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Long-term Health Related Quality of Life in Pediatric Brain Tumor Survivors Treated with Proton Radiotherapy at <4 Years of Age.

Eaton BR, Goldberg S, Tarbell NJ, Lawell MP, Gallotto SL, Weyman EA, Kuhlthau KA, Ebb DH, MacDonald SM, Yock TI.

Neuro Oncol. 2020 Feb 17. pii: noaa042. doi: 10.1093/neuonc/noaa042. [Epub ahead of print]


Health System Research Priorities for Children and Youth With Special Health Care Needs.

Coller RJ, Berry JG, Kuo DZ, Kuhlthau K, Chung PJ, Perrin JM, Hoover CG, Warner G, Shelton C, Thompson LR, Garrity B, Stille CJ.

Pediatrics. 2020 Feb 5. pii: e20190673. doi: 10.1542/peds.2019-0673. [Epub ahead of print]


A Virtual Resiliency Intervention Promoting Resiliency for Parents of Children with Learning and Attentional Disabilities: A Randomized Pilot Trial.

Park ER, Perez GK, Millstein RA, Luberto CM, Traeger L, Proszynski J, Chad-Friedman E, Kuhlthau KA.

Matern Child Health J. 2020 Jan;24(1):39-53. doi: 10.1007/s10995-019-02815-3.


ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder.

Mazurek MO, Stobbe G, Loftin R, Malow BA, Agrawal MM, Tapia M, Hess A, Farmer J, Cheak-Zamora N, Kuhlthau K, Sohl K.

Autism. 2019 Oct 3:1362361319879616. doi: 10.1177/1362361319879616. [Epub ahead of print]


Assessment of Walking Routes as a Possible Approach for Promoting Physical Activity in Children with Autism Spectrum Disorder: Brief Report.

Oreskovic NM, Neumeyer AM, Duggan MP, Kuhlthau KA.

Dev Neurorehabil. 2020 Jan;23(1):59-63. doi: 10.1080/17518423.2019.1646343. Epub 2019 Jul 25.


Hospital Readmission of Adolescents and Young Adults With Complex Chronic Disease.

Dunbar P, Hall M, Gay JC, Hoover C, Markham JL, Bettenhausen JL, Perrin JM, Kuhlthau KA, Crossman M, Garrity B, Berry JG.

JAMA Netw Open. 2019 Jul 3;2(7):e197613. doi: 10.1001/jamanetworkopen.2019.7613.


Transforming an Autism Pediatric Research Network into a Learning Health System: Lessons Learned.

Murray DS, S Anixt J, Coury DL, Kuhlthau KA, Seide J, Kelly A, Fedele A, Eskra D, Lannon C.

Pediatr Qual Saf. 2019 Apr 2;4(2):e152. doi: 10.1097/pq9.0000000000000152. eCollection 2019 Mar-Apr.


A Virtual Resiliency Intervention for Parents of Children with Autism: A Randomized Pilot Trial.

Kuhlthau KA, Luberto CM, Traeger L, Millstein RA, Perez GK, Lindly OJ, Chad-Friedman E, Proszynski J, Park ER.

J Autism Dev Disord. 2019 Mar 21. doi: 10.1007/s10803-019-03976-4. [Epub ahead of print]


Parent Preferences for Health Outcomes Associated with Autism Spectrum Disorders.

Lavelle TA, Weinstein MC, Newhouse JP, Munir K, Kuhlthau KA, Prosser LA.

Pharmacoeconomics. 2019 Apr;37(4):541-551. doi: 10.1007/s40273-019-00783-8.


Measuring Health Spillover Effects in Caregivers of Children with Autism Spectrum Disorder: A Comparison of the EQ-5D-3L and SF-6D.

Brown CC, Tilford JM, Payakachat N, Williams DK, Kuhlthau KA, Pyne JM, Hoefman RJ, Brouwer WBF.

Pharmacoeconomics. 2019 Apr;37(4):609-620. doi: 10.1007/s40273-019-00789-2.


Healthcare access and services use among US children with autism spectrum disorder.

Lindly OJ, Zuckerman KE, Kuhlthau KA.

Autism. 2019 Aug;23(6):1419-1430. doi: 10.1177/1362361318815237. Epub 2018 Nov 29.


The Prevalence of Parent-Reported Autism Spectrum Disorder Among US Children.

Kogan MD, Vladutiu CJ, Schieve LA, Ghandour RM, Blumberg SJ, Zablotsky B, Perrin JM, Shattuck P, Kuhlthau KA, Harwood RL, Lu MC.

Pediatrics. 2018 Dec;142(6). pii: e20174161. doi: 10.1542/peds.2017-4161.


Sex differences in restricted repetitive behaviors and interests in children with autism spectrum disorder: An Autism Treatment Network study.

Knutsen J, Crossman M, Perrin J, Shui A, Kuhlthau K.

Autism. 2019 May;23(4):858-868. doi: 10.1177/1362361318786490. Epub 2018 Jul 26.


Expanding the Capacity of Primary Care to Treat Co-morbidities in Children with Autism Spectrum Disorder.

Van Cleave J, Holifield C, Neumeyer AM, Perrin JM, Powers E, Van L, Kuhlthau KA.

J Autism Dev Disord. 2018 Dec;48(12):4222-4230. doi: 10.1007/s10803-018-3630-x.


Insurance, chronic health conditions, and utilization of primary and specialty outpatient services: a Childhood Cancer Survivor Study report.

Mueller EL, Park ER, Kirchhoff AC, Kuhlthau K, Nathan PC, Perez GK, Rabin J, Hutchinson R, Oeffinger KC, Robison LL, Armstrong GT, Leisenring WM, Donelan K.

J Cancer Surviv. 2018 Oct;12(5):639-646. doi: 10.1007/s11764-018-0700-1. Epub 2018 Jun 25.


Care Quality and Spending Among Commercially Insured Children With Disabilities.

Chien AT, Toomey SL, Kuo DZ, Van Cleave J, Houtrow AJ, Okumura MJ, Westfall MY, Petty CR, Quinn JA, Kuhlthau KA, Schuster MA.

Acad Pediatr. 2019 Apr;19(3):291-299. doi: 10.1016/j.acap.2018.06.004. Epub 2018 Jun 19.


Quality of life in patients with proton-treated pediatric medulloblastoma: Results of a prospective assessment with 5-year follow-up.

Kamran SC, Goldberg SI, Kuhlthau KA, Lawell MP, Weyman EA, Gallotto SL, Hess CB, Huang MS, Friedmann AM, Abrams AN, MacDonald SM, Pulsifer MB, Tarbell NJ, Ebb DH, Yock TI.

Cancer. 2018 Aug;124(16):3390-3400. doi: 10.1002/cncr.31575. Epub 2018 Jun 15.


Mental health insurance access and utilization among childhood cancer survivors: a report from the childhood cancer survivor study.

Perez GK, Kirchhoff AC, Recklitis C, Krull KR, Kuhlthau KA, Nathan PC, Rabin J, Armstrong GT, Leisenring W, Robison LL, Park ER.

J Cancer Surviv. 2018 Aug;12(4):528-536. doi: 10.1007/s11764-018-0691-y. Epub 2018 Apr 15.


Patterns in Health Care Access and Affordability Among Cancer Survivors During Implementation of the Affordable Care Act.

Nipp RD, Shui AM, Perez GK, Kirchhoff AC, Peppercorn JM, Moy B, Kuhlthau K, Park ER.

JAMA Oncol. 2018 Jun 1;4(6):791-797. doi: 10.1001/jamaoncol.2018.0097.


Views of teenage children about the effects of a Parent's mobility disability.

Iezzoni LI, Wint AJ, Boudreau AA, Blauwet CA, Kuhlthau KA.

Disabil Health J. 2018 Jul;11(3):405-411. doi: 10.1016/j.dhjo.2017.12.008. Epub 2017 Dec 29.


Rationale and design of the Clinic and Community Approaches to Healthy Weight Randomized Trial.

Fiechtner L, Perkins M, Biggs V, Langhans N, Sharifi M, O'Connor G, Price S, Locascio J, Kuhlthau K, Kwass JA, Nelson C, Land T, Longjohn M, Lawson V, Hohman K, Taveras EM.

Contemp Clin Trials. 2018 Apr;67:16-22. doi: 10.1016/j.cct.2018.01.002. Epub 2018 Jan 10.


Large Databases for Pediatric Research on Children with Autism Spectrum Disorder.

Kuhlthau KA, Bailey LC, Baer BL, Coury DL, Law JK, Murray DS, Razzaghi H, Forrest CB, Lipkin PH.

J Dev Behav Pediatr. 2018 Feb/Mar;39(2):168-176. doi: 10.1097/DBP.0000000000000534.


Executive functioning, academic skills, and quality of life in pediatric patients with brain tumors post-proton radiation therapy.

Ventura LM, Grieco JA, Evans CL, Kuhlthau KA, MacDonald SM, Tarbell NJ, Yock TI, Pulsifer MB.

J Neurooncol. 2018 Mar;137(1):119-126. doi: 10.1007/s11060-017-2703-6. Epub 2017 Dec 6.


"Job Lock" Among Long-term Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study.

Kirchhoff AC, Nipp R, Warner EL, Kuhlthau K, Leisenring WM, Donelan K, Rabin J, Perez GK, Oeffinger KC, Nathan PC, Robison LL, Armstrong GT, Park ER.

JAMA Oncol. 2018 May 1;4(5):707-711. doi: 10.1001/jamaoncol.2017.3372.


Beliefs Regarding Development and Early Intervention Among Low-Income African American and Hispanic Mothers.

Magnusson DM, Minkovitz CS, Kuhlthau KA, Caballero TM, Mistry KB.

Pediatrics. 2017 Nov;140(5). pii: e20172059. doi: 10.1542/peds.2017-2059. Epub 2017 Oct 16.


Parent-Reported Use of Interventions by Toddlers and Preschoolers With Autism Spectrum Disorder.

Payakachat N, Tilford JM, Kuhlthau KA.

Psychiatr Serv. 2018 Feb 1;69(2):186-194. doi: 10.1176/ Epub 2017 Oct 16.


Assessing Health Insurance Coverage Characteristics and Impact on Health Care Cost, Worry, and Access: A Report From the Childhood Cancer Survivor Study.

Park ER, Kirchhoff AC, Nipp RD, Donelan K, Leisenring WM, Armstrong GT, Kuhlthau KA.

JAMA Intern Med. 2017 Dec 1;177(12):1855-1858. doi: 10.1001/jamainternmed.2017.5047. No abstract available.


A School-Based Dental Program Evaluation: Comparison to the Massachusetts Statewide Survey.

Culler CS, Kotelchuck M, Declercq E, Kuhlthau K, Jones K, Yoder KM.

J Sch Health. 2017 Oct;87(10):784-789. doi: 10.1111/josh.12553.


Financial Burden in Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study.

Nipp RD, Kirchhoff AC, Fair D, Rabin J, Hyland KA, Kuhlthau K, Perez GK, Robison LL, Armstrong GT, Nathan PC, Oeffinger KC, Leisenring WM, Park ER.

J Clin Oncol. 2017 Oct 20;35(30):3474-3481. doi: 10.1200/JCO.2016.71.7066. Epub 2017 Aug 17.


Impact of Pediatric Intensive Care Unit Admission on Family Financial Status and Productivity: A Pilot Study.

Clark ME, Cummings BM, Kuhlthau K, Frassica N, Noviski N.

J Intensive Care Med. 2017 Jan 1:885066617723278. doi: 10.1177/0885066617723278. [Epub ahead of print]


Associations of quality of life with health-related characteristics among children with autism.

Kuhlthau KA, McDonnell E, Coury DL, Payakachat N, Macklin E.

Autism. 2018 Oct;22(7):804-813. doi: 10.1177/1362361317704420. Epub 2017 Jul 9.


Analysis of patient outcomes following proton radiation therapy for retinoblastoma.

Mouw KW, Yeap BY, Caruso P, Fay A, Misra M, Sethi RV, MacDonald SM, Chen YL, Tarbell NJ, Yock TI, Freitag SK, Munzenrider JE, Grabowski E, Katz M, Kuhlthau K, DeCastro D, Heidary G, Ciralsky J, Mukai S, Shih HA.

Adv Radiat Oncol. 2017 Jan-Mar;2(1):44-52. doi: 10.1016/j.adro.2016.11.002.


Parent-Reported Severity and Health/Educational Services Use Among US Children with Autism: Results from a National Survey.

Zuckerman KE, Friedman NDB, Chavez AE, Shui AM, Kuhlthau KA.

J Dev Behav Pediatr. 2017 May;38(4):260-268. doi: 10.1097/DBP.0000000000000437.


Quality of Primary Care for Children With Disabilities Enrolled in Medicaid.

Chien AT, Kuhlthau KA, Toomey SL, Quinn JA, Okumura MJ, Kuo DZ, Houtrow AJ, Van Cleave J, Landrum MB, Jang J, Janmey I, Furdyna MJ, Schuster MA.

Acad Pediatr. 2017 May - Jun;17(4):443-449. doi: 10.1016/j.acap.2016.10.015. Epub 2017 Mar 9.


Health insurance coverage, care accessibility and affordability for adult survivors of childhood cancer: a cross-sectional study of a nationally representative database.

Kuhlthau KA, Nipp RD, Shui A, Srichankij S, Kirchhoff AC, Galbraith AA, Park ER.

J Cancer Surviv. 2016 Dec;10(6):964-971. Epub 2016 Apr 12.


The Autism Intervention Research Network on Physical Health and the Autism Speaks Autism Treatment Network.

Perrin JM, Coury DL, Klatka K, Winklosky B, Wolfe A, Murray D, Kuhlthau KA.

Pediatrics. 2016 Feb;137 Suppl 2:S67-71. doi: 10.1542/peds.2015-2851D. No abstract available.


A Pilot Study of Autism-Specific Care Plans During Hospital Admission.

Broder-Fingert S, Shui A, Ferrone C, Iannuzzi D, Cheng ER, Giauque A, Connors S, McDougle CJ, Donelan K, Neumeyer A, Kuhlthau K.

Pediatrics. 2016 Feb;137 Suppl 2:S196-204. doi: 10.1542/peds.2015-2851R.


Health Care Transition Services for Youth With Autism Spectrum Disorders: Perspectives of Caregivers.

Kuhlthau KA, Delahaye J, Erickson-Warfield M, Shui A, Crossman M, van der Weerd E.

Pediatrics. 2016 Feb;137 Suppl 2:S158-66. doi: 10.1542/peds.2015-2851N.


Adults' recollections and perceptions of childhood caregiving to a parent with significant physical disability.

Iezzoni LI, Wint AJ, Kuhlthau KA, Boudreau AA.

Disabil Health J. 2016 Apr;9(2):208-17. doi: 10.1016/j.dhjo.2015.10.009. Epub 2015 Dec 1.


Development of the Children With Disabilities Algorithm.

Chien AT, Kuhlthau KA, Toomey SL, Quinn JA, Houtrow AJ, Kuo DZ, Okumura MJ, Van Cleave JM, Johnson CK, Mahoney LL, Martin J, Landrum MB, Schuster MA.

Pediatrics. 2015 Oct;136(4):e871-8. doi: 10.1542/peds.2015-0228.


Impact of employee benefits on families with children with autism spectrum disorders.

Gnanasekaran S, Choueiri R, Neumeyer A, Ajari O, Shui A, Kuhlthau K.

Autism. 2016 Jul;20(5):616-22. doi: 10.1177/1362361315598891. Epub 2015 Sep 4.


Early Cognitive Outcomes Following Proton Radiation in Pediatric Patients With Brain and Central Nervous System Tumors.

Pulsifer MB, Sethi RV, Kuhlthau KA, MacDonald SM, Tarbell NJ, Yock TI.

Int J Radiat Oncol Biol Phys. 2015 Oct 1;93(2):400-7. doi: 10.1016/j.ijrobp.2015.06.012. Epub 2015 Jun 14.


Examining Trends and Coexisting Conditions Among Children Qualifying for SSI Under ADHD, ASD, and ID.

Pulcini CD, Perrin JM, Houtrow AJ, Sargent J, Shui A, Kuhlthau K.

Acad Pediatr. 2015 Jul-Aug;15(4):439-43. doi: 10.1016/j.acap.2015.05.002.


Treatment for Sleep Problems in Children with Autism and Caregiver Spillover Effects.

Tilford JM, Payakachat N, Kuhlthau KA, Pyne JM, Kovacs E, Bellando J, Williams DK, Brouwer WB, Frye RE.

J Autism Dev Disord. 2015 Nov;45(11):3613-23. doi: 10.1007/s10803-015-2507-5.


Patient-Centered Medical Home and Family Burden in Attention-Deficit Hyperactivity Disorder.

Ronis SD, Baldwin CD, Blumkin A, Kuhlthau K, Szilagyi PG.

J Dev Behav Pediatr. 2015 Jul-Aug;36(6):417-25. doi: 10.1097/DBP.0000000000000161.


Care coordination over time in medical homes for children with special health care needs.

Van Cleave J, Boudreau AA, McAllister J, Cooley WC, Maxwell A, Kuhlthau K.

Pediatrics. 2015 Jun;135(6):1018-26. doi: 10.1542/peds.2014-1067. Epub 2015 May 11.


Supplemental security income and social security disability insurance coverage among long-term childhood cancer survivors.

Kirchhoff AC, Parsons HM, Kuhlthau KA, Leisenring W, Donelan K, Warner EL, Armstrong GT, Robison LL, Oeffinger KC, Park ER.

J Natl Cancer Inst. 2015 Mar 13;107(6):djv057. doi: 10.1093/jnci/djv057. Print 2015 Jun.


Physician Perspectives on Providing Primary Medical Care to Adults with Autism Spectrum Disorders (ASD).

Warfield ME, Crossman MK, Delahaye J, Der Weerd E, Kuhlthau KA.

J Autism Dev Disord. 2015 Jul;45(7):2209-17. doi: 10.1007/s10803-015-2386-9.


Childhood Cancer Survivor Study participants' perceptions and understanding of the Affordable Care Act.

Park ER, Kirchhoff AC, Perez GK, Leisenring W, Weissman JS, Donelan K, Mertens AC, Reschovsky JD, Armstrong GT, Robison LL, Franklin M, Hyland KA, Diller LR, Recklitis CJ, Kuhlthau KA.

J Clin Oncol. 2015 Mar 1;33(7):764-72. doi: 10.1200/JCO.2014.58.0993. Epub 2015 Feb 2.


Health-Related Quality of Life of Adolescent and Young Adult Survivors of Central Nervous System Tumors: Identifying Domains From a Survivor Perspective.

Kuhlthau K, Luff D, Delahaye J, Wong A, Yock T, Huang M, Park ER.

J Pediatr Oncol Nurs. 2015 Nov-Dec;32(6):385-93. doi: 10.1177/1043454214563752. Epub 2015 Jan 23.


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