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Items: 1 to 50 of 107

1.

Participant Engagement in Translational Genomics Research: Respect for Persons-and Then Some.

Childerhose JE, Finnila CR, Yu JH, Koenig BA, McEwen J, Berg SL, Wilfond BS, Appelbaum PS, Brothers KB.

Ethics Hum Res. 2019 Sep;41(5):2-15. doi: 10.1002/eahr.500029.

PMID:
31541538
2.

Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium.

Yu JH, Appelbaum PS, Brothers KB, Joffe S, Kauffman TL, Koenig BA, Prince AE, Scollon S, Wolf SM, Bernhardt BA, Wilfond BS; Clinical Sequencing Exploratory Research (CSER) Consortium Informed Consent and Governance Working Group.

Per Med. 2019 Jul;16(4):325-333. doi: 10.2217/pme-2018-0076. Epub 2019 Jul 17.

PMID:
31313633
3.

Hospital and Health System Policies Concerning the California End of Life Option Act.

Cain CL, Koenig BA, Starks H, Thomas J, Forbes L, McCleskey S, Wenger NS.

J Palliat Med. 2019 Jul 12. doi: 10.1089/jpm.2019.0169. [Epub ahead of print]

PMID:
31298605
4.

The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research.

Horowitz CR, Orlando LA, Slavotinek AM, Peterson J, Angelo F, Biesecker B, Bonham VL, Cameron LD, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hindorff LA, Jarvik GP, Kaufman D, Kenny EE, Knight SJ, Koenig BA, Korf BR, Madden E, McGuire AL, Ou J, Wasserstein MP, Robinson M, Leventhal H, Sanderson SC.

Am J Hum Genet. 2019 Jun 6;104(6):1088-1096. doi: 10.1016/j.ajhg.2019.04.006. Epub 2019 May 16.

PMID:
31104772
5.

A Multicenter Comparison of Complementary and Alternative Medicine (CAM) Discussions in Oncology Care: The Role of Time, Patient-Centeredness, and Practice Context.

Tilburt J, Yost KJ, Lenz HJ, Zúñiga ML, O'Byrne T, Branda ME, Leppin AL, Kimball B, Fernandez C, Jatoi A, Barwise A, Kumbamu A, Montori V, Koenig BA, Geller G, Larson S, Roter DL.

Oncologist. 2019 May 17. pii: theoncologist.2019-0093. doi: 10.1634/theoncologist.2019-0093. [Epub ahead of print]

PMID:
31101701
6.

The Role of Participants in a Medical Information Commons.

Majumder MA, Bollinger JM, Villanueva AG, Deverka PA, Koenig BA.

J Law Med Ethics. 2019 Mar;47(1):51-61. doi: 10.1177/1073110519840484.

7.

Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.

Deverka PA, Gilmore D, Richmond J, Smith Z, Mangrum R, Koenig BA, Cook-Deegan R, Villanueva AG, Majumder MA, McGuire AL.

J Law Med Ethics. 2019 Mar;47(1):70-87. doi: 10.1177/1073110519840486.

8.

Characterizing the Biomedical Data-Sharing Landscape.

Villanueva AG, Cook-Deegan R, Koenig BA, Deverka PA, Versalovic E, McGuire AL, Majumder MA.

J Law Med Ethics. 2019 Mar;47(1):21-30. doi: 10.1177/1073110519840481.

9.

Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.

McGuire AL, Majumder MA, Villanueva AG, Bardill J, Bollinger JM, Boerwinkle E, Bubela T, Deverka PA, Evans BJ, Garrison NA, Glazer D, Goldstein MM, Greely HT, Kahn SD, Knoppers BM, Koenig BA, Lambright JM, Mattison JE, O'Donnell C, Rai AK, Rodriguez LL, Simoncelli T, Terry SF, Thorogood AM, Watson MS, Wilbanks JT, Cook-Deegan R.

J Law Med Ethics. 2019 Mar;47(1):12-20. doi: 10.1177/1073110519840480.

10.

Hospital Responses to the End of Life Option Act: Implementation of Aid in Dying in California.

Cain CL, Koenig BA, Starks H, Thomas J, Forbes L, McCleskey S, Wenger NS.

JAMA Intern Med. 2019 Jul 1;179(7):985-987. doi: 10.1001/jamainternmed.2018.8690. No abstract available.

PMID:
30958507
11.

Rethinking the "open future" argument against predictive genetic testing of children.

Garrett JR, Lantos JD, Biesecker LG, Childerhose JE, Chung WK, Holm IA, Koenig BA, McEwen JE, Wilfond BS, Brothers K; Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group.

Genet Med. 2019 Oct;21(10):2190-2198. doi: 10.1038/s41436-019-0483-4. Epub 2019 Mar 21.

12.

Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences.

Gordon DR, Radecki Breitkopf C, Robinson M, Petersen WO, Egginton JS, Chaffee KG, Petersen GM, Wolf SM, Koenig BA.

AJOB Empir Bioeth. 2019 Jan-Mar;10(1):1-22. doi: 10.1080/23294515.2018.1546241. Epub 2018 Dec 31.

PMID:
30596322
13.

The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations.

Amendola LM, Berg JS, Horowitz CR, Angelo F, Bensen JT, Biesecker BB, Biesecker LG, Cooper GM, East K, Filipski K, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hassmiller-Lich K, Joseph G, Kenny EE, Koenig BA, Knight S, Kwok PY, Lewis KL, McGuire AL, Norton ME, Ou J, Parsons DW, Powell BC, Risch N, Robinson M, Rini C, Scollon S, Slavotinek AM, Veenstra DL, Wasserstein MP, Wilfond BS, Hindorff LA; CSER consortium, Plon SE, Jarvik GP.

Am J Hum Genet. 2018 Sep 6;103(3):319-327. doi: 10.1016/j.ajhg.2018.08.007.

14.

Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.

Johnston J, Lantos JD, Goldenberg A, Chen F, Parens E, Koenig BA; members of the NSIGHT Ethics and Policy Advisory Board.

Hastings Cent Rep. 2018 Jul;48 Suppl 2:S2-S6. doi: 10.1002/hast.874.

PMID:
30133723
15.

Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience.

Porter KM, Kauffman TL, Koenig BA, Lewis KL, Rehm HL, Richards CS, Strande NT, Tabor HK, Wolf SM, Yang Y, Amendola LM, Azzariti DR, Berg JS, Bergstrom K, Biesecker LG, Biswas S, Bowling KM, Chung WK, Clayton EW, Conlin LK, Cooper GM, Dulik MC, Garraway LA, Ghazani AA, Green RC, Hiatt SM, Jamal SM, Jarvik GP, Goddard KAB, Wilfond BS; members of the CSER Actionability and Return of Results Working Group.

Mol Genet Genomic Med. 2018 Nov;6(6):898-909. doi: 10.1002/mgg3.453. Epub 2018 Aug 21.

16.

Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.

Wolf SM, Scholtes E, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS.

J Law Med Ethics. 2018 Mar;46(1):87-109. doi: 10.1177/1073110518766024. Epub 2018 Mar 27. No abstract available.

17.

"Why did I get that part of you?" Understanding addiction genetics through family history.

Dingel MJ, Ostergren J, Koenig BA, McCormick J.

Public Underst Sci. 2019 Jan;28(1):53-67. doi: 10.1177/0963662518785350. Epub 2018 Jun 27.

PMID:
29947292
18.

Natural history of lesions suspicious for basal cell carcinoma in older adults in Ikaria, Greece.

Wehner MR, Dalma N, Landefeld C, Pare-Anastasiadou A, Koutelidas I, Chren MM, Aji N, Teng CE, Koenig BA, Tang J, Covinsky K, Linos E.

Br J Dermatol. 2018 Sep;179(3):767-768. doi: 10.1111/bjd.16730. Epub 2018 Jul 12. No abstract available.

19.

Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners.

Radecki Breitkopf C, Wolf SM, Chaffee KG, Robinson ME, Lindor NM, Gordon DR, Koenig BA, Petersen GM.

J Empir Res Hum Res Ethics. 2018 Jul;13(3):295-304. doi: 10.1177/1556264618769165. Epub 2018 Apr 27.

20.

"I don't have to know why it snows, I just have to shovel it!": Addiction Recovery, Genetic Frameworks, and Biological Citizenship.

Dingel MJ, Ostergren J, Heaney K, Koenig BA, McCormick J.

Biosocieties. 2017 Dec;12(4):568-587. doi: 10.1057/s41292-017-0045-4. Epub 2017 Jul 11.

21.

Physician Perception of Pay Fairness and its Association with Work Satisfaction, Intent to Leave Practice, and Personal Health.

Kao AC, Jager AJ, Koenig BA, Moller AC, Tutty MA, Williams GC, Wright SM.

J Gen Intern Med. 2018 Jun;33(6):812-817. doi: 10.1007/s11606-017-4303-8. Epub 2018 Jan 29.

22.

Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories.

Ackerman SL, Koenig BA.

AJOB Empir Bioeth. 2018 Jan-Mar;9(1):48-57. doi: 10.1080/23294515.2017.1405095. Epub 2017 Dec 21.

PMID:
29131714
23.

Creating a data resource: what will it take to build a medical information commons?

Deverka PA, Majumder MA, Villanueva AG, Anderson M, Bakker AC, Bardill J, Boerwinkle E, Bubela T, Evans BJ, Garrison NA, Gibbs RA, Gentleman R, Glazer D, Goldstein MM, Greely H, Harris C, Knoppers BM, Koenig BA, Kohane IS, La Rosa S, Mattison J, O'Donnell CJ, Rai AK, Rehm HL, Rodriguez LL, Shelton R, Simoncelli T, Terry SF, Watson MS, Wilbanks J, Cook-Deegan R, McGuire AL.

Genome Med. 2017 Sep 22;9(1):84. doi: 10.1186/s13073-017-0476-3.

24.

Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium.

Wolf SM, Amendola LM, Berg JS, Chung WK, Clayton EW, Green RC, Harris-Wai J, Henderson GE, Jarvik GP, Koenig BA, Lehmann LS, McGuire AL, O'Rourke P, Somkin C, Wilfond BS, Burke W.

Genet Med. 2018 Apr;20(5):545-553. doi: 10.1038/gim.2017.137. Epub 2017 Aug 31.

25.

Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience.

Gollust SE, Gray SW, Carere DA, Koenig BA, Lehmann LS, McGUIRE AL, Sharp RR, Spector-Bagdady K, Wang NA, Green RC, Roberts JS; PGen Study Group.

Milbank Q. 2017 Jun;95(2):291-318. doi: 10.1111/1468-0009.12262. No abstract available.

26.

How California Prepared for Implementation of Physician-Assisted Death: A Primer.

Petrillo LA, Dzeng E, Harrison KL, Forbes L, Scribner B, Koenig BA.

Am J Public Health. 2017 Jun;107(6):883-888. doi: 10.2105/AJPH.2017.303755. Epub 2017 Apr 20.

27.

Ten simple rules for responsible big data research.

Zook M, Barocas S, Boyd D, Crawford K, Keller E, Gangadharan SP, Goodman A, Hollander R, Koenig BA, Metcalf J, Narayanan A, Nelson A, Pasquale F.

PLoS Comput Biol. 2017 Mar 30;13(3):e1005399. doi: 10.1371/journal.pcbi.1005399. eCollection 2017 Mar. No abstract available.

28.

Community recommendations on biobank governance: Results from a deliberative community engagement in California.

Dry SM, Garrett SB, Koenig BA, Brown AF, Burgess MM, Hult JR, Longstaff H, Wilcox ES, Madrigal Contreras SK, Martinez A, Boyd EA, Dohan D.

PLoS One. 2017 Feb 24;12(2):e0172582. doi: 10.1371/journal.pone.0172582. eCollection 2017.

29.

Returning Results in Biobank Research: Global Trends and Solutions.

De Clercq E, Kaye J, Wolf SM, Koenig BA, Elger BS.

Genet Test Mol Biomarkers. 2017 Mar;21(3):128-131. doi: 10.1089/gtmb.2016.0394. Epub 2017 Feb 1. Review.

30.

Newborn Sequencing in Genomic Medicine and Public Health.

Berg JS, Agrawal PB, Bailey DB Jr, Beggs AH, Brenner SE, Brower AM, Cakici JA, Ceyhan-Birsoy O, Chan K, Chen F, Currier RJ, Dukhovny D, Green RC, Harris-Wai J, Holm IA, Iglesias B, Joseph G, Kingsmore SF, Koenig BA, Kwok PY, Lantos J, Leeder SJ, Lewis MA, McGuire AL, Milko LV, Mooney SD, Parad RB, Pereira S, Petrikin J, Powell BC, Powell CM, Puck JM, Rehm HL, Risch N, Roche M, Shieh JT, Veeraraghavan N, Watson MS, Willig L, Yu TW, Urv T, Wise AL.

Pediatrics. 2017 Feb;139(2). pii: e20162252. doi: 10.1542/peds.2016-2252. Epub 2017 Jan 17.

31.

If you build it, they will come: unintended future uses of organised health data collections.

O'Doherty KC, Christofides E, Yen J, Bentzen HB, Burke W, Hallowell N, Koenig BA, Willison DJ.

BMC Med Ethics. 2016 Sep 6;17(1):54. doi: 10.1186/s12910-016-0137-x. Review.

32.

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium.

Am J Hum Genet. 2016 Jul 7;99(1):246. doi: 10.1016/j.ajhg.2016.06.002. No abstract available.

33.

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium.

Am J Hum Genet. 2016 Jun 2;98(6):1051-1066. doi: 10.1016/j.ajhg.2016.04.011. Epub 2016 May 12. Erratum in: Am J Hum Genet. 2016 Jul 7;99(1):246.

34.

Parental Views on Expanded Newborn Screening Using Whole-Genome Sequencing.

Joseph G, Chen F, Harris-Wai J, Puck JM, Young C, Koenig BA.

Pediatrics. 2016 Jan;137 Suppl 1:S36-46. doi: 10.1542/peds.2015-3731H.

35.

Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide.

Wolf SM, Burke W, Koenig BA.

J Law Med Ethics. 2015 Fall;43(3):486-501. doi: 10.1111/jlme.12291.

36.

Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.

Breitkopf CR, Petersen GM, Wolf SM, Chaffee KG, Robinson ME, Gordon DR, Lindor NM, Koenig BA.

J Law Med Ethics. 2015 Fall;43(3):464-75. doi: 10.1111/jlme.12289.

37.

Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.

Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS.

J Law Med Ethics. 2015 Fall;43(3):440-63. doi: 10.1111/jlme.12288.

38.

Dying in the Hospital: Perspectives of family members.

Dose AM, Carey EC, Rhudy LM, Chiu Y, Frimannsdottir K, Ottenberg AL, Koenig BA.

J Palliat Care. 2015;31(1):13-20.

PMID:
26399086
39.

The media and behavioral genetics: Alternatives coexisting with addiction genetics.

Dingel MJ, Ostergren J, McCormick JB, Hammer R, Koenig BA.

Sci Technol Human Values. 2015 Jul 1;40(4):459-486.

40.

Professionally Responsible Disclosure of Genomic Sequencing Results in Pediatric Practice.

McCullough LB, Brothers KB, Chung WK, Joffe S, Koenig BA, Wilfond B, Yu JH; Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group.

Pediatrics. 2015 Oct;136(4):e974-82. doi: 10.1542/peds.2015-0624. Epub 2015 Sep 14.

41.

Linking Broad Consent to Biobank Governance: Support From a Deliberative Public Engagement in California.

Garrett SB, Dohan D, Koenig BA.

Am J Bioeth. 2015;15(9):56-7. doi: 10.1080/15265161.2015.1062177. No abstract available.

42.

Unwarranted optimism in media portrayals of genetic research on addiction overshadows critical ethical and social concerns.

Ostergren JE, Dingel MJ, McCormick JB, Koenig BA.

J Health Commun. 2015;20(5):555-65. doi: 10.1080/10810730.2014.999895. Epub 2015 Mar 25.

43.

EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California.

Garrett SB, Koenig BA, Brown A, Hult JR, Boyd EA, Dry S, Dohan D; in collaboration with UC BRAID.

Clin Transl Sci. 2015 Aug;8(4):362-6. doi: 10.1111/cts.12259. Epub 2015 Jan 10.

44.

Have we asked too much of consent?

Koenig BA.

Hastings Cent Rep. 2014 Jul-Aug;44(4):33-4. doi: 10.1002/hast.329. No abstract available.

45.

Challenges in translational research: the views of addiction scientists.

Ostergren JE, Hammer RR, Dingel MJ, Koenig BA, McCormick JB.

PLoS One. 2014 Apr 4;9(4):e93482. doi: 10.1371/journal.pone.0093482. eCollection 2014.

46.

Listening in on difficult conversations: an observational, multi-center investigation of real-time conversations in medical oncology.

Kimball BC, James KM, Yost KJ, Fernandez CA, Kumbamu A, Leppin AL, Robinson ME, Geller G, Roter DL, Larson SM, Lenz HJ, Garcia AA, Braddock CH, Jatoi A, de Nuncio ML, Montori VM, Koenig BA, Tilburt JC.

BMC Cancer. 2013 Oct 4;13:455. doi: 10.1186/1471-2407-13-455.

47.

Stakeholder engagement: a key component of integrating genomic information into electronic health records.

Hartzler A, McCarty CA, Rasmussen LV, Williams MS, Brilliant M, Bowton EA, Clayton EW, Faucett WA, Ferryman K, Field JR, Fullerton SM, Horowitz CR, Koenig BA, McCormick JB, Ralston JD, Sanderson SC, Smith ME, Trinidad SB.

Genet Med. 2013 Oct;15(10):792-801. doi: 10.1038/gim.2013.127. Epub 2013 Sep 12. Review.

48.

Ethical, legal, and social implications of incorporating genomic information into electronic health records.

Hazin R, Brothers KB, Malin BA, Koenig BA, Sanderson SC, Rothstein MA, Williams MS, Clayton EW, Kullo IJ.

Genet Med. 2013 Oct;15(10):810-6. doi: 10.1038/gim.2013.117. Epub 2013 Sep 12. Review.

49.

The Mayo Clinic Biobank: a building block for individualized medicine.

Olson JE, Ryu E, Johnson KJ, Koenig BA, Maschke KJ, Morrisette JA, Liebow M, Takahashi PY, Fredericksen ZS, Sharma RG, Anderson KS, Hathcock MA, Carnahan JA, Pathak J, Lindor NM, Beebe TJ, Thibodeau SN, Cerhan JR.

Mayo Clin Proc. 2013 Sep;88(9):952-62. doi: 10.1016/j.mayocp.2013.06.006. Erratum in: Mayo Clin Proc. 2014 Feb;89(2):276.

50.

Point-counterpoint. Ethics and genomic incidental findings.

McGuire AL, Joffe S, Koenig BA, Biesecker BB, McCullough LB, Blumenthal-Barby JS, Caulfield T, Terry SF, Green RC.

Science. 2013 May 31;340(6136):1047-8. doi: 10.1126/science.1240156. Epub 2013 May 16. No abstract available.

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