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Items: 19

1.

Patients and families experience with pharmacist care at cystic fibrosis foundation accredited clinics.

Young DC, Autry E, Zobell JT, Kormelink L, Homa K, Sabadosa KA, Kanga J, Anstead M, Kuhn R.

Pediatr Pulmonol. 2019 Aug;54(8):1216-1224. doi: 10.1002/ppul.24348. Epub 2019 May 7.

PMID:
31066229
2.

Trans-Atlantic collaboration: applying lessons learned from the US CF Foundation quality improvement initiative.

Sabadosa KA, Godfrey MM, Marshall BC.

Orphanet J Rare Dis. 2018 Feb 8;13(Suppl 1):13. doi: 10.1186/s13023-017-0744-8.

3.

End-of-life practice patterns at U.S. adult cystic fibrosis care centers: A national retrospective chart review.

Chen E, Homa K, Goggin J, Sabadosa KA, Hempstead S, Marshall BC, Faro A, Dellon EP.

J Cyst Fibros. 2017 Sep 13. pii: S1569-1993(17)30873-1. doi: 10.1016/j.jcf.2017.08.010. [Epub ahead of print]

PMID:
28917611
4.

US Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus recommendations for the management of non-tuberculous mycobacteria in individuals with cystic fibrosis: executive summary.

Floto RA, Olivier KN, Saiman L, Daley CL, Herrmann JL, Nick JA, Noone PG, Bilton D, Corris P, Gibson RL, Hempstead SE, Koetz K, Sabadosa KA, Sermet-Gaudelus I, Smyth AR, van Ingen J, Wallace RJ, Winthrop KL, Marshall BC, Haworth CS.

Thorax. 2016 Jan;71(1):88-90. doi: 10.1136/thoraxjnl-2015-207983.

5.

US Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus recommendations for the management of non-tuberculous mycobacteria in individuals with cystic fibrosis.

Floto RA, Olivier KN, Saiman L, Daley CL, Herrmann JL, Nick JA, Noone PG, Bilton D, Corris P, Gibson RL, Hempstead SE, Koetz K, Sabadosa KA, Sermet-Gaudelus I, Smyth AR, van Ingen J, Wallace RJ, Winthrop KL, Marshall BC, Haworth CS; US Cystic Fibrosis Foundation and European Cystic Fibrosis Society.

Thorax. 2016 Jan;71 Suppl 1:i1-22. doi: 10.1136/thoraxjnl-2015-207360.

6.

International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depression and anxiety.

Quittner AL, Abbott J, Georgiopoulos AM, Goldbeck L, Smith B, Hempstead SE, Marshall B, Sabadosa KA, Elborn S; International Committee on Mental Health; EPOS Trial Study Group.

Thorax. 2016 Jan;71(1):26-34. doi: 10.1136/thoraxjnl-2015-207488. Epub 2015 Oct 9.

7.

Advance care planning in cystic fibrosis: Current practices, challenges, and opportunities.

Dellon EP, Chen E, Goggin J, Homa K, Marshall BC, Sabadosa KA, Cohen RI.

J Cyst Fibros. 2016 Jan;15(1):96-101. doi: 10.1016/j.jcf.2015.08.004. Epub 2015 Sep 8.

8.

Experience of care from the perspective of individuals with cystic fibrosis and families: Results from 70 CF Foundation accredited programs in the USA.

Homa K, Sabadosa KA, Marrow LC, Marshall BC.

J Cyst Fibros. 2015 Jul;14(4):515-22. doi: 10.1016/j.jcf.2014.12.011. Epub 2015 Jan 30.

9.

Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery.

Abbott J, Elborn JS, Georgiopoulos AM, Goldbeck L, Marshall BC, Sabadosa KA, Smith BA, Quittner AL.

J Cyst Fibros. 2015 Jul;14(4):533-9. doi: 10.1016/j.jcf.2014.12.015. Epub 2015 Jan 12.

10.

Longevity of patients with cystic fibrosis in 2000 to 2010 and beyond: survival analysis of the Cystic Fibrosis Foundation patient registry.

MacKenzie T, Gifford AH, Sabadosa KA, Quinton HB, Knapp EA, Goss CH, Marshall BC.

Ann Intern Med. 2014 Aug 19;161(4):233-41. doi: 10.7326/M13-0636.

11.

Infection prevention and control guideline for cystic fibrosis: 2013 update.

Saiman L, Siegel JD, LiPuma JJ, Brown RF, Bryson EA, Chambers MJ, Downer VS, Fliege J, Hazle LA, Jain M, Marshall BC, O'Malley C, Pattee SR, Potter-Bynoe G, Reid S, Robinson KA, Sabadosa KA, Schmidt HJ, Tullis E, Webber J, Weber DJ; Cystic Fibrous Foundation; Society for Healthcare Epidemiology of America.

Infect Control Hosp Epidemiol. 2014 Aug;35 Suppl 1:S1-S67. doi: 10.1086/676882. Epub 2014 Jul 1. No abstract available.

PMID:
25025126
12.

The interdependent roles of patients, families and professionals in cystic fibrosis: a system for the coproduction of healthcare and its improvement.

Sabadosa KA, Batalden PB.

BMJ Qual Saf. 2014 Apr;23 Suppl 1:i90-4. doi: 10.1136/bmjqs-2013-002782. Review.

PMID:
24608555
13.

Key findings of the US Cystic Fibrosis Foundation's clinical practice benchmarking project.

Boyle MP, Sabadosa KA, Quinton HB, Marshall BC, Schechter MS.

BMJ Qual Saf. 2014 Apr;23 Suppl 1:i15-i22. doi: 10.1136/bmjqs-2013-002369. Review.

PMID:
24608546
14.

Development and validation of a cystic fibrosis patient and family member experience of care survey.

Homa K, Sabadosa KA, Nelson EC, Rogers WH, Marshall BC.

Qual Manag Health Care. 2013 Apr-Jun;22(2):100-16. doi: 10.1097/QMH.0b013e31828bc3bc.

PMID:
23542365
15.

Clinical care guidelines for cystic fibrosis-related diabetes: a position statement of the American Diabetes Association and a clinical practice guideline of the Cystic Fibrosis Foundation, endorsed by the Pediatric Endocrine Society.

Moran A, Brunzell C, Cohen RC, Katz M, Marshall BC, Onady G, Robinson KA, Sabadosa KA, Stecenko A, Slovis B; CFRD Guidelines Committee.

Diabetes Care. 2010 Dec;33(12):2697-708. doi: 10.2337/dc10-1768. No abstract available.

16.

Cystic Fibrosis Foundation evidence-based guidelines for management of infants with cystic fibrosis.

Cystic Fibrosis Foundation, Borowitz D, Robinson KA, Rosenfeld M, Davis SD, Sabadosa KA, Spear SL, Michel SH, Parad RB, White TB, Farrell PM, Marshall BC, Accurso FJ.

J Pediatr. 2009 Dec;155(6 Suppl):S73-93. doi: 10.1016/j.jpeds.2009.09.001.

17.

Cystic Fibrosis Foundation practice guidelines for the management of infants with cystic fibrosis transmembrane conductance regulator-related metabolic syndrome during the first two years of life and beyond.

Cystic Fibrosis Foundation, Borowitz D, Parad RB, Sharp JK, Sabadosa KA, Robinson KA, Rock MJ, Farrell PM, Sontag MK, Rosenfeld M, Davis SD, Marshall BC, Accurso FJ.

J Pediatr. 2009 Dec;155(6 Suppl):S106-16. doi: 10.1016/j.jpeds.2009.09.003.

18.

The preoperative intraaortic balloon pump in coronary bypass surgery: a lack of evidence of effectiveness.

Baskett RJ, O'Connor GT, Hirsch GM, Ghali WA, Sabadosa KA, Morton JR, Ross CS, Hernandez F, Nugent WC, Lahey SJ, Sisto D, Dacey LJ, Klemperer JD, Helm RE, Maitland A.

Am Heart J. 2005 Dec;150(6):1122-7.

PMID:
16338247
19.

A method for identifying mechanisms of neurologic injury from cardiac surgery.

Likosky DS, Groom RC, Clark C, Forest RJ, Kramer RS, Morton JR, Ross CS, Sabadosa KA, O'Connor GT; Northern New England Cardiovascular Disease Study Group, Lebanon, New Hampshire.

Heart Surg Forum. 2004;7(6):348-52.

PMID:
15769702

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