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Items: 1 to 50 of 92


Development of a decision support tool in pediatric Differences/Disorders of Sex Development.

Sandberg DE, Gardner M, Kopec K, Urbanski M, Callens N, Keegan CE, Yashar BM, Fechner PY, Shnorhavorian M, Vilain E, Timmermans S, Siminoff LA.

Semin Pediatr Surg. 2019 Oct;28(5):150838. doi: 10.1016/j.sempedsurg.2019.150838. Epub 2019 Sep 13.


"He told me it would be extremely selfish of me to even consider [having kids]": The importance of reproductive health to women with spina bifida and the lack of support from their providers.

Streur CS, Schafer CL, Garcia VP, Quint EH, Sandberg DE, Kalpakjian CZ, Wittmann DA.

Disabil Health J. 2019 Jun 15:100815. doi: 10.1016/j.dhjo.2019.06.004. [Epub ahead of print]


Gender destinies: assigning gender in Disorders of Sex Development-Intersex clinics.

Timmermans S, Yang A, Gardner M, Keegan CE, Yashar BM, Fechner PY, Shnorhavorian M, Vilain E, Siminoff LA, Sandberg DE.

Sociol Health Illn. 2019 Nov;41(8):1520-1534. doi: 10.1111/1467-9566.12974. Epub 2019 Jun 21.


Disorders of sex development (DSD) web-based information: quality survey of DSD team websites.

Ernst MM, Chen D, Kennedy K, Jewell T, Sajwani A, Foley C, Sandberg DE; DSD-TRN Psychosocial Workgroup and Accord Alliance.

Int J Pediatr Endocrinol. 2019;2019:1. doi: 10.1186/s13633-019-0065-x. Epub 2019 May 28.


"If Everyone Else Is Having This Talk With Their Doctor, Why Am I Not Having This Talk With Mine?": The Experiences of Sexuality and Sexual Health Education of Young Women With Spina Bifida.

Streur CS, Schafer CL, Garcia VP, Quint EH, Sandberg DE, Wittmann DA.

J Sex Med. 2019 Jun;16(6):853-859. doi: 10.1016/j.jsxm.2019.03.012. Epub 2019 Apr 19.


Psychosocial Screening in Disorders/Differences of Sex Development: Psychometric Evaluation of the Psychosocial Assessment Tool.

Ernst MM, Gardner M, Mara CA, Délot EC, Fechner PY, Fox M, Rutter MM, Speiser PW, Vilain E, Weidler EM, Sandberg DE; The DSD-Translational Research Network Leadership Group and Psychosocial Workgroup.

Horm Res Paediatr. 2018;90(6):368-380. doi: 10.1159/000496114. Epub 2019 Feb 15.


Research priorities of people living with Turner syndrome.

Sandberg DE, Singer D, Bugajski B, Gebremariam A, Scerbak T, Dooley Maley KL, Scurlock C, Culin D, Eder S, Silberbach M.

Am J Med Genet C Semin Med Genet. 2019 Mar;181(1):43-51. doi: 10.1002/ajmg.c.31676. Epub 2019 Feb 15.


Navigating Surgical Decision Making in Disorders of Sex Development (DSD).

Gardner M, Sandberg DE.

Front Pediatr. 2018 Nov 19;6:339. doi: 10.3389/fped.2018.00339. eCollection 2018.


Psychosocial Aspects of Short Stature and rhGH Treatment: Implicit Trends over 60+ Years.

Gardner M, Scerbak T, Sandberg DE.

Pediatr Endocrinol Rev. 2018 Sep;16(Suppl 1):129-141. doi: 10.17458/per.vol16.2018.gss.psychosocialaspectsshort.


Does Patient-centered Care Change Genital Surgery Decisions? The Strategic Use of Clinical Uncertainty in Disorders of Sex Development Clinics.

Timmermans S, Yang A, Gardner M, Keegan CE, Yashar BM, Fechner PY, Shnorhavorian M, Vilain E, Siminoff LA, Sandberg DE.

J Health Soc Behav. 2018 Dec;59(4):520-535. doi: 10.1177/0022146518802460. Epub 2018 Oct 10.


Growth Hormone Therapy for a Child With Severe Cognitive Impairment.

Horne VE, Sandberg DE, Gardner M, Lantos JD, Allen DB.

Pediatrics. 2018 Oct;142(4). pii: e20173938. doi: 10.1542/peds.2017-3938.


Mental health and sexual function in CAIS: context beyond sex hormones.

Sandberg DE.

Lancet Diabetes Endocrinol. 2018 Oct;6(10):754-755. doi: 10.1016/S2213-8587(18)30206-7. Epub 2018 Jul 31. No abstract available.


Disorders of Sex Development/Intersex: Gaps in Psychosocial Care for Children.

Ernst MM, Liao LM, Baratz AB, Sandberg DE.

Pediatrics. 2018 Aug;142(2). pii: e20174045. doi: 10.1542/peds.2017-4045. Review. No abstract available.


Mental Health of Transgender and Gender Nonconforming Youth Compared With Their Peers.

Becerra-Culqui TA, Liu Y, Nash R, Cromwell L, Flanders WD, Getahun D, Giammattei SV, Hunkeler EM, Lash TL, Millman A, Quinn VP, Robinson B, Roblin D, Sandberg DE, Silverberg MJ, Tangpricha V, Goodman M.

Pediatrics. 2018 May;141(5). pii: e20173845. doi: 10.1542/peds.2017-3845. Epub 2018 Apr 16.


Frequency and distribution of primary site among gender minority cancer patients: An analysis of U.S. national surveillance data.

Nash R, Ward KC, Jemal A, Sandberg DE, Tangpricha V, Goodman M.

Cancer Epidemiol. 2018 Jun;54:1-6. doi: 10.1016/j.canep.2018.02.008. Epub 2018 Mar 9.


Clinical practice guidelines for the care of girls and women with Turner syndrome: proceedings from the 2016 Cincinnati International Turner Syndrome Meeting.

Gravholt CH, Andersen NH, Conway GS, Dekkers OM, Geffner ME, Klein KO, Lin AE, Mauras N, Quigley CA, Rubin K, Sandberg DE, Sas TCJ, Silberbach M, Söderström-Anttila V, Stochholm K, van Alfen-van derVelden JA, Woelfle J, Backeljauw PF; International Turner Syndrome Consensus Group.

Eur J Endocrinol. 2017 Sep;177(3):G1-G70. doi: 10.1530/EJE-17-0430. Review.


Interdisciplinary care in disorders/differences of sex development (DSD): The psychosocial component of the DSD-Translational research network.

Sandberg DE, Gardner M, Callens N, Mazur T; DSD-TRN Psychosocial Workgroup, the DSD-TRN Advocacy Advisory Network, and Accord Alliance.

Am J Med Genet C Semin Med Genet. 2017 Jun;175(2):279-292. doi: 10.1002/ajmg.c.31561. Epub 2017 Jun 2.


Disorders of sex development (DSD): Clinical service delivery in the United States.

Rolston AM, Gardner M, van Leeuwen K, Mohnach L, Keegan C, Délot E, Vilain E, Sandberg DE; members of the DSD-TRN Advocacy; Advisory Network Accord Alliance.

Am J Med Genet C Semin Med Genet. 2017 Jun;175(2):268-278. doi: 10.1002/ajmg.c.31558. Epub 2017 May 30.


Unexpected ethical dilemmas in sex assignment in 46,XY DSD due to 5-alpha reductase type 2 deficiency.

Byers HM, Mohnach LH, Fechner PY, Chen M, Thomas IH, Ramsdell LA, Shnorhavorian M, McCauley EA, Amies Oelschlager AE, Park JM, Sandberg DE, Adam MP, Keegan CE.

Am J Med Genet C Semin Med Genet. 2017 Jun;175(2):260-267. doi: 10.1002/ajmg.c.31560. Epub 2017 May 25.


Introduction to the Special Section: Disorders of Sex Development.

Sandberg DE, Pasterski V, Callens N.

J Pediatr Psychol. 2017 Jun 1;42(5):487-495. doi: 10.1093/jpepsy/jsx065. No abstract available.


Genetics of Disorders of Sex Development: The DSD-TRN Experience.

Délot EC, Papp JC; DSD-TRN Genetics Workgroup, Sandberg DE, Vilain E.

Endocrinol Metab Clin North Am. 2017 Jun;46(2):519-537. doi: 10.1016/j.ecl.2017.01.015. Epub 2017 Mar 28. Review.


Development of Health-Related Quality of Life Instruments for Young Children With Disorders of Sex Development (DSD) and Their Parents.

Alpern AN, Gardner M, Kogan B, Sandberg DE, Quittner AL.

J Pediatr Psychol. 2017 Jun 1;42(5):544-558. doi: 10.1093/jpepsy/jsw022.


Disorders of Sex Development: Why Adolescent Medicine Specialists Should Care.

Sandberg DE.

Adolesc Med State Art Rev. 2015 Aug;26(2):428-47. Review. No abstract available.


Global Disorders of Sex Development Update since 2006: Perceptions, Approach and Care.

Lee PA, Nordenström A, Houk CP, Ahmed SF, Auchus R, Baratz A, Baratz Dalke K, Liao LM, Lin-Su K, Looijenga LH 3rd, Mazur T, Meyer-Bahlburg HF, Mouriquand P, Quigley CA, Sandberg DE, Vilain E, Witchel S; Global DSD Update Consortium.

Horm Res Paediatr. 2016;85(3):158-80. doi: 10.1159/000442975. Epub 2016 Jan 28. Review. Erratum in: Horm Res Paediatr. 2016;85(3):180. Koopman, Peter [added]. Horm Res Paediatr. 2016;86(1):70.


Coming Up Short: Risks of Bias in Assessing Psychological Outcomes in Growth Hormone Therapy for Short Stature.

Gardner M, Boshart ML, Yeguez CE, Desai KM, Sandberg DE.

J Clin Endocrinol Metab. 2016 Jan;101(1):23-30. doi: 10.1210/jc.2015-3256. Epub 2015 Nov 19. Review.


The Lived Experience of MRKH: Sharing Health Information with Peers.

Ernst ME, Sandberg DE, Keegan C, Quint EH, Lossie AC, Yashar BM.

J Pediatr Adolesc Gynecol. 2016 Apr;29(2):154-8. doi: 10.1016/j.jpag.2015.09.009. Epub 2015 Oct 8.


Isodicentric Y mosaicism involving a 46, XX cell line: Implications for management.

Hipp LE, Mohnach LH, Wei S, Thomas IH, Elhassan ME, Sandberg DE, Quint EH, Keegan CE.

Am J Med Genet A. 2016 Jan;170A(1):233-8. doi: 10.1002/ajmg.a.37403. Epub 2015 Sep 26.


Short Stature: Is It a Psychosocial Problem and Does Changing Height Matter?

Sandberg DE, Gardner M.

Pediatr Clin North Am. 2015 Aug;62(4):963-82. doi: 10.1016/j.pcl.2015.04.009. Epub 2015 May 16. Review.


Disorders of Sex Development (DSD): Networking and Standardization Considerations.

Sandberg DE, Callens N, Wisniewski AB.

Horm Metab Res. 2015 May;47(5):387-93. doi: 10.1055/s-0035-1548936. Epub 2015 May 13. Review.


Proceedings from the Turner Resource Network symposium: the crossroads of health care research and health care delivery.

Backeljauw PF, Bondy C, Chernausek SD, Cernich JT, Cole DA, Fasciano LP, Foodim J, Hawley S, Hong DS, Knickmeyer RC, Kruszka P, Lin AE, Lippe BM, Lorigan GA, Maslen CL, Mauras N, Page DC, Pemberton VL, Prakash SK, Quigley CA, Ranallo KC, Reiss AL, Sandberg DE, Scurlock C, Silberbach M.

Am J Med Genet A. 2015 Sep;167A(9):1962-71. doi: 10.1002/ajmg.a.37121. Epub 2015 Apr 29.


Parental Reports of Stigma Associated with Child's Disorder of Sex Development.

Rolston AM, Gardner M, Vilain E, Sandberg DE.

Int J Endocrinol. 2015;2015:980121. doi: 10.1155/2015/980121. Epub 2015 Mar 31.


Promoting Shared Decision Making in Disorders of Sex Development (DSD): Decision Aids and Support Tools.

Siminoff LA, Sandberg DE.

Horm Metab Res. 2015 May;47(5):335-9. doi: 10.1055/s-0035-1545302. Epub 2015 Apr 8. Review.


Parenting Children with Disorders of Sex Development (DSD): A Developmental Perspective Beyond Gender.

Wisniewski AB, Sandberg DE.

Horm Metab Res. 2015 May;47(5):375-9. doi: 10.1055/s-0034-1398561. Epub 2015 Feb 5. Review.


Unbiased identification of patients with disorders of sex development.

Hanauer DA, Gardner M, Sandberg DE.

PLoS One. 2014 Sep 30;9(9):e108702. doi: 10.1371/journal.pone.0108702. eCollection 2014.


Disorders of sex development peer support.

Baratz AB, Sharp MK, Sandberg DE.

Endocr Dev. 2014;27:99-112. doi: 10.1159/000363634. Epub 2014 Sep 9. Review.


DSDs: genetics, underlying pathologies and psychosexual differentiation.

Arboleda VA, Sandberg DE, Vilain E.

Nat Rev Endocrinol. 2014 Oct;10(10):603-15. doi: 10.1038/nrendo.2014.130. Epub 2014 Aug 5. Review.


"It was an overwhelming thing": parents' needs after infant diagnosis with congenital adrenal hyperplasia.

Boyse KL, Gardner M, Marvicsin DJ, Sandberg DE.

J Pediatr Nurs. 2014 Sep-Oct;29(5):436-41. doi: 10.1016/j.pedn.2014.01.007. Epub 2014 Jan 15.


Warning about warnings: weighing risk and benefit when information is in a state of flux.

Laventhal NT, Shuchman M, Sandberg DE.

Horm Res Paediatr. 2013;79(1):4-8. doi: 10.1159/000346381. Epub 2013 Jan 23. Review.


Psychological aspects of the treatment of patients with disorders of sex development.

Sandberg DE, Gardner M, Cohen-Kettenis PT.

Semin Reprod Med. 2012 Oct;30(5):443-52. doi: 10.1055/s-0032-1324729. Epub 2012 Oct 8. Review.


Management of disorders of sex development: editorial commentary.

Sandberg DE.

Pediatr Clin North Am. 2012 Aug;59(4):871-80. doi: 10.1016/j.pcl.2012.05.010. Epub 2012 Jun 22.


Challenges of disorders of sex development: diverse perceptions across stakeholders.

Kogan BA, Gardner M, Alpern AN, Cohen LM, Grimley MB, Quittner AL, Sandberg DE.

Horm Res Paediatr. 2012;78(1):40-6. doi: 10.1159/000339863. Epub 2012 Jul 20.


Targeted massively parallel sequencing provides comprehensive genetic diagnosis for patients with disorders of sex development.

Arboleda VA, Lee H, Sánchez FJ, Délot EC, Sandberg DE, Grody WW, Nelson SF, Vilain E.

Clin Genet. 2013 Jan;83(1):35-43. doi: 10.1111/j.1399-0004.2012.01879.x. Epub 2012 May 1.


Growth hormone treatment for short stature: a review of psychosocial assumptions and empirical evidence.

Gardner M, Sandberg DE.

Pediatr Endocrinol Rev. 2011 Dec;9(2):579-88; quiz 589. Review.


Children with disorders of sex development: A qualitative study of early parental experience.

Crissman HP, Warner L, Gardner M, Carr M, Schast A, Quittner AL, Kogan B, Sandberg DE.

Int J Pediatr Endocrinol. 2011 Oct 12;2011(1):10. doi: 10.1186/1687-9856-2011-10.


Psychosocial aspects of short stature and its management: good deeds require good science.

Sandberg DE.

Horm Res Paediatr. 2011;76 Suppl 3:37-9. doi: 10.1159/000330155. Epub 2011 Sep 7. Review.


Short stature: psychosocial interventions.

Sandberg DE.

Horm Res Paediatr. 2011;76 Suppl 3:29-32. doi: 10.1159/000330151. Epub 2011 Sep 7.


University of Michigan disorders of sex development (DSD) research and quality improvement symposium.

Sandberg DE, Asciutto AJ, Haddad E.

Adv Exp Med Biol. 2011;707:151-62. doi: 10.1007/978-1-4419-8002-1_34. No abstract available.


Assessing health-related quality of life in disorders of sex development: phase I - item generation.

Sandberg DE, Gardner MD, Kogan BA, Grimley MB, Cohen L, Alpern AN, Quittner AL.

Adv Exp Med Biol. 2011;707:143-6. doi: 10.1007/978-1-4419-8002-1_31. No abstract available.


Patient-centered care: caring for families affected by disorders of sex development.

Asciutto AJ, Haddad E, Green J, Sandberg DE.

Adv Exp Med Biol. 2011;707:135-42. doi: 10.1007/978-1-4419-8002-1_30. No abstract available.


Guidelines for the Development of Comprehensive Care Centers for Congenital Adrenal Hyperplasia: Guidance from the CARES Foundation Initiative.

Auchus RJ, Witchel SF, Leight KR, Aisenberg J, Azziz R, Bachega TA, Baker LA, Baratz AB, Baskin LS, Berenbaum SA, Breault DT, Cerame BI, Conway GS, Eugster EA, Fracassa S, Gearhart JP, Geffner ME, Harris KB, Hurwitz RS, Katz AL, Kalro BN, Lee PA, Alger Lin G, Loechner KJ, Marshall I, Merke DP, Migeon CJ, Miller WL, Nenadovich TL, Oberfield SE, Pass KA, Poppas DP, Lloyd-Puryear MA, Quigley CA, Riepe FG, Rink RC, Rivkees SA, Sandberg DE, Schaeffer TL, Schlussel RN, Schneck FX, Seely EW, Snyder D, Speiser PW, Therrell BL, Vanryzin C, Vogiatzi MG, Wajnrajch MP, White PC, Zuckerman AE.

Int J Pediatr Endocrinol. 2010;2010:275213. doi: 10.1155/2010/275213. Epub 2011 Jan 10.

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