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Items: 21

1.

Improving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines.

Burke W, Clayton EW, Wolf SM, Berry SA, Evans BJ, Evans JP, Hall R, Korngiebel D, Laberge AM, LeRoy BS, McGuire AL.

Genet Med. 2019 Nov;21(11):2431-2438. doi: 10.1038/s41436-019-0549-3. Epub 2019 Jun 4. Review.

PMID:
31160753
2.

Practice Implications of Expanded Genetic Testing in Oncology.

Korngiebel DM, Zech JM, Chappelle A, Burke W, Carline JD, Gallagher TH, Fullerton SM.

Cancer Invest. 2019;37(1):39-45. doi: 10.1080/07357907.2018.1564926. Epub 2019 Jan 24.

PMID:
30676118
3.

Clinician-Stakeholders' Perspectives on Using Patient Portals to Return Lynch Syndrome Screening Results.

Korngiebel DM, West KM, Burke W.

J Genet Couns. 2018 Apr;27(2):349-357. doi: 10.1007/s10897-017-0179-3. Epub 2017 Nov 21.

4.

Research on Medical Practices: Why Patients Consider Participating and the Investigational Misconception.

Kraft SA, Porter KM, Korngiebel DM, James C, Constantine M, Kelley M, Capron AM, Diekema D, Lee SS, Cho MK, Magnus D, Wilfond BS.

IRB. 2017 Jul-Aug;39(4):10-16.

PMID:
30387977
5.

Identifying "ownership" through role descriptions to support implementing universal colorectal cancer tumor screening for Lynch syndrome.

West KM, Burke W, Korngiebel DM.

Genet Med. 2017 Nov;19(11):1236-1244. doi: 10.1038/gim.2017.39. Epub 2017 May 4.

6.

Research on Medical Practices (ROMP): Attitudes of IRB Personnel about Randomization and Informed Consent.

Porter KM, Cho MK, Kraft SA, Korngiebel DM, Constantine M, Lee SS, Kelley M, James C, Kuwana E, Meyer A, Diekema D, Capron AM, Magnus D, Wilfond BS.

IRB. 2017 Jan-Feb;39(1):10-6. No abstract available.

PMID:
30146866
7.

Implementing Precision Medicine: The Ethical Challenges.

Korngiebel DM, Thummel KE, Burke W.

Trends Pharmacol Sci. 2017 Jan;38(1):8-14. doi: 10.1016/j.tips.2016.11.007. Epub 2016 Dec 7. Review.

8.

Patient safety in genomic medicine: an exploratory study.

Korngiebel DM, Fullerton SM, Burke W.

Genet Med. 2016 Nov;18(11):1136-1142. doi: 10.1038/gim.2016.16. Epub 2016 Mar 24.

9.

Participants' Role Expectations in Genetics Research and Re-consent: Revising the Theory and Methods of Mental Models Research Relating to Roles.

Condit CM, Shen L, Edwards KL, Bowen DJ, Korngiebel DM, Johnson CO.

J Health Commun. 2016;21(sup2):16-24. Epub 2016 Sep 21.

PMID:
27653592
10.

A comparison of institutional review board professionals' and patients' views on consent for research on medical practices.

Kraft SA, Cho MK, Constantine M, Lee SS, Kelley M, Korngiebel D, James C, Kuwana E, Meyer A, Porter K, Diekema D, Capron AM, Alicic R, Wilfond BS, Magnus D.

Clin Trials. 2016 Oct;13(5):555-65. doi: 10.1177/1740774516648907. Epub 2016 Jun 1.

11.

Generating a taxonomy for genetic conditions relevant to reproductive planning.

Korngiebel DM, McMullen CK, Amendola LM, Berg JS, Davis JV, Gilmore MJ, Harding CO, Himes P, Jarvik GP, Kauffman TL, Kennedy KA, Simpson DK, Leo MC, Lynch FL, Quigley DI, Reiss JA, Richards CS, Rope AF, Schneider JL, Goddard KA, Wilfond BS.

Am J Med Genet A. 2016 Mar;170(3):565-73. doi: 10.1002/ajmg.a.37513.

12.

The Role of Patient Perspectives in Clinical Research Ethics and Policy: Response to Open Peer Commentaries on "Patient Perspectives on the Learning Health System".

Kelley M, James C, Alessi Kraft S, Korngiebel D, Wijangco I, Joffe S, Cho MK, Wilfond B, Lee SS.

Am J Bioeth. 2016;16(2):W7-9. doi: 10.1080/15265161.2015.1125967. No abstract available.

13.

Participant views on consent in cancer genetics research: preparing for the precision medicine era.

Edwards KL, Korngiebel DM, Pfeifer L, Goodman D, Renz A, Wenzel L, Bowen DJ, Condit CM.

J Community Genet. 2016 Apr;7(2):133-43. doi: 10.1007/s12687-015-0259-8. Epub 2016 Jan 22.

14.

What Should Be the Character of the Researcher- Participant Relationship? Views of Participants in a Long-standing Cancer Genetic Registry.

Condit CM, Korngiebel DM, Pfeifer L, Renz AD, Bowen DJ, Kaufman D, Kollar LM, Edwards KL.

IRB. 2015 Jul-Aug;37(4):1-10. No abstract available.

PMID:
26331187
15.

Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making.

Kelley M, James C, Alessi Kraft S, Korngiebel D, Wijangco I, Rosenthal E, Joffe S, Cho MK, Wilfond B, Lee SS.

Am J Bioeth. 2015;15(9):4-17. doi: 10.1080/15265161.2015.1062163.

16.

Addressing the Challenges of Research With Small Populations.

Korngiebel DM, Taualii M, Forquera R, Harris R, Buchwald D.

Am J Public Health. 2015 Sep;105(9):1744-7. doi: 10.2105/AJPH.2015.302783. Epub 2015 Jul 16.

17.

Attitudes Toward Risk and Informed Consent for Research on Medical Practices: A Cross-sectional Survey.

Cho MK, Magnus D, Constantine M, Lee SS, Kelley M, Alessi S, Korngiebel D, James C, Kuwana E, Gallagher TH, Diekema D, Capron AM, Joffe S, Wilfond BS.

Ann Intern Med. 2015 May 19;162(10):690-6. doi: 10.7326/M15-0166.

18.

Closing the gap between knowledge and clinical application: challenges for genomic translation.

Burke W, Korngiebel DM.

PLoS Genet. 2015 Feb 26;11(2):e1004978. doi: 10.1371/journal.pgen.1004978. eCollection 2015. Review.

19.

Developing Governance for Federated Community-based EHR Data Sharing.

Lin CP, Stephens KA, Baldwin LM, Keppel GA, Whitener RJ, Echo-Hawk A, Korngiebel D.

AMIA Jt Summits Transl Sci Proc. 2014 Apr 7;2014:71-6. eCollection 2014.

20.

Barriers and facilitators to evidence-based blood pressure control in community practice.

Robins LS, Jackson JE, Green BB, Korngiebel D, Force RW, Baldwin LM.

J Am Board Fam Med. 2013 Sep-Oct;26(5):539-57. doi: 10.3122/jabfm.2013.05.130060.

21.

LC Data QUEST: A Technical Architecture for Community Federated Clinical Data Sharing.

Stephens KA, Lin CP, Baldwin LM, Echo-Hawk A, Keppel GA, Buchwald D, Whitener RJ, Korngiebel DM, Berg AO, Black RA, Tarczy-Hornoch P.

AMIA Jt Summits Transl Sci Proc. 2012;2012:57-62. Epub 2012 Mar 19.

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