent for Whole Genome Sequencing of Stored Biospecimens.

Sutton EJ, Pacyna JE, Hathcock M, McCormick JB, Nowakowski K, Olson JE, Sharp RR.

Biopreserv Biobank. 2019 Aug;17(4):296-302. doi: 10.1089/bio.2018.0077. Epub 2019 Mar 26.

PMID:
30912675
9.

Assessing optimism and pessimism about genomic medicine: Development of a genomic orientation scale.

Horrow C, Pacyna JE, Sutton EJ, Sperry BP, Breitkopf CR, Sharp RR.

Clin Genet. 2019 Jun;95(6):704-712. doi: 10.1111/cge.13535. Epub 2019 Apr 3.

PMID:
30868559
10.

Multiple Marginalizations: What Bioethics Can Learn From Black Feminism.

Cheema AW, Meagher KM, Sharp RR.

Am J Bioeth. 2019 Feb;19(2):1-3. doi: 10.1080/15265161.2019.1575142. No abstract available.

PMID:
30784383
11.

Should pretest genetic counselling be required for patients pursuing genomic sequencing? Results from a survey of participants in a large genomic implementation study.

Pacyna JE, Radecki Breitkopf C, Jenkins SM, Sutton EJ, Horrow C, Kullo IJ, Sharp RR.

J Med Genet. 2019 May;56(5):317-324. doi: 10.1136/jmedgenet-2018-105577. Epub 2018 Dec 22.

PMID:
30580287
12.

A National Survey of Transplant Surgeons and Nephrologists on Implementing Apolipoprotein L1 ( APOL1) Genetic Testing Into Clinical Practice.

Gordon EJ, Wicklund C, Lee J, Sharp RR, Friedewald J.

Prog Transplant. 2018 Dec 13:1526924818817048. doi: 10.1177/1526924818817048. [Epub ahead of print]

PMID:
30541404
13.

Developing a Process for Returning Medically Actionable Genomic Variants to Latino Patients in a Federally Qualified Health Center.

Shaibi GQ, Kullo IJ, Singh DP, Sharp RR, De Filippis E, Cuellar I, Hernandez V, Levey S, Radecki Breitkopf C, Olson JE, Cerhan JR, Mandarino LJ, Thibodeau SN, Lindor NM.

Public Health Genomics. 2018;21(1-2):77-84. doi: 10.1159/000494488. Epub 2018 Dec 6.

PMID:
30522109
14.

African American Living Donors' Attitudes About APOL1 Genetic Testing: A Mixed Methods Study.

Gordon EJ, Amόrtegui D, Blancas I, Wicklund C, Friedewald J, Sharp RR.

Am J Kidney Dis. 2018 Dec;72(6):819-833. doi: 10.1053/j.ajkd.2018.07.017. Epub 2018 Oct 22.

PMID:
30360961
15.

When to Avoid Giving Advice on the Ethical Conduct of Research.

Sharp RR, Allyse MA.

Am J Bioeth. 2018 Apr;18(4):94-95. doi: 10.1080/15265161.2018.1431721. No abstract available.

PMID:
29621454
16.

Making pretest genomic counseling optional: lessons from the RAVE study.

Sutton EJ, Kullo IJ, Sharp RR.

Genet Med. 2018 Oct;20(10):1157-1158. doi: 10.1038/gim.2017.240. Epub 2018 Feb 1. No abstract available.

17.

Direct-to-Consumer Testing 2.0: Emerging Models of Direct-to-Consumer Genetic Testing.

Allyse MA, Robinson DH, Ferber MJ, Sharp RR.

Mayo Clin Proc. 2018 Jan;93(1):113-120. doi: 10.1016/j.mayocp.2017.11.001. Review.

PMID:
29304915
18.

Ethical Considerations Related to Return of Results from Genomic Medicine Projects: The eMERGE Network (Phase III) Experience.

Fossey R, Kochan D, Winkler E, Pacyna JE, Olson J, Thibodeau S, Connolly JJ, Harr M, Behr MA, Prows CA, Cobb B, Myers MF, Leslie ND, Namjou-Khales B, Milo Rasouly H, Wynn J, Fedotov A, Chung WK, Gharavi A, Williams JL, Pais L, Holm I, Aufox S, Smith ME, Scrol A, Leppig K, Jarvik GP, Wiesner GL, Li R, Stroud M, Smoller JW, Sharp RR, Kullo IJ.

J Pers Med. 2018 Jan 3;8(1). pii: E2. doi: 10.3390/jpm8010002.

19.

Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.

Rivera SM, Brothers KB, Cadigan RJ, Harrell HL, Rothstein MA, Sharp RR, Goldenberg AJ.

Am J Bioeth. 2017 Jul;17(7):1-3. doi: 10.1080/15265161.2017.1328899. No abstract available.

20.

Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience.

Gollust SE, Gray SW, Carere DA, Koenig BA, Lehmann LS, McGUIRE AL, Sharp RR, Spector-Bagdady K, Wang NA, Green RC, Roberts JS; PGen Study Group.

Milbank Q. 2017 Jun;95(2):291-318. doi: 10.1111/1468-0009.12262. No abstract available.

21.

Genetic Fingerprints and National Security.

Sperry BP, Allyse M, Sharp RR.

Am J Bioeth. 2017 May;17(5):1-3. doi: 10.1080/15265161.2017.1316627. No abstract available.

PMID:
28430071
22.

Offering Prenatal Screening in the Age of Genomic Medicine: A Practical Guide.

Allyse M, Aypar U, Bonhomme N, Darilek S, Dougherty M, Farrell R, Grody W, Highsmith WE, Michie M, Nunes M, Otto L, Pabst R, Palomaki G, Runke C, Sharp RR, Skotko B, Stoll K, Wick M.

J Womens Health (Larchmt). 2017 Jul;26(7):755-761. doi: 10.1089/jwh.2016.6098. Epub 2017 Apr 7.

PMID:
28388340
23.

Are patients willing to incur out-of-pocket costs for pharmacogenomic testing?

Bielinski SJ, St Sauver JL, Olson JE, Wieland ML, Vitek CR, Bell EJ, Mc Gree ME, Jacobson DJ, McCormick JB, Takahashi PY, Black JL, Caraballo PJ, Sharp RR, Beebe TJ, Weinshilboum RM, Wang L, Roger VL.

Pharmacogenomics J. 2017 Jan;17(1):1-3. doi: 10.1038/tpj.2016.72. Epub 2016 Oct 25. No abstract available.

24.

Owning Medical Professionalism.

Tilburt JC, Sharp RR.

Am J Bioeth. 2016 Sep;16(9):1-2. doi: 10.1080/15265161.2016.1214039. No abstract available.

PMID:
27471926
25.

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium.

Am J Hum Genet. 2016 Jul 7;99(1):246. doi: 10.1016/j.ajhg.2016.06.002. No abstract available.

26.

Can Parents Refuse a Potentially Lifesaving Transplant for Severe Combined Immunodeficiency?

Nickels AS, Myers GD, Johnson LM, Joshi A, Sharp RR, Lantos JD.

Pediatrics. 2016 Jul;138(1). pii: e20160892. doi: 10.1542/peds.2016-0892. Epub 2016 Jun 15.

27.

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium.

Am J Hum Genet. 2016 Jun 2;98(6):1051-1066. doi: 10.1016/j.ajhg.2016.04.011. Epub 2016 May 12. Erratum in: Am J Hum Genet. 2016 Jul 7;99(1):246.

28.

Patients' views on incidental findings from clinical exome sequencing.

Clift KE, Halverson CM, Fiksdal AS, Kumbamu A, Sharp RR, McCormick JB.

Appl Transl Genom. 2015 Feb 21;4:38-43. doi: 10.1016/j.atg.2015.02.005. eCollection 2015 Mar.

29.

Ingestible Drug Adherence Monitors: Trending Toward a Surveillance Society?

Sharp RR.

Am J Bioeth. 2015;15(11):1-2. doi: 10.1080/15265161.2015.1104176. No abstract available.

PMID:
26575801
30.

Ethical Aspects of Organ Donation After Circulatory Death.

St Louis EK, Sharp RR.

Continuum (Minneap Minn). 2015 Oct;21(5 Neurocritical Care):1445-50. doi: 10.1212/CON.0000000000000224.

PMID:
26426240
31.

Prudentia Populo: Involving the Community in Biobank Governance.

Allyse MA, McCormick JB, Sharp RR.

Am J Bioeth. 2015;15(9):1-3. doi: 10.1080/15265161.2015.1062175. No abstract available.

PMID:
26305740
32.

Ruffling a few feathers.

Sharp RR.

Am J Bioeth. 2015;15(6):1. doi: 10.1080/15265161.2015.1049919. No abstract available.

PMID:
26030483
33.

Building a Central Repository for Research Ethics Consultation Data: A Proposal for a Standard Data Collection Tool.

Cho MK, Taylor H, McCormick JB, Anderson N, Barnard D, Boyle MB, Capron AM, Dorfman E, Havard K, Reider C, Sadler J, Schwartz P, Sharp RR, Danis M, Wilfond BS.

Clin Transl Sci. 2015 Aug;8(4):376-87. doi: 10.1111/cts.12268. Epub 2015 Mar 10.

34.

Research ethics consultation: ethical and professional practice challenges and recommendations.

Sharp RR, Taylor HA, Brinich MA, Boyle MM, Cho M, Coors M, Danis M, Havard M, Magnus D, Wilfond B.

Acad Med. 2015 May;90(5):615-20. doi: 10.1097/ACM.0000000000000640. Review.

35.

Communicating with biobank participants: preferences for receiving and providing updates to researchers.

Mester JL, Mercer M, Goldenberg A, Moore RA, Eng C, Sharp RR.

Cancer Epidemiol Biomarkers Prev. 2015 Apr;24(4):708-12. doi: 10.1158/1055-9965.EPI-13-1375. Epub 2015 Jan 18.

36.

The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.

Henderson GE, Wolf SM, Kuczynski KJ, Joffe S, Sharp RR, Parsons DW, Knoppers BM, Yu JH, Appelbaum PS.

J Law Med Ethics. 2014 Fall;42(3):344-55. doi: 10.1111/jlme.12151.

37.

Why brain death is considered death and why there should be no confusion.

Burkle CM, Sharp RR, Wijdicks EF.

Neurology. 2014 Oct 14;83(16):1464-9. doi: 10.1212/WNL.0000000000000883. Epub 2014 Sep 12.

38.

Genetics patients' perspectives on clinical genomic testing.

McGowan ML, Glinka A, Highland J, Asaad G, Sharp RR.

Per Med. 2013 Jun 1;10(4):339-347.

39.

Genomic medicine and incidental findings: balancing actionability and patient autonomy.

McCormick JB, Sharp RR, Farrugia G, Lindor NM, Babovic-Vuksanovic D, Borad MJ, Bryce AH, Caselli RJ, Ferber MJ, Johnson KJ, Lazaridis KN, McWilliams RR, Murray JA, Parker AS, Schahl KA, Wieben ED.

Mayo Clin Proc. 2014 Jun;89(6):718-21. doi: 10.1016/j.mayocp.2014.04.008. No abstract available.

PMID:
24943691
40.
41.

Return of genomic results to research participants: the floor, the ceiling, and the choices in between.

Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA; eMERGE Act-ROR Committee and CERC Committee; CSER Act-ROR Working Group, Burke W.

Am J Hum Genet. 2014 Jun 5;94(6):818-26. doi: 10.1016/j.ajhg.2014.04.009. Epub 2014 May 8.

42.

Return of results in the genomic medicine projects of the eMERGE network.

Kullo IJ, Haddad R, Prows CA, Holm I, Sanderson SC, Garrison NA, Sharp RR, Smith ME, Kuivaniemi H, Bottinger EP, Connolly JJ, Keating BJ, McCarty CA, Williams MS, Jarvik GP.

Front Genet. 2014 Mar 26;5:50. doi: 10.3389/fgene.2014.00050. eCollection 2014.

43.

Justice in the context of family balancing.

McGowan ML, Sharp RR.

Sci Technol Human Values. 2013 Mar 1;38(2). doi: 10.1177/0162243912469412.

44.

Practical guidance for charting ethics consultations.

Bruce CR, Smith ML, Tawose OM, Sharp RR.

HEC Forum. 2014 Mar;26(1):79-93. doi: 10.1007/s10730-013-9228-y.

PMID:
24126950
45.

Appropriateness of newborn screening for α1-antitrypsin deficiency.

Teckman J, Pardee E, Howell RR, Mannino D, Sharp RR, Brantly M, Wanner A, Lamson J; Alpha-1 Foundation Workshop Attendees.

J Pediatr Gastroenterol Nutr. 2014 Feb;58(2):199-203. doi: 10.1097/MPG.0000000000000196.

46.

Next-generation disadvantages: identifying potential barriers to integrating genomics into underserved medical settings.

Goldenberg AJ, Marshall PA, Sharp RR.

Per Med. 2013 Sep;10(7):623-625. doi: 10.2217/pme.13.75. No abstract available.

47.

The role of patient advocacy organizations in shaping genomic science.

Koay PP, Sharp RR.

Annu Rev Genomics Hum Genet. 2013;14:579-95. doi: 10.1146/annurev-genom-091212-153525. Epub 2013 Jul 12. Review.

PMID:
23875802
48.

The changing landscape of carrier screening: expanding technology and options?.

McGowan ML, Cho D, Sharp RR.

Health Matrix Clevel. 2013 Spring;23(1):15-33. No abstract available.

49.

The OHRP and SUPPORT.

Wilfond BS, Magnus D, Antommaria AH, Appelbaum P, Aschner J, Barrington KJ, Beauchamp T, Boss RD, Burke W, Caplan AL, Capron AM, Cho M, Clayton EW, Cole FS, Darlow BA, Diekema D, Faden RR, Feudtner C, Fins JJ, Fost NC, Frader J, Hester DM, Janvier A, Joffe S, Kahn J, Kass NE, Kodish E, Lantos JD, McCullough L, McKinney R Jr, Meadow W, O'Rourke PP, Powderly KE, Pursley DM, Ross LF, Sayeed S, Sharp RR, Sugarman J, Tarnow-Mordi WO, Taylor H, Tomlinson T, Truog RD, Unguru YT, Weise KL, Woodrum D, Youngner S.

N Engl J Med. 2013 Jun 20;368(25):e36. doi: 10.1056/NEJMc1307008. Epub 2013 Jun 5. No abstract available.

PMID:
23738513
50.

Expanded carrier screening in reproductive healthcare: perspectives from genetics professionals.

Cho D, McGowan ML, Metcalfe J, Sharp RR.

Hum Reprod. 2013 Jun;28(6):1725-30. doi: 10.1093/humrep/det091. Epub 2013 Apr 14.

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