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Items: 41

1.

Outcomes in pediatric studies of medium-chain acyl-coA dehydrogenase (MCAD) deficiency and phenylketonuria (PKU): a review.

Pugliese M, Tingley K, Chow A, Pallone N, Smith M, Rahman A, Chakraborty P, Geraghty MT, Irwin J, Tessier L, Nicholls SG, Offringa M, Butcher NJ, Iverson R, Clifford TJ, Stockler S, Hutton B, Paik K, Tao J, Skidmore B, Coyle D, Duddy K, Dyack S, Greenberg CR, Ghai SJ, Karp N, Korngut L, Kronick J, MacKenzie A, MacKenzie J, Maranda B, Mitchell JJ, Potter M, Prasad C, Schulze A, Sparkes R, Taljaard M, Trakadis Y, Walia J, Potter BK; Canadian Inherited Metabolic Diseases Research Network.

Orphanet J Rare Dis. 2020 Jan 14;15(1):12. doi: 10.1186/s13023-019-1276-1. Review.

2.

The Importance of Describing as Well as Defining Usual Care.

Nicholls SG, Zwarenstein M, Taljaard M.

Am J Bioeth. 2020 Jan;20(1):56-58. doi: 10.1080/15265161.2019.1687781. No abstract available.

PMID:
31910140
3.

The ethical challenges raised in the design and conduct of pragmatic trials: an interview study with key stakeholders.

Nicholls SG, Carroll K, Zwarenstein M, Brehaut JC, Weijer C, Hey SP, Goldstein CE, Graham ID, Grimshaw JM, McKenzie JE, Fergusson DA, Taljaard M; Ethics of Pragmatic Trials project.

Trials. 2019 Dec 23;20(1):765. doi: 10.1186/s13063-019-3899-x.

4.

What is in a Name? Parent, Professional and Policy-Maker Conceptions of Consent-Related Language in the Context of Newborn Screening.

Nicholls SG, Etchegary H, Tessier L, Simmonds C, Potter BK, Brehaut JC, Pullman D, Hayeems RZ, Zelenietz S, Lamoureux M, Milburn J, Turner L, Chakraborty P, Wilson BJ.

Public Health Ethics. 2019 May 4;12(2):158-175. doi: 10.1093/phe/phz003. eCollection 2019 Jul.

5.

La déclaration RECORD-PE (Reporting of Studies Conducted Using Observational Routinely Collected Health Data Statement for Pharmacoepdemiology) : directives pour la communication des études realisées à partir de données de santé observationelles collectées en routine en pharmacoépidémiologie.

Langan SM, Schmidt SAJ, Wing K, Ehrenstein V, Nicholls SG, Filion KB, Klungel O, Petersen I, Sørensen HT, Dixon WG, Guttmann A, Harron K, Hemkens LG, Moher D, Schneeweiss S, Smeeth L, Sturkenboom M, von Elm E, Wang SV, Benchimol EI.

CMAJ. 2019 Jun 24;191(25):E689-E708. doi: 10.1503/cmaj.190347. French. No abstract available.

PMID:
31235490
6.

Development of a robotic walker for individuals with cerebral palsy.

Alazem H, McCormick A, Nicholls SG, Vilé E, Adler R, Tibi G.

Disabil Rehabil Assist Technol. 2019 Apr 23:1-9. doi: 10.1080/17483107.2019.1604827. [Epub ahead of print]

PMID:
31012754
7.

Screening for depression in women during pregnancy or the first year postpartum and in the general adult population: a protocol for two systematic reviews to update a guideline of the Canadian Task Force on Preventive Health Care.

Hamel C, Lang E, Morissette K, Beck A, Stevens A, Skidmore B, Colquhoun H, LeBlanc J, Moore A, Riva JJ, Thombs BD, Colman I, Grigoriadis S, Nicholls SG, Potter BK, Ritchie K, Robert J, Vasa P, Lauria-Horner B, Patten S, Vigod SN, Hutton B, Shea BJ, Shanmugasegaram S, Little J, Moher D.

Syst Rev. 2019 Jan 19;8(1):27. doi: 10.1186/s13643-018-0930-3.

8.

Stakeholder views regarding ethical issues in the design and conduct of pragmatic trials: study protocol.

Nicholls SG, Carroll K, Brehaut J, Weijer C, Hey SP, Goldstein CE, Zwarenstein M, Graham ID, McKenzie JE, McIntyre L, Jairath V, Campbell MK, Grimshaw JM, Fergusson DA, Taljaard M.

BMC Med Ethics. 2018 Nov 20;19(1):90. doi: 10.1186/s12910-018-0332-z.

9.

The reporting of studies conducted using observational routinely collected health data statement for pharmacoepidemiology (RECORD-PE).

Langan SM, Schmidt SA, Wing K, Ehrenstein V, Nicholls SG, Filion KB, Klungel O, Petersen I, Sorensen HT, Dixon WG, Guttmann A, Harron K, Hemkens LG, Moher D, Schneeweiss S, Smeeth L, Sturkenboom M, von Elm E, Wang SV, Benchimol EI.

BMJ. 2018 Nov 14;363:k3532. doi: 10.1136/bmj.k3532. No abstract available.

10.

Developing a framework for the ethical design and conduct of pragmatic trials in healthcare: a mixed methods research protocol.

Taljaard M, Weijer C, Grimshaw JM, Ali A, Brehaut JC, Campbell MK, Carroll K, Edwards S, Eldridge S, Forrest CB, Giraudeau B, Goldstein CE, Graham ID, Hemming K, Hey SP, Horn AR, Jairath V, Klassen TP, London AJ, Marlin S, Marshall JC, McIntyre L, McKenzie JE, Nicholls SG, Alison Paprica P, Zwarenstein M, Fergusson DA.

Trials. 2018 Sep 27;19(1):525. doi: 10.1186/s13063-018-2895-x.

11.

Call for a pan-Canadian approach to ethics review in Canada.

Nicholls SG, Morin K, Evans L, Longstaff H.

CMAJ. 2018 May 7;190(18):E553-E555. doi: 10.1503/cmaj.171088. No abstract available.

12.

Commentary on "Regulatory Support Improves Subsequent IRB/REC Approval Rates in Studies Initially Deemed Not Ready for Review: A CTSA Institution's Experience".

Nicholls SG.

J Empir Res Hum Res Ethics. 2018 Apr;13(2):145-147. doi: 10.1177/1556264617752190. Epub 2018 Jan 18.

PMID:
29347871
13.

Antenatal Consultations at Extreme Prematurity: A Systematic Review of Parent Communication Needs.

Kharrat A, Moore GP, Beckett S, Nicholls SG, Sampson M, Daboval T.

J Pediatr. 2018 May;196:109-115.e7. doi: 10.1016/j.jpeds.2017.10.067. Epub 2017 Dec 6.

PMID:
29223461
14.

Routinely collected data: the importance of high-quality diagnostic coding to research.

Nicholls SG, Langan SM, Benchimol EI.

CMAJ. 2017 Aug 21;189(33):E1054-E1055. doi: 10.1503/cmaj.170807. No abstract available.

15.

The RECORD reporting guidelines: meeting the methodological and ethical demands of transparency in research using routinely-collected health data.

Nicholls SG, Langan SM, Sørensen HT, Petersen I, Benchimol EI.

Clin Epidemiol. 2016 Oct 19;8:389-392. eCollection 2016.

16.

Using YouTube to Disseminate Effective Vaccination Pain Treatment for Babies.

Harrison D, Wilding J, Bowman A, Fuller A, Nicholls SG, Pound CM, Reszel J, Sampson M.

PLoS One. 2016 Oct 3;11(10):e0164123. doi: 10.1371/journal.pone.0164123. eCollection 2016.

17.

Consent for newborn screening: parents' and health-care professionals' experiences of consent in practice.

Etchegary H, Nicholls SG, Tessier L, Simmonds C, Potter BK, Brehaut JC, Pullman D, Hayeems R, Zelenietz S, Lamoureux M, Milburn J, Turner L, Chakraborty P, Wilson B.

Eur J Hum Genet. 2016 Nov;24(11):1530-1534. doi: 10.1038/ejhg.2016.55. Epub 2016 Jun 15.

18.

The need for ethics as well as evidence in evidence-based medicine.

Nicholls SG, Newson AJ, Ashcroft RE.

J Clin Epidemiol. 2016 Sep;77:7-10. doi: 10.1016/j.jclinepi.2016.05.006. Epub 2016 Jun 1. No abstract available.

PMID:
27259469
19.

Attitudes to incorporating genomic risk assessments into population screening programs: the importance of purpose, context and deliberation.

Nicholls SG, Etchegary H, Carroll JC, Castle D, Lemyre L, Potter BK, Craigie S, Wilson BJ; CIHR Emerging Team in Genomics and Screening.

BMC Med Genomics. 2016 May 23;9(1):25. doi: 10.1186/s12920-016-0186-5.

20.

Demodex species in human ocular disease: new clinicopathological aspects.

Nicholls SG, Oakley CL, Tan A, Vote BJ.

Int Ophthalmol. 2017 Feb;37(1):303-312. doi: 10.1007/s10792-016-0249-9. Epub 2016 May 9. Review.

PMID:
27160273
21.

Reporting transparency: making the ethical mandate explicit.

Nicholls SG, Langan SM, Benchimol EI, Moher D.

BMC Med. 2016 Mar 16;14:44. doi: 10.1186/s12916-016-0587-5. Review.

22.

Genetic discrimination legislation in Canada: moving from rhetoric to real debate.

Nicholls SG, Fafard P.

CMAJ. 2016 Aug 9;188(11):788-789. doi: 10.1503/cmaj.151170. Epub 2016 Feb 8. No abstract available.

23.

Demodex treatment in external ocular disease: the outcomes of a Tasmanian case series.

Nicholls SG, Oakley CL, Tan A, Vote BJ.

Int Ophthalmol. 2016 Oct;36(5):691-6. doi: 10.1007/s10792-016-0188-5. Epub 2016 Feb 2.

PMID:
26843091
24.

Parents' evaluation of the IDEFICS intervention: an analysis focussing on socio-economic factors, child's weight status and intervention exposure.

Nicholls SG, Pohlabeln H, De Bourdeaudhuij I, Chadjigeorgiou C, Gwozdz W, Hebestreit A, Lauria F, Lissner L, Molnár D, Santaliestra-Pasías AM, Veidebaum T, Williams G; IDEFICS consortium.

Obes Rev. 2015 Dec;16 Suppl 2:103-18. doi: 10.1111/obr.12332.

PMID:
26707020
25.

A Scoping Review of Empirical Research Relating to Quality and Effectiveness of Research Ethics Review.

Nicholls SG, Hayes TP, Brehaut JC, McDonald M, Weijer C, Saginur R, Fergusson D.

PLoS One. 2015 Jul 30;10(7):e0133639. doi: 10.1371/journal.pone.0133639. eCollection 2015.

26.

Identification of translational dermatology research priorities in the U.K.: results of an electronic Delphi exercise.

Healy E, Brown SJ, Langan SM, Nicholls SG, Shams K, Reynolds NJ.

Br J Dermatol. 2015 Nov;173(5):1191-1198. doi: 10.1111/bjd.14022. Epub 2015 Oct 14.

27.

The REporting of Studies Conducted Using Observational Routinely-Collected Health Data (RECORD) Statement: Methods for Arriving at Consensus and Developing Reporting Guidelines.

Nicholls SG, Quach P, von Elm E, Guttmann A, Moher D, Petersen I, Sørensen HT, Smeeth L, Langan SM, Benchimol EI.

PLoS One. 2015 May 12;10(5):e0125620. doi: 10.1371/journal.pone.0125620. eCollection 2015.

28.

The Human Genome Project, and recent advances in personalized genomics.

Wilson BJ, Nicholls SG.

Risk Manag Healthc Policy. 2015 Feb 16;8:9-20. doi: 10.2147/RMHP.S58728. eCollection 2015. Review.

29.

Stakeholder attitudes towards the role and application of informed consent for newborn bloodspot screening: a study protocol.

Nicholls SG, Tessier L, Etchegary H, Brehaut JC, Potter BK, Hayeems RZ, Chakraborty P, Marcadier J, Milburn J, Pullman D, Turner L, Wilson BJ.

BMJ Open. 2014 Nov 24;4(11):e006782. doi: 10.1136/bmjopen-2014-006782.

30.

Education and parental involvement in decision-making about newborn screening: understanding goals to clarify content.

Potter BK, Etchegary H, Nicholls SG, Wilson BJ, Craigie SM, Araia MH.

J Genet Couns. 2015 Jun;24(3):400-8. doi: 10.1007/s10897-014-9780-x. Epub 2014 Nov 18.

PMID:
25403898
31.

Impact of stated barriers on proposed warfarin prescription for atrial fibrillation: a survey of Canadian physicians.

Nicholls SG, Brehaut JC, Arim RG, Carroll K, Perez R, Shojania KG, Grimshaw JM, Poses RM.

Thromb J. 2014 Jun 23;12:13. doi: 10.1186/1477-9560-12-13. eCollection 2014.

32.

Benefits and burdens of newborn screening: public understanding and decision-making.

Nicholls SG, Wilson BJ, Etchegary H, Brehaut JC, Potter BK, Hayeems R, Chakraborty P, Milburn J, Pullman D, Turner L, Carroll JC.

Per Med. 2014 Aug;11(6):593-607. doi: 10.2217/pme.14.46.

33.

Parental decision-making and acceptance of newborn bloodspot screening: an exploratory study.

Nicholls SG, Southern KW.

PLoS One. 2013 Nov 12;8(11):e79441. doi: 10.1371/journal.pone.0079441. eCollection 2013.

34.

Public attitudes towards genomic risk profiling as a component of routine population screening.

Nicholls SG, Wilson BJ, Craigie SM, Etchegary H, Castle D, Carroll JC, Potter BK, Lemyre L, Little J.

Genome. 2013 Oct;56(10):626-33. doi: 10.1139/gen-2013-0070. Epub 2013 Aug 31.

35.

Considering consent: a structural equation modelling analysis of factors influencing decisional quality when accepting newborn screening.

Nicholls SG, Southern KW.

J Inherit Metab Dis. 2014 Mar;37(2):197-205. doi: 10.1007/s10545-013-9651-x. Epub 2013 Sep 17.

PMID:
24043381
36.

Standards and classification: a perspective on the 'obesity epidemic'.

Nicholls SG.

Soc Sci Med. 2013 Jun;87:9-15. doi: 10.1016/j.socscimed.2013.03.009. Epub 2013 Mar 18.

PMID:
23631773
37.

Informed choice for newborn blood spot screening in the United Kingdom: a survey of parental perceptions.

Nicholls SG, Southern KW.

Pediatrics. 2012 Dec;130(6):e1527-33. doi: 10.1542/peds.2012-1479. Epub 2012 Nov 12.

PMID:
23147970
38.

Parental information use in the context of newborn bloodspot screening. An exploratory mixed methods study.

Nicholls SG, Southern KW.

J Community Genet. 2012 Oct;3(4):251-7. doi: 10.1007/s12687-012-0082-4. Epub 2012 Feb 16.

39.

Proceduralisation, choice and parental reflections on decisions to accept newborn bloodspot screening.

Nicholls SG.

J Med Ethics. 2012 May;38(5):299-303. doi: 10.1136/medethics-2011-100040. Epub 2011 Dec 20.

PMID:
22186830
40.

Fiscal food policy: equity and practice.

Nicholls SG, Gwozdz W, Reisch L, Voigt K.

Perspect Public Health. 2011 Jul;131(4):157-8. No abstract available.

PMID:
21888114
41.

Outcome measures for clinical genetics services: a comparison of genetics healthcare professionals and patients' views.

Payne K, Nicholls SG, McAllister M, MacLeod R, Ellis I, Donnai D, Davies LM.

Health Policy. 2007 Nov;84(1):112-22. Epub 2007 May 7.

PMID:
17485130

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