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Items: 1 to 50 of 59

1.

In Reply to Kringos et al.

Fiske A, Buyx A, Prainsack B.

Acad Med. 2019 Jun;94(6):748-749. doi: 10.1097/ACM.0000000000002704. No abstract available.

PMID:
31136340
2.

Response to Dr Ulucanlar.

Greenhalgh T, Ozbilgin M, Prainsack B, Shaw S.

J Eval Clin Pract. 2019 May 21. doi: 10.1111/jep.13189. [Epub ahead of print] No abstract available.

PMID:
31111988
3.

Markers as mediators: A review and synthesis of epigenetics literature.

Pinel C, Prainsack B, McKevitt C.

Biosocieties. 2019 May 10;13(1):276-303. doi: 10.1057/s41292-017-0068-x. Epub 2017 Sep 18.

4.

Consent insufficient for data release.

Nicol D, Eckstein L, Bentzen HB, Borry P, Burgess M, Burke W, Chalmers D, Cho M, Dove E, Fullerton S, Ida R, Kato K, Kaye J, Koenig B, Manson S, McGrail K, Meslin E, O'Doherty K, Prainsack B, Shabani M, Tabor H, Thorogood A, de Vries J.

Science. 2019 May 3;364(6439):445-446. doi: 10.1126/science.aax0892. No abstract available.

PMID:
31048483
5.

Moral entrepreneurship, the power-knowledge nexus, and the Cochrane "crisis".

Greenhalgh T, Ozbilgin MF, Prainsack B, Shaw S.

J Eval Clin Pract. 2019 Mar 18. doi: 10.1111/jep.13124. [Epub ahead of print]

PMID:
30887656
6.

Attitudes of publics who are unwilling to donate DNA data for research.

Middleton A, Milne R, Thorogood A, Kleiderman E, Niemiec E, Prainsack B, Farley L, Bevan P, Steed C, Smith J, Vears D, Atutornu J, Howard HC, Morley KI.

Eur J Med Genet. 2019 May;62(5):316-323. doi: 10.1016/j.ejmg.2018.11.014. Epub 2018 Nov 23.

7.

Solidarity can make a difference: Addressing transformations in healthcare, demographics and technological replacement.

Buyx A, Prainsack B.

Bioethics. 2018 Nov;32(9):537-540. doi: 10.1111/bioe.12540. No abstract available.

PMID:
30450600
8.

The value of work: Addressing the future of work through the lens of solidarity.

Prainsack B, Buyx A.

Bioethics. 2018 Nov;32(9):585-592. doi: 10.1111/bioe.12507. Epub 2018 Sep 18.

9.

Health Information Counselors: A New Profession for the Age of Big Data.

Fiske A, Buyx A, Prainsack B.

Acad Med. 2019 Jan;94(1):37-41. doi: 10.1097/ACM.0000000000002395.

10.

A response to the forensic genetics policy initiative's report "Establishing Best Practice for Forensic DNA Databases".

Samuel G, Howard HC, Cornel M, van El C, Hall A, Forzano F, Prainsack B.

Forensic Sci Int Genet. 2018 Sep;36:e19-e21. doi: 10.1016/j.fsigen.2018.07.002. Epub 2018 Jul 5. No abstract available.

PMID:
30030012
11.

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods.

Middleton A, Niemiec E, Prainsack B, Bobe J, Farley L, Steed C, Smith J, Bevan P, Bonhomme N, Kleiderman E, Thorogood A, Schickhardt C, Garattini C, Vears D, Littler K, Banner N, Scott E, Kovalevskaya NV, Levin E, Morley KI, Howard HC.

Per Med. 2018 Jul 1;15(4):311-318. doi: 10.2217/pme-2018-0032. Epub 2018 Jun 1.

12.

Is there a duty to participate in digital epidemiology?

Mittelstadt B, Benzler J, Engelmann L, Prainsack B, Vayena E.

Life Sci Soc Policy. 2018 May 9;14(1):9. doi: 10.1186/s40504-018-0074-1.

13.

APPLaUD: access for patients and participants to individual level uninterpreted genomic data.

Thorogood A, Bobe J, Prainsack B, Middleton A, Scott E, Nelson S, Corpas M, Bonhomme N, Rodriguez LL, Murtagh M, Kleiderman E; Participant Values Task Team of the Global Alliance for Genomics and Health.

Hum Genomics. 2018 Feb 17;12(1):7. doi: 10.1186/s40246-018-0139-5. Review.

14.

Beyond individualism: Is there a place for relational autonomy in clinical practice and research?

Dove ES, Kelly SE, Lucivero F, Machirori M, Dheensa S, Prainsack B.

Clin Ethics. 2017 Sep;12(3):150-165. doi: 10.1177/1477750917704156. Epub 2017 Apr 13.

15.

Motivations of participants in the citizen science of microbiomics: data from the British Gut Project.

Del Savio L, Prainsack B, Buyx A.

Genet Med. 2017 Aug;19(8):959-961. doi: 10.1038/gim.2016.208. Epub 2017 Jan 26.

PMID:
28125088
16.

Every participant is a PI. Citizen science and participatory governance in population studies.

Buyx A, Del Savio L, Prainsack B, Völzke H.

Int J Epidemiol. 2017 Apr 1;46(2):377-384. doi: 10.1093/ije/dyw204. No abstract available.

PMID:
28100583
18.

Test Pricing and Reimbursement in Genomic Medicine: Towards a General Strategy.

Vozikis A, Cooper DN, Mitropoulou C, Kambouris ME, Brand A, Dolzan V, Fortina P, Innocenti F, Lee MT, Leyens L, Macek M Jr, Al-Mulla F, Prainsack B, Squassina A, Taruscio D, van Schaik RH, Vayena E, Williams MS, Patrinos GP.

Public Health Genomics. 2016;19(6):352-363. doi: 10.1159/000449152. Epub 2016 Sep 28. Review.

19.

Emerging ethical issues regarding digital health data. On the World Medical Association Draft Declaration on Ethical Considerations Regarding Health Databases and Biobanks.

Aicardi C, Del Savio L, Dove ES, Lucivero F, Tempini N, Prainsack B.

Croat Med J. 2016 Apr 28;57(2):207-13. No abstract available.

20.

Beyond clinical utility: The multiple values of DTC genetics.

Turrini M, Prainsack B.

Appl Transl Genom. 2016 Feb 1;8:4-8. doi: 10.1016/j.atg.2016.01.008. eCollection 2016 Mar.

21.

The lifestylisation of healthcare? 'Consumer genomics' and mobile health as technologies for healthy lifestyle.

Lucivero F, Prainsack B.

Appl Transl Genom. 2015 Feb 7;4:44-9. doi: 10.1016/j.atg.2015.02.001. eCollection 2015 Mar.

22.

Approaching ethical, legal and social issues of emerging forensic DNA phenotyping (FDP) technologies comprehensively: Reply to 'Forensic DNA phenotyping: Predicting human appearance from crime scene material for investigative purposes' by Manfred Kayser.

Toom V, Wienroth M, M'charek A, Prainsack B, Williams R, Duster T, Heinemann T, Kruse C, Machado H, Murphy E.

Forensic Sci Int Genet. 2016 May;22:e1-e4. doi: 10.1016/j.fsigen.2016.01.010. Epub 2016 Jan 19. No abstract available.

PMID:
26832996
23.

Sticks AND Carrots: Encouraging Open Science at its source.

Leonelli S, Spichtinger D, Prainsack B.

Geo. 2015 Jun 30;2(1):12-16.

24.

Obituary for Herbert Gottweis, Professor of Political Science, University of Vienna: Born 8 February 1958 in Vienna, died 31 March 2014 in Vienna.

Prainsack B.

Life Sci Soc Policy. 2014 Dec;10:12. doi: 10.1186/s40504-014-0012-9. Epub 2014 Apr 30. No abstract available.

25.

Ethical standards for research biobank donation.

Dove ES, Prainsack B.

JAMA. 2015 Apr 21;313(15):1573-4. doi: 10.1001/jama.2015.2748. No abstract available.

PMID:
25898060
26.

Is personalized medicine different? (Reinscription: the sequel). A response to Troy Duster.

Prainsack B.

Br J Sociol. 2015 Mar;66(1):28-35. doi: 10.1111/1468-4446.12117. No abstract available.

PMID:
25789800
27.

Evaluating the consent preferences of UK research volunteers for genetic and clinical studies.

Kelly SE, Spector TD, Cherkas LF, Prainsack B, Harris JM.

PLoS One. 2015 Mar 11;10(3):e0118027. doi: 10.1371/journal.pone.0118027. eCollection 2015.

28.

Bridging genomics research between developed and developing countries: the Genomic Medicine Alliance.

Cooper DN, Brand A, Dolzan V, Fortina P, Innocenti F, Michael Lee MT, Macek M Jr, Al-Mulla F, Prainsack B, Squassina A, Vayena E, Vozikis A, Williams MS, Patrinos GP.

Per Med. 2014 Sep;11(7):615-623. doi: 10.2217/pme.14.59.

PMID:
29764053
29.

Working towards personalization of Medicine: Genomics in 2014.

Patrinos GP, Prainsack B.

Per Med. 2014 Sep;11(7):611-613. doi: 10.2217/pme.14.79. No abstract available.

30.

Personhood and solidarity: what kind of personalized medicine do we want?

Prainsack B.

Per Med. 2014 Sep;11(7):651-657. doi: 10.2217/pme.14.49.

PMID:
29764048
31.

The powers of participatory medicine.

Prainsack B.

PLoS Biol. 2014 Apr 15;12(4):e1001837. doi: 10.1371/journal.pbio.1001837. eCollection 2014 Apr. No abstract available.

32.

Raw data: access to inaccuracy--response.

Lunshof JE, Church GM, Prainsack B.

Science. 2014 Feb 28;343(6174):969. doi: 10.1126/science.343.6174.969-a. No abstract available.

PMID:
24578564
33.

Information access. Raw personal data: providing access.

Lunshof JE, Church GM, Prainsack B.

Science. 2014 Jan 24;343(6169):373-4. doi: 10.1126/science.1249382. No abstract available.

PMID:
24458627
34.

Ready to put metadata on the post-2015 development agenda? Linking data publications to responsible innovation and science diplomacy.

Özdemir V, Kolker E, Hotez PJ, Mohin S, Prainsack B, Wynne B, Vayena E, Coşkun Y, Dereli T, Huzair F, Borda-Rodriguez A, Bragazzi NL, Faris J, Ramesar R, Wonkam A, Dandara C, Nair B, Llerena A, Kılıç K, Jain R, Reddy PJ, Gollapalli K, Srivastava S, Kickbusch I.

OMICS. 2014 Jan;18(1):1-9. doi: 10.1089/omi.2013.0170. Review.

PMID:
24456464
35.

Opening Pandora's box in the UK: a hypothetical pharmacogenetic test for clozapine.

Spencer BW, Prainsack B, Rujescu D, Giegling I, Collier DA, Gaughran F, MacCabe JH, Barr CL, Sigurdsson E, Stovring H, Malhotra AK, Curran SR; CRESTAR Consortium.

Pharmacogenomics. 2013 Nov;14(15):1907-14. doi: 10.2217/pgs.13.182. Review.

PMID:
24236489
36.

Regulating genomics: time for a broader vision.

Vayena E, Prainsack B.

Sci Transl Med. 2013 Aug 14;5(198):198ed12. doi: 10.1126/scitranslmed.3005797. No abstract available.

37.

Let's get real about virtual: online health is here to stay.

Prainsack B.

Genet Res (Camb). 2013 Aug;95(4):111-3. doi: 10.1017/S001667231300013X. Epub 2013 Aug 1. Review.

PMID:
23902852
38.

Beyond the clinic: 'direct-to-consumer' genomic profiling services and pharmacogenomics.

Prainsack B, Vayena E.

Pharmacogenomics. 2013 Mar;14(4):403-12. doi: 10.2217/pgs.13.10. Review.

PMID:
23438887
39.

A solidarity-based approach to the governance of research biobanks.

Prainsack B, Buyx A.

Med Law Rev. 2013 Winter;21(1):71-91. doi: 10.1093/medlaw/fws040. Epub 2013 Jan 16.

PMID:
23325780
40.

The challenge of personal genomics in Germany.

Vayena E, Prainsack B.

Nat Biotechnol. 2013 Jan;31(1):16-7. doi: 10.1038/nbt.2469. No abstract available.

PMID:
23302923
41.

Experiences of early users of direct-to-consumer genomics in Switzerland: an exploratory study.

Vayena E, Gourna E, Streuli J, Hafen E, Prainsack B.

Public Health Genomics. 2012;15(6):352-62. doi: 10.1159/000343792. Epub 2012 Nov 15.

42.

The future of technologies for personalised medicine.

Harvey A, Brand A, Holgate ST, Kristiansen LV, Lehrach H, Palotie A, Prainsack B.

N Biotechnol. 2012 Sep 15;29(6):625-33.

PMID:
23091837
43.

Performing the Union: the Prüm Decision and the European dream.

Prainsack B, Toom V.

Stud Hist Philos Biol Biomed Sci. 2013 Mar;44(1):71-9. doi: 10.1016/j.shpsc.2012.09.009. Epub 2012 Sep 26.

PMID:
23021789
44.

Solidarity in contemporary bioethics--towards a new approach.

Prainsack B, Buyx A.

Bioethics. 2012 Sep;26(7):343-50. doi: 10.1111/j.1467-8519.2012.01987.x.

PMID:
22827315
45.

Voting with their mice: personal genome testing and the "participatory turn" in disease research.

Prainsack B.

Account Res. 2011 May;18(3):132-47. doi: 10.1080/08989621.2011.575032. Review.

PMID:
21574070
46.

Enterprising or altruistic selves? Making up research subjects in genetics research.

Tutton R, Prainsack B.

Sociol Health Illn. 2011 Nov;33(7):1081-95. doi: 10.1111/j.1467-9566.2011.01348.x. Epub 2011 Apr 20.

47.

Bracketing off population does not advance ethical reflection on EVCs: a reply to Kayser and Schneider.

M'charek A, Toom V, Prainsack B.

Forensic Sci Int Genet. 2012 Jan;6(1):e16-7; author reply e18-9. doi: 10.1016/j.fsigen.2010.12.012. Epub 2011 Feb 1. No abstract available.

PMID:
21282078
48.

Attitudes of social science students in Israel and Austria towards the belated twins scenario--an exploratory study.

Prainsack B, Hashiloni-Dolev Y, Kasher A, Prainsack J.

Public Underst Sci. 2010 Jul;19(4):435-51.

PMID:
20977182
49.

A survey of UK public interest in internet-based personal genome testing.

Cherkas LF, Harris JM, Levinson E, Spector TD, Prainsack B.

PLoS One. 2010 Oct 19;5(10):e13473. doi: 10.1371/journal.pone.0013473.

50.

Direct-to-consumer genome testing: opportunities for pharmacogenomics research?

Prainsack B, Wolinsky H.

Pharmacogenomics. 2010 May;11(5):651-5. doi: 10.2217/pgs.10.33. Review.

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