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Items: 1 to 50 of 72

1.

Disclosure to genetic relatives without consent - Australian genetic professionals' awareness of the health privacy law.

Meggiolaro N, Barlow-Stewart K, Dunlop K, Newson AJ, Fleming J.

BMC Med Ethics. 2020 Feb 4;21(1):13. doi: 10.1186/s12910-020-0451-1.

2.

Cancer patients' views and understanding of genome sequencing: a qualitative study.

Bartley N, Best M, Jacobs C, Juraskova I, Newson AJ, Savard J, Meiser B, Ballinger ML, Thomas DM, Biesecker B, Butow P.

J Med Genet. 2020 Jan 24. pii: jmedgenet-2019-106410. doi: 10.1136/jmedgenet-2019-106410. [Epub ahead of print]

PMID:
31980566
3.

From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing.

Savard J, Hickerton C, Metcalfe SA, Gaff C, Middleton A, Newson AJ.

AJOB Empir Bioeth. 2019 Dec 30:1-14. doi: 10.1080/23294515.2019.1701583. [Epub ahead of print]

PMID:
31885332
4.

Dynamic Consent: An Evaluation and Reporting Framework.

Prictor M, Lewis MA, Newson AJ, Haas M, Baba S, Kim H, Kokado M, Minari J, Molnár-Gábor F, Yamamoto B, Kaye J, Teare HJA.

J Empir Res Hum Res Ethics. 2019 Nov 15:1556264619887073. doi: 10.1177/1556264619887073. [Epub ahead of print]

PMID:
31729900
5.

Who should access germline genome sequencing? A mixed methods study of patient views.

Best MC, Butow P, Jacobs C, Savard J, Biesecker B, Ballinger ML, Bartley N, Davies G, Napier CE, Smit AK, Thomas DM, Newson AJ; Members of the PiGeOn Project.

Clin Genet. 2020 Feb;97(2):329-337. doi: 10.1111/cge.13664. Epub 2019 Nov 26.

PMID:
31674008
6.

Patient perspectives on molecular tumor profiling: "Why wouldn't you?"

Best MC, Bartley N, Jacobs C, Juraskova I, Goldstein D, Newson AJ, Savard J, Meiser B, Ballinger M, Napier C, Thomas D, Biesecker B, Butow P; Members of the PiGeOn Project.

BMC Cancer. 2019 Jul 31;19(1):753. doi: 10.1186/s12885-019-5920-x.

7.

Australian Genomics: A Federated Model for Integrating Genomics into Healthcare.

Stark Z, Boughtwood T, Phillips P, Christodoulou J, Hansen DP, Braithwaite J, Newson AJ, Gaff CL, Sinclair AH, North KN.

Am J Hum Genet. 2019 Jul 3;105(1):7-14. doi: 10.1016/j.ajhg.2019.06.003.

8.

GP attitudes to and expectations for providing personal genomic risk information to the public: a qualitative study.

Smit AK, Newson AJ, Keogh L, Best M, Dunlop K, Vuong K, Kirk J, Butow P, Trevena L, Cust AE.

BJGP Open. 2019 Feb 20;3(1):bjgpopen18X101633. doi: 10.3399/bjgpopen18X101633. eCollection 2019 Apr.

9.

Public attitudes towards novel reproductive technologies: a citizens' jury on mitochondrial donation.

Newson AJ, de Lacey S, Dowling DK, Murray S, Sue CM, Thorburn DR, Gillam L, Degeling C.

Hum Reprod. 2019 Apr 1;34(4):751-757. doi: 10.1093/humrep/dez021.

10.

Genetic counselors' perceptions of uncertainty in pretest counseling for genomic sequencing: A qualitative study.

Park J, Zayhowski K, Newson AJ, Ormond KE.

J Genet Couns. 2019 Apr;28(2):292-303. doi: 10.1002/jgc4.1076. Epub 2019 Feb 11.

PMID:
30741463
11.

Australians' views and experience of personal genomic testing: survey findings from the Genioz study.

Savard J, Hickerton C, Tytherleigh R, Terrill B, Turbitt E, Newson AJ, Wilson B, Gray K, Gaff C, Middleton A, Stackpoole E, Metcalfe SA.

Eur J Hum Genet. 2019 May;27(5):711-720. doi: 10.1038/s41431-018-0325-x. Epub 2019 Jan 21.

12.

Rapid Challenges: Ethics and Genomic Neonatal Intensive Care.

Gyngell C, Newson AJ, Wilkinson D, Stark Z, Savulescu J.

Pediatrics. 2019 Jan;143(Suppl 1):S14-S21. doi: 10.1542/peds.2018-1099D.

13.

Human Genetics Society of Australasia Position Statement: Genetic Testing and Personal Insurance Products in Australia.

Newson AJ, Ayres S, Boyle J, Gabbett MT, Nisselle A.

Twin Res Hum Genet. 2018 Dec;21(6):533-537. doi: 10.1017/thg.2018.60. Epub 2018 Nov 21.

14.

Australians' perspectives on support around use of personal genomic testing: Findings from the Genioz study.

Metcalfe SA, Hickerton C, Savard J, Stackpoole E, Tytherleigh R, Tutty E, Terrill B, Turbitt E, Gray K, Middleton A, Wilson B, Newson AJ, Gaff C.

Eur J Med Genet. 2019 May;62(5):290-299. doi: 10.1016/j.ejmg.2018.11.002. Epub 2018 Nov 13.

15.

Reconceptualizing Autonomy for Bioethics.

Dive L, Newson AJ.

Kennedy Inst Ethics J. 2018;28(2):171-203. doi: 10.1353/ken.2018.0013.

PMID:
30100599
16.

The melanoma genomics managing your risk study: A protocol for a randomized controlled trial evaluating the impact of personal genomic risk information on skin cancer prevention behaviors.

Smit AK, Newson AJ, Morton RL, Kimlin M, Keogh L, Law MH, Kirk J, Dobbinson S, Kanetsky PA, Fenton G, Allen M, Butow P, Dunlop K, Trevena L, Lo S, Savard J, Dawkins H, Wordsworth S, Jenkins M, Mann GJ, Cust AE.

Contemp Clin Trials. 2018 Jul;70:106-116. doi: 10.1016/j.cct.2018.05.014. Epub 2018 May 23.

PMID:
29802966
17.

Australians' views on personal genomic testing: focus group findings from the Genioz study.

Metcalfe SA, Hickerton C, Savard J, Terrill B, Turbitt E, Gaff C, Gray K, Middleton A, Wilson B, Newson AJ.

Eur J Hum Genet. 2018 Aug;26(8):1101-1112. doi: 10.1038/s41431-018-0151-1. Epub 2018 Apr 30.

18.

Distress, uncertainty, and positive experiences associated with receiving information on personal genomic risk of melanoma.

Smit AK, Newson AJ, Best M, Badcock CA, Butow PN, Kirk J, Dunlop K, Fenton G, Cust AE.

Eur J Hum Genet. 2018 Aug;26(8):1094-1100. doi: 10.1038/s41431-018-0145-z. Epub 2018 Apr 30.

19.

The PiGeOn project: protocol of a longitudinal study examining psychosocial and ethical issues and outcomes in germline genomic sequencing for cancer.

Best M, Newson AJ, Meiser B, Juraskova I, Goldstein D, Tucker K, Ballinger ML, Hess D, Schlub TE, Biesecker B, Vines R, Vines K, Thomas D, Young MA, Savard J, Jacobs C, Butow P.

BMC Cancer. 2018 Apr 23;18(1):454. doi: 10.1186/s12885-018-4366-x.

20.

The PiGeOn project: protocol for a longitudinal study examining psychosocial, behavioural and ethical issues and outcomes in cancer tumour genomic profiling.

Best M, Newson AJ, Meiser B, Juraskova I, Goldstein D, Tucker K, Ballinger ML, Hess D, Schlub TE, Biesecker B, Vines R, Vines K, Thomas D, Young MA, Savard J, Jacobs C, Butow P.

BMC Cancer. 2018 Apr 5;18(1):389. doi: 10.1186/s12885-018-4310-0.

21.

Genetics and Insurance in Australia: Concerns around a Self-Regulated Industry.

Newson AJ, Tiller J, Keogh LA, Otlowski M, Lacaze P.

Public Health Genomics. 2017;20(4):247-256. doi: 10.1159/000481450. Epub 2017 Oct 26. Erratum in: Public Health Genomics. 2017;20(5):307.

PMID:
29069661
22.

Scanning the body, sequencing the genome: Dealing with unsolicited findings.

Wouters RHP, Cornelis C, Newson AJ, Bunnik EM, Bredenoord AL.

Bioethics. 2017 Nov;31(9):648-656. doi: 10.1111/bioe.12375. Epub 2017 Oct 4. Erratum in: Bioethics. 2017 Nov;31(9):719.

PMID:
28975656
23.

Key challenges in bringing CRISPR-mediated somatic cell therapy into the clinic.

Nicol D, Eckstein L, Morrison M, Sherkow JS, Otlowski M, Whitton T, Bubela T, Burdon KP, Chalmers D, Chan S, Charlesworth J, Critchley C, Crossley M, de Lacey S, Dickinson JL, Hewitt AW, Kamens J, Kato K, Kleiderman E, Kodama S, Liddicoat J, Mackey DA, Newson AJ, Nielsen J, Wagner JK, McWhirter RE.

Genome Med. 2017 Sep 25;9(1):85. doi: 10.1186/s13073-017-0475-4.

24.

Does personalized melanoma genomic risk information trigger conversations about skin cancer prevention and skin examination with family, friends and health professionals?

Smit AK, Keogh LA, Newson AJ, Butow PN, Dunlop K, Morton RL, Kirk J, Espinoza D, Cust AE.

Br J Dermatol. 2017 Sep;177(3):779-790. doi: 10.1111/bjd.15744. Epub 2017 Jul 20.

PMID:
28627002
25.

Whole genome sequencing in children: ethics, choice and deliberation.

Newson AJ.

J Med Ethics. 2017 Aug;43(8):540-542. doi: 10.1136/medethics-2016-103943. Epub 2017 Jan 27. No abstract available.

PMID:
28130385
26.

Is Mitochondrial Donation Germ-Line Gene Therapy? Classifications and Ethical Implications.

Newson AJ, Wrigley A.

Bioethics. 2017 Jan;31(1):55-67. doi: 10.1111/bioe.12312.

PMID:
27973716
27.

A Pilot Randomized Controlled Trial of the Feasibility, Acceptability, and Impact of Giving Information on Personalized Genomic Risk of Melanoma to the Public.

Smit AK, Espinoza D, Newson AJ, Morton RL, Fenton G, Freeman L, Dunlop K, Butow PN, Law MH, Kimlin MG, Keogh LA, Dobbinson SJ, Kirk J, Kanetsky PA, Mann GJ, Cust AE.

Cancer Epidemiol Biomarkers Prev. 2017 Feb;26(2):212-221. doi: 10.1158/1055-9965.EPI-16-0395. Epub 2016 Oct 4.

28.

Known unknowns: building an ethics of uncertainty into genomic medicine.

Newson AJ, Leonard SJ, Hall A, Gaff CL.

BMC Med Genomics. 2016 Sep 1;9(1):57. doi: 10.1186/s12920-016-0219-0.

29.

Do We Need Ethical Theory to Achieve Quality Critical Engagement in Clinical Ethics?

Newson AJ, McDougall R.

Am J Bioeth. 2016 Sep;16(9):43-5. doi: 10.1080/15265161.2016.1196259. No abstract available.

PMID:
27471941
30.

The need for ethics as well as evidence in evidence-based medicine.

Nicholls SG, Newson AJ, Ashcroft RE.

J Clin Epidemiol. 2016 Sep;77:7-10. doi: 10.1016/j.jclinepi.2016.05.006. Epub 2016 Jun 1. No abstract available.

PMID:
27259469
31.

Genomic Testing in The Paediatric Population: Ethical Considerations in Light of Recent Policy Statements.

Newson AJ, Schonstein L.

Mol Diagn Ther. 2016 Oct;20(5):407-14. doi: 10.1007/s40291-016-0210-7. Review.

PMID:
27251403
32.

Ethical and legal issues in mitochondrial transfer.

Newson AJ, Wilkinson S, Wrigley A.

EMBO Mol Med. 2016 Jun 1;8(6):589-91. doi: 10.15252/emmm.201606281. Print 2016 Jun. No abstract available.

33.

Regulating Risk and the Boundaries of State Conduct: A Relational Perspective on Home Birth in Australia.

Skerman JK, Newson AJ.

Am J Bioeth. 2016;16(2):19-21. doi: 10.1080/15265161.2015.1120806. No abstract available.

PMID:
26832084
34.

Compensated transnational surrogacy in Australia: time for a comprehensive review.

Newson AJ.

Med J Aust. 2016 Jan 18;204(1):33-5. Review.

PMID:
26763818
35.

Why should ethics approval be required prior to publication of health promotion research?

Newson AJ, Lipworth W.

Health Promot J Austr. 2015 Dec;26(3):170-175. doi: 10.1071/HE15034.

PMID:
26548539
36.

"What should happen before asymptomatic men decide whether or not to have a PSA test?" A report on three community juries.

Degeling C, Rychetnik L, Pickles K, Thomas R, Doust JA, Gardiner RA, Glasziou P, Newson AJ, Carter SM.

Med J Aust. 2015 Oct 19;203(8):335.

PMID:
26465698
37.

Exploring the Potential Emotional and Behavioural Impact of Providing Personalised Genomic Risk Information to the Public: A Focus Group Study.

Smit AK, Keogh LA, Newson AJ, Hersch J, Butow P, Cust AE.

Public Health Genomics. 2015;18(5):309-17. doi: 10.1159/000439246. Epub 2015 Sep 22.

PMID:
26390062
38.

Genomic intensive care: should we perform genome testing in critically ill newborns?

Wilkinson DJ, Barnett C, Savulescu J, Newson AJ.

Arch Dis Child Fetal Neonatal Ed. 2016 Mar;101(2):F94-8. doi: 10.1136/archdischild-2015-308568. Epub 2015 Sep 14. No abstract available.

39.

Public preferences for communicating personal genomic risk information: a focus group study.

Smit AK, Keogh LA, Hersch J, Newson AJ, Butow P, Williams G, Cust AE.

Health Expect. 2016 Dec;19(6):1203-1214. doi: 10.1111/hex.12406. Epub 2015 Sep 1.

40.

The value of clinical ethics support in Australian health care.

Newson AJ.

Med J Aust. 2015 Jun 15;202(11):568-9. No abstract available.

PMID:
26068679
41.

For your interest? The ethical acceptability of using non-invasive prenatal testing to test 'purely for information'.

Deans Z, Clarke AJ, Newson AJ.

Bioethics. 2015 Jan;29(1):19-25. doi: 10.1111/bioe.12125.

PMID:
25521970
42.

Australians' knowledge and perceptions of direct-to-consumer personal genome testing.

Savard J, Mooney-Somers J, Newson AJ, Kerridge I.

Intern Med J. 2014 Jan;44(1):27-31. doi: 10.1111/imj.12289.

PMID:
24450520
43.

Dynamics and ethics of comprehensive preimplantation genetic testing: a review of the challenges.

Hens K, Dondorp W, Handyside AH, Harper J, Newson AJ, Pennings G, Rehmann-Sutter C, de Wert G.

Hum Reprod Update. 2013 Jul-Aug;19(4):366-75. doi: 10.1093/humupd/dmt009. Epub 2013 Mar 6. Review.

PMID:
23466750
44.

Ethical considerations for choosing between possible models for using NIPD for aneuploidy detection.

Deans Z, Newson AJ.

J Med Ethics. 2012 Oct;38(10):614-8. Epub 2012 Jun 28.

PMID:
22745108
45.

Current ethical issues in synthetic biology: where should we go from here?

Newson AJ.

Account Res. 2011 May;18(3):181-93. doi: 10.1080/08989621.2011.575035. Review.

PMID:
21574073
46.

Should non-invasiveness change informed consent procedures for prenatal diagnosis?

Deans Z, Newson AJ.

Health Care Anal. 2011 Jun;19(2):122-32. doi: 10.1007/s10728-010-0146-8.

PMID:
20217481
47.

Personal genomics as an interactive web broadcast.

Newson AJ.

Am J Bioeth. 2009;9(6-7):27-9. doi: 10.1080/15265160902874395. No abstract available.

PMID:
19998109
48.

Depression under stress: ethical issues in genetic testing.

Newson AJ.

Br J Psychiatry. 2009 Sep;195(3):189-90. doi: 10.1192/bjp.bp.109.064337.

PMID:
19721104
49.
50.

Childhood genetic testing for familial cancer: should adoption make a difference?

Newson AJ, Leonard SJ.

Fam Cancer. 2010 Mar;9(1):37-42. doi: 10.1007/s10689-009-9262-8. Epub 2009 Jun 25.

PMID:
19554476

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