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Items: 26

1.

Heritable Genome Editing: Who Speaks for "Future" Children?

Knoppers BM, Kleiderman E.

CRISPR J. 2019 Oct;2(5):285-292. doi: 10.1089/crispr.2019.0019.

PMID:
31599679
2.

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia.

Milne R, Morley KI, Howard H, Niemiec E, Nicol D, Critchley C, Prainsack B, Vears D, Smith J, Steed C, Bevan P, Atutornu J, Farley L, Goodhand P, Thorogood A, Kleiderman E, Middleton A; Participant Values Work Stream of the Global Alliance for Genomics and Health.

Hum Genet. 2019 Sep 17. doi: 10.1007/s00439-019-02062-0. [Epub ahead of print]

PMID:
31531740
3.

Human germline genome editing is illegal in Canada, but could it be desirable for some members of the rare disease community?

Kleiderman E, Stedman INK.

J Community Genet. 2019 Aug 16. doi: 10.1007/s12687-019-00430-x. [Epub ahead of print] Review.

PMID:
31420817
4.

Canada's Assisted Human Reproduction Act: Pragmatic Reforms in Support of Research.

Bubela T, Kleiderman E, Master Z, Ogbogu U, Ravitsky V, Zarzeczny A, Knoppers BM.

Front Med (Lausanne). 2019 Jul 10;6:157. doi: 10.3389/fmed.2019.00157. eCollection 2019.

5.

The 'serious' factor in germline modification.

Kleiderman E, Ravitsky V, Knoppers BM.

J Med Ethics. 2019 Aug;45(8):508-513. doi: 10.1136/medethics-2019-105436. Epub 2019 Jul 20.

6.

Realigning gene editing with clinical research ethics: What the "CRISPR Twins" debacle means for Chinese and international research ethics governance.

Kleiderman E, Ogbogu U.

Account Res. 2019 May;26(4):257-264. doi: 10.1080/08989621.2019.1617138. Epub 2019 May 17.

PMID:
31068009
7.

"CRISPR babies": What does this mean for science and Canada?

Knoppers BM, Kleiderman E.

CMAJ. 2019 Jan 28;191(4):E91-E92. doi: 10.1503/cmaj.181657. No abstract available.

PMID:
30692104
8.

Attitudes of publics who are unwilling to donate DNA data for research.

Middleton A, Milne R, Thorogood A, Kleiderman E, Niemiec E, Prainsack B, Farley L, Bevan P, Steed C, Smith J, Vears D, Atutornu J, Howard HC, Morley KI.

Eur J Med Genet. 2019 May;62(5):316-323. doi: 10.1016/j.ejmg.2018.11.014. Epub 2018 Nov 23.

9.

Overcoming barriers to facilitate the regulation of multi-centre regenerative medicine clinical trials.

Kleiderman E, Boily A, Hasilo C, Knoppers BM.

Stem Cell Res Ther. 2018 Nov 8;9(1):307. doi: 10.1186/s13287-018-1055-2. Review.

10.

Pre-implantation Genetic Diagnosis: The Road Forward in Canada.

Ravitsky V, Nguyen MT, Birko S, Kleiderman E, Laberge AM, Knoppers BM.

J Obstet Gynaecol Can. 2019 Jan;41(1):68-71. doi: 10.1016/j.jogc.2018.08.001. Epub 2018 Oct 22.

PMID:
30361155
11.

Bridging stem cell research and medicine: a learning health system.

Touré SB, Kleiderman E, Knoppers BM.

Regen Med. 2018 Sep;13(6):741-752. doi: 10.2217/rme-2017-0129. Epub 2018 Jul 25.

12.

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods.

Middleton A, Niemiec E, Prainsack B, Bobe J, Farley L, Steed C, Smith J, Bevan P, Bonhomme N, Kleiderman E, Thorogood A, Schickhardt C, Garattini C, Vears D, Littler K, Banner N, Scott E, Kovalevskaya NV, Levin E, Morley KI, Howard HC.

Per Med. 2018 Jul 1;15(4):311-318. doi: 10.2217/pme-2018-0032. Epub 2018 Jun 1.

13.

Genetically Enhanced Minors: Whose Responsibility?

Kleiderman E, Boily A, Knoppers BM.

Am J Bioeth. 2018 Jun;18(6):1-3. doi: 10.1080/15265161.2018.1459941. No abstract available.

PMID:
29852118
14.

Research on Human Embryos and Reproductive Materials: Revisiting Canadian Law and Policy.

Ogbogu U, Zarzeczny A, Baltz J, Bedford P, Du J, Hyun I, Jaafar Y, Jurisicova A, Kleiderman E, Koukio Y, Knoppers BM, Leader A, Master Z, Nguyen MT, Noohi F, Ravitsky V, Toews M.

Healthc Policy. 2018 Feb;13(3):10-19. doi: 10.12927/hcpol.2018.25401.

15.

The author who wasn't there? Fairness and attribution in publications following access to population biobanks.

Kleiderman E, Pack A, Borry P, Zawati M.

PLoS One. 2018 Mar 23;13(3):e0194997. doi: 10.1371/journal.pone.0194997. eCollection 2018.

16.

APPLaUD: access for patients and participants to individual level uninterpreted genomic data.

Thorogood A, Bobe J, Prainsack B, Middleton A, Scott E, Nelson S, Corpas M, Bonhomme N, Rodriguez LL, Murtagh M, Kleiderman E; Participant Values Task Team of the Global Alliance for Genomics and Health.

Hum Genomics. 2018 Feb 17;12(1):7. doi: 10.1186/s40246-018-0139-5. Review.

17.

A blueprint for the next generation of ELSI research, training, and outreach in regenerative medicine.

Illes J, Sipp D, Kleiderman E, Benjaminy S, Isasi R, Lomax G, Master Z, McCormick J, Ogbogu U, Ravitsky V, Robillard JM, Rossi F, Wilson B, Zarzeczny A.

NPJ Regen Med. 2017 Jul 5;2:21. doi: 10.1038/s41536-017-0026-z. eCollection 2017. Review.

18.

Human gene editing: revisiting Canadian policy.

Knoppers BM, Isasi R, Caulfield T, Kleiderman E, Bedford P, Illes J, Ogbogu U, Ravitsky V, Rudnicki M.

NPJ Regen Med. 2017 Jan 5;2:3. doi: 10.1038/s41536-017-0007-2. eCollection 2017. No abstract available.

19.

Key challenges in bringing CRISPR-mediated somatic cell therapy into the clinic.

Nicol D, Eckstein L, Morrison M, Sherkow JS, Otlowski M, Whitton T, Bubela T, Burdon KP, Chalmers D, Chan S, Charlesworth J, Critchley C, Crossley M, de Lacey S, Dickinson JL, Hewitt AW, Kamens J, Kato K, Kleiderman E, Kodama S, Liddicoat J, Mackey DA, Newson AJ, Nielsen J, Wagner JK, McWhirter RE.

Genome Med. 2017 Sep 25;9(1):85. doi: 10.1186/s13073-017-0475-4.

20.

Mitochondrial Replacement Therapy: The Road to the Clinic in Canada.

Knoppers BM, Leader A, Hume S, Shoubridge EA, Isasi R, Noohi F, Ogbogu U, Ravitsky V, Kleiderman E.

J Obstet Gynaecol Can. 2017 Oct;39(10):916-918. doi: 10.1016/j.jogc.2017.05.007. Epub 2017 Jul 18. No abstract available.

PMID:
28733061
21.

Disease Resistance and the Definition of Genetic Enhancement.

So D, Kleiderman E, Touré SB, Joly Y.

Front Genet. 2017 Apr 10;8:40. doi: 10.3389/fgene.2017.00040. eCollection 2017.

22.

GENETIC TECHNOLOGY REGULATION. Editing policy to fit the genome?

Isasi R, Kleiderman E, Knoppers BM.

Science. 2016 Jan 22;351(6271):337-9. doi: 10.1126/science.aad6778. No abstract available.

PMID:
26797999
23.

Disclosure of incidental findings in cancer genomic research: investigators' perceptions on obligations and barriers.

Kleiderman E, Avard D, Besso A, Ali-Khan S, Sauvageau G, Hébert J.

Clin Genet. 2015 Oct;88(4):320-6. doi: 10.1111/cge.12540. Epub 2014 Dec 9.

PMID:
25492269
24.

Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases.

Kleiderman E, Knoppers BM, Fernandez CV, Boycott KM, Ouellette G, Wong-Rieger D, Adam S, Richer J, Avard D.

J Med Ethics. 2014 Oct;40(10):691-6. doi: 10.1136/medethics-2013-101648. Epub 2013 Dec 19.

25.

Exploring resources for intrafamilial communication of cancer genetic risk: we still need to talk.

McClellan KA, Kleiderman E, Black L, Bouchard K, Dorval M, Simard J, Knoppers BM, Avard D.

Eur J Hum Genet. 2013 Sep;21(9):903-10. doi: 10.1038/ejhg.2012.286. Epub 2013 Jan 23.

26.

Recruiting terminally ill patients into non-therapeutic oncology studies: views of health professionals.

Kleiderman E, Avard D, Black L, Diaz Z, Rousseau C, Knoppers BM.

BMC Med Ethics. 2012 Dec 5;13:33. doi: 10.1186/1472-6939-13-33.

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