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Items: 1 to 50 of 156

1.

Facilitating the transition of young people with long-term conditions through health services from childhood to adulthood: the Transition research programme.

Colver A, Rapley T, Parr JR, McConachie H, Dovey-Pearce G, Le Couteur A, McDonagh JE, Bennett C, Hislop J, Maniatopoulos G, Mann KD, Merrick H, Pearce MS, Reape D, Vale L.

Southampton (UK): NIHR Journals Library; 2019 May.

2.

Comparing Proxy, Adolescent and Adult Assessments of Functional Ability in Adolescents with Juvenile Idiopathic Arthritis.

Shoop-Worrall SJW, Hyrich KL, Verstappen SM, Sergeant JC, Baildam E, Chieng A, Davidson J, Foster H, Ioannou Y, McErlane F, Wedderburn LR, Thomson W, McDonagh JE.

Arthritis Care Res (Hoboken). 2019 Mar 15. doi: 10.1002/acr.23877. [Epub ahead of print]

PMID:
30875458
3.

The impact of arthritis on the educational and early work experiences of young people: a qualitative secondary analysis.

Farre A, Ryan S, McNiven A, McDonagh JE.

Int J Adolesc Med Health. 2019 Mar 9. pii: /j/ijamh.ahead-of-print/ijamh-2018-0240/ijamh-2018-0240.xml. doi: 10.1515/ijamh-2018-0240. [Epub ahead of print]

PMID:
30851159
4.

Update on the epidemiology, risk factors and disease outcomes of Juvenile idiopathic arthritis.

Palman J, Shoop-Worrall S, Hyrich K, McDonagh JE.

Best Pract Res Clin Rheumatol. 2018 Apr;32(2):206-222. doi: 10.1016/j.berh.2018.10.004. Epub 2018 Nov 19. Review.

PMID:
30527427
5.

The age of adolescence…and young adulthood.

McDonagh JE; European Training Effective Care and Health Faculty.

Lancet Child Adolesc Health. 2018 Apr;2(4):e6. doi: 10.1016/S2352-4642(18)30079-8. Epub 2018 Mar 13. No abstract available.

PMID:
30169304
6.

A longitudinal, observational study of the features of transitional healthcare associated with better outcomes for young people with long-term conditions.

Colver A, McConachie H, Le Couteur A, Dovey-Pearce G, Mann KD, McDonagh JE, Pearce MS, Vale L, Merrick H, Parr JR; Transition Collaborative Group.

BMC Med. 2018 Jul 23;16(1):111. doi: 10.1186/s12916-018-1102-y.

7.

Research priority setting by young people with rheumatic musculoskeletal disease.

McDonagh JE, Lunt L, Cresswell K, Parsons S, Tattersall R; Barbara Ansell National Network for Adolescent Rheumatology BANNAR.

Arch Dis Child. 2019 Feb;104(2):204. doi: 10.1136/archdischild-2018-315735. Epub 2018 Jul 14. No abstract available.

PMID:
30007947
8.

What do young people with rheumatic conditions in the UK think about research involvement? A qualitative study.

Parsons S, Thomson W, Cresswell K, Starling B, McDonagh JE; Barbara Ansell National Network for Adolescent Rheumatology (BANNAR).

Pediatr Rheumatol Online J. 2018 May 24;16(1):35. doi: 10.1186/s12969-018-0251-z.

9.

Long-Term Outcomes Following Achievement of Clinically Inactive Disease in Juvenile Idiopathic Arthritis: The Importance of Definition.

Shoop-Worrall SJW, Verstappen SMM, McDonagh JE, Baildam E, Chieng A, Davidson J, Foster H, Ioannou Y, McErlane F, Wedderburn LR, Thomson W, Hyrich KL.

Arthritis Rheumatol. 2018 Sep;70(9):1519-1529. doi: 10.1002/art.40519. Epub 2018 Jul 22.

10.

Untimely illness: When diagnosis does not match age-related expectations.

Kirkpatrick S, Locock L, Farre A, Ryan S, Salisbury H, McDonagh JE.

Health Expect. 2018 Aug;21(4):730-740. doi: 10.1111/hex.12669. Epub 2018 Feb 9.

11.

Are we there yet? An update on transitional care in rheumatology.

McDonagh JE, Farre A.

Arthritis Res Ther. 2018 Jan 11;20(1):5. doi: 10.1186/s13075-017-1502-y.

12.

Making healthcare work for young people.

McDonagh JE, Farre A, Gleeson H, Rapley T, Dovey-Pearce G, Reape D, Rigby E, Colver AF, Parr JR; Transition Collaborative Group.

Arch Dis Child. 2018 Jun;103(6):623. doi: 10.1136/archdischild-2017-314573. Epub 2018 Jan 5. No abstract available.

13.

Transition from children's to adults' services for young people using health or social care services (NICE Guideline NG43).

Willis ER, McDonagh JE.

Arch Dis Child Educ Pract Ed. 2018 Oct;103(5):253-256. doi: 10.1136/archdischild-2017-313208. Epub 2017 Dec 21. No abstract available.

PMID:
29269436
14.

Helping Health Services to Meet the Needs of Young People with Chronic Conditions: Towards a Developmental Model for Transition.

Farre A, McDonagh JE.

Healthcare (Basel). 2017 Oct 19;5(4). pii: E77. doi: 10.3390/healthcare5040077. Review.

15.

Sleep in adolescents and young adults.

Bruce ES, Lunt L, McDonagh JE.

Clin Med (Lond). 2017 Oct;17(5):424-428. doi: 10.7861/clinmedicine.17-5-424. Review.

16.

What do young people with rheumatic disease believe to be important to research about their condition? A UK-wide study.

Parsons S, Thomson W, Cresswell K, Starling B, McDonagh JE; Barbara Ansell National Network for Adolescent Rheumatology.

Pediatr Rheumatol Online J. 2017 Jul 3;15(1):53. doi: 10.1186/s12969-017-0181-1.

17.

Experiences of employment among young people with juvenile idiopathic arthritis: a qualitative study.

Hanson H, Hart RI, Thompson B, McDonagh JE, Tattersall R, Jordan A, Foster HE.

Disabil Rehabil. 2018 Aug;40(16):1921-1928. doi: 10.1080/09638288.2017.1323018. Epub 2017 May 13.

PMID:
28503954
18.

The Role of Pharmacists in Caring for Young People With Chronic Illness.

Gray NJ, Shaw KL, Smith FJ, Burton J, Prescott J, Roberts R, Terry D, McDonagh JE.

J Adolesc Health. 2017 Feb;60(2):219-225. doi: 10.1016/j.jadohealth.2016.09.023. Epub 2016 Nov 29.

PMID:
27913114
19.

EULAR/PReS standards and recommendations for the transitional care of young people with juvenile-onset rheumatic diseases.

Foster HE, Minden K, Clemente D, Leon L, McDonagh JE, Kamphuis S, Berggren K, van Pelt P, Wouters C, Waite-Jones J, Tattersall R, Wyllie R, Stones SR, Martini A, Constantin T, Schalm S, Fidanci B, Erer B, Demirkaya E, Ozen S, Carmona L.

Ann Rheum Dis. 2017 Apr;76(4):639-646. doi: 10.1136/annrheumdis-2016-210112. Epub 2016 Nov 1. Erratum in: Ann Rheum Dis. 2018 Jun;77(6):960.

20.

"Are these adult doctors gonna know me?" Experiences of transition for young people with a liver transplant.

Wright J, Elwell L, McDonagh JE, Kelly DA, Wray J.

Pediatr Transplant. 2016 Nov;20(7):912-920. doi: 10.1111/petr.12777. Epub 2016 Aug 25.

PMID:
27558645
21.

"Sometimes I feel like a pharmacist": identity and medication use among adolescents with juvenile arthritis.

McDonagh JE, Shaw KL, Prescott J, Smith FJ, Roberts R, Gray NJ.

Pediatr Rheumatol Online J. 2016 Oct 19;14(1):57.

22.

Parents in transition: Experiences of parents of young people with a liver transplant transferring to adult services.

Wright J, Elwell L, McDonagh JE, Kelly DA, Wray J.

Pediatr Transplant. 2017 Feb;21(1). doi: 10.1111/petr.12760. Epub 2016 Jul 27.

PMID:
27460440
23.

Adding to the transitional care evidence base for future national guidance.

McDonagh JE, Farre A, Aldiss S, Biggs K, Campbell F.

BMJ. 2016 Jul 6;354:i3710. doi: 10.1136/bmj.i3710. No abstract available.

PMID:
27382967
24.

Study protocol: Determining what young people with rheumatic disease consider important to research (the Young People's Opinions Underpinning Rheumatology Research - YOURR project).

Parsons S, Dack K, Starling B, Thomson W, McDonagh JE; Barbara Ansell National Network for Adolescent Rheumatology (BANNAR).

Res Involv Engagem. 2016 Jun 11;2:22. doi: 10.1186/s40900-016-0037-8. eCollection 2016.

25.

Being as Normal as Possible: How Young People Ages 16-25 Years Evaluate the Risks and Benefits of Treatment for Inflammatory Arthritis.

Hart RI, McDonagh JE, Thompson B, Foster HE, Kay L, Myers A, Rapley T.

Arthritis Care Res (Hoboken). 2016 Sep;68(9):1288-94. doi: 10.1002/acr.22832. Epub 2016 Jul 28.

26.

Health professionals' and managers' definitions of developmentally appropriate healthcare for young people: conceptual dimensions and embedded controversies.

Farre A, Wood V, McDonagh JE, Parr JR, Reape D, Rapley T; Transition Collaborative Group.

Arch Dis Child. 2016 Jul;101(7):628-33. doi: 10.1136/archdischild-2015-309473. Epub 2016 Mar 4.

27.

Apps and Adolescents: A Systematic Review of Adolescents' Use of Mobile Phone and Tablet Apps That Support Personal Management of Their Chronic or Long-Term Physical Conditions.

Majeed-Ariss R, Baildam E, Campbell M, Chieng A, Fallon D, Hall A, McDonagh JE, Stones SR, Thomson W, Swallow V.

J Med Internet Res. 2015 Dec 23;17(12):e287. doi: 10.2196/jmir.5043. Review.

28.

The evidence base for transition is bigger than you might think.

McDonagh JE, Hackett J, McGee M, Southwood T, Shaw KL.

Arch Dis Child Educ Pract Ed. 2015 Dec;100(6):321-2. doi: 10.1136/archdischild-2015-309204. Epub 2015 Aug 26. No abstract available.

PMID:
26310957
29.

Informational continuity is integral for successful transition of adolescents to adult care.

Chanchlani N, McGee M, McDonagh JE.

J Rheumatol. 2015 May;42(5):901-2. doi: 10.3899/jrheum.141364. No abstract available.

PMID:
25934880
30.

Blogging as a viable research methodology for young people with arthritis: a qualitative study.

Prescott J, Gray NJ, Smith FJ, McDonagh JE.

J Med Internet Res. 2015 Mar 5;17(3):e61. doi: 10.2196/jmir.3608.

31.

'It's hard but you've just gotta get on with it'--The experiences of growing-up with a liver transplant.

Wright J, Elwell L, McDonagh JE, Kelly DA, Wray J.

Psychol Health. 2015;30(10):1129-45. doi: 10.1080/08870446.2015.1024245. Epub 2015 Mar 25.

PMID:
25727924
32.

Young people's decisions about biologic therapies: who influences them and how?

Hart RI, Foster HE, McDonagh JE, Thompson B, Kay L, Myers A, Rapley T.

Rheumatology (Oxford). 2015 Jul;54(7):1294-301. doi: 10.1093/rheumatology/keu523. Epub 2015 Feb 5.

33.

Developmentally appropriate healthcare for young people: a scoping study.

Farre A, Wood V, Rapley T, Parr JR, Reape D, McDonagh JE.

Arch Dis Child. 2015 Feb;100(2):144-51. doi: 10.1136/archdischild-2014-306749. Epub 2014 Sep 26. Review.

34.

Mucocutaneous manifestations in a UK national cohort of juvenile-onset systemic lupus erythematosus patients.

Chiewchengchol D, Murphy R, Morgan T, Edwards SW, Leone V, Friswell M, Pilkington C, Tullus K, Rangaraj S, McDonagh JE, Gardner-Medwin J, Wilkinson N, Riley P, Tizard J, Armon K, Sinha MD, Ioannou Y, Mann R, Bailey K, Davidson J, Baildam EM, Pain CE, Cleary G, McCann LJ, Beresford MW; UK JSLE Study Group.

Rheumatology (Oxford). 2014 Aug;53(8):1504-12. doi: 10.1093/rheumatology/keu137. Epub 2014 Mar 31.

PMID:
24692572
35.

Walking the talk. Implementation of transitional care guidance in a UK paediatric and a neighbouring adult facility.

Shaw KL, Watanabe A, Rankin E, McDonagh JE.

Child Care Health Dev. 2014 Sep;40(5):663-70. doi: 10.1111/cch.12110. Epub 2013 Oct 21.

PMID:
24148012
36.

Has the gap been bridged yet? Young people in paediatric and adult rheumatology.

McDonagh JE.

Rheumatology (Oxford). 2013 Aug;52(8):1349-51. doi: 10.1093/rheumatology/kes407. Epub 2013 Jan 25. No abstract available.

PMID:
23353646
37.

Validation of You're Welcome quality criteria for adolescent health services using data from national inpatient surveys in England.

Hargreaves DS, McDonagh JE, Viner RM.

J Adolesc Health. 2013 Jan;52(1):50-57.e1. doi: 10.1016/j.jadohealth.2012.04.005. Epub 2012 Jun 7.

PMID:
23260834
38.

Growing up: the role of the Royal College of Physicians.

McDonagh JE, Robinson AJ.

Clin Med (Lond). 2012 Jun;12(3):197-9. No abstract available.

39.

Adolescent rheumatology transition care in the UK.

McDonagh JE, Shaw KL.

Pediatr Ann. 2012 May;41(5):e8-15. doi: 10.3928/00904481-20120426-15. Review. No abstract available.

PMID:
22587509
40.

Disease activity, severity, and damage in the UK Juvenile-Onset Systemic Lupus Erythematosus Cohort.

Watson L, Leone V, Pilkington C, Tullus K, Rangaraj S, McDonagh JE, Gardner-Medwin J, Wilkinson N, Riley P, Tizard J, Armon K, Sinha MD, Ioannou Y, Archer N, Bailey K, Davidson J, Baildam EM, Cleary G, McCann LJ, Beresford MW; UK Juvenile-Onset Systemic Lupus Erythematosus Study Group.

Arthritis Rheum. 2012 Jul;64(7):2356-65. doi: 10.1002/art.34410.

41.

'Nothing about us without us': considerations for research involving young people.

McDonagh JE, Bateman B.

Arch Dis Child Educ Pract Ed. 2012 Apr;97(2):55-60. doi: 10.1136/adc.2010.197947. Epub 2011 Jul 29.

PMID:
21803922
42.

The challenges and opportunities for transitional care research.

McDonagh JE, Kelly DA.

Pediatr Transplant. 2010 Sep 1;14(6):688-700. doi: 10.1111/j.1399-3046.2010.01343.x. Epub 2010 Jun 17. Review.

PMID:
20557475
43.

Transition: a rheumatology perspective.

Tattersall R, McDonagh JE.

Br J Hosp Med (Lond). 2010 Jun;71(6):315-9. Review.

PMID:
20551869
44.

Health care transition counseling for youth with arthritis: comment on the article by Scal et al.

McDonagh JE, Shaw KL.

Arthritis Rheum. 2009 Aug 15;61(8):1140-1. doi: 10.1002/art.24640. No abstract available.

45.

Transition from pediatric to adult care after solid organ transplantation.

McDonagh JE, Kaufman M.

Curr Opin Organ Transplant. 2009 Oct;14(5):526-32. doi: 10.1097/MOT.0b013e32832ffb2a. Review.

PMID:
19617823
46.

Let's talk about sex!

Bidwell C, Bolt I, McDonagh JE.

J Rheumatol. 2009 Jun;36(6):1345; author reply 1345-6. doi: 10.3899/jrheum080956. No abstract available.

PMID:
19509092
47.

The challenging adolescent.

McDonagh JE, Kaufman M.

Rheumatology (Oxford). 2009 Aug;48(8):872-5. doi: 10.1093/rheumatology/kep133. Epub 2009 May 28. Review.

PMID:
19478040
48.

Pertinence of cardiovascular disease risk awareness in adolescent patients with systemic lupus erythematosus: comment on the article by Scalzi et al.

Bidwell C, Bolt I, McDonagh JE.

Arthritis Rheum. 2008 Dec;58(12):3971-2; author reply 3972. doi: 10.1002/art.24124. No abstract available.

49.

Interrelationship of self-management and transitional care needs of adolescents with arthritis: comment on the article by Stinson et al.

McDonagh JE, Hackett J.

Arthritis Rheum. 2008 Aug 15;59(8):1199-200; author reply 1200-1. doi: 10.1002/art.23921. No abstract available.

50.

Young people first, juvenile idiopathic arthritis second: transitional care in rheumatology.

McDonagh JE.

Arthritis Rheum. 2008 Aug 15;59(8):1162-70. doi: 10.1002/art.23928. Review. No abstract available.

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